scholarly journals Long-Term Condition Self-Management Support in Online Communities: A Meta-Synthesis of Qualitative Papers

2016 ◽  
Vol 18 (3) ◽  
pp. e61 ◽  
Author(s):  
Chris Allen ◽  
Ivaylo Vassilev ◽  
Anne Kennedy ◽  
Anne Rogers
Keyword(s):  
Online Communities ◽  
Self Management ◽  
Management Support ◽  
Term Condition

scholarly journals Goal setting in group programmes for long-term condition self-management support: experiences of patients and healthcare professionals

2019 ◽  
Vol 35 (1) ◽  
pp. 70-86 ◽  
Author(s):  
Stephen Hughes ◽  
Sophie Lewis ◽  
Karen Willis ◽  
Anne Rogers ◽  
Sally Wyke ◽  
...  
Keyword(s):  
Goal Setting ◽  
Healthcare Professionals ◽  
Self Management ◽  
Management Support ◽  
Term Condition

scholarly journals Participants’ experiences of and perceived value regarding different support types for long-term condition self-management programmes

2019 ◽  
pp. 174239531986943 ◽  
Author(s):  
Stephen Hughes ◽  
Sophie Lewis ◽  
Karen Willis ◽  
Anne Rogers ◽  
Sally Wyke ◽  
...  
Keyword(s):  
Lived Experience ◽  
Professional Training ◽  
Self Management ◽  
Chronic Obstructive ◽  
Management Support ◽  
Structured Interviews ◽  
Obstructive Pulmonary Disease ◽  
Term Condition ◽  
Group Programme

Objectives Health professional-led group programmes are a common form of long-term condition self-management support. Much research has focused on clinical outcomes of group participation, yet there is limited research on how group participants perceive and experience the support they receive. We aim to identify the different types of support that participants receive from both facilitators and other participants, and how they value this support. Methods Semi-structured interviews were conducted with 20 participants taking part in a self-management group programme for a long-term condition (obesity, type 2 diabetes or chronic obstructive pulmonary disease). Data pertaining to support types were deductively identified through a social support framework prior to interpretive thematic analysis. Results Participants identified information and emotional support from both facilitators and other participants as complementary yet distinct. Facilitators’ support came from professional training and other participants’ support reflected the contextual, lived experience. Professional interactions were prioritised, constraining opportunities for participant–participant support to be received and exchanged. Discussion We identified a key gap in how self-management support is enacted in groups. Engaging participants to share experiential knowledge will make group support more relevant and mutually beneficial to participants living with a long-term condition.

scholarly journals How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities (Preprint)

2018 ◽  
Author(s):  
Sagar Joglekar ◽  
Nishanth Sastry ◽  
Neil S Coulson ◽  
Stephanie JC Taylor ◽  
Anita Patel ◽  
...  
Keyword(s):  
Health Care ◽  
Network Analysis ◽  
Online Communities ◽  
Self Management ◽  
Management Support ◽  
Long Term Conditions ◽  
Research Attention ◽  
Structure And Dynamics ◽  
Over Time

BACKGROUND Self-management support can improve health and reduce health care utilization by people with long-term conditions. Online communities for people with long-term conditions have the potential to influence health, usage of health care resources, and facilitate illness self-management. Only recently, however, has evidence been reported on how such communities function and evolve, and how they support self-management of long-term conditions in practice. OBJECTIVE The aim of this study is to gain a better understanding of the mechanisms underlying online self-management support systems by analyzing the structure and dynamics of the networks connecting users who write posts over time. METHODS We conducted a longitudinal network analysis of anonymized data from 2 patients’ online communities from the United Kingdom: the Asthma UK and the British Lung Foundation (BLF) communities in 2006-2016 and 2012-2016, respectively. RESULTS The number of users and activity grew steadily over time, reaching 3345 users and 32,780 posts in the Asthma UK community, and 19,837 users and 875,151 posts in the BLF community. People who wrote posts in the Asthma UK forum tended to write at an interval of 1-20 days and six months, while those in the BLF community wrote at an interval of two days. In both communities, most pairs of users could reach one another either directly or indirectly through other users. Those who wrote a disproportionally large number of posts (the superusers) represented 1% of the overall population of both Asthma UK and BLF communities and accounted for 32% and 49% of the posts, respectively. Sensitivity analysis showed that the removal of superusers would cause the communities to collapse. Thus, interactions were held together by very few superusers, who posted frequently and regularly, 65% of them at least every 1.7 days in the BLF community and 70% every 3.1 days in the Asthma UK community. Their posting activity indirectly facilitated tie formation between other users. Superusers were a constantly available resource, with a mean of 80 and 20 superusers active at any one time in the BLF and Asthma UK communities, respectively. Over time, the more active users became, the more likely they were to reply to other users’ posts rather than to write new ones, shifting from a help-seeking to a help-giving role. This might suggest that superusers were more likely to provide than to seek advice. CONCLUSIONS In this study, we uncover key structural properties related to the way users interact and sustain online health communities. Superusers’ engagement plays a fundamental sustaining role and deserves research attention. Further studies are needed to explore network determinants of the effectiveness of online engagement concerning health-related outcomes. In resource-constrained health care systems, scaling up online communities may offer a potentially accessible, wide-reaching and cost-effective intervention facilitating greater levels of self-management.

Systemic Models of Self-Management

2017 ◽  
pp. 499-520
Keyword(s):  
Chronic Care Model ◽  
Chronic Health Condition ◽  
Health Condition ◽  
Self Management ◽  
Management Support ◽  
Integrated Healthcare ◽  
Chronic Health ◽  
Policy Analysts ◽  
Definition Of

Researchers and healthcare policy analysts have called for systemic change in healthcare systems, because those systems typically do not incorporate long-term planning of chronic health condition care. There is an international movement to create comprehensive, integrated healthcare models that can better assist individuals who have chronic health conditions. This chapter includes a discussion of the definition of self-management support (SMS) and how it is different from self-management, a description of the typical components of SMS interventions, how SMS is different than disease management programs, and some examples of SMS programs. This chapter also covers several systemic models of self-management, including the Chronic Care Model and the Innovative Care for the Chronic Conditions Framework. It ends with brief sections on the economic reasons to promote SMS and integrated healthcare and on the future of self-management.

Equity and long-term condition self-management

2011 ◽  
Vol 7 (1) ◽  
pp. 3-5 ◽  
Author(s):  
John Furler ◽  
Mark Harris ◽  
Anne Rogers
Keyword(s):  
Self Management ◽  
Term Condition

scholarly journals The complexity of food for people with multiple long-term health conditions

2018 ◽  
Vol 10 (3) ◽  
pp. 186 ◽  
Author(s):  
Helen Francis ◽  
Jenny Carryer ◽  
Jill Wilkinson
Keyword(s):  
Health Conditions ◽  
Self Management ◽  
Management Support ◽  
Cultural Significance ◽  
Structured Interviews ◽  
Qualitative Case Studies ◽  
Clinical Encounters ◽  
Nutritional Advice ◽  
Primary Care Clinicians

ABSTRACT INTRODUCTION The prevalence of long-term health conditions (LTCs) continues to increase and it is normal for people to have several. Lifestyle is a core feature of the self-management support given to people with LTCs, yet it seems to fail to meet their needs. From a larger study exploring the experiences of this group, this paper reports on the role of food and mealtimes, and the effect of the nutritional advice on the lives of people with several LTCs. METHODS The experiences of 16 people with several advanced LTCs were explored using multiple qualitative case studies. Over an 18-month period, contact with participants included monthly conversations, two longer, semi-structured interviews and one interview with their primary care clinicians. The data were analysed inductively using thematic analysis. RESULTS There was profound social, psychological and cultural significance of food to the participants. These aspects of food were then described using the Whare Tapa Wha model of health. The approach to food and nutrition participants experienced in health care was closely associated with conventional weight management. They found this advice largely irrelevant and therefore ineffective. DISCUSSION The pressure people with several LTCs experience during clinical encounters has perverse effects on wellbeing and reinforces an overall sense of failure. This research challenges the assumption that all people have the will, agency and income to follow the advice they receive about nutrition and exercise. Considering people’s needs using the Whare Tapa Wha model of health offers clinicians a framework to re-conceptualise the core features of self-management support and provide realistic, compassionate care that will optimise the quality of life for people with multiple LTCs.

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