scholarly journals Integrating Patient Reported Outcomes With Clinical Cancer Registry Data: A Feasibility Study of the Electronic Patient-Reported Outcomes From Cancer Survivors (ePOCS) System

2013 ◽  
Vol 15 (10) ◽  
pp. e230 ◽  
Author(s):  
Laura Ashley ◽  
Helen Jones ◽  
James Thomas ◽  
Alex Newsham ◽  
Amy Downing ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Feasibility Study ◽  
Cancer Registry ◽  
Patient Reported Outcomes ◽  
Registry Data ◽  
Clinical Cancer Registry ◽  
Clinical Cancer ◽  
Cancer Registry Data ◽  
Patient Reported

scholarly journals The feasibility of web surveys for obtaining patient-reported outcomes from cancer survivors: a randomized experiment comparing survey modes and brochure enclosures

2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Morgan M. Millar ◽  
Joanne W. Elena ◽  
Lisa Gallicchio ◽  
Sandra L. Edwards ◽  
Marjorie E. Carter ◽  
...  
Keyword(s):  
Confidence Interval ◽  
Cancer Survivors ◽  
Cancer Registry ◽  
Patient Reported Outcomes ◽  
Web Surveys ◽  
Adjusted Risk ◽  
Adjusted Risk Ratio ◽  
Patient Reported ◽  
Paper Survey ◽  
Survey Modes

Abstract Background Central cancer registries are often used to survey population-based samples of cancer survivors. These surveys are typically administered via paper or telephone. In most populations, web surveys obtain much lower response rates than paper surveys. This study assessed the feasibility of web surveys for collecting patient-reported outcomes via a central cancer registry. Methods Potential participants were sampled from Utah Cancer Registry records. Sample members were randomly assigned to receive a web or paper survey, and then randomized to either receive or not receive an informative brochure describing the cancer registry. We calculated adjusted risk ratios with 95% confidence intervals to compare response likelihood and the demographic profile of respondents across study arms. Results The web survey response rate (43.2%) was lower than the paper survey (50.4%), but this difference was not statistically significant (adjusted risk ratio = 0.88, 95% confidence interval = 0.72, 1.07). The brochure also did not significantly influence the proportion responding (adjusted risk ratio = 1.03, 95% confidence interval = 0.85, 1.25). There were few differences in the demographic profiles of respondents across the survey modes. Older age increased likelihood of response to a paper questionnaire but not a web questionnaire. Conclusions Web surveys of cancer survivors are feasible without significantly influencing response rates, but providing a paper response option may be advisable particularly when surveying older individuals. Further examination of the varying effects of brochure enclosures across different survey modes is warranted.

Using patient-reported outcomes measures to tailor care for complex cancer survivors: A feasibility study of HN-STAR.

2018 ◽  
Vol 36 (15_suppl) ◽  
pp. e22210-e22210
Author(s):  
Talya Salz ◽  
Andrew L. Salner ◽  
Nirupa Jaya Raghunathan ◽  
Mary S. McCabe ◽  
Ellen Dornelas ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Feasibility Study ◽  
Patient Reported Outcomes ◽  
Outcomes Measures ◽  
Patient Reported

scholarly journals Getting cancer prevalence right: using state cancer registry data to estimate cancer survivors

2011 ◽  
Vol 22 (5) ◽  
pp. 765-773 ◽  
Author(s):  
William R. Carpenter ◽  
Wei-Shi Yeh ◽  
Sara E. Wobker ◽  
Paul A. Godley
Keyword(s):  
Cancer Survivors ◽  
Cancer Registry ◽  
Registry Data ◽  
Cancer Prevalence ◽  
Cancer Registry Data
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