scholarly journals Crowdsourced Health Research Studies: An Important Emerging Complement to Clinical Trials in the Public Health Research Ecosystem

2012 ◽  
Vol 14 (2) ◽  
pp. e46 ◽  
Author(s):  
Melanie Swan
Keyword(s):  
Public Health ◽  
Clinical Trials ◽  
Health Research ◽  
Public Health Research ◽  
The Public ◽  
Research Studies

scholarly journals Fast Healthcare Interoperability Resources (FHIR) in a FAIR Metadata Registry for COVID-19 Research

2021 ◽  
Author(s):  
Sophie Anne Ines Klofenstein ◽  
Carina Nina Vorisek ◽  
Aliaksandra Shutsko ◽  
Moritz Lehne ◽  
Julian Sass ◽  
...  
Keyword(s):  
Public Health ◽  
Health Research ◽  
Public Health Research ◽  
International Standards ◽  
Metadata Schema ◽  
Research Communities ◽  
Resource Type ◽  
Research Studies

Adopting international standards within health research communities can elevate data FAIRness and widen analysis possibilities. The purpose of this study was to evaluate the mapping feasibility against HL7® Fast Healthcare Interoperability Resources® (FHIR)® of a generic metadata schema (MDS) created for a central search hub gathering COVID-19 health research (studies, questionnaires, documents = MDS resource types). Mapping results were rated by calculating the percentage of FHIR coverage. Among 86 items to map, total mapping coverage was 94%: 50 (58%) of the items were available as standard resources in FHIR and 31 (36%) could be mapped using extensions. Five items (6%) could not be mapped to FHIR. Analyzing each MDS resource type, there was a total mapping coverage of 93% for studies and 95% for questionnaires and documents, with 61% of the MDS items available as standard resources in FHIR for studies, 57% for questionnaires and 52% for documents. Extensions in studies, questionnaires and documents were used in 32%, 38% and 43% of items, respectively. This work shows that FHIR can be used as a standardized format in registries for clinical, epidemiological and public health research. However, further adjustments to the initial MDS are recommended – and two additional items even needed when implementing FHIR. Developing a MDS based on the FHIR standard could be a future approach to reduce data ambiguity and foster interoperability.

scholarly journals Public Health Research Ethics and Clinical Research Ethics. How we differentiate?

2019 ◽  
Vol 9 (2) ◽  
pp. 22-25
Author(s):  
Zoheb Rafique
Keyword(s):  
Public Health ◽  
Clinical Trials ◽  
Clinical Research ◽  
Research Ethics ◽  
Health Research ◽  
Public Health Research

This article talks about both clinical research ethics and public health research ethics. Clinical research ethics are defined as set of relevant ethics considered necessary for the conduct of clinical trials in field of the clinical research. While public health research ethics is mainly aimed at finding out what is best for the communities and the populations rather than the individuals. Research ethics is mainly focused on the protection of individual participants and some of the research norms and accepted principles may be challenging when applying in some of the research contexts.  

scholarly journals Enhancing Diversity in the Public Health Research Workforce: The Research and Mentorship Program for Future HIV Vaccine Scientists

2015 ◽  
Vol 105 (4) ◽  
pp. 823-830 ◽  
Author(s):  
Carrie J. Sopher ◽  
Blythe Jane S. Adamson ◽  
Michele P. Andrasik ◽  
Danna M. Flood ◽  
Steven F. Wakefield ◽  
...  
Keyword(s):  
Public Health ◽  
Health Research ◽  
Public Health Research ◽  
Hiv Vaccine ◽  
Mentorship Program ◽  
The Public ◽  
Research Workforce

scholarly journals Introduction: Public Health and the Promise of Palestine

2020 ◽  
Vol 49 (4) ◽  
pp. 8-26
Author(s):  
Danya M. Qato
Keyword(s):  
Public Health ◽  
Health Research ◽  
Research Agenda ◽  
Settler Colonialism ◽  
Public Health Research ◽  
The Public ◽  
Racial Capitalism ◽  
Special Collection ◽  
Public Health Discourse ◽  
Health Discourse

This introductory essay contextualizes the special collection of papers on the pandemic and seeks to map the terrain of extant public health research on Palestine and the Palestinians. In addition, it is a contribution in Palestine studies to a nascent yet propulsive conversation that has been accelerated by Covid-19 on the erasure of structures of violence, including those of settler colonialism and racial capitalism, within the discipline of epidemiology. Using public health as an analytic, this essay asks us to consider foundational questions that have long been sidelined in the public health discourse on Palestine, including the implications for health and health research of eliding ongoing settler colonialism. Rather than ignoring and reproducing their violence, this essay seeks to tackle these questions head-on in an attempt to imagine a future public health research agenda that centers health, and not simply survivability, for all Palestinians.

scholarly journals Expanding the Public Health Research Agenda for Ovarian Cancer

2009 ◽  
Vol 18 (9) ◽  
pp. 1299-1305 ◽  
Author(s):  
Katrina F. Trivers ◽  
Sherri L. Stewart ◽  
Lucy Peipins ◽  
Sun Hee Rim ◽  
Mary C. White
Keyword(s):  
Public Health ◽  
Ovarian Cancer ◽  
Health Research ◽  
Research Agenda ◽  
Public Health Research ◽  
The Public
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