scholarly journals An Internet Tool for Creation of Cancer Survivorship Care Plans for Survivors and Health Care Providers: Design, Implementation, Use and User Satisfaction

2009 ◽  
Vol 11 (3) ◽  
pp. e39 ◽  
Author(s):  
Christine E Hill-Kayser ◽  
Carolyn Vachani ◽  
Margaret K Hampshire ◽  
Linda A Jacobs ◽  
James M Metz
Keyword(s):  
Health Care ◽  
Cancer Survivorship ◽  
Health Care Providers ◽  
User Satisfaction ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Providers ◽  
Care Plans

Survivorship Perspectives and Advocacy

2006 ◽  
Vol 24 (32) ◽  
pp. 5154-5159 ◽  
Author(s):  
Barbara Hoffman ◽  
Ellen Stovall
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Health Care Providers ◽  
Personal Control ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Providers ◽  
Care Plans ◽  
The Moment

From the moment of diagnosis, a cancer survivor faces serious life-altering decisions. Survivors who are informed about their options and who feel they have personal control over decision making generally perceive a higher quality of life than those who feel less informed and less in control. Health care providers are in a unique position to define a survivor's cancer care and to guide a survivor through treatment and post-treatment care. By implementing survivorship care plans and directing their patients to survivorship resources, health care providers can advocate for survivors and teach them to be effective self-advocates.

scholarly journals “Breaking the Silence” to Improve Cancer Survivorship Care for First Nations Peoples

2018 ◽  
Vol 17 (1) ◽  
pp. 160940691877413
Author(s):  
Wendy Gifford ◽  
Roanne Thomas ◽  
Gwen Barton ◽  
Viviane Grandpierre ◽  
Ian D. Graham
Keyword(s):  
Health Care ◽  
First Nations ◽  
Cancer Survivorship ◽  
Health Care Providers ◽  
Large Scale ◽  
Care Delivery ◽  
Survivorship Care ◽  
Care Providers ◽  
Community Based ◽  
Knowledge To Action

There is a significant knowledge-to-action gap in cancer survivorship care for First Nations (FN) communities. To date, many approaches to survivorship have not been culturally responsive or community-based. This study is using an Indigenous knowledge translation (KT) approach to mobilize community-based knowledge about cancer survivorship into health-care programs. Our team includes health-care providers and cancer survivors from an FN community in Canada and an urban hospital that delivers Cancer Care Ontario’s Aboriginal Cancer Program. Together, we will study the knowledge-to-action process to inform future KT research with Indigenous peoples for improving health-care delivery and outcomes. The study will be conducted in settings where research relations and partnerships have been established through our parent study, The National Picture Project. The inclusion of community liaisons and the continued engagement of participants from our parent study will foster inclusiveness and far-reaching messaging. Knowledge about unique cancer survivorship needs co-created with FN people in the parent study will be mobilized to improve cancer follow-up care and to enhance quality of life. Findings will be used to plan a large-scale implementation study across Canada.

scholarly journals Impact of internet-based cancer survivorship care plans on health care and lifestyle behaviors

Cancer ◽  
2013 ◽  
Vol 119 (21) ◽  
pp. 3854-3860 ◽  
Author(s):  
Christine E. Hill-Kayser ◽  
Carolyn C. Vachani ◽  
Margaret K. Hampshire ◽  
Gloria Di Lullo ◽  
Linda A. Jacobs ◽  
...  
Keyword(s):  
Health Care ◽  
Cancer Survivorship ◽  
Survivorship Care Plans ◽  
Lifestyle Behaviors ◽  
Survivorship Care ◽  
Care Plans

scholarly journals Survivorship care planning in gynecologic oncology: Perspectives from patients, caregivers, and health care providers.

2018 ◽  
Vol 36 (7_suppl) ◽  
pp. 63-63
Author(s):  
Belle Hadewijch de Rooij ◽  
Teresa Hagan ◽  
Kathryn E. Post ◽  
Jane M. Flanagan ◽  
Jeffrey M. Peppercorn ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Gynecological Cancer ◽  
Gynecologic Oncology ◽  
The United States ◽  
Care Planning ◽  
Survivorship Care ◽  
Care Providers ◽  
Care Plans ◽  
Survivorship Care Planning

63 Background: More than a decade after the widespread recommendation of survivorship care plans (SCPs), evidence-based content and processes for providing survivorship care planning in gynecologic oncology remain undefined. This qualitative study sought to characterize the challenges experienced in care after treatment of gynecological cancer and preferences for survivorship care planning among patients, their caregivers and health care providers. Methods: Between July and August 2017, in-depth semi-structured interviews were conducted at a large academic hospital in the United States among patients that recently ended treatment ( < 12 months) of a gynecological cancer (ovarian, endometrial, cervical and vulvar), their caregivers, and health care providers (oncologists, nurses and fellows). Main themes were identified using descriptive content analysis. Results: A total of 30 individuals participated in this study (13 patients, 9 caregivers, 8 health care providers). The vast majority of patients and caregivers (91%) expressed satisfaction for survivorship care, although all reported that remaining needs and ongoing issues remained unaddressed (i.e. distressing symptoms and mood). Almost all (95%) reported a desire for more information on how to address these needs, including issues related to side effects (59%), follow-up planning (32%), and psychological assistance (23%). Preferences for survivorship care planning differed across individuals, with respect to content, timing, and mode of delivery. Some patients did not want a SCP at all (14%). Health care providers expressed that they 1) experience challenges in communicating with patients about survivorship, 2) want to shift the focus to improving quality of life as opposed to focusing on likely disease recurrence, 3) do not currently provide formal SCPs, 4) want disease specific and tailored SCPs to support their survivorship care. Conclusions: Patients, caregivers and health care providers express a need for resources to support survivorship care in gynecologic oncology. The variation of disease types and patient and caregiver needs in this field requires multi-faceted, tailored survivorship care planning.

Supporting survivorship care through comprehensive cancer control technical assistance.

2018 ◽  
Vol 36 (7_suppl) ◽  
pp. 15-15
Author(s):  
Allison Harvey ◽  
Mohammad Khalaf ◽  
Aubrey Villalobos ◽  
Mandi Chapman
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Technical Assistance ◽  
Patient Navigation ◽  
Cancer Control ◽  
Background Information ◽  
Comprehensive Cancer Control ◽  
Survivorship Care ◽  
Care Providers ◽  
Care Plans

15 Background: In 2010, the Centers for Disease Control and Prevention (CDC) issued six priorities for Comprehensive Cancer Control (CCC) programs, including addressing needs of cancer survivors (Seeff, 2010). CCC programs identified need for technical assistance (TA), tools and resources in this area. George Washington University (GW) Cancer Center provides TA on survivorship through a 5-year agreement from CDC and contracts from 5 states. Methods: Since 2013, GW developed three online trainings for health care providers with a focus on survivorship. From 2016-2017, GW delivered four tailored in-person workshops to health care professionals (N = 137). GW also produced a survivorship report and a roadmap to implement the patient navigation standard from the Commission on Cancer: both include background information, sample metrics and implementation resources. Results: Across online trainings for oncology and primary care provider (PCP) learners, a majority of participants (N = 1,983) agreed or strongly agreed their knowledge was enhanced (94.6%) and planned to implement strategies/skills/information learned (79.6%). While content varied for workshops, patient-provider communication, survivorship care plans and patient navigation were common topics presented. The majority (n = 74) agreed or strongly agreed their knowledge was enhanced (82.4%) and planned to implement strategies/skills/information learned (86.4%). The survivorship report has been downloaded 11,000+ times in one year and the roadmap nearly 5,000 times in one month. Conclusions: Based on uptake of TA, GW is meeting a need for CCC programs. However, stakeholder feedback indicates programs continue to desire TA support to meet patient navigation and survivorship care standards. Notably, most PCPs are not familiar with survivorship care, and uptake of trainings aimed at PCPs remains low. Opportunities for further TA to troubleshoot challenges in patient navigation and survivorship care remain.

Role of the nurse in the design, delivery, monitoring and coordination of cancer survivorship care plans: An integrative review

2021 ◽  
Author(s):  
Nerea Elizondo Rodriguez ◽  
Leire Ambrosio ◽  
Virginia La Rosa‐Salas ◽  
Marta Domingo‐Osle ◽  
Cristina Garcia‐Vivar
Keyword(s):  
Cancer Survivorship ◽  
Integrative Review ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Plans

Dissemination of cancer survivorship care plans: who is being left out?

2021 ◽  
Author(s):  
Lava R. Timsina ◽  
Ben Zarzaur ◽  
David A. Haggstrom ◽  
Peter C. Jenkins ◽  
Maryam Lustberg ◽  
...  
Keyword(s):  
Cancer Survivorship ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Plans

scholarly journals Cancer Survivorship Care Plans: What Can Be Learned From Hospital Discharge Summaries?

2012 ◽  
Vol 8 (1) ◽  
pp. 24-29 ◽  
Author(s):  
Larissa Nekhlyudov ◽  
Jeffrey L. Schnipper
Keyword(s):  
Hospital Discharge ◽  
Cancer Survivorship ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Plans ◽  
Discharge Summaries

Exploration of potential lessons from hospital discharge summaries, which may be used to facilitate development, implementation, and testing of survivorship care plans.

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