scholarly journals A Web-Based Coping Intervention by and for Parents of Very Young Children With Type 1 Diabetes: User-Centered Design

JMIR Diabetes ◽  
2018 ◽  
Vol 3 (4) ◽  
pp. e16 ◽  
Author(s):  
Tim Wysocki ◽  
Jessica Pierce ◽  
Cindy Caldwell ◽  
Karen Aroian ◽  
Louis Miller ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young Children ◽  
User Centered Design ◽  
Web Based ◽  
Very Young Children ◽  
User Centered

scholarly journals A Web-Based Coping Intervention by and for Parents of Very Young Children With Type 1 Diabetes: User-Centered Design (Preprint)

2018 ◽  
Author(s):  
Tim Wysocki ◽  
Jessica Pierce ◽  
Cindy Caldwell ◽  
Karen Aroian ◽  
Louis Miller ◽  
...  
Keyword(s):  
Health Care ◽  
Type 1 Diabetes ◽  
Young Children ◽  
Health Care Providers ◽  
User Centered Design ◽  
Care Providers ◽  
Coping Resource ◽  
Web Based ◽  
Very Young Children

BACKGROUND Management of type 1 diabetes (T1D) among children aged <6 years is exceptionally challenging for parents and caregivers. Metabolic and psychosocial outcomes among very young children with T1D (YC-T1D) are tightly associated with their parents’ ability to meet these challenges. There is scant research testing interventions targeting these issues and few resources to equip health care providers with feasible and effective coping strategies for these parents. User-centered design (UCD) of a continuously accessible Web-based resource could be a mechanism for helping parents of YC-T1D cope more effectively with the complex challenges they face by providing them with information, solutions, and emotional support. OBJECTIVE The objectives of this paper are to (1) describe the application of UCD principles to the development of a Web-based coping intervention designed by and for parents of very young children (<6 years old) with T1D; (2) illustrate the use of crowdsourcing methods in obtaining the perspectives of parents, health care providers, and Web development professionals in designing and creating this resource; and (3) summarize the design of an ongoing randomized controlled trial (RCT) that is evaluating the effects of parental access to this resource on pertinent child and parent outcomes. METHODS This paper illustrates the application of UCD principles to create a Web-based coping resource designed by and for parents of YC-T1D. A Web-based Parent Crowd, a Health Care Provider Crowd, and a Focus Group of minority parents provided input throughout the design process. A formal usability testing session and design webinars yielded additional stakeholder input to further refine the end product. RESULTS This paper describes the completed website and the ongoing RCT to evaluate the effects of using this Web-based resource on pertinent parent and child outcomes. CONCLUSIONS UCD principles and the targeted application of crowdsourcing methods provided the foundation for the development, construction, and evaluation of a continuously accessible, archived, user-responsive coping resource designed by and for parents of YC-T1D. The process described here could be a template for the development of similar resources for other special populations that are enduring specific medical or psychosocial distress. The ongoing RCT is the final step in the UCD process and is designed to validate its merits.

Use of diluted insulin in the management of very young children with type 1 diabetes: case report and literature review

2018 ◽  
Author(s):  
A Emile J Hendriks ◽  
Ross L Ewen ◽  
Yoke Sin Hoh ◽  
Nazia Bhatti ◽  
Rachel M Williams ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Case Report ◽  
Young Children ◽  
Literature Review ◽  
Diabetes Case ◽  
Very Young Children

Clinical Presentation and Autoimmune Characteristics of Very Young Children at the Onset of Type 1 Diabetes Mellitus

2010 ◽  
Vol 23 (11) ◽  
Author(s):  
Bizzarri Carla ◽  
Benevento Danila ◽  
Ciampalini Paolo ◽  
Patera Ippolita Patrizia ◽  
Schiaffini Riccardo ◽  
...  
Keyword(s):  
Diabetes Mellitus ◽  
Type 1 Diabetes ◽  
Young Children ◽  
Type 1 Diabetes Mellitus ◽  
Clinical Presentation ◽  
Very Young Children

scholarly journals Iterative development of a web-based intervention for families of young children with type 1 diabetes: DIPPer Academy.

2019 ◽  
Vol 7 (1) ◽  
pp. 20-30
Author(s):  
Arwen M. Marker ◽  
Alexandra D. Monzon ◽  
Kathy J. Goggin ◽  
Mark A. Clements ◽  
Susana R. Patton
Keyword(s):  
Type 1 Diabetes ◽  
Young Children ◽  
Web Based ◽  
Iterative Development

70-OR: Evaluation of the Omnipod 5 Automated Insulin Delivery System in Very Young Children with Type 1 Diabetes (T1D)

Diabetes ◽  
2021 ◽  
Vol 70 (Supplement 1) ◽  
pp. 70-OR
Author(s):  
JENNIFER SHERR ◽  
BRUCE W. BODE ◽  
GREGORY P. FORLENZA ◽  
LORI M. LAFFEL ◽  
SUE A. BROWN ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young Children ◽  
Delivery System ◽  
Insulin Delivery ◽  
Very Young Children ◽  
Insulin Delivery System

Persistence of Benefits of Continuous Subcutaneous Insulin Infusion in Very Young Children With Type 1 Diabetes: A Follow-up Report

PEDIATRICS ◽  
2004 ◽  
Vol 114 (6) ◽  
pp. 1601-1605 ◽  
Author(s):  
S. A. Weinzimer ◽  
J. H. Ahern ◽  
E. A. Doyle ◽  
M. R. Vincent ◽  
J. Dziura ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young Children ◽  
Continuous Subcutaneous Insulin Infusion ◽  
Insulin Infusion ◽  
Subcutaneous Insulin ◽  
Very Young Children

scholarly journals Type 1 diabetes in very young children: a model of parent and child influences on management and outcomes

2015 ◽  
Vol 18 (1) ◽  
pp. 17-25 ◽  
Author(s):  
Jessica S Pierce ◽  
Chelsea Kozikowski ◽  
Joyce M Lee ◽  
Tim Wysocki
Keyword(s):  
Type 1 Diabetes ◽  
Young Children ◽  
Very Young Children
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