scholarly journals The Physical Activity and fitness in Childhood Cancer Survivors (PACCS) Study: Protocol for an international, mixed-methods study (Preprint)

10.2196/35838 ◽  
2021 ◽  
Author(s):  
Hanne C. Lie ◽  
Sigmund Alfred Anderssen ◽  
Corina Silvia Rueegg ◽  
Truls Raastad ◽  
May Grydeland ◽  
...  
Keyword(s):  
Physical Activity ◽  
Mixed Methods ◽  
Cancer Survivors ◽  
Childhood Cancer ◽  
Study Protocol ◽  
Childhood Cancer Survivors ◽  
Mixed Methods Study

scholarly journals Genetics-related service and information needs of childhood cancer survivors and parents: a mixed-methods study

2019 ◽  
Vol 28 (1) ◽  
pp. 6-16 ◽  
Author(s):  
Janine Vetsch ◽  
◽  
Claire E. Wakefield ◽  
Katherine M. Tucker ◽  
Maria McCarthy ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Cancer Survivors ◽  
Childhood Cancer ◽  
Information Needs ◽  
Childhood Cancer Survivors ◽  
Mixed Methods Study ◽  
Related Service

scholarly journals Mixed methods assessment of impact on health awareness in adult childhood cancer survivors after viewing their personalized digital treatment summary and follow-up recommendations

BMC Cancer ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Helena M. Linge ◽  
Cecilia Follin
Keyword(s):  
Health Care ◽  
Mixed Methods ◽  
Health Literacy ◽  
Cancer Survivors ◽  
Childhood Cancer ◽  
Childhood Cancer Survivors ◽  
The Self ◽  
Health Related ◽  
Treatment Summary

Abstract Background The survival rate after childhood cancer has improved to 80%. The majority of childhood cancer survivors (CCS) will experience late complications which require follow up care, including access to their individual cancer treatment summary. The need to understand CCS needs and preferences in terms of ways to receive information e.g. digitally, becomes important. This study aims to through a mixed methods approach a) examine how CCS’ health awareness was impacted by viewing their personalized digital treatment summary and follow-up recommendations, b) explore E health literacy, and c) determine self-reported survivorship experiences and health care usage. Methods Survivors with a recent visit to the Late effects clinic were eligible for the study (n = 70). A representative sample of primary diagnoses were invited (n = 28). 16 CCS were enrolled. Recent medical visits, e health literacy and impressions of the digital treatment summary were assessed by a survey in conjunction with viewing their digital treatment summary on a computer screen. Their experience of reading and understanding their digital treatment summary in the context of their health related survivorship experiences were assessed in focus groups. The transcribed data was analyzed with conventional qualitative content analysis. Results The self-reported medical problems largely reflected that, only 6,3% reported no cancer-related reasons for seeking medical attention. Of the medical specialists, the primary care physician was the most frequently visited specialist (68.8%). High E health literacy was not associated with treatment features but with educational level (p = 0.003, CI: 3.9–14.6) and sex (p = 0.022, CI: − 13.6- -1.3). All survivors graded the digital treatment summary above average in terms of being valuable, agreeable and comprehensive. The focus group interviews identified three themes: 1) The significance of information, 2) The impact of awareness; and 3) Empowerment. Conclusions Reading the treatment summaries furthered the survivors understanding of their health situation and consequently aided empowerment. A digital treatment summary, provided by knowledgeable health care professionals, may increase the self-managed care and adherence to follow-up recommendations. Further insights into e health literacy in larger samples of CCS may determine to what extent health-related information can be communicated via digital resources to this at risk population.

scholarly journals ‘Re-engage’ pilot study protocol: a nurse-led eHealth intervention to re-engage, educate and empower childhood cancer survivors

BMJ Open ◽  
2018 ◽  
Vol 8 (4) ◽  
pp. e022269 ◽  
Author(s):  
Christina Signorelli ◽  
Claire E Wakefield ◽  
Karen A Johnston ◽  
Joanna E Fardell ◽  
Mary-Ellen E Brierley ◽  
...  
Keyword(s):  
Pilot Study ◽  
Cancer Survivors ◽  
Childhood Cancer ◽  
Study Protocol ◽  
Childhood Cancer Survivors ◽  
Ehealth Intervention

The Effect of Physical Activity on the Mental and Physical Health of Childhood Cancer Survivors

2014 ◽  
Vol 46 ◽  
pp. 367
Author(s):  
Naama W. Constantini ◽  
Meital AZAR ◽  
Ronen Reuveny ◽  
Michal Yalon ◽  
Avshalom Koren ◽  
...  
Keyword(s):  
Physical Activity ◽  
Physical Health ◽  
Cancer Survivors ◽  
Childhood Cancer ◽  
Childhood Cancer Survivors ◽  
Mental And Physical Health
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