scholarly journals Computer-Mediated Communication in Adults with and without Moderate-Severe Traumatic Brain Injury: A Survey of Social Media Use (Preprint)

10.2196/26586 ◽  
2020 ◽  
Author(s):  
Emily L. Morrow ◽  
Fangyun Zhao ◽  
Lyn Turkstra ◽  
Catalina Toma ◽  
Bilge Mutlu ◽  
...  
Keyword(s):  
Traumatic Brain Injury ◽  
Social Media ◽  
Brain Injury ◽  
Severe Traumatic Brain Injury ◽  
Media Use ◽  
Computer Mediated Communication ◽  
Mediated Communication ◽  
Social Media Use ◽  
Computer Mediated

scholarly journals Computer-Mediated Communication in Adults With and Without Moderate-to-Severe Traumatic Brain Injury: Survey of Social Media Use (Preprint)

2020 ◽  
Author(s):  
Emily L Morrow ◽  
Fangyun Zhao ◽  
Lyn Turkstra ◽  
Catalina Toma ◽  
Bilge Mutlu ◽  
...  
Keyword(s):  
Social Media ◽  
Brain Injury ◽  
Media Use ◽  
Computer Mediated Communication ◽  
Social Connection ◽  
Mediated Communication ◽  
Social Media Use ◽  
Web Based ◽  
Computer Mediated ◽  
History Of

BACKGROUND Individuals with a history of traumatic brain injury (TBI) report fewer social contacts, less social participation, and more social isolation than noninjured peers. Cognitive-communication disabilities may prevent individuals with TBI from accessing the opportunities for social connection afforded by computer-mediated communication, as individuals with TBI report lower overall usage of social media than noninjured peers and substantial challenges with accessibility and usability. Although adaptations for individuals with motor and sensory impairments exist to support social media use, there have been no parallel advances to support individuals with cognitive disabilities, such as those exhibited by some people with TBI. In this study, we take a preliminary step in the development process by learning more about patterns of social media use in individuals with TBI as well as their input and priorities for developing social media adaptations. OBJECTIVE This study aims to characterize how and why adults with TBI use social media and computer-mediated communication platforms, to evaluate changes in computer-mediated communication after brain injury, and to elicit suggestions from individuals with TBI to improve access to social media after injury. METHODS We conducted a web-based survey of 53 individuals with a chronic history of moderate-to-severe TBI and a demographically matched group of 51 noninjured comparison peers. RESULTS More than 90% of participants in both groups had an account on at least one computer-mediated communication platform, with Facebook and Facebook Messenger being the most popular platforms in both groups. Participants with and without a history of TBI reported that they use Facebook more passively than actively and reported that they most frequently maintain web-based relationships with close friends and family members. However, participants with TBI reported less frequently than noninjured comparison participants that they use synchronous videoconferencing platforms, are connected with acquaintances on the web, or use social media as a gateway for offline social connection (eg, to find events). Of the participants with TBI, 23% (12/53) reported a change in their patterns of social media use caused by brain injury and listed concerns about accessibility, safety, and usability as major barriers. CONCLUSIONS Although individuals with TBI maintain social media accounts to the same extent as healthy comparisons, some may not use them in a way that promotes social connection. Thus, it is important to design social media adaptations that address the needs and priorities of individuals with TBI, so they can also reap the benefits of social connectedness offered by these platforms. By considering computer-mediated communication as part of individuals’ broader social health, we may be able to increase web-based participation in a way that is meaningful, positive, and beneficial to broader social life.

Traumatic Brain Injury and Social Media Use Interview Guide

2021 ◽  
Author(s):  
Melissa Brunner ◽  
Leanne Togher ◽  
Stuart Palmer ◽  
Stephen Dann ◽  
Bronwyn Hemsley
Keyword(s):  
Traumatic Brain Injury ◽  
Social Media ◽  
Brain Injury ◽  
Media Use ◽  
Social Media Use ◽  
Interview Guide

scholarly journals Characterizing computer-mediated communication, friendship, and social participation in adults with traumatic brain injury

Brain Injury ◽  
2019 ◽  
Vol 33 (8) ◽  
pp. 1097-1104 ◽  
Author(s):  
Margaret A. Flynn ◽  
Arianna Rigon ◽  
Rachel Kornfield ◽  
Bilge Mutlu ◽  
Melissa C. Duff ◽  
...  
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Social Participation ◽  
Computer Mediated Communication ◽  
Mediated Communication ◽  
Computer Mediated

Internet and Social Media Use After Traumatic Brain Injury

2016 ◽  
Vol 97 (12) ◽  
pp. e29
Author(s):  
Christina Baker-Sparr ◽  
Tessa Hart ◽  
Thomas Bergquist ◽  
Jennifer Bogner ◽  
Shannon Juengst ◽  
...  
Keyword(s):  
Traumatic Brain Injury ◽  
Social Media ◽  
Brain Injury ◽  
Media Use ◽  
Social Media Use ◽  
Internet And Social Media

Social Media and People With Traumatic Brain Injury: A Metasynthesis of Research Informing a Framework for Rehabilitation Clinical Practice, Policy, and Training

2020 ◽  
pp. 1-15
Author(s):  
Melissa Brunner ◽  
Bronwyn Hemsley ◽  
Leanne Togher ◽  
Stephen Dann ◽  
Stuart Palmer
Keyword(s):  
Traumatic Brain Injury ◽  
Social Media ◽  
Clinical Practice ◽  
Brain Injury ◽  
Mixed Methods Research ◽  
Media Use ◽  
Future Research ◽  
Social Media Use ◽  
Rehabilitation Professionals ◽  
Use Of Social Media

Purpose The aim of the study was to investigate the experiences of people with traumatic brain injury (TBI) and rehabilitation professionals in use of social media after TBI. Design Metasynthesis of a multilevel mixed-methods research design was used in the study. Method A qualitative metasynthesis of (a) evidence in the literature regarding the use of communication technologies and social media after TBI, (b) Twitter data and network analysis, (c) interviews with people with TBI ( n = 13), (d) focus groups with TBI rehabilitation professionals ( n = 11), and (e) a review of current guidance on safe use of social media was conducted. Results People with TBI adopt a trial-and-error approach to using social media. Their meaningful use and a sense of connection enable them to develop social media mastery. TBI rehabilitation professionals' concerns regarding potential risks associated with using social media might lead them to restrict social media use during rehabilitation. Conclusions Access to proactive training in social media use and a supportive network of rehabilitation professionals, family, and friends can enable people with TBI to develop social media mastery through working collaboratively on social media goals. This metasynthesis of research culminates in an evidence-based protocol for assessing and supporting a person with TBI's social media goals to guide clinical practice and future research in the field.

scholarly journals Internet and Social Media Use After Traumatic Brain Injury

2018 ◽  
Vol 33 (1) ◽  
pp. E9-E17 ◽  
Author(s):  
Christina Baker-Sparr ◽  
Tessa Hart ◽  
Thomas Bergquist ◽  
Jennifer Bogner ◽  
Laura Dreer ◽  
...  
Keyword(s):  
Traumatic Brain Injury ◽  
Social Media ◽  
Brain Injury ◽  
Media Use ◽  
Social Media Use ◽  
Internet And Social Media

scholarly journals Catch 22: The Paradox of Social Media Affordances and Stigmatized Online Support Groups

2020 ◽  
Vol 6 (4) ◽  
pp. 205630512098447
Author(s):  
Daphna Yeshua-Katz ◽  
Ylva Hård af Segerstad
Keyword(s):  
Social Media ◽  
Support Groups ◽  
Computer Mediated Communication ◽  
Research Literature ◽  
Discussion Board ◽  
Online Support Groups ◽  
Post Traumatic Stress ◽  
Mediated Communication ◽  
The Public ◽  
Computer Mediated

This study highlights the challenges of computer-mediated communication for vulnerable individuals and groups, by studying boundary work in stigmatized communities online. Five stigmatized online communities with different affordances were studied: (1) “pro-ana” blogs; (2) an infertility discussion board; (3) a Facebook group for bereaved parents; and (4) two WhatsApp groups for Israeli veterans of war with post-traumatic stress disorder. In-depth interviews with members and administrators ( n = 66) revealed that social media affordances such as low anonymity and high visibility may marginalize those living with stigma. While research literature applauds social media for allowing the formation and maintenance of social capital, our study highlights the paradox caused by these very same affordances. To offer safe and functioning environments of support, the communities must guard against impostors whose presence threatens their safe havens. Simultaneously, this may make these groups inaccessible to those who truly need support and remove such groups from the public eye.

If Pandora had a Blog

2015 ◽  
Vol 4 (2) ◽  
pp. 15-32
Author(s):  
Otilia Pacea
Keyword(s):  
Social Media ◽  
Computer Mediated Communication ◽  
High Impact ◽  
Genre Analysis ◽  
Mediated Communication ◽  
Political Blogs ◽  
Computer Mediated ◽  
Mediated Discourse ◽  
Digital Landscape

In the context of internet genre migration and proliferation, conventional taxonomies are no longer valid. To classify blogs between thematic and personal blogs is to blissfully ignore the legions of successful content prosumers, from political blogs to travel blogs, from food blogs to MAD (mom and dad) blogs, from fashion blogs to milblogs. With the recent explosion of social media, the digital landscape shifted and today there are more voices online than ever before. For blogs, however, the original purpose for communication has always been twofold: to inform and to emote. Computer-mediated communication may be overpopulated with a myriad of mixed forms and blogs might be dead or simply, difficult to reach with so much overlapping. Yet high-impact blogs still remain and are widely read. This paper explores the language of high-impact blogs, testing a new methodology for genre analysis to solve genre hybridity in the case of computer-mediated discourse.

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