scholarly journals Health Data Security Considerations in Global Health Partnerships (Preprint)

10.2196/25833 ◽  
2021 ◽  
Author(s):  
Juan Espinoza ◽  
Abu Sikder ◽  
James Dickhoner ◽  
Thomas Lee
Keyword(s):  
Global Health ◽  
Data Security ◽  
Health Data ◽  
Health Partnerships ◽  
Health Data Security

scholarly journals Donor data vacuuming

2018 ◽  
Vol 5 (2) ◽  
Author(s):  
Sarah Gimbel ◽  
Baltazar Chilundo ◽  
Nora Kenworthy ◽  
Celso Inguane ◽  
David Citrin ◽  
...  
Keyword(s):  
United States ◽  
Sustainable Development ◽  
Data Collection ◽  
Global Health ◽  
Sustainable Development Goals ◽  
The United States ◽  
Health Data ◽  
Poor Countries ◽  
Health Partnerships ◽  
Development Goals

In this essay, we seek to understand how the stunning rise of data vacuuming, necessitated by the pretense of ‘partnership’ within global health, has fundamentally altered how routine health data in poor countries is collected, analyzed, prioritized, and used to inform management and policy. Writing as a team of authors with experiences on multiple sides of global health partnerships in the United States, Mozambique, Nepal, Lesotho, Kenya, and Cote d’Ivoire, we argue that solidarity-based partnership between donor and recipient countries is impossible when evidence production and management is effectively outsourced to external organizations to meet the criteria of donor partners. Specifically, to meet the 2030 Sustainable Development Goals, equity-oriented strategies are critically needed to create data collection, analysis, and use activities that are mutually beneficial and sustainable.

Health Data Security Considerations in Global Health Partnerships (Preprint)

2021 ◽  
Author(s):  
Juan Espinoza ◽  
Abu Sikder ◽  
James Dickhoner ◽  
Thomas Lee
Keyword(s):  
Information Technology ◽  
Global Health ◽  
Conceptual Framework ◽  
Health Information Technology ◽  
Health Information ◽  
Data Security ◽  
Quantitative Model ◽  
Health Data ◽  
Framework Analysis ◽  
Middle Income

BACKGROUND Healthcare databases contain a wealth of information that can be used to develop programs and mature healthcare systems. Of concern, the sensitive nature of health data (e.g. ethnicity, reproductive health, sexually transmitted infections, lifestyle information, etc.) can have significant impact on individuals if misused, particularly among vulnerable and marginalized populations. As academic institutions, NGOs, and international agencies begin to collaborate with low and middle-income countries (LMICs) to develop and deploy health information technology (HIT), it is important to understand the technical and practical security implications of these initiatives. OBJECTIVE Our aim was to develop a conceptual framework for risk stratifying global health data partnerships and HIT projects. In addition to identifying key conceptual domains, we mapped each domain to a variety of publicly available indices that could be used to inform a quantitative model. METHODS We conducted a non-systematic review of the literature to identify relevant publications, position statements, white papers, and reports. The research team reviewed all sources and used the Framework Method and Conceptual Framework Analysis to name and categorize key concepts, integrate them into domains, and synthesize them into an overarching conceptual framework. Once key domains were identified, public international data sources were searched for relevant structured indices to generate a quantitative counterpart. RESULTS We identified five key domains to inform our conceptual framework: 1) State of Health Information Technology, 2) Economics of Healthcare, 3) Demographics and Equity, 4) Societal Freedom and Safety, and 5) Partnership and Trust. Each of these domains was mapped to a number of structured indices. CONCLUSIONS There is a complex relationship between the legal, economic, and social domains of healthcare, which impacts the state of HIT in LMICs and associated data security risks. The strength of partnership and trust between collaborating organizations is an important moderating factor. Additional work is needed to formalize the assessment of partnerships and trust, and to develop a quantitative model of the conceptual framework that can help support organization decision-making.

scholarly journals Imagining the postantibiotic future: the visual culture of a global health threat

2020 ◽  
pp. medhum-2020-011884
Author(s):  
Rachel Irwin
Keyword(s):  
Global Health ◽  
Visual Culture ◽  
Bacterial Infections ◽  
Health Data ◽  
Data Sources ◽  
Story Telling ◽  
Specific Data ◽  
Public Health Data ◽  
Collective Imagination ◽  
Global Data

This article is concerned with the visual culture of global health data using antimicrobial resistance (AMR) as an example. I explore how public health data and knowledge are repackaged into visualisations and presented in four contemporary genres: the animation, the TED Talk, the documentary and the satire programme. I focus on how different actors describe a world in which there are no or few antibiotics that are effective against bacterial infections. I examine the form, content and style of the visual cultural of AMR, examining how these genres tell a story of impending apocalypse while also trying to advert it. This is a form of story-telling based around the if/then structure: we are told that if we do not take certain actions today, then we will face a postantibiotic future with certain, often catastrophic, consequences. Within this if/then structure, there are various aims and objectives: the goal may be preventing further spread of AMR, building awareness or pushing for certain policy or funding decisions. These stories also serve to place or deflect blame, on animals, occupations, patients, industries and others and to highlight risks and consequences. These examples share similarities in the forms of story-telling and narrative, and in the use of specific data sources and other images. By using several Swedish examples, I demonstrate how global data are reinterpreted for a national audience. Overall, I argue that while the convergence of a dominant narrative indicates scientific consensus, this consensus also stifles our collective imagination in finding new solutions to the problem. Finally, I also use the example of AMR to discuss the need for a broader social science and humanities engagement with the visual culture of global health data.

scholarly journals Project Tycho 2.0: a repository to improve the integration and reuse of data for global population health

2018 ◽  
Vol 25 (12) ◽  
pp. 1608-1617 ◽  
Author(s):  
Willem G van Panhuis ◽  
Anne Cross ◽  
Donald S Burke
Keyword(s):  
United States ◽  
Global Health ◽  
The United States ◽  
Health Data ◽  
Digital Object Identifier ◽  
Software Applications ◽  
Open Access Database ◽  
Fair Principles ◽  
Version 2.0 ◽  
Conference Papers

Abstract Objective In 2013, we released Project Tycho, an open-access database comprising 3.6 million counts of infectious disease cases and deaths reported for over a century by public health surveillance in the United States. Our objective is to describe how Project Tycho version 1 (v1) data has been used to create new knowledge and technology and to present improvements made in the newly released version 2.0 (v2). Materials and Methods We analyzed our user database and conducted online searches to analyze the use of Project Tycho v1 data. For v2, we added new US data and dengue data for other countries, and grouped data into 360 datasets, each with a digital object identifier and rich metadata. In addition, we used standard vocabularies to encode data where possible, improving compliance with FAIR (findable, accessible, interoperable, reusable) guiding principles for data management. Results Since release, 3174 people have registered to use Project Tycho data, leading to 18 new peer-reviewed papers and 27 other creative works, such as conference papers, student theses, and software applications. Project Tycho v2 comprises 5.7 million counts of infectious diseases in the United States and of dengue-related conditions in 98 additional countries. Discussion Project Tycho v2 contributes to improving FAIR compliance of global health data, but more work is needed to develop community-accepted standard representations for global health data. Conclusion FAIR principles are a valuable guide for improving the integration and reuse of data in global health to improve disease control and save lives.

scholarly journals Melding Disparate Cultures and Capacities to Create Global Health Partnerships

2001 ◽  
Vol 91 (10) ◽  
pp. 1552-1554 ◽  
Author(s):  
Peter D. Bell ◽  
C. Charles Stokes
Keyword(s):  
Global Health ◽  
Health Partnerships

scholarly journals Assessing How Global Health Partnerships Function: An equity-informed critical interpretive synthesis

2021 ◽  
Author(s):  
Katrina Marie Plamondon ◽  
Ben Brisbois ◽  
Leslie Dubent ◽  
Charles P. Larson
Keyword(s):  
Global Health ◽  
Professional Associations ◽  
Research Capacity ◽  
General Interest ◽  
Power Dynamics ◽  
Economic Relationships ◽  
Health Partnerships ◽  
Non Governmental Organizations ◽  
Critical Interpretive Synthesis ◽  
Resource Dynamics

Abstract Global health partnerships (GHPs) are situated in complex political and economic relationships and involve partners with different needs and interests (e.g., government agencies, non-governmental organizations, corporations, universities, professional associations, philanthropic organizations and communities). As part of a mixed methods study designed to develop an equity-sensitive tool to support more equity-centred North-South GHPs, this critical interpretive synthesis examined reported assessments of GHPs. We examined 30 peer-reviewed articles for power dynamics, equity and inequities, and contradictions or challenges encountered in North-South partnerships. Among articles reviewed, authors most often situated GHPs around a topical focus on research, capacity-building, clinical, or health services issues, with the ‘work’ of the partnership aiming to foster skills or respond to community needs. The specific features of GHPs that were assessed varied widely, with consistently-reported elements including the early phases of partnering; governance issues; the day-to-day work of partnerships; the performance, impacts and benefits of GHPs; and issues of inclusion. Articles shared a general interest in partnering processes and often touched briefly on issues of equity; but they rarely accounted for the complexity of sociopolitical and historical contexts shaping issues of equity in GHPs. Further, assessments of GHPs were often reported without inclusion of voices from all partners or named beneficiaries. GHPs were frequently portrayed as inherently beneficial for Southern partners, without attention to power dynamics and inequities (North-South, South-South). Though historical and political dynamics of the Global North and South were inconsistently examined as influential forces in GHPs, such dynamics were frequently portrayed as complex and characterized by asymmetries in power and resources. Generally, assessments of GHPs paid little attention to the macroeconomic forces in the power and resource dynamics of GHPs highlights the importance of considering the broader political. Our findings suggest that GHPs can serve to entrench both inequitable relationships and unfair distributions of power, resources, and wealth within and between countries (and partners) if inequitable power relationships are left unmitigated. We argue that specific practices could enhance GHPs’ contributions to equity, both in their processes and outcomes. Enhancing partnering practices to focus on inclusion, responsiveness to North-South and South-South inequities, and recognition of GHPs as situated in a broader (and inequitable) political economy. A relational and equity-centred approach to assessing GHPs would place social justice, humility and mutual benefits as central practices —that is, regular, routine things that partners involved in partnering do intentionally to make GHPs function well. Practicing equity in GHPs requires continuous efforts to explicitly acknowledge and examine the equity implications of all aspects of partnering.

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