scholarly journals Parent Experiences with Electronic Medication Monitoring in Pediatric Asthma: A Qualitative Study (Preprint)

10.2196/25811 ◽  
2020 ◽  
Author(s):  
Kristin Kan ◽  
Sara Shaunfield ◽  
Madeleine Kanaley ◽  
Avneet Chadha ◽  
Kathy Boon ◽  
...  
2020 ◽  
Author(s):  
Kristin Kan ◽  
Sara Shaunfield ◽  
Madeleine Kanaley ◽  
Avneet Chadha ◽  
Kathy Boon ◽  
...  

BACKGROUND Electronic medication monitoring (EMM) is a digital tool that can be used for tracking daily medication use. Previous studies of EMM in asthma have examined experiences of adults or have studied pediatric interventions that use EMM for less than a year. To understand acceptance of an EMM-enhanced intervention, we explore the experiences of parents of children with asthma, recruited from outpatient practices for a 12-month intervention trial. OBJECTIVE Through qualitative inquiry, we studied: (1) How did using the intervention change parents/caregivers’ experiences of managing their child’s asthma, and (2) What do parents recommend for improving the intervention in the future? METHODS Parents were recruited from the intervention arm of a multi-component, health intervention enhanced by Bluetooth-enabled sensors placed on inhaler medications. Semi-structured interviews were conducted with 20 parents of children with asthma (4-12 years old). Interviews were audio-recorded, transcribed, and inductively analyzed using a constant comparative approach. RESULTS Interview participants reflected an even mix of publicly and privately insured children and a diverse racial-ethnic demographic. Parents discussed six key themes related to their experience with the EMM-enhanced intervention: compatibility with their lifestyle, the impact on asthma management, impact on their child’s health, emotional impact of the intervention, children’s engagement in asthma management with the intervention, and recommendations for future intervention design. CONCLUSIONS Our qualitative study of parents found that the intervention with EMM over 12 months was overall compatible with their daily lives, positively influenced their preventive and acute asthma management, and promoted child engagement. Parents in our study found the intervention acceptable and generally favorable. While use of technology-enhanced tools are increasingly popular in healthcare delivery and consumer health care, our study highlighted that careful attention must also be paid to the unique needs of parents of children with asthma and understanding how a digital tool can be adopted into their daily disease management.


2019 ◽  
Vol 49 (3) ◽  
pp. 357-365 ◽  
Author(s):  
Lavanya Diwakar ◽  
Carole Cummins ◽  
Scott Hackett ◽  
Martyn Rees ◽  
Lynette Charles ◽  
...  

Injury ◽  
2019 ◽  
Vol 50 (5) ◽  
pp. 1082-1088
Author(s):  
Kim Foster ◽  
Rebecca Mitchell ◽  
Alexandra Young ◽  
Connie Van ◽  
Kate Curtis

1995 ◽  
Vol 21 (1) ◽  
pp. 52-57 ◽  
Author(s):  
Barbara J. Mason ◽  
Joy R. Matsuyama ◽  
Sandra G. Jue

This study was designed to compare sulfonylurea adherence assessment by providers, patients' self-report, pill counts, and a medication event monitoring system (MEMS-3®) device, and correlate the estimates of metabolic control by provider, patient, and laboratory. Forty-seven outpatient veterans with fair to poor metabolic control of non-insulin-dependent diabetes mellitus were enrolled and received monthly refills of sulfonylurea in vials with a cap containing an electronic medication monitoring microprocessor. Pill counts and fasting plasma glucoses were measured monthly, and glycohemoglobin and a 24-hour diet recall were obtained at 0 and 60 days. Investigators then asked providers and patients to assess adherence and metabolic control. Forty-seven percent were nonadherent to medication using MEMS-3®, 29% using pill counts, 29% using provider assessment, and 31 % using self-report. Thirty-one percent of providers and 53% of patients assessed metabolic control differently than laboratory values. Assessment of medication adherence by provider, patient, and pill counts did not explain metabolic control as closely as assessment by MEMS-3®.


2019 ◽  
Vol 57 (7) ◽  
pp. 744-754 ◽  
Author(s):  
Sunitha V. Kaiser ◽  
Regina Lam ◽  
Michael D. Cabana ◽  
Arpi Bekmezian ◽  
Naomi S. Bardach ◽  
...  

2021 ◽  
Vol 11 (3) ◽  
pp. 842-851
Author(s):  
Anna Viktoria Krause ◽  
Anna Bertram ◽  
Mariel Nöhre ◽  
Maximilian Bauer-Hohmann ◽  
Mario Schiffer ◽  
...  

Abstract Electronic medication monitoring devices (EMD) have been used as a gold standard for assessing medication adherence. We used a wireless EMD (SimpleMed+), assessed its usability in patients after kidney transplantation (KTx), evaluated adherence, and analyzed concordance with other adherence measures. Fifty-five patients (53% female, mean age 46 years) at least 6 months after KTx agreed to use the EMD over a period of 8 weeks. Self-reported adherence was measured with the BAASIS, and immunosuppressant trough level variability was assessed prior to and again during the study period. Fourteen patients stopped using the EMD or were low users (<70%). These non-completers reported that using the EMD would interfere with their daily activities. Taking-adherence of the completers was high with 98.3% (±1.9) over the entire study period. Timing-adherence was somewhat lower (94.6% ± 7.9) and decreased during the second half of the study. We found statistically significant correlations between EMD results and self-reported adherence with moderate effect sizes, but no significant association with trough level variability. The low usage of the EMD supports the need to assess the practicability of an EMD before applying it in research and clinical routine. Taking- and timing-adherence of KTx patients using the EMD was satisfactory. Self-reported adherence might be a good enough estimate of medication adherence.


2009 ◽  
Vol 15 (1) ◽  
pp. 42-52 ◽  
Author(s):  
STEVEN PAUL WOODS ◽  
MATTHEW S. DAWSON ◽  
ERICA WEBER ◽  
SARAH GIBSON ◽  
IGOR GRANT ◽  
...  

AbstractNonadherence to combination antiretroviral (ARV) therapies (cART) is highly prevalent and significantly increases the risk of adverse human immunodeficiency virus (HIV) disease outcomes. The current study evaluated the hypothesis that prospective memory—a dissociable aspect of episodic memory describing the ability to execute a future intention—plays an important role in successful cART adherence. Seventy-nine individuals with HIV infection who were prescribed at least one ARV medication underwent a comprehensive neuropsychological and neuromedical evaluation prior to completing a 1-month observation of their cART adherence as measured by electronic medication monitoring. Nonadherent individuals (n = 31) demonstrated significantly poorer prospective memory functioning as compared to adherent persons (n = 48), particularly on an index of time-based ProM (i.e., elevated loss of time errors). Deficits in time-based prospective memory were independently predictive of cART nonadherence, even after considering the possible influence of established predictors of adherence, such as general cognitive impairment (e.g., retrospective learning and memory) and psychiatric comorbidity (e.g., depression). These findings extend a nascent literature showing that impairment in time-based prospective memory significantly increases the risk of medication nonadherence and therefore may guide the development of novel strategies for intervention. (JINS, 2009, 15, 42–52.)


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