scholarly journals Experiences and factors affecting usage of an eHealth tool for self-management among people with chronic obstructive pulmonary disease: a qualitative analysis study. (Preprint)

Author(s):  
Sarah Marklund ◽  
Malin Tistad ◽  
Sara Lundell ◽  
Lina Östrand ◽  
Ann Sörlin ◽  
...  
2020 ◽  
Author(s):  
Sarah Marklund ◽  
Malin Tistad ◽  
Sara Lundell ◽  
Lina Östrand ◽  
Ann Sörlin ◽  
...  

BACKGROUND Self-management strategies are regarded as highly prioritized in chronic obstructive pulmonary disease (COPD) treatment guidelines. However, individual and structural barriers lead to a staggering amount of people with COPD that are not offered support for such strategies, and new approaches are urgently needed to circumvent these barriers. A promising way of delivering health services such as support for self-management strategies is the use of eHealth tools. Though, there is a lack of knowledge about the usage of, and factors affecting the use of eHealth tools over time in people with COPD. OBJECTIVE This study aimed, among people with COPD, to explore and describe the experiences of an eHealth tool over time and factors that might affect usage. METHODS The eHealth tool included information on evidence-based self-management treatment for people with COPD, including texts, pictures, videos as well as interactive components such as a step registration function with automatized feedback. In addition to the latter, automated notifications of new content, as well as pedometers were used as triggers to increase usage. After having access to the tool for three months, 16 individuals (12 women) with COPD were individually interviewed. At 12 months access to the tool, seven (five women) of the previous 16 individuals accepted a second individual interview. Data were analyzed using qualitative content analysis. User frequency was considered in the analysis, and participants were divided into users and non-user/seldom-users depending on the number of logins and minutes of usage per month. RESULTS Three main categories; ambiguous impact basic conditions for usage and approaching capability emerged from the analysis, which, together with their subcategories, reflects the participants' experiences of using the eHealth tool. Non-user/seldom-users¬ reported low motivation, a higher need for technical support, a negative view about the disease and self-management and had problematic health literacy. The latter as measured by the communicative and critical health literacy scale. Users felt comfortable with IT-tools, had a positive view on triggers and had sufficient health literacy. Benefits including behavior changes, were mainly expressed after 12 months had passed, and among users. CONCLUSIONS Findings of this study indicate that level of motivation, comfortability with IT-tools as well as the level of health literacy seem to affect usage of an eHealth tool over time. Also, gaining benefits from the eHealth tool seems reserved for the users and specifically after 12 months regarding behavioral changes, thus suggesting that eHealth tools can be a suitable media for supporting COPD-specific self-management skills – however not for everyone or at all times. These novel findings are of importance when designing new eHealth tools as well as when deciding on whether or not an eHealth tool might be appropriate to use if the goal is to support self-management among people with COPD. CLINICALTRIAL ClinicalTrials. gov: NCT02696187 INTERNATIONAL REGISTERED REPORT RR2-doi:10.1136/bmjopen-2017-016851


2021 ◽  
Vol 26 (9) ◽  
pp. 452-457
Author(s):  
Paula Boyer

Chronic obstructive pulmonary disease (COPD) is being increasingly diagnosed in the UKs on the rise, and is expected to continue to rise due to an ageing population with multiple co-morbidities and exposure to risk factors, such as cigarette smoke, noxious gases and air pollutants. The prevalence of this disease is high is areas of socioeconomic deprivation and among high industrial areas. The use of self-management plans in COPD is recommended by the National Institute for Health and Care Excellence (NICE), to enable to patients with this disease to be competent and confident in taking part in managing their own health condition and recognising signs and symptoms of an exacerbation. The aim of this article is to discuss self-management of COPD and the clinical guidance surrounding exacerbation of disease. A follow-up literature review will focus on the effectiveness of self-management plans in COPD.


10.2196/16343 ◽  
2020 ◽  
Vol 8 (6) ◽  
pp. e16343 ◽  
Author(s):  
Sara Lundell ◽  
Mari Modig ◽  
Åsa Holmner ◽  
Karin Wadell

Background Chronic obstructive pulmonary disease (COPD) is a major health problem and an economic burden globally. There is growing interest in how electronic health (eHealth) can be used to provide efficient health care. Telemonitoring, where the patient’s health-related data is transmitted to a health care provider, can be used to detect early signs of exacerbations. A successful implementation of telemonitoring systems into clinical practice requires in-depth knowledge of the users’ preferences. Objective The aim of this study was to explore perceptions of the use of a home telemonitoring system among patients with COPD. Methods Semistructured individual interviews were carried out with 8 women and 5 men who were participants in a project aimed at developing and evaluating a telemonitoring system. The web-based telemonitoring system measured pulmonary function, subjective symptoms, and oxygen saturation. Participants were interviewed after having used the system for 2-4 months. Interview transcripts were analyzed with qualitative content analysis. Results The analysis resulted in the theme A transition toward increased control and security and four categories: using with (in)security, affecting technical concern or confidence, providing easy access to health care, and increasing control over the disease. The participants reported various perceptions of using the telemonitoring system. They expressed initial feelings of insecurity, both in terms of operating the system and in terms of their disease. However, the practical management of the telemonitoring system became easier with time; the participants gradually gained confidence and improved their self-management. New technology was perceived as an important complement to existing health care, but the importance of maintaining a human contact in real life or through the telemonitoring system was emphasized. Conclusions This study captured a transition among the participants from being insecure and experiencing technical concerns to acquiring technical confidence and improving disease management. Telemonitoring can be a valuable complement to health care, leading to increased self-knowledge, a sense of security, and improved self-management. Suggestions to improve the further development and implementation of telemonitoring systems include better patient education and the involvement of end users in the technical development process. Additional research is needed, particularly in the design of user-friendly systems, as well as in developing tools to predict which patients are most likely to find the equipment useful, as this may result in increased empowerment, improved quality of life, reduced costs, and a contribution to equity in health.


2015 ◽  
Vol 16 (3) ◽  
pp. 180-183
Author(s):  
Julide Celdir Emre ◽  
Ozer Ozdemir ◽  
Aysegul Baysak ◽  
Umit Aksoy ◽  
Pelin Ozdemir ◽  
...  

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