scholarly journals Lessons learned: Recruitment and retention strategies among racial/ethnic minorities in web-based intervention trials (Preprint)

10.2196/23959 ◽  
2020 ◽  
Author(s):  
DaSol Amy Hwang ◽  
Alex Lee ◽  
Jae Min Song ◽  
Hae-Ra Han
Keyword(s):  
Ethnic Minorities ◽  
Lessons Learned ◽  
Retention Strategies ◽  
Web Based ◽  
Recruitment And Retention ◽  
Intervention Trials ◽  
Racial Ethnic

scholarly journals Recruitment and retention of racial/ethnic minorities for web-based intervention trials (Preprint)

2020 ◽  
Author(s):  
DaSol Amy Hwang ◽  
Alex Lee ◽  
Jae Min Song ◽  
Hae-Ra Han
Keyword(s):  
Ethnic Minority ◽  
Ethnic Minorities ◽  
Minority Groups ◽  
The Internet ◽  
Retention Strategies ◽  
Web Based ◽  
Recruitment And Retention ◽  
Intervention Trials ◽  
Racial Ethnic ◽  
Human Support

BACKGROUND Racial/ethnic minority groups are underrepresented in health research, contributing to persistent health disparities in the nation. Identifying effective recruitment and retention strategies among minority groups and their subpopulations is an important research agenda. With the ubiquitous use of the Internet now, web-based intervention approaches are increasingly popular. It is not completely clear which recruitment and retention strategies have been successful in web-based intervention trials targeting racial/ethnic minorities. OBJECTIVE 1) To describe lessons learned in recruiting and retaining one of the understudied ethnic minority women—Korean American—enrolled in a web-based intervention trial and 2) to compare our findings to the strategies reported in relevant published web-based intervention trials. METHODS Multiple sources of data were used to address the objectives of this study including study team’s meeting minutes, participant tracking and contact log, survey reports, and post-intervention interviews. Additionally, an electronic search involving two databases (PubMed and Cumulative Index of Nursing and Allied Health Literature) was done to identify published studies using web-based interventions. Qualitative analysis was then performed to identify common themes addressing recruitment and retention strategies across the trials using web-based intervention modalities. RESULTS A total of nine categories of recruitment and retention strategies emerged: authentic care; accommodation of time, place, and transportation; financial incentives; diversity among study team; multiple, yet standardized modes of communication; mobilizing existing community relationships with efforts to build trust; prioritizing features of web-based intervention; combined use of online and direct recruitment; and self-directed online intervention with human support. While all of the studies included in the analysis combined multiple strategies, prioritizing features of web-based intervention or use of human support were particularly relevant to promoting recruitment and retention of racial/ethnic minorities for web-based intervention trials. CONCLUSIONS Growing prevalence of Internet usage among racial/ethnic minority populations represents an excellent opportunity to design and deliver intervention programs via the Internet. Future research should explore and compare successful recruitment and retention methods between race or ethnic groups for web-based intervention. CLINICALTRIAL e-CHEC-uP: Scaling up an Efficacious Cancer Screening Intervention for Women With Limited English (NCT03726619); https://clinicaltrials.gov/ct2/show/NCT03726619

Strategies for the Recruitment and Retention of Racial/Ethnic Minorities in Alzheimer Disease and Dementia Clinical Research

2019 ◽  
Vol 16 (5) ◽  
pp. 458-471 ◽  
Author(s):  
Roger Wong ◽  
Takashi Amano ◽  
Shih-Yin Lin ◽  
Yuanjin Zhou ◽  
Nancy Morrow-Howell
Keyword(s):  
African Americans ◽  
Alzheimer Disease ◽  
Clinical Research ◽  
Ethnic Minorities ◽  
Current Evidence ◽  
Recruitment Strategies ◽  
Care Providers ◽  
Retention Strategies ◽  
Recruitment And Retention ◽  
Racial Ethnic

Background:Racial/ethnic minorities have among the highest risks for Alzheimer disease and dementia, but remain underrepresented in clinical research studies.Objective:To synthesize the current evidence on strategies to recruit and retain racial/ethnic minorities in Alzheimer disease and dementia clinical research.Methods:We conducted a systematic review by searching CINAHL, EMBASE, MEDLINE, PsycINFO, and Scopus. We included studies that met four criteria: (1) included a racial/ethnic minority group (African American, Latino, Asian, American Indian or Alaska Native, and Native Hawaiian or Other Pacific Islander); (2) implemented a recruitment or retention strategy for Alzheimer disease or dementia clinical research; (3) conducted within the U.S.; and (4) published in a peer-reviewed journal.Results:Of the 19 included studies, 14 (73.7%) implemented recruitment strategies and 5 (26.3%) implemented both recruitment and retention strategies. Fifteen studies (78.9%) focused on African Americans, two (10.6%) on both African Americans and Latinos, and two (10.5%) on Asians. All the articles were rated weak in the study quality. Four major themes were identified for the recruitment strategies: community outreach (94.7%), advertisement (57.9%), collaboration with health care providers (42.1%), and referral (21.1%). Three major themes were identified for the retention strategies: follow-up communication (15.8%), maintain community relationship (15.8%), and convenience (10.5%).Conclusion:Our findings highlight several promising recruitment and retention strategies that investigators should prioritize when allocating limited resources, however, additional well-designed studies are needed. By recruiting and retaining more racial/ethnic minorities in Alzheimer disease and dementia research, investigators may better understand the heterogeneity of disease progression among marginalized groups. PROSPERO registration #CRD42018081979.

scholarly journals Recruitment and Retention Strategies for Community-Based Longitudinal Studies in Urban, Minority Neighborhoods: Lessons Learned from the PARCS Study (Preprint)

2020 ◽  
Author(s):  
Emily B Ferris ◽  
Katarzyna Wyka ◽  
Kelly R. Evenson ◽  
Joan M Dorn ◽  
Lorna Thorpe ◽  
...  
Keyword(s):  
Longitudinal Studies ◽  
Low Income ◽  
Lessons Learned ◽  
Natural Experiments ◽  
Retention Strategies ◽  
Recruitment And Retention ◽  
Four Dimensions ◽  
Evaluation Approach ◽  
Measurement And Evaluation ◽  
The Impact

UNSTRUCTURED Longitudinal, natural experiments provide an ideal evaluation approach to better understand the impact of built environment interventions on community health outcomes, particularly heath disparities. As there are many recruitment and retention challenges inherent to the design of longitudinal, natural experiments, adaptive and iterative recruitment and retention strategies are critical to the success of a study. This paper documents lessons learned from the Physical Activity and Redesigned Community Spaces (PARCS) Study. The PARCS Study, while ongoing, has developed several approaches to improve the recruitment and retention protocols by prioritizing the following four dimensions: 1) building trust with communities; 2) adapting the study protocol to meet participants’ needs and to reflect their capacity for participation; 3) operational flexibility; and 4) measurement and evaluation systems. These strategies may help researchers more successfully recruit and retain participants, particularly in low-income, minority neighborhoods, into longitudinal studies.

Recruiting and Retaining Young Urban Black Men in a Study of Violence: Procedures Used and Lessons Learned

Field Methods ◽  
2019 ◽  
Vol 31 (2) ◽  
pp. 131-149
Author(s):  
Tamara G. J. Leech ◽  
Amy Irby-Shasanmi ◽  
Hadya Sow
Keyword(s):  
Black Men ◽  
Mixed Method ◽  
Lessons Learned ◽  
Retention Strategies ◽  
Web Based ◽  
Team Members ◽  
Face To Face ◽  
Mixed Method Design ◽  
High Participation ◽  
Field Notes

We conducted a study about three common recruitment and retention obstacles facing scholars interested in racial disparities research: potential mistrust from the black community, a stigmatized research topic, and high participation burden. Nonetheless, we successfully recruited and retained 28 young black men in a three-month study of violence. In this article, we describe and explore the recruitment, engagement, and retention strategies employed during the study. Using a concurrent triangulation mixed-method design, we analyzed data from our web-based administrative system, participant enrollment and exit surveys, and team members’ field notes. A large percentage (79%) of participants completed the study. We received 81% of 556 expected surveys, and 100% of the remaining participants wanted to continue participating at study’s end. We conclude that internal incentives, the combination of informal and formal community recruiters, the visibility of the principal investigator, and face-to-face meetings may have contributed to the success of the project.

scholarly journals Key recruitment and retention strategies for a pilot web-based intervention to decrease obesity risk among minority youth

2019 ◽  
Vol 5 (1) ◽  
Author(s):  
Grisselle DeFrank ◽  
Sarina Singh ◽  
Katrina F. Mateo ◽  
Laura Harrison ◽  
Alyson Rosenthal ◽  
...  
Keyword(s):  
Minority Youth ◽  
Obesity Risk ◽  
Retention Strategies ◽  
Web Based ◽  
Recruitment And Retention

scholarly journals Recruitment and Retention in Diverse Cohorts: Lessons From Community-Engaged Efforts

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 473-473
Author(s):  
Carrie Nieman ◽  
Haera Han ◽  
George Rebok
Keyword(s):  
Older Adults ◽  
African American ◽  
Family Caregivers ◽  
Ethnic Minorities ◽  
Behavioral Intervention ◽  
Health Inequities ◽  
Intervention Research ◽  
Community Based ◽  
Recruitment And Retention ◽  
Racial Ethnic

Abstract Effective behavioral interventions and associated trials reflect the complexity and context of the communities with which they are tailored and the behaviors they seek to address. Community-engaged methodology can serve to capture these complexities, particularly when focusing on health inequities. Significant health and healthcare disparities persist among racial/ethnic minorities and representation of racial/ethnic minorities is lacking within trials that reflects the diversity of the U.S. population. Novel approaches are needed to increase the diversity of participants within behavioral intervention research. This symposium covers the unique barriers and facilitators related to recruitment and retention across a range of populations, including African American and Hispanic/LatinX older adults with hearing loss to diverse dementia family caregivers and community-dwelling Korean American older adults. Beyond the challenges and opportunities, the symposium will focus on effective recruitment strategies. The discussion will include 1) findings from 10 years of recruiting older Korean Americans into community-based trials, 2) lessons in tailoring recruitment efforts to dementia family caregivers, 3) the integration of human-centered design into a community-engaged hearing care intervention targeting low-income and African American older adults, 4) successful recruitment and retention efforts in a community-based participatory research trial in a borderlands community, and 5) the deployment of strategies to recruit Latino, Asian, and African American older adults with depression and anxiety in the setting of the COVID-19 pandemic. This symposium seeks to build the evidence related to recruitment of older racial/ethnic minorities in diverse settings, which is fundamental to addressing health inequities through behavioral intervention research.

scholarly journals Recruitment and Retention of Parents of Adolescents in a Text Messaging Trial (MyTeen): Secondary Analysis From a Randomized Controlled Trial

10.2196/17723 ◽  
2021 ◽  
Vol 4 (4) ◽  
pp. e17723
Author(s):  
Joanna Ting Wai Chu ◽  
Angela Wadham ◽  
Yannan Jiang ◽  
Karolina Stasiak ◽  
Matthew Shepherd ◽  
...  
Keyword(s):  
Text Messaging ◽  
Controlled Trial ◽  
Intervention Group ◽  
Well Being ◽  
Lessons Learned ◽  
Trial Registration ◽  
Control Group ◽  
Recruitment Strategies ◽  
Web Based ◽  
Recruitment And Retention

Background Parenting programs are well established as an effective strategy for enhancing both parenting skills and the well-being of the child. However, recruitment for family programs in clinical and nonclinical settings remains low. Objective This study aims to describe the recruitment and retention methods used in a text messaging program (MyTeen) trial for parents of adolescents (10-15 years) and identify key lessons learned. We aim to provide insights and direction for researchers who seek to recruit parents and build on the limited literature on recruitment and retention strategies for parenting program trials. Methods A recruitment plan was developed, monitored, and modified as needed throughout the course of the project. Strategies to facilitate recruitment were identified (eg, program content and recruitment material, staff characteristics, and study procedures). Traditional and web-based recruitment strategies were used. Results Over a 5-month period, 319 parents or caregivers expressed interest in our study, of which 221 agreed to participate in the study, exceeding our recruitment target of 214 participants. Attrition was low at the 1-month (4.5% overall; intervention group: n=5, 4.6%; control group: n=5, 4.5%) and 3-month follow-ups (9% overall; intervention group: n=10, 9.2%; control group: n=10, 8.9%). Conclusions The use of web-based recruitment strategies appeared to be most effective for recruiting and retaining parents in a text-messaging program trial. However, we encountered recruitment challenges (ie, underrepresentation of ethnic minority groups and fathers) similar to those reported in the literature. Therefore, efforts to engage ethnic minorities and fathers are needed. Trial Registration Australian New Zealand Clinical Trials Registry ACTRN12618000117213; https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=374307

scholarly journals Participant Recruitment and Retention in Remote eHealth Intervention Trials: Methods and Lessons Learned From a Large Randomized Controlled Trial of Two Web-Based Smoking Interventions (Preprint)

2018 ◽  
Author(s):  
Noreen L Watson ◽  
Kristin E Mull ◽  
Jaimee L Heffner ◽  
Jennifer B McClure ◽  
Jonathan B Bricker
Keyword(s):  
Online Advertising ◽  
Outcome Data ◽  
Lessons Learned ◽  
Retention Rates ◽  
Recruitment Strategies ◽  
Data Retention ◽  
Web Based ◽  
Participant Recruitment ◽  
Recruitment And Retention

BACKGROUND Despite having many advantages, online eHealth trials are not without challenges—notably, participant recruitment, and outcome data retention. Moreover, publications from these trials rarely provide detailed information on the methods used for recruitment and retention or discuss implications of the methods for future studies. OBJECTIVE To address this need for empirical guidance regarding recruitment and outcome data retention planning, we aim to describe the methods and lessons learned from the recruitment and retention procedures used in a large randomized trial of 2 Web-based smoking cessation interventions. METHODS To ensure a demographically and geographically diverse participant sample, we used the recruitment strategies (1) traditional, (2) Web-based, and (3) online survey panel methods and adaptively modified each in response to recruitment success. At baseline, participants indicated how they heard about the study and answered demographic questions. To maximize trial retention at each of the 3-, 6-, and 12-month assessment points, 4 survey modalities (first Web, followed by phone, mail, and postcard) were sequentially timed over a 30-day period. Participants received US $25 for submitting their responses, regardless of modality, and received an additional US $10 bonus for completing the Web survey within 24h of electronic notification. RESULTS We randomized 2637 smokers in 16 months and achieved 88% retention at 12-months. Participants (79.26% female, 72.60% Caucasian) were recruited from all 50 states. The majority of participants were recruited through Facebook (49.43%), followed by the survey panel (20.85%), free internet sources (14.54%), traditional media (11.34%), and Google ads (3.84%). Descriptively, participant demographics varied by recruitment source. Of the completed follow-up surveys, most were completed by Web (92%). Retention rates did not vary by recruitment source. CONCLUSIONS Continuous monitoring and refinement of multiple recruitment methods, particularly of online advertising campaigns, allowed us to maximize the effectiveness of recruitment strategies in recruiting a large, diverse sample of smokers. Likewise, offering multiple follow-up survey modalities in sequential order along with time-dependent bonus incentives enabled us to obtain outcome data from a very high level of enrolled participants for the duration of the trial protocol. These strategies may be similarly useful in other trials. CLINICALTRIAL ClinicalTrials.gov NCT01812278; https://clinicaltrials.gov/ct2/show/NCT01812278 (Archived by WebCite at http://www.webcitation.org/71gy5GLvO)

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