scholarly journals Telehealth and Palliative Care for Patients With Cancer: Implications of the COVID-19 Pandemic

JMIR Cancer ◽  
10.2196/20288 ◽  
2020 ◽  
Vol 6 (2) ◽  
pp. e20288
Author(s):  
Udhayvir Singh Grewal ◽  
Stephanie Terauchi ◽  
Muhammad Shaalan Beg
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
Supportive Care Needs ◽  
Great Promise ◽  
Care Needs ◽  
Patients With Cancer ◽  
Increased Risk ◽  
Life Threatening ◽  
Poor Outcomes ◽  
Oncology Providers

It has been reported that the incidence of SARS-CoV-2 infection is higher in patients with cancer than in the general population and that patients with cancer are at an increased risk of developing severe life-threatening complications from COVID-19. Increased transmission and poor outcomes noted in emerging data on patients with cancer and COVID-19 call for aggressive isolation and minimization of nosocomial exposure. Palliative care and oncology providers are posed with unique challenges due to the ongoing COVID-19 pandemic. Telepalliative care is the use of telehealth services for remotely delivering palliative care to patients through videoconferencing, telephonic communication, or remote symptom monitoring. It offers great promise in addressing the palliative and supportive care needs of patients with advanced cancer during the ongoing pandemic. We discuss the case of a 75-year-old woman who was initiated on second-line chemotherapy, to highlight how innovations in technology and telehealth-based interventions can be used to address patients’ palliative and supportive care needs in the ongoing epidemic.

scholarly journals Telehealth and Palliative Care for Patients With Cancer: Implications of the COVID-19 Pandemic (Preprint)

2020 ◽  
Author(s):  
Udhayvir Singh Grewal ◽  
Stephanie Terauchi ◽  
Muhammad Shaalan Beg
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
Supportive Care Needs ◽  
Great Promise ◽  
Care Needs ◽  
Patients With Cancer ◽  
Increased Risk ◽  
Life Threatening ◽  
Poor Outcomes ◽  
Oncology Providers

UNSTRUCTURED It has been reported that the incidence of SARS-CoV-2 infection is higher in patients with cancer than in the general population and that patients with cancer are at an increased risk of developing severe life-threatening complications from COVID-19. Increased transmission and poor outcomes noted in emerging data on patients with cancer and COVID-19 call for aggressive isolation and minimization of nosocomial exposure. Palliative care and oncology providers are posed with unique challenges due to the ongoing COVID-19 pandemic. Telepalliative care is the use of telehealth services for remotely delivering palliative care to patients through videoconferencing, telephonic communication, or remote symptom monitoring. It offers great promise in addressing the palliative and supportive care needs of patients with advanced cancer during the ongoing pandemic. We discuss the case of a 75-year-old woman who was initiated on second-line chemotherapy, to highlight how innovations in technology and telehealth-based interventions can be used to address patients’ palliative and supportive care needs in the ongoing epidemic.

Using a supportive care framework to understand and improve palliative care among cancer patients in Africa

2015 ◽  
Vol 14 (3) ◽  
pp. 284-301 ◽  
Author(s):  
David S. Busolo ◽  
Roberta L. Woodgate
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
Cancer Patients ◽  
Care Needs ◽  
African Countries ◽  
Research Education ◽  
Patients With Cancer ◽  
Care Services ◽  
Incidence And Mortality ◽  
Palliative Care Services

ABSTRACTObjective:Cancer incidence and mortality are increasing in Africa, which is leading to greater demands for palliative care. There has been little progress in terms of research, pain management, and policies related to palliative care. Palliative care in Africa is scarce and scattered, with most African nations lacking the basic services. To address these needs, a guiding framework that identifies care needs and directs palliative care services could be utilized. Therefore, using the supportive care framework developed by Fitch (Fitch, 2009), we here review the literature on palliative care for patients diagnosed with cancer in Africa and make recommendations for improvement.Method:The PubMed, Scopus, CINAHL, Web of Science, Embase, PsycINFO, Social Sciences Citation Index, and Medline databases were searched. Some 25 English articles on research from African countries published between 2004 and 2014 were selected and reviewed. The reviewed literature was analyzed and presented using the domains of the supportive care framework.Results:Palliative care patients with cancer in Africa, their families, and caregivers experience increasing psychological, physical, social, spiritual, emotional, informational, and practical needs. Care needs are often inadequately addressed because of a lack of awareness as well as deficient and scattered palliative care services and resources. In addition, there is sparse research, education, and policies that address the dire situation in palliative care.Significance of Results:Our review findings add to the existing body of knowledge demonstrating that palliative care patients with cancer in Africa experience disturbing care needs in all domains of the supportive care framework. To better assess and address these needs, holistic palliative care that is multidomain and multi-professional could be utilized. This approach needs to be individualized and to offer better access to services and information. In addition, research, education, and policies around palliative care for cancer patients in Africa could be more comprehensive if they were based on the domains of the supportive care framework.

scholarly journals Psychometric properties of an Australian supportive care needs assessment tool for Indigenous patients with cancer

Cancer ◽  
2015 ◽  
Vol 121 (17) ◽  
pp. 3018-3026 ◽  
Author(s):  
Gail Garvey ◽  
Vanessa L. Beesley ◽  
Monika Janda ◽  
Peter K. O'Rourke ◽  
Vincent Y.F. He ◽  
...  
Keyword(s):  
Supportive Care ◽  
Needs Assessment ◽  
Psychometric Properties ◽  
Assessment Tool ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Patients With Cancer

Development of tools to facilitate palliative and supportive care referral for patients with idiopathic pulmonary fibrosis

2017 ◽  
Vol 8 (3) ◽  
pp. 340-346 ◽  
Author(s):  
Charles Sharp ◽  
Heather Lamb ◽  
Nikki Jordan ◽  
Adrienne Edwards ◽  
Rachel Gunary ◽  
...  
Keyword(s):  
Palliative Care ◽  
Idiopathic Pulmonary Fibrosis ◽  
Pulmonary Fibrosis ◽  
Supportive Care ◽  
Decision Aid ◽  
Hospice Care ◽  
Supportive Care Needs ◽  
Care Needs ◽  
The Impact ◽  
Care Decision

ObjectivesPalliative care is underused in non-malignant respiratory diseases, including interstitial lung diseases (ILDs). We investigated current practices around palliative and supportive care and explored the impact of a supportive care decision aid tool.MethodsThis was a single centre study in a UK ILD centre. Retrospective analysis of hospice referrals and patients with idiopathic pulmonary fibrosis (IPF) under the Bristol ILD (BILD) service were used to identify unmet palliative and supportive care needs. Using quality improvement methodology, we explored the impact of a supportive care decision aid on clinician behaviours for patients with ILD.Results108 patients with ILD were referred for hospice care between 2010 and 2015, representing 0.15% of all referrals, compared with a population prevalence of IPF of 0.9%. The median interval between referral and death was 124 days.Records were reviewed for 64 deceased and 89 living patients with IPF seen on July–December 2014. The decision aid was prospectively assessed with 73 patients. The deceased patients had greater markers of severity. There were no other differences between the groups.After introduction, the decision aid tool was completed for 49.3% of patients and resulted in significant increases in documented discussion of referral to palliative care (11.2%vs53.6%, p<0.01) and end-of-life discussions (15.7%vs91.8%, p<0.01). Tool completion led to an increase in referral for palliative care (2.7%vs16.7%, p<0.01).ConclusionPalliative care services are underused in ILD and a supportive care decision aid can prompt consideration of palliative and supportive care needs.

Assessing the unmet supportive care needs of newly diagnosed patients with cancer

2009 ◽  
Vol 18 (6) ◽  
pp. 577-584 ◽  
Author(s):  
G. SUTHERLAND ◽  
D. HILL ◽  
M. MORAND ◽  
M. PRUDEN ◽  
S.-A. MCLACHLAN
Keyword(s):  
Supportive Care ◽  
Supportive Care Needs ◽  
Newly Diagnosed ◽  
Care Needs ◽  
Patients With Cancer

scholarly journals Supportive care needs of multicultural patients with cancer in the United Arab Emirates

2018 ◽  
Vol 12 ◽  
Author(s):  
Satish Chandrasekhar Nair ◽  
Hassan Jaafar ◽  
Mohamed Jaloudi ◽  
Khaled Qawasmeh ◽  
Afra AlMarar ◽  
...  
Keyword(s):  
Supportive Care ◽  
United Arab Emirates ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Patients With Cancer
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