scholarly journals Availability and Quality of Web Resources for Parents of Children With Disability: Content Analysis and Usability Study

10.2196/19669 ◽  
2020 ◽  
Vol 3 (2) ◽  
pp. e19669
Author(s):  
Anabel Buteau-Poulin ◽  
Camille Gosselin ◽  
Andréa Bergeron-Ouellet ◽  
Jocelyne Kiss ◽  
Marie-Ève Lamontagne ◽  
...  
Keyword(s):  
Autism Spectrum ◽  
The Internet ◽  
Accurate Information ◽  
Usability Study ◽  
Children With Disability ◽  
French Speaking ◽  
English Speaking ◽  
Source Of Information ◽  
Validated Instrument

Background The internet is a valuable resource for parents of typical children, who are looking for information about their children’s growth and development and how to boost them. However, for parents of children with special needs, especially for non–English-speaking parents, there are anecdotal reports stating that specific and accurate information is not available on the internet. Objective This study aims to describe the type of information available on the internet for French-speaking parents of children with disability as well as assess the quality of the information collected. Methods We carried out a search of the existing relevant websites targeted at parents of children with disability. We used a validated instrument to extract structural, textual, and visual characteristics of these websites and evaluate their usability. Results In all, 42 websites were analyzed; of these, the information had been validated by a trustworthy source in only 18 (43%) websites. Networking opportunities for parents were available in only 7 (17%) websites. Most websites provided information related to autism spectrum disorder (20/42, 42%) and learning disabilities (19/42, 45%), and only a few websites discussed other disability types such as behavorial disorders and developmental language disorders (4/42, 10% each). Community, social, and civic life (9/42, 22%); domestic life (12/42, 29%); and mobility (15/42, 36%) were the less frequently covered topics. With regard to the usability evaluation, 22 of the 42 (52%) websites received a global score <70%, whereas 20 (48%) scored ≥70% Conclusions Although the internet is an infinite source of information, it is not necessarily actionable for parents of children with disability. Some information remains difficult to find online, and networking opportunities with other parents dealing with similar challenges are scarce.

scholarly journals Availability and Quality of Web Resources for Parents of Children With Disability: Content Analysis and Usability Study (Preprint)

2020 ◽  
Author(s):  
Anabel Buteau-Poulin ◽  
Camille Gosselin ◽  
Andréa Bergeron-Ouellet ◽  
Jocelyne Kiss ◽  
Marie-Ève Lamontagne ◽  
...  
Keyword(s):  
Autism Spectrum ◽  
The Internet ◽  
Accurate Information ◽  
Usability Study ◽  
Children With Disability ◽  
French Speaking ◽  
English Speaking ◽  
Source Of Information ◽  
Validated Instrument

BACKGROUND The internet is a valuable resource for parents of typical children, who are looking for information about their children’s growth and development and how to boost them. However, for parents of children with special needs, especially for non–English-speaking parents, there are anecdotal reports stating that specific and accurate information is not available on the internet. OBJECTIVE This study aims to describe the type of information available on the internet for French-speaking parents of children with disability as well as assess the quality of the information collected. METHODS We carried out a search of the existing relevant websites targeted at parents of children with disability. We used a validated instrument to extract structural, textual, and visual characteristics of these websites and evaluate their usability. RESULTS In all, 42 websites were analyzed; of these, the information had been validated by a trustworthy source in only 18 (43%) websites. Networking opportunities for parents were available in only 7 (17%) websites. Most websites provided information related to autism spectrum disorder (20/42, 42%) and learning disabilities (19/42, 45%), and only a few websites discussed other disability types such as behavorial disorders and developmental language disorders (4/42, 10% each). Community, social, and civic life (9/42, 22%); domestic life (12/42, 29%); and mobility (15/42, 36%) were the less frequently covered topics. With regard to the usability evaluation, 22 of the 42 (52%) websites received a global score &lt;70%, whereas 20 (48%) scored ≥70% CONCLUSIONS Although the internet is an infinite source of information, it is not necessarily actionable for parents of children with disability. Some information remains difficult to find online, and networking opportunities with other parents dealing with similar challenges are scarce.

scholarly journals Analysis of the Most Viewed First 50 Videos on YouTube about Breast Cancer

2020 ◽  
Vol 2020 ◽  
pp. 1-7
Author(s):  
Isil Yurdaisik
Keyword(s):  
Breast Cancer ◽  
Healthcare Professionals ◽  
The Internet ◽  
Accurate Information ◽  
Cancer Type ◽  
Common Cancer ◽  
Health Related ◽  
The Mean ◽  
Common Cancer Type

Objective. Breast cancer is the most common cancer type among women worldwide. Today, health consumers search the Internet to gain health information about many diseases including breast cancer. YouTube™ is the second most commonly used website on the Internet. However, the quality and accuracy of health-related YouTube™ videos are controversial. The objective of this study was to investigate the quality and accuracy of breast cancer-related videos on YouTube™. Material and Methods. “Breast cancer” keyword was entered into YouTube™ search bar, and after excluding advertisement, duplicate, and non-English videos, the first most viewed 50 videos were analyzed. Videos’ length, the number of views, comments, likes, and dislikes were recorded. DISCERN and JAMA scores and Video Power Index (VPI) values of the videos were calculated. All videos were evaluated by two independent radiologists experienced on breast cancer. The correlation between the two observers was also analyzed. Results. Of all videos, 14% were uploaded by physicians, 26% by health channels, 20% by patients, 10% by news channels, 2% by herbalists, 2% by blog channels, and 2% by nonprofit activism channels. The mean DISCERN score was calculated as 26.70±10.99 and the mean JAMA score as 2.23±0.97. The mean VPI value, which was calculated to determine the popularity of the videos, was found as 94.10±4.48. A strong statistically significant correlation was found between the two observers in terms of both DISCERN and JAMA scores. There was an excellent agreement between the two observers. Conclusion. The overall quality of the viewed videos was found as poor. Healthcare professionals should be encouraged to upload breast cancer-related videos with accurate information to promote patients for screening and direct them appropriately.

scholarly journals Model of the Processing and Selling Insurance Over the Internet

2016 ◽  
Vol 11 (1) ◽  
Author(s):  
Dragan Mihić ◽  
Branko Latinović ◽  
Tomislav Vujinović
Keyword(s):  
Insurance Companies ◽  
The Internet ◽  
Accurate Information ◽  
State Tax ◽  
Automatic Search ◽  
The Cost ◽  
Insurance Price ◽  
Further Development ◽  
Modern Technologies

The growing demands in providing better services to customers, as well as reducing the cost of the insurance companies; while processing insurance quotes require the use of modern technologies such as the methodology of comparing prices and buying policies through the internet. There is a demand for providing a better customer’s quality of shopping, saving customers time and money and integrate all parameters in insurance companies that are important in calculating and creating insurance price. The current way of exchange - search as integration of data, such as an incident book, would be replaced by a modern automatic search of the database, and use processes that meet all insurance standards. The institutions such as insurance supervisor authorities, state tax office and other institutions will be able to access the data in real-time and receive relevant and accurate information about the insured, the vehicles and the policy.The research and developing model is based on study of regulation laid down by the Agency for supervision of insurance in Bosnia-Herzegovina and the collection of business data from insurance companies. Although tariffs and prices of vehicle insurance are unique for all insurance companies, there are differences in how the businesses are carried in insurance companies. [1]Based on these studies and research the new model is developed and proposed for further development and improvement, integration, processing and sale of insurance policies through the Internet.

Can We Trust the Health Information We Find Online?

2018 ◽  
pp. 293-313
Author(s):  
Leila Weitzel ◽  
Paulo Quaresma ◽  
Jose Palazzo Moreira de Oliveira ◽  
Danilo Artigas
Keyword(s):  
Network Topology ◽  
Centrality Measures ◽  
The Internet ◽  
Web Content ◽  
Social Evaluation ◽  
User Reputation ◽  
Professional Guidance ◽  
Source Of Information ◽  
And Training

The Internet is becoming increasingly an important source of information for people who are seeking healthcare information. Users do so without professional guidance and may lack sufficient knowledge and training to evaluate the validity and quality of health web content. This is particularly problematic in the era of Web 2.0. Hence, the main goal of this research is to propose an approach to infer user reputation based on social interactions. Reputation is a social evaluation towards a person or a group of people. The results show that our rank methodology and the network topology succeeded in achieving user reputation. The results also show that centrality measures associated with the weighted ties approach suitably controls suitably the ranking of nodes.

La Traduction Anglaise de Gouverneurs de la rosée de Jacques Roumain par Langston Hughes et Mercer Cook

Babel ◽  
1993 ◽  
Vol 39 (4) ◽  
pp. 225-232
Author(s):  
Cyril Mokwenye
Keyword(s):  
Langston Hughes ◽  
The Novel ◽  
French Version ◽  
The World ◽  
Jacques Roumain ◽  
French Speaking ◽  
English Speaking ◽  
English Speaking World ◽  
Made In

Jacques Roumain's novel, whose title, in its original French version, is Gouverneurs de la rosée, is a masterpiece that has enjoyed considerable popularity among French-speaking black peoples the world over. Its translation into English in 1971 as Masters of the Dew by Langston Hughes and Mercer Cook was most welcome as it has helped to launch and popularise the novel in the English-speaking world. A critical reading of the translated version, however, reveals a number of flaws that tend to detract from the otherwise tremendous effort of the translators. It is in this context that the essay takes a close look at the translation and points out areas in which the translation seems to have fallen short of expectations. Such identified flaws include wrong translations, inconsistencies, omissions and the erroneous use of italics as a translation device. An attempt is made in the essay to proffer suggestions to improve the quality of the wrongly translated parts of the work.

scholarly journals Rúbrica para evaluar el equilibrio sobre el caballo en niños con autismo (Rubric for evaluating balance on the horse in children with autism)

Retos ◽  
2021 ◽  
Vol 41 ◽  
pp. 887-896
Author(s):  
Juan Bautista Vives-Vilarroig ◽  
María Paola Ruiz Bernardo ◽  
Andrés García-Gómez
Keyword(s):  
Sensory Integration ◽  
Intervention Program ◽  
Autism Spectrum ◽  
Spectrum Disorders ◽  
The One ◽  
Integration Problems ◽  
Validated Instrument ◽  
Overall Reliability

  Los trastornos del espectro autista (TEA) son un conjunto de trastornos del neurodesarrollo caracterizados por presentar déficits significativos en la comunicación social y un patrón de conductas y de intereses restringidos y repetitivos. Recientemente en las clasificaciones internacionales de enfermedades, se han incluido los problemas de integración sensorial, en concreto, las conductas de hiper e hiporreactividad sensorial, como una sintomatología propia de los TEA. Los problemas de integración sensorial en el autismo afectan a la modulación sensorial pero también son el origen de otras dificultades de propioceptivas y vestibulares relacionadas con el control postural y el equilibrio. En este artículo se presenta una herramienta que al mismo tiempo sirve como programa de intervención y como rúbrica de observación de las mejoras del equilibrio, utilizando a los caballos como herramienta para la intervención. Se utiliza a los caballos ya que aportan una relación emocional justificada por la biofilia y además su movimiento y cadencia propician la mejora del equilibrio. Por lo tanto, el objetivo de este trabajo es presentar el diseño y validación de un instrumento (rúbrica) para ser utilizado con un grupo de alumnos con TEA y evaluar su equilibrio. La metodología utilizada para la validación comprende dos partes. Por un lado, la revisión lógica realizada por un grupo de expertos, quienes respondieron a un cuestionario sobre la calidad de los ítems propuestos, y para medir el porcentaje de acuerdo entre los jueces se utilizó el Coeficiente de Concordancia de Kappa de Fleiss que evidenció un acuerdo de 85,71%.  Por otro lado, y posteriormente, se realizó la revisión empírica con una muestra de niños con TEA. El Alfa de Cronbach señala que la fiabilidad general de la escala de 0,978 lo que sugiere la solidez interna del cuestionario. Por último, los resultados de su utilización evidencian la eficacia del instrumento validado, en tanto, ha servido para realizar la valoración y el seguimiento evolutivo del equilibrio en los niños participantes en la muestra objeto de estudio.  Abstract. Autism spectrum disorders (ASD) are a group of neurodevelopmental disorders characterised by significant deficits in social communication and a pattern of restricted and repetitive behaviours and interests. Recently, sensory integration problems, specifically sensory hyper- and hyper-reactive behaviours, have been included in the international classifications of diseases as a symptomatology of ASD. Sensory integration problems in autism affect sensory modulation but are also the origin of other proprioceptive and vestibular difficulties related to postural control and balance. This article presents a tool that serves both as an intervention program and as an observation rubric for balance improvements, by using horses as an intervention tool. Horses are used because they provide an emotional relationship justified by biophilia and, in addition, their movement and cadence promote the improvement of balance. Therefore, the aim of this work is to present the design and validation of an instrument (rubric) to be used with a group of students with ASD. The methodology used for validation comprises two parts. On the one hand, the logical review carried out by a group of experts, who answered a questionnaire on the quality of the proposed items. Agreement among the judges was measured with the Fleiss Kappa Concordance Coefficient, which showed an agreement of 85.71%. On the other hand, and subsequently, the empirical review was carried out with a sample of children with ASD. Cronbach's Alpha indicated an overall reliability of the scale of 0.978, thus suggestingthe internal robustness of the questionnaire. Finally, the results of its use showed the effectiveness of the validated instrument, as it was succesfully used to carry out the assessment and evolutionary follow-up of the balance in the children participating in the sample under study.

scholarly journals The Content and Quality of Information About Hyperacusis Presented Online

2020 ◽  
Vol 29 (3S) ◽  
pp. 623-630
Author(s):  
Sandra N. Smith ◽  
Ethan Smallwood ◽  
Magdalena Sereda ◽  
Bethany Adams ◽  
Derek J. Hoare
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Data Extraction ◽  
The Internet ◽  
Search Term ◽  
Related Information ◽  
Data Extraction Form ◽  
Source Of Information ◽  
Complete Account

Purpose Hyperacusis is a disorder characterized by reduced sound tolerance leading to ear pain, emotional distress, and reduced quality of life. Many people with hyperacusis turn to the Internet for information and support from online communities to discuss their condition. The purpose of this study was to assess the content and quality of hyperacusis information presented online. Method The three most used Internet search engines were used to identify relevant websites using the single search term hyperacusis . Fifteen websites were selected for analysis. Details of the purpose, audience, and content of each website were extracted using a bespoke data extraction form. The quality of the information on each website was rated using the validated DISCERN questionnaire. Results There was a wide disparity in the quality and content of hyperacusis information across websites. The website Hyperacusis Focus achieved the highest overall DISCERN score. Hyperacusis Focus and U.K. National Health Service websites were the most comprehensive online resources for health care professionals and patients, respectively. Wikipedia was judged useful for both health care professionals and patients. In general, hyperacusis-related information was accurate. However, no single website provided a complete account of hyperacusis, and some were judged to be selective in the information they provided. Conclusions The Internet provides an important source of information for those who have hyperacusis and those who care for them. Revisions to the websites reviewed here are needed for each to provide a complete account of hyperacusis. Supplemental Material https://doi.org/10.23641/asha.12869717

scholarly journals PERILAKU PEREMPUAN PEDESAAN DALAM MENCARI DAN MENEMUKAN INFORMASI MENGENAI KESEHATAN REPRODUKSI

Edulib ◽  
2018 ◽  
Vol 2 (2) ◽  
Author(s):  
Evi Rosfiantika
Keyword(s):  
Reproductive Health ◽  
Rural Women ◽  
Accurate Information ◽  
Literature Study ◽  
Healthy Life ◽  
The People ◽  
Access Information ◽  
Important Position ◽  
Source Of Information

The high mortality of mothers and babies, can be prevented one of them with the convenience of women access information about reproductive health. women who have sufficient knowledge can take appropriate action to maintain and maintain their reproductive health, The more problems that exist about reproductive health, the provision of information is very important, with the correct and accurate information women will have the understanding and awareness to be healthy in the function and process of reproduction. This article is based on research results in leuwigoong Garut about the behavior of rural women in accessing information about reproductive health. The aim is to find out how rural women seek and find information on reproductive health. The method used in this research is descriptive method with qualitative approach. Data collection tools such as interviews, observation, and literature study. The results showed that rural women's behavior in accessing information on reproductive health, based on the need to improve the quality of healthy life during the process of reproduction. Information obtained from the nearest source of information, namely parents, midwives, hereditary advice and the people closest. The mass media does not get an important position for them to access information. The information found is used for oneself and spread verbally to the people closest to the environment.

What Information Can the Lay Public Find About Osteoporosis Treatment? A Descriptive Study Coding the Content and Quality of Bisphosphonate Information on the Internet (Preprint)

2018 ◽  
Author(s):  
Lindsay Fuzzell ◽  
Matthew J. Richards ◽  
Liana Fraenkel ◽  
Susan L. Stark ◽  
Mary C. Politi
Keyword(s):  
Side Effects ◽  
Task Force ◽  
Medical Knowledge ◽  
Osteoporosis Treatment ◽  
The Internet ◽  
Accurate Information ◽  
Integrative Health ◽  
Treatment Information ◽  
Gastrointestinal Problems

BACKGROUND The US Preventative Services Task Force recommends osteoporosis screening and treatment with bisphosphonates in high risk populations. However, bisphosphonate use among individuals with osteoporosis remains low and has declined in recent years. The content and quality of information from outside sources may influence individuals’ bisphosphonate decisions. OBJECTIVE To assess the content and quality of osteoporosis treatment information available to the public by conducting an internet search and coding available bisphosphonate information. METHODS Nine search terms about osteoporosis and bisphosphonates were entered into four search engines. Two raters assessed websites for information about bisphosphonates, whether and how benefits and side effects were described and quantified, contraindications, and dosing instructions. Coders also assessed website interface and slant/balance of information. RESULTS 1044 websites were identified. 202 websites met inclusion criteria and were coded. The most common bisphosphonate benefit described was prevention of bone density loss (77.2% of websites). The most common side effects described were gastrointestinal problems (65.3%) and jaw osteonecrosis (60.4%). Most websites did not quantify bisphosphonate benefits (76.7%) or side effects (81.2%). Complementary/integrative health websites (p = .000) and pharmaceutical litigation websites (p = .000) were more often slanted against taking bisphosphonates, compared to all websites coded. General medical knowledge websites were more balanced than other websites (p = .05). CONCLUSIONS The quality of bisphosphonate information on the internet varies substantially. Providers counseling patients about osteoporosis treatment should inquire about patients’ baseline bisphosphonate knowledge. Providers can complement accurate information and address potential bisphosphonate misconceptions.

THE WEB: FRIEND OR FOE OF THE HAND SURGEON?

Hand Surgery ◽  
2003 ◽  
Vol 08 (02) ◽  
pp. 181-185 ◽  
Author(s):  
J. A. Sproule ◽  
C. Tansey ◽  
B. Burns ◽  
G. Fenelon
Keyword(s):  
World Wide ◽  
Hand Surgery ◽  
Accurate Information ◽  
Quality Of Information ◽  
Hand Surgeon ◽  
Reliable Source ◽  
The World ◽  
Source Of Information ◽  
The Web

Healthcare information contained on the World Wide Web is not screened or regulated and claims may be unsubstantiated and misleading. The objective of this study was to evaluate the nature and quality of information on the Web in relation to hand surgery. Three search engines were assessed for information on three hand operations: carpal tunnel decompression, Dupuytren's release and trigger finger release. Websites were classified and evaluated for completeness, accuracy, accountability and reference to a reliable source of information. A total of 172 websites were examined. Although 85% contained accurate information, in 65% this information was incomplete. Eighty-seven per cent of websites were accountable for the information presented, but only 24% made references to reliable sources. Until an organised approach to website control is established, it is important for hand surgeons to emphasise to their patients that not everything they read is complete or accurate. Publicising sites known to be of high quality will promote safe browsing of the Web.

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