scholarly journals Web-Based Lifestyle Interventions for Prostate Cancer Survivors: Qualitative Study

JMIR Cancer ◽  
10.2196/19362 ◽  
2020 ◽  
Vol 6 (2) ◽  
pp. e19362
Author(s):  
Elizabeth Y Wang ◽  
Rebecca E Graff ◽  
June M Chan ◽  
Crystal S Langlais ◽  
Jeanette M Broering ◽  
...  
Keyword(s):  
Prostate Cancer ◽  
Health Care ◽  
Grounded Theory ◽  
Health Literacy ◽  
Cancer Survivors ◽  
Text Messages ◽  
Lifestyle Interventions ◽  
Web Based ◽  
Prostate Cancer Survivors ◽  
Diet And Exercise

Background Exercise and a healthy diet can improve the quality of life and prognosis of prostate cancer survivors, but there have been limited studies on the feasibility of web-based lifestyle interventions in this population. Objective This study aims to develop a data-driven grounded theory of web-based engagement by prostate cancer survivors based on their experience in the Community of Wellness, a 12-week randomized clinical trial designed to support healthy diet and exercise habits. Methods TrueNTH’s Community of Wellness was a four-arm pilot study of men with prostate cancer (N=202) who received progressive levels of behavioral support (level 1: website; level 2: website with individualized diet and exercise recommendations; level 3: website with individualized diet and exercise recommendations, Fitbit, and text messages; and level 4: website with individualized diet and exercise recommendations, Fitbit and text messages, and separate phone calls with an exercise trainer and a registered dietitian). The primary aim of the study is to determine the feasibility and estimate the effects on behaviors (results reported in a separate paper). Following the 12-week intervention, we invited participants to participate in 4 focus groups, one for each intervention level. In this report, we used grounded theory analyses including open, axial, and selective coding to generate codes and themes from the focus group transcripts. Categories were refined across levels using embodied categorization and constant comparative methods. Results In total, 20 men with prostate cancer participated in the focus groups: 5, 4, 5, and 6 men in levels 1, 2, 3, and 4, respectively. Participants converged on 5 common factors influencing engagement with the intervention: environment (home environment, competing priorities, and other lifestyle programs), motivation (accountability and discordance experienced within the health care system), preparedness (technology literacy, health literacy, trust, and readiness to change), program design (communication, materials, and customization), and program support (education, ally, and community). Each of these factors influenced the survivors’ long-term impressions and habits. We proposed a grounded theory associating these constructs to describe the components contributing to the intuitiveness of a web-based lifestyle intervention. Conclusions These analyses suggest that web-based lifestyle interventions are more intuitive when we optimize participants’ technology and health literacy; tailor interface design, content, and feedback; and leverage key motivators (ie, health care providers, family members, web-based coach) and environmental factors (ie, familiarity with other lifestyle programs). Together, these grounded theory–based efforts may improve engagement with web-based interventions designed to support prostate cancer survivorship.

scholarly journals Web-Based Lifestyle Interventions for Prostate Cancer Survivors: Qualitative Study (Preprint)

2020 ◽  
Author(s):  
Elizabeth Y Wang ◽  
Rebecca E Graff ◽  
June M Chan ◽  
Crystal S Langlais ◽  
Jeanette M Broering ◽  
...  
Keyword(s):  
Prostate Cancer ◽  
Health Care ◽  
Grounded Theory ◽  
Health Literacy ◽  
Cancer Survivors ◽  
Text Messages ◽  
Lifestyle Interventions ◽  
Web Based ◽  
Prostate Cancer Survivors ◽  
Diet And Exercise

BACKGROUND Exercise and a healthy diet can improve the quality of life and prognosis of prostate cancer survivors, but there have been limited studies on the feasibility of web-based lifestyle interventions in this population. OBJECTIVE This study aims to develop a data-driven grounded theory of web-based engagement by prostate cancer survivors based on their experience in the Community of Wellness, a 12-week randomized clinical trial designed to support healthy diet and exercise habits. METHODS TrueNTH’s Community of Wellness was a four-arm pilot study of men with prostate cancer (N=202) who received progressive levels of behavioral support (level 1: website; level 2: website with individualized diet and exercise recommendations; level 3: website with individualized diet and exercise recommendations, Fitbit, and text messages; and level 4: website with individualized diet and exercise recommendations, Fitbit and text messages, and separate phone calls with an exercise trainer and a registered dietitian). The primary aim of the study is to determine the feasibility and estimate the effects on behaviors (results reported in a separate paper). Following the 12-week intervention, we invited participants to participate in 4 focus groups, one for each intervention level. In this report, we used grounded theory analyses including open, axial, and selective coding to generate codes and themes from the focus group transcripts. Categories were refined across levels using embodied categorization and constant comparative methods. RESULTS In total, 20 men with prostate cancer participated in the focus groups: 5, 4, 5, and 6 men in levels 1, 2, 3, and 4, respectively. Participants converged on 5 common factors influencing engagement with the intervention: environment (home environment, competing priorities, and other lifestyle programs), motivation (accountability and discordance experienced within the health care system), preparedness (technology literacy, health literacy, trust, and readiness to change), program design (communication, materials, and customization), and program support (education, ally, and community). Each of these factors influenced the survivors’ long-term impressions and habits. We proposed a grounded theory associating these constructs to describe the components contributing to the intuitiveness of a web-based lifestyle intervention. CONCLUSIONS These analyses suggest that web-based lifestyle interventions are more intuitive when we optimize participants’ technology and health literacy; tailor interface design, content, and feedback; and leverage key motivators (ie, health care providers, family members, web-based coach) and environmental factors (ie, familiarity with other lifestyle programs). Together, these grounded theory–based efforts may improve engagement with web-based interventions designed to support prostate cancer survivorship.

An international, population-level initiative to promote healthy lifestyle practices among prostate cancer survivors.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. e287-e287 ◽  
Author(s):  
June M. Chan ◽  
Robert Usher Newton ◽  
S. Nicole Culos-Reed ◽  
Sarah Faithfull ◽  
Sylvie Lambert ◽  
...  
Keyword(s):  
Prostate Cancer ◽  
Cancer Survivors ◽  
Population Level ◽  
Web Based ◽  
Prostate Cancer Survivors ◽  
Face To Face ◽  
Global Comparison ◽  
Diet And Exercise ◽  
Lifestyle Practices ◽  
The U.S

e287 Background: Growing evidence suggests that specific lifestyle practices (e.g., diet and exercise) may delay cancer progression among prostate cancer survivors (PCS) and restore post-treatment quality of life. However, there are limited efforts to translate this knowledge to sustainable behavior change among PCS at a population level. Methods: TrueNTH is an international partnership to develop innovative evidence-based interventions and care models to improve the physical and mental wellbeing of PCS. Within TrueNTH, four countries (U.S.A., Australia, Canada, U.K.) are developing solutions to improve lifestyle practices among PCS. Australia is implementing face-to-face and telehealth delivery of exercise and dietary programs facilitated by a web-based portal. Canada is implementing group-based exercise and yoga programs combined with a web-based portal to deliver exercise, nutrition and stress-reduction resources for PCS and caregivers. The U.K. is implementing a healthy living pharmacy approach to deliver tailored diet and exercise advice and support to men. The U.S. will implement a scalable web-based portal that reaches PCS, providers and partners and provides personalized exercise prescriptions and dietary advice, interactive guidance, and behavioral support via social media, tele-exercise, and face-to-face communities. Results: TrueNTH initiatives are in various phases of a three-year project. Australia has enrolled 30 of 80 men across 2 sites and via telehealth, and demonstrated acceptance of the portal. Canada has enrolled 30+ men in exercise programs and will soon add 4 sites and launch their portal. The UK has evaluated assessment protocols in 2 sites and will soon add a 3rd site and implement the pharmacy-based program. The U.S. is building the portal and supportive tools and will begin a trial in Fall 2016. Conclusions: Each TrueNTH program shares common goals to improve lifestyle practices among PCS. Common metrics across initiatives will allow for a global comparison of implementation approaches and assessment of impact at a population level. TrueNTH will utilize this initiative to create a lifestyle survivorship program that improves the lives of PCS worldwide.

Improved Cancer Coping from a Web‐based Intervention for Prostate Cancer Survivors: A Randomized Controlled Trial

2021 ◽  
Author(s):  
Erin K. Tagai ◽  
Suzanne M. Miller ◽  
Shawna V. Hudson ◽  
Michael A. Diefenbach ◽  
Elizabeth Handorf ◽  
...  
Keyword(s):  
Prostate Cancer ◽  
Randomized Controlled Trial ◽  
Cancer Survivors ◽  
Controlled Trial ◽  
Web Based ◽  
Prostate Cancer Survivors ◽  
Randomized Controlled ◽  
Cancer Coping

scholarly journals Optimising Web-Based Computer-Tailored Physical Activity Interventions for Prostate Cancer Survivors: A Randomised Controlled Trial Examining the Impact of Website Architecture on User Engagement

2020 ◽  
Vol 17 (21) ◽  
pp. 7920
Author(s):  
Amy Finlay ◽  
Holly Evans ◽  
Andrew Vincent ◽  
Gary Wittert ◽  
Corneel Vandelanotte ◽  
...  
Keyword(s):  
Physical Activity ◽  
Prostate Cancer ◽  
Cancer Survivors ◽  
Behaviour Change ◽  
Free Choice ◽  
Self Monitoring ◽  
Web Based ◽  
Prostate Cancer Survivors ◽  
Secondary Outcomes ◽  
The Impact

Background: Web-based computer-tailored interventions can assist prostate cancer survivors to become more physically active by providing personally relevant behaviour change support. This study aimed to explore how changing the website architecture (free choice vs. tunnelled) impacted engagement within a physical activity computer-tailored intervention targeting prostate cancer survivors. Methods: On a 2:2:1 ratio, 71 Australian prostate cancer survivors with local or locally advanced disease (mean age: 66.6 years ± 9.66) were randomised into either a free-choice (N = 27), tunnelled (N = 27) or minimal intervention control arm (N =17). The primary outcome was differences in usage of the physical activity self-monitoring and feedback modules between the two intervention arms. Differences in usage of other website components between the two intervention groups were explored as secondary outcomes. Further, secondary outcomes involving comparisons between all study groups (including the control) included usability, personal relevance, and behaviour change. Results: The average number of physical activity self-monitoring and feedback modules accessed was higher in the tunnelled arm (M 2.6 SD 1.3) compared to the free-choice arm (M 1.5 SD 1.4), p = 0.01. However, free-choice participants were significantly more likely to have engaged with the social support (p = 0.008) and habit formation (p = 0.003) ‘once-off’ modules compared to the standard tunnelled arm. There were no other between-group differences found for any other study outcomes. Conclusion: This study indicated that website architecture influences behavioural engagement. Further research is needed to examine the impact of differential usage on mechanisms of action and behaviour change.

scholarly journals Development and preliminary testing of PROGRESS: a Web-based education program for prostate cancer survivors transitioning from active treatment

2015 ◽  
Vol 9 (3) ◽  
pp. 541-553 ◽  
Author(s):  
Suzanne M. Miller ◽  
Shawna V. Hudson ◽  
Siu-kuen Azor Hui ◽  
Michael A. Diefenbach ◽  
Linda Fleisher ◽  
...  
Keyword(s):  
Prostate Cancer ◽  
Cancer Survivors ◽  
Active Treatment ◽  
Education Program ◽  
Web Based ◽  
Preliminary Testing ◽  
Prostate Cancer Survivors ◽  
Web Based Education

scholarly journals Feasibility and Acceptability of a Remotely Delivered, Web-Based Behavioral Intervention for Men With Prostate Cancer: Four-Arm Randomized Controlled Pilot Trial (Preprint)

2020 ◽  
Author(s):  
June M Chan ◽  
Erin L Van Blarigan ◽  
Crystal S Langlais ◽  
Shoujun Zhao ◽  
Justin W Ramsdill ◽  
...  
Keyword(s):  
Prostate Cancer ◽  
Behavioral Intervention ◽  
Controlled Trial ◽  
Pilot Trial ◽  
Text Messages ◽  
Web Based ◽  
Randomized Controlled ◽  
Phone Calls ◽  
Diet And Exercise ◽  
Level 1

BACKGROUND Diet and exercise may be associated with quality of life and survival in men with prostate cancer. OBJECTIVE This study aimed to determine the feasibility and acceptability of a remotely delivered web-based behavioral intervention among men with prostate cancer. METHODS We conducted a multi-site 4-arm pilot randomized controlled trial of a 3-month intervention (TrueNTH Community of Wellness). Eligibility included self-reported prostate cancer diagnosis, having a personal device that connected to the internet, age ≥18 years, and ability to read English and receive text messages and emails. Men receiving chemotherapy or radiation, or those who reported contraindications to exercise, could participate with physician clearance. Participants were randomized (1:1:1:1) to additive intervention levels: website; website and personalized diet and exercise prescription; website, personalized prescription, Fitbit, and text messages; and website, personalized prescription, Fitbit, text messages, and 2 30-minute phone calls—one with an exercise trainer and one with a registered dietician. Primary outcomes were feasibility (accrual and attrition) and acceptability (survey data and website use). We described self-reported diet and exercise behavior at the time of enrollment, 3 months, and 6 months as secondary outcomes. RESULTS In total, 202 men consented and were randomized between August 2017 and September 2018 (level 1: 49, level 2: 51, level 3: 50, level 4: 52). A total of 160 men completed the onboarding process and were exposed to their randomly assigned intervention (38, 38, 42, and 42 in levels 1, 2, 3, and 4, respectively). The follow-up rate was 82.7% (167/202) at 3 months and 77.2% (156/202) at 6 months. Participants had a median age of 70 years and were primarily White and college educated. Website visit frequency over the 3-month intervention period increased across levels (median: 2, 9, 11, and 16 visits for levels 1, 2, 3, and 4, respectively). Most were satisfied or very satisfied with the intervention (20/39, 51%; 27/42, 64%; 23/44, 52%; and 27/42, 64% for levels 1, 2, 3, and 4, respectively). The percentage of men who reported being very satisfied was highest among level 4 participants (10/42, 24% vs 4/39, 10%; 5/42, 12%; and 5/44, 11% for levels 1, 2, and 3, respectively). Dissatisfaction was highest in level 1 (5/39, 13% vs 1/42, 2%; 3/44, 7%; and 2/42, 5% for levels 2, 3, and 4, respectively). We observed small improvements in diet and physical activity at 3 months among men in level 4 versus those in level 1. CONCLUSIONS A web-based, remotely delivered, tailored behavioral intervention for men with prostate cancer is feasible. Future studies are warranted to increase the effect of the intervention on patient behavior while maintaining sustainability and scalability as well as to design and implement interventions for more diverse populations. CLINICALTRIAL ClinicalTrials.gov NCT03406013; http://clinicaltrials.gov/ct2/show/NCT03406013

What Features Do Older Cancer Survivors Want in Web-based Healthy Lifestyle Interventions? A Qualitative Descriptive Study (Preprint)

2020 ◽  
Author(s):  
Nataliya Ivankova ◽  
Laura Rogers ◽  
Ivan Herbey ◽  
Michelle Martin ◽  
Maria Pisu ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Healthy Lifestyle ◽  
Exercise Program ◽  
Lifestyle Interventions ◽  
Program Participation ◽  
Urban Residence ◽  
Web Based ◽  
Diet And Exercise ◽  
Qualitative Descriptive ◽  
Healthy Lifestyle Interventions

BACKGROUND With the growing number of older cancer survivors, it is imperative to optimize the reach of interventions that promote healthy lifestyles. Because internet use is growing rapidly among older adults, web-based delivery holds considerable promise for increasing the reach of such interventions. However, few studies have explored the views of older cancer survivors on this approach and potential variations in these views by gender and/or rural and urban residence. Objectives: Explore older cancer survivors’ views regarding features of web-based healthy lifestyle interventions based on gender and rural/urban residence to inform the design of the web-based Aim, Plan, and Act on Lifestyles (AMPLIFY) Survivor Health diet and exercise program. OBJECTIVE Explore older cancer survivors’ views regarding features of web-based healthy lifestyle interventions based on gender and rural/urban residence to inform the design of the web-based Aim, Plan, and Act on Lifestyles (AMPLIFY) Survivor Health diet and exercise program. METHODS Using a qualitative descriptive approach, we conducted 10 focus groups with 57 cancer survivors recruited from hospital cancer registries in one southeastern U.S. state. Data were analyzed using inductive thematic and content analyses with NVivo 12.5. RESULTS 29 male and 28 female urban and rural dwelling Black and White survivors, mean age 65 years, shared their views about a web-based healthy lifestyle program for cancer survivors. Five themes emerged related to program content, design, delivery, participation, technology training, and receiving feedback. Cancer survivors felt that web-based healthy lifestyle programs for cancer survivors must deliver credible, high quality, and individually-tailored information as recommended by health care professionals or content experts. Urban survivors were more concerned about information reliability, while women were more likely to trust physicians’ recommendations. Male and rural survivors wanted the information to be tailored on cancer type and age group. Privacy, usability, interaction frequency, and session length were noted as important for engaging older cancer survivors with a web-based program. Female and rural participants liked the interactive nature and visual appeal of e-learning sessions. Learning from experts, an attractive design, flexible schedule and opportunity to interact with other survivors in Facebook closed groups emerged as factors promoting program participation. Low computer literacy, lack of experience with web program features, and concerns about Facebook group privacy were important concerns influencing older cancer survivors’ potential participation. Participants noted importance of technology training preferring individualized help to standardized computer classes. More rural survivors acknowledged the need to learn how to use a computer. The receipt of regular feedback about progress was noted as encouragement toward goal achievement, while women were particularly interested in receiving immediate feedback to stay motivated. CONCLUSIONS Important considerations for designing web-based healthy lifestyle interventions for older cancer survivors include program quality, participants’ privacy, ease of use, attractive design, and a prominent role of a health care provider and content expert. Cancer survivors’ preferences based on gender and residence should be considered to promote program participation.

scholarly journals Masculinities of prostate cancer survivors: a qualitative metasynthesis

2019 ◽  
Vol 72 (1) ◽  
pp. 231-240 ◽  
Author(s):  
Jeferson Santos Araújo ◽  
Márcia Maria Fontão Zago
Keyword(s):  
Prostate Cancer ◽  
Health Care ◽  
Cancer Survivors ◽  
Cultural Values ◽  
Prostate Neoplasms ◽  
Marital Relationships ◽  
The Body ◽  
Prostate Cancer Survivors ◽  
Production Of Knowledge ◽  
Mesh Terms

ABSTRACT Objective: To identify the production of knowledge in the health literature about masculinities in the context of prostate cancer survivors and to analyze the implications of this relationship for the maintenance of health care. Method: Metasynthesis of 21 qualitative studies, performed in the LILACS, MEDLINE and CINAHL databases, with the scientific descriptors of DeCS and MeSH terms masculinity, prostate neoplasms. Results: Illness due to prostate cancer imposes numerous changes in male relationships, especially the non-dominance of the body and vulnerability to treatments and their consequences. The cultural values surrounding the disease and the hegemonic behaviors have implications for the health care of men. Conclusion: It has been shown that this relationship makes it difficult to communicate about the disease, marital relationships and family support, mainly influencing neglect of health. The knowledge produced is useful to promote the engagement of men in strengthening care.

scholarly journals “Still a Cancer Patient”—Associations of Cancer Identity With Patient-Reported Outcomes and Health Care Use Among Cancer Survivors

2018 ◽  
Vol 2 (2) ◽  
Author(s):  
Melissa S Y Thong ◽  
Eva-Maria Wolschon ◽  
Lena Koch-Gallenkamp ◽  
Annika Waldmann ◽  
Mechthild Waldeyer-Sauerland ◽  
...  
Keyword(s):  
Prostate Cancer ◽  
Colorectal Cancer ◽  
Health Care ◽  
Cancer Patient ◽  
Cancer Survivors ◽  
Health Care Use ◽  
Cancer Stage ◽  
Self Identity ◽  
Prostate Cancer Survivors ◽  
Colorectal Cancer Survivors

Abstract Background The concept of cancer identity is gaining attention as more individuals are living with cancer as a chronic illness. Research is limited, and results suggest that a self-identity as “cancer patient” rather than a “cancer survivor” is associated with depression and lower health-related quality of life (HRQL). We aimed to identify factors associated with patient identity and investigate the associations between patient identity and treatment, health care use, psychosocial distress, and HRQL. Methods We used data from the population-based CAncEr Survivorship: A multi-Regional (CAESAR) study. Breast, colorectal, and prostate cancer survivors diagnosed during 1994–2004 completed a postal survey on patient identity, HRQL, psychological distress, and health care use in 2009–2011. We calculated odds ratios and the 95% confidence interval of having a patient identity. Analyses were adjusted for age, sex, education, and cancer stage, where appropriate. Results Of the 6057 respondents, colorectal cancer survivors (25%) were least likely to consider themselves patients, and prostate cancer survivors (36%) the most likely. Being male, younger age, comorbidity, higher cancer stage, and disease recurrence were associated with patient identity. Treatment was associated with patient identity, except among female colorectal cancer survivors. Having a patient identity was associated with higher health care use within the past 12 months. Survivors who still consider themselves patients were more likely to be depressed and reported significantly lower HRQL. Conclusions A significant proportion of cancer survivors still consider themselves patients five to 15 years postdiagnosis. Sensitivity to individuals’ self-identity should be considered when exploring their cancer experience.

scholarly journals Quality Of Life Of Prostate Cancer Survivors In A Web-based Behavioral Intervention Pilot Trial

2021 ◽  
Vol 53 (8S) ◽  
pp. 480-480
Author(s):  
Crystal S. Langlais ◽  
Yea-Hung Chen ◽  
Kimi Daniel ◽  
Justin W. Ramsdill ◽  
Tomasz M. Beer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Prostate Cancer ◽  
Cancer Survivors ◽  
Behavioral Intervention ◽  
Pilot Trial ◽  
Web Based ◽  
Prostate Cancer Survivors
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