scholarly journals Behavioral Health Professionals’ Perceptions on Patient-Controlled Granular Information Sharing: Focus Groups (Preprint)

10.2196/18792 ◽  
2020 ◽  
Author(s):  
Julia Ivanova ◽  
Tianyu Tang ◽  
Nassim Idouraine ◽  
Anita Murcko ◽  
Adela Grando ◽  
...  
Keyword(s):  
Focus Groups ◽  
Information Sharing ◽  
Behavioral Health ◽  
Health Professionals

Behavioral Health Professionals’ Perceptions on Outcomes of Patient-Controlled Granular Information Sharing Study: Focus Groups and Survey (Preprint)

2020 ◽  
Author(s):  
Julia Ivanova ◽  
Tianyu Tang ◽  
Nassim Idouraine ◽  
Anite Murcko ◽  
Adela Grando ◽  
...  
Keyword(s):  
Focus Groups ◽  
Information Sharing ◽  
Behavioral Health ◽  
Health Professionals ◽  
Medical Information ◽  
Health Data ◽  
Health Record ◽  
Team Members ◽  
Patient Study ◽  
Actual Patient

BACKGROUND Granular information sharing studies rarely use actual patient electronic health record (EHR) information. In a previous study, behavioral health patients categorized their own EHR data into sensitive categories (e.g. mental health) and chose which care team members (e.g. pharmacists) should have access to those records. In this study, behavioral health professionals are provided access to the outcomes of a previous patient study to better understand the perspectives of health professionals on patient-controlled granular information sharing. OBJECTIVE Assess behavioral health professionals’: (1) perspectives on understanding and opinions about granular information sharing; (2) accuracy in assessing redacted medical information; (3) reactions to patient rationale for health data categorization, assignment of sensitivity, and sharing choices; and (4) recommendations on how to improve the process of granular health information sharing. METHODS Four two-hour focus groups and a pre- and post-survey were conducted at two integrated health facilities. During the focus groups, outcomes from a previous study on patients’ medical record sharing choices were shared. Thematic analysis and descriptive statistical analyses were conducted. RESULTS Twenty-eight professionals were initially unaware of or provided incorrect definitions of granular information sharing (56.0%). After having access to outcomes from a previous patient study, professionals increased their mixed perspectives (21.4% to 37.1%) on granular information sharing. A majority (81.3%) identified that key medical data had been redacted from the study case. Many (66.1%) stated they did not understand patient rationale for categorization or medical sharing preferences. Finally, participants recommended that a variety of educational approaches be incorporated to inform patients about granular information and health record sharing processes. CONCLUSIONS This study provides detailed insights from behavioral health professionals on patient-controlled granular information sharing. Health professionals accurately identified information gaps resulting from patient-directed data redaction, improved in their overall concept comprehension, underscored the fine line between patient safety and patient rights, and expressed a commitment to help patients appreciate the risks and benefits associated with granular information sharing. Outcomes will inform the development, deployment and evaluation of an electronic consent tool for granular health data sharing.

Māori Research(er) in Three Poems

2018 ◽  
Vol 2 (1) ◽  
pp. 35
Author(s):  
Jacquie Kidd
Keyword(s):  
Palliative Care ◽  
Health Literacy ◽  
Cultural Identity ◽  
Focus Groups ◽  
Health Professionals ◽  
Bell Hooks ◽  
Face To Face ◽  
The Third ◽  
Ruth Behar ◽  
Seeking Help

These three poems re-present the findings from a research project that took place in 2013 (Kidd et al. 2018, Kidd et al. 2014). The research explored what health literacy meant for Māori patients and whānau when they accessed palliative care. Through face-to-face interviews and focus groups we engaged with 81 people including patients, whānau, bereaved loved ones, support workers and health professionals. The poems are composite, written to bring some of our themes to life. The first poem is titled Aue. This is a Māori lament that aligns to English words such as ‘oh no’, or ‘arrgh’, or ‘awww’. Each stanza of the poem re-presents some of the stories we heard throughout the research. The second poem is called Tikanga. This is a Māori concept that encompasses customs, traditions and protocols. There are tikanga rituals and processes that guide all aspects of life, death, and relationships. This poem was inspired by an elderly man who explained that he would avoid seeking help from a hospice because ‘they leave tikanga at the door at those places’. His choice was to bear his pain bravely, with pride, within his cultural identity. The third poem is called ‘People Like Me’. This is an autoethnographical reflection of what I experienced as a researcher which draws on the work of scholars such as bell hooks (1984), Laurel Richardson (1997) and Ruth Behar (1996). These and many other authors encourage researchers to use frustration and anger to inform our writing; to use our tears to fuel our need to publish our research.

How can we ensure the success of specialised palliative home-care? A qualitative study (ELSAH) identifying key issues from the perspective of patients, relatives and health professionals

2021 ◽  
pp. 026921632110265
Author(s):  
Hannah Seipp ◽  
Jörg Haasenritter ◽  
Michaela Hach ◽  
Dorothée Becker ◽  
Lisa-R Ulrich ◽  
...  
Keyword(s):  
Home Care ◽  
Focus Groups ◽  
Health Professionals ◽  
Care Delivery ◽  
Death And Dying ◽  
Theory Approach ◽  
Palliative Home Care ◽  
Palliative Care Teams ◽  
Key Issues

Background: Specialised palliative home-care supports patients with life-limiting diseases in their familiar surroundings. The number of palliative care teams and patients being cared for is increasing worldwide. To assess and improve quality, it is needed to understand, how specialised palliative home-care can be provided successfully. For this purpose we examined the views of all involved stakeholders. Aim: To identify the issues that patients, their relatives and involved health professionals view as important in ensuring the success of specialised palliative home-care. Design: We used a qualitative design based on participant observations, interviews and focus groups following the principles of a Grounded Theory approach. Setting/participants: All specialised palliative home-care teams ( n = 22) caring for adults in Hesse, Germany, participated. We conducted participant observations ( n = 5), and interviewed patients ( n = 14), relatives ( n = 14) and health professionals working in or collaborating with specialised palliative home-care ( n = 30). We also conducted focus groups ( n = 4) with health professionals including a member check. Results: Successful specialised palliative home-care needs to treat complex symptoms, and provide comprehensive care including organisation of care, involving relatives and addressing issues of death and dying. Sense of security for patients and relatives is key to enable care at home. Care delivery preferences include a focus on the quality of relationships, respect for individuality and the facilitation of self-determination. Conclusions: Consideration of the identified key issues can help to ensure successful specialised palliative home-care. Knowledge of these should also be considered when researching and assessing quality of care. Trial registration: German Clinical Trials Register DRKS-ID: DRKS00012421; http://www.germanctr.de .

scholarly journals The concept of health in older age: views of older people and health professionals

2007 ◽  
Vol 31 (4) ◽  
pp. 642 ◽  
Author(s):  
Melita J Giummarra ◽  
Betty Haralambous ◽  
Kirsten Moore ◽  
Joan Nankervis
Keyword(s):  
Older People ◽  
Focus Groups ◽  
Health Professionals ◽  
Social Connectedness ◽  
Older Age ◽  
Concept Of Health ◽  
Concepts Of Health ◽  
Health Promoting ◽  
Barriers And Motivators ◽  
Holistic Manner

This study aimed to explore how older people and health professionals conceptualise health in older age. Thirty-six older people and 41 health professionals participated in 10 focus groups (five with older people and five with health professionals) and discussed concepts of health, the modifiable aspects of health, and barriers and motivators to undertaking health-promoting behaviour change. Both older people and health professionals were found to conceptualise health in a holistic manner. While health professionals tended to place the source of poor health on failures of social connectedness and poor service delivery, older people stressed the importance of taking ownership of one?s own health and actively seeking out health promoting activities and services.

scholarly journals Source Trust and COVID-19 Information Sharing: The Mediating Roles of Emotions and Beliefs About Sharing

2020 ◽  
pp. 109019812098476
Author(s):  
Linqi Lu ◽  
Jiawei Liu ◽  
Y. Connie Yuan ◽  
Kelli S. Burns ◽  
Enze Lu ◽  
...  
Keyword(s):  
Social Media ◽  
Information Sharing ◽  
Health Information ◽  
News Media ◽  
Health Professionals ◽  
Government Agencies ◽  
Specific Information ◽  
Academic Institutions ◽  
Source Trust ◽  
Health Information Sharing

Health information sharing has become especially important during the COVID-19 (coronavirus disease 2019) pandemic because people need to learn about the disease and then act accordingly. This study examines the perceived trust of different COVID-19 information sources (health professionals, academic institutions, government agencies, news media, social media, family, and friends) and sharing of COVID-19 information in China. Specifically, it investigates how beliefs about sharing and emotions mediate the effects of perceived source trust on source-specific information sharing intentions. Results suggest that health professionals, academic institutions, and government agencies are trusted sources of information and that people share information from these sources because they think doing so will increase disease awareness and promote disease prevention. People may also choose to share COVID-19 information from news media, social media, and family as they cope with anxiety, anger, and fear. Taken together, a better understanding of the distinct psychological mechanisms underlying health information sharing from different sources can help contribute to more effective sharing of information about COVID-19 prevention and to manage negative emotion contagion during the pandemic.

American Indian Behavioral Health Treatment Preferences as Perceived by Urban Indian Health Program Providers

2021 ◽  
pp. 104973232110578
Author(s):  
Andrew Pomerville ◽  
Anna Kawennison Fetter ◽  
Joseph P. Gone
Keyword(s):  
Focus Groups ◽  
American Indian ◽  
Behavioral Health ◽  
Cultural Values ◽  
The United States ◽  
Treatment Preferences ◽  
Health Staff ◽  
Indian Health ◽  
Urban Indian ◽  
Therapy Room

Behavioral health services specifically targeted for ethnoracial clients are typically tailored to the specific needs and preferences of these populations; however, little research has been done with American Indian clients specifically. To better understand how clinicians handle provision of treatment to this population, we interviewed 28 behavioral health staff at six Urban Indian Health Programs in the United States and conducted focus groups with 23 staff at five such programs. Thematic analysis of transcripts from these interviews and focus groups suggests that these staff attempt to blend and tailor empirically supported treatments with American Indian cultural values and practices where possible. Simultaneously, staff try to honor the client’s specific preferences and needs and to encourage clients to seek cultural practices and connection outside of the therapy room. In so doing staff members were acutely aware of the limitations of the evidence base and the lack of research with American Indian clients.

scholarly journals Conceptions of the professionals about their attributions in the Expanded Nucleus of Family Health

Psico-USF ◽  
2019 ◽  
Vol 24 (4) ◽  
pp. 661-671
Author(s):  
Meyrielle Belotti ◽  
Alexandra Iglesias ◽  
Luziane Zacché Avellar
Keyword(s):  
Primary Care ◽  
Qualitative Research ◽  
Content Analysis ◽  
Data Collection ◽  
Focus Groups ◽  
Health Professionals ◽  
Family Health ◽  
Work Processes ◽  
The Family ◽  
Specialized Care

Abstract The article aims to analyze the conceptions conferred by the health professionals that compose the Expanded Nuclei of Family Health (NASF) on their work assignments. This is a qualitative research, in which was used, for the data collection, eight focus groups, with a total of 43 participants. The data were submitted to content analysis. The results outlined the following categories: integrating NASF work with the Family Health Teams (ESF); developing specialized care; promoting intersectionality; contributing to the promotion of teamwork in Primary Care (AB) and strengthening AB. The study indicates the importance of a better understanding of the functions of the NASF, so that it does not restrict the opportunity to perform specialized care in AB. It is pointed out, the need for adjustments in the work processes of the ESF, in order to enable the shared work in the AB.

scholarly journals Mobile Care System for Older Adults: perceptions about its use in caring for people with dementia

2020 ◽  
Vol 23 (1) ◽  
Author(s):  
André da Silva Brites ◽  
Celia Pereira Caldas ◽  
Luciana Branco da Motta ◽  
Danielli Santos do Carmo ◽  
Alexandre Sztajnberg ◽  
...  
Keyword(s):  
Social Support ◽  
Older Adults ◽  
Focus Groups ◽  
Health Professionals ◽  
Medication Management ◽  
Management Strategies ◽  
Cognitive Disorders ◽  
Functional Evaluation ◽  
People With Dementia ◽  
Care System

Abstract Objective: To analyze the perceptions of caregivers and health professionals about a mobile application used for the caring and social support of people with dementia. Method: A qualitative study was performed on the experience of implementing a Mobile Care System for Older Adults (Sistema Móvel de Assistência ao Idoso, SMAI) in the routine of caregivers of people with dementia, treated at an outpatient clinic for cognitive disorders. Data were obtained through the application of questionnaires about the characteristics of caregivers and the Zarit scale to assess the level of burden. An Activities of Daily Living Questionnaire (ADLQ) was applied for functional evaluation. The perception of caregivers and professionals were collected through the audio recording of focus groups and analyzed according to the thematic-categorical analysis technique. Results: Twenty caregivers and five health professionals participated in the focus groups. Categories that emerged from the study revealed themes related to users’ experiences, communication, medication management, feelings of caregivers, patient management strategies, impact of dementia on caregivers’ lives, illness of caregivers and application evaluation. Conclusion: Interventions using mobile applications can help improve communication and social support in the care of dementia. The experience with the SMAI and its applications represented an innovative opportunity for both family caregivers and healthcare professionals.

scholarly journals The Current Psychiatric Mental Health Registered Nurse Workforce

2019 ◽  
Vol 25 (1) ◽  
pp. 38-48 ◽  
Author(s):  
Bethany J. Phoenix
Keyword(s):  
Mental Health ◽  
Behavioral Health ◽  
Health Workforce ◽  
Health Professionals ◽  
Rural Areas ◽  
The United States ◽  
Institutional Settings ◽  
Registered Nursing ◽  
Data Limitations ◽  
Behavioral Health Workforce

OBJECTIVE: To define and describe the current psychiatric mental health registered nursing (PMHN) workforce providing care for persons with mental health and substance use conditions, evaluate sources of data relevant to this workforce, identify additional data needs, and discuss areas for action and further investigation. METHOD: This article uses currently available data, much of it unpublished, to describe the current PMHN workforce. RESULTS: The available data indicate that PMHNs represent the second largest group of behavioral health professionals in the United States. As is true of the overall nursing workforce, PMHNs are aging, overwhelming female, and largely Caucasian, although the PMHN workforce is becoming more diverse as younger nurses enter the field. PMHNs are largely employed in the mental health specialty sector, and specifically in institutional settings. Similar to other behavioral health professionals, a significant shortage of PMHNs exists in rural areas. Because of data limitations and difficulty accessing the best available data on the PMHN workforce, it is often overlooked or mischaracterized in published research and government reports on the behavioral health workforce. CONCLUSIONS: Although PMHNs are one of the largest groups in the behavioral health workforce, they are largely invisible in the psychiatric literature. Psychiatric nursing must correct misperceptions about the significance of the PMHN workforce and increase awareness of its importance among government agencies, large health care organizations, and within the broader nursing profession.

The challenge of change fatigue on workplace mental health

2020 ◽  
Vol 19 (5) ◽  
pp. 199-203
Author(s):  
Jan Bruce ◽  
Lucy English
Keyword(s):  
Mental Health ◽  
Focus Groups ◽  
Behavioral Health ◽  
Health Issues ◽  
Workplace Issues ◽  
Content Type ◽  
Extreme Stress ◽  
Workplace Mental Health ◽  
Mental Health Issues ◽  
The Impact

Purpose Change and “change fatigue” were contributing to a spectrum of workplace issues – from extreme stress and burnout – to rising mental health issues even before the impact of COVID-19. This paper aims to examine why identifying mental and behavioral health issues had become a top priority for some employers and explore the negative impacts mental health issues present to organizations. Design/methodology/approach To gain this additional insight and data, meQuilibrium partnered with Employer Health Innovation Roundtable (EHIR) to hold a series of four workshops and focus groups, in the Fall of 2019 with 37 participating EHIR members representing large employers. The authors also gathered data through a short survey instrument. The discussions and the survey focused on the current mental and behavioral health challenges being faced by their organizations and what innovations are being put in place or will need to be put in place as part of a future integrated workforce strategy. Findings A key, and foundational, finding was that among these human resource (HR) leaders there was a view shared by 97% of survey respondents that the workplace was facing a greater mental health challenge than previously. Hundred per cent of participants agreed that the success of a workplace mental health solution will now require highly personalized, whole-person care across the full range of problems from mild to severe and will need to include not just the employee but also their spouse/partner and children. Originality/value While identifying mental and behavioral health issues had become a top priority for some employers even before the pandemic, meQuilibrium believed there was a need for more clarity as to how the HR professionals were viewing the urgency of the situation. This study examines key stakeholders in their organizations, the effectiveness of their current solutions and what new approaches to employee mental health they were considering. This paper includes original data compiled through workshops and focus groups.

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