scholarly journals How the use of a patient-accessible health record contributes to patient-centered care: Scoping review. (Preprint)

Author(s):  
Janine Benjamins ◽  
Annemien Haveman ◽  
Marian Gunnink ◽  
Annemieke Goudkuil ◽  
Emely de Vet
10.2196/22913 ◽  
2020 ◽  
Vol 22 (10) ◽  
pp. e22913
Author(s):  
Consuela Cheriece Yousef ◽  
Abin Thomas ◽  
Ahmed O Alenazi ◽  
Sumaya Elgadi ◽  
Laila Carolina Abu Esba ◽  
...  

Background As health care organizations strive to improve health care access, quality, and costs, they have implemented patient-facing eHealth technologies such as personal health records to better engage patients in the management of their health. In the Kingdom of Saudi Arabia, eHealth is also growing in accordance with Vision 2030 and its National Transformation Program framework, creating a roadmap for increased quality and efficiency of the health care system and supporting the goal of patient-centered care. Objective The aim of this study was to investigate the adoption of the personal health record of the Ministry of National Guard Health Affairs (MNGHA Care). Methods A cross-sectional survey was conducted in adults visiting outpatient clinics in hospitals at the Ministry of National Guard Health Affairs hospitals in Riyadh, Jeddah, Dammam, Madinah, and Al Ahsa, and primary health care clinics in Riyadh and Qassim. The main outcome measure was self-reported use of MNGHA Care. Results In the sample of 546 adult patients, 383 (70.1%) reported being users of MNGHA Care. MNGHA Care users were more likely to be younger (P<.001), high school or university educated (P<.001), employed (P<.001), have a chronic condition (P=.046), use the internet to search for health-related information (P<.001), and use health apps on their mobile phones (P<.001). Conclusions The results of this study show that there is substantial interest for the use of MNGHA Care personal health record with 70% of participants self-reporting use. To confirm these findings, objective data from the portal usage logs are needed. Maximizing the potential of MNGHA Care supports patient engagement and is aligned with the national eHealth initiative to encourage the use of technology for high-quality, accessible patient-centered care. Future research should include health care provider perspectives, incorporate objective data, employ a mixed-methods approach, and use a theoretical framework.


2014 ◽  
Vol 14 (1) ◽  
Author(s):  
Marissa K Constand ◽  
Joy C MacDermid ◽  
Vanina Dal Bello-Haas ◽  
Mary Law

2020 ◽  
Author(s):  
Consuela Cheriece Yousef ◽  
Abin Thomas ◽  
Ahmed O Alenazi ◽  
Sumaya Elgadi ◽  
Laila Carolina Abu Esba ◽  
...  

BACKGROUND As health care organizations strive to improve health care access, quality, and costs, they have implemented patient-facing eHealth technologies such as personal health records to better engage patients in the management of their health. In the Kingdom of Saudi Arabia, eHealth is also growing in accordance with Vision 2030 and its National Transformation Program framework, creating a roadmap for increased quality and efficiency of the health care system and supporting the goal of patient-centered care. OBJECTIVE The aim of this study was to investigate the adoption of the personal health record of the Ministry of National Guard Health Affairs (MNGHA Care). METHODS A cross-sectional survey was conducted in adults visiting outpatient clinics in hospitals at the Ministry of National Guard Health Affairs hospitals in Riyadh, Jeddah, Dammam, Madinah, and Al Ahsa, and primary health care clinics in Riyadh and Qassim. The main outcome measure was self-reported use of MNGHA Care. RESULTS In the sample of 546 adult patients, 383 (70.1%) reported being users of MNGHA Care. MNGHA Care users were more likely to be younger (<i>P</i>&lt;.001), high school or university educated (<i>P</i>&lt;.001), employed (<i>P</i>&lt;.001), have a chronic condition (<i>P</i>=.046), use the internet to search for health-related information (<i>P</i>&lt;.001), and use health apps on their mobile phones (<i>P</i>&lt;.001). CONCLUSIONS The results of this study show that there is substantial interest for the use of MNGHA Care personal health record with 70% of participants self-reporting use. To confirm these findings, objective data from the portal usage logs are needed. Maximizing the potential of MNGHA Care supports patient engagement and is aligned with the national eHealth initiative to encourage the use of technology for high-quality, accessible patient-centered care. Future research should include health care provider perspectives, incorporate objective data, employ a mixed-methods approach, and use a theoretical framework.


2021 ◽  
pp. OP.20.00644 ◽  
Author(s):  
Anjali V. Desai ◽  
Rajiv Agarwal ◽  
Andrew S. Epstein ◽  
Gilad J. Kuperman ◽  
Chelsea L. Michael ◽  
...  

QUESTION ASKED: What is the most important information that diverse institutional stakeholders at a comprehensive cancer center need to know about patients to provide patient-centered care, and what is the best way to display this information in a new single-location feature in the electronic health record (EHR)? SUMMARY ANSWER: Thematic content analysis of semistructured interviews with a large and diverse group of institutional stakeholders at our comprehensive cancer center revealed themes informing design and development of the Patient Values Tab EHR feature, generated enthusiasm and buy-in for this digital innovation, created a sense of awareness among future users, and paved the way for implementation. WHAT WE DID: Qualitative data were collected through in-person, guide-based, audio-recorded, individual interviews with a total of 110 stakeholders representing a wide range of disciplines and professions, as well as others involved in administration of the hospital or clinics within our cancer center. WHAT WE FOUND: Respondents felt that to facilitate the delivery of patient-centered care, information in the following categories should be displayed: the patient's personhood, support system and resources, social history, communication preferences, future planning, end of life, and illness and treatment understanding. Other important themes that arose in the interviews included implementation considerations, improved communication and relationship building, and privacy implications. BIAS, CONFOUNDING FACTORS, DRAWBACKS, REAL-LIFE IMPLICATIONS: Since this study was conducted at a single dedicated cancer center, generalizability of findings across other healthcare settings merits further investigation. It is possible that non–English-speaking clinicians and patients, who were not interviewed, might have different needs or perspectives. We designed our Patient Values Tab for our institution's EHR (Allscripts); however, this display feature can be configured in other EHR software. By interviewing a large and varying sample of stakeholders and rigorously analyzing their responses, we obtained robust results to inform the development and implementation of this innovative EHR feature centralizing key information needed to enhance patient-centered cancer care. The introduction of the new Patient Values Tab at this well-known cancer center signals the importance of patient personhood and values throughout the institution and advances the use of the EHR as a driver of the delivery of patient-centered care throughout the illness.


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