scholarly journals Argus II Commissioning through Evaluation (ACE) Study: protocol for a single arm, mixed methods study to assess the impact of the Argus® II Retinal Prosthesis System on the quality of life of patients with ultra-low vision due to retinitis pigmentosa. (Preprint)

10.2196/17436 ◽  
2019 ◽  
Author(s):  
Judith White ◽  
Laura Knight ◽  
Lyndon da Cruz ◽  
Paulo Eduardo Stanga ◽  
Hannah Patrick ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Retinitis Pigmentosa ◽  
Low Vision ◽  
Retinal Prosthesis ◽  
Mixed Methods Study ◽  
Ace Study ◽  
Argus Ii ◽  
The Impact

scholarly journals Argus II Commissioning through Evaluation (ACE) Study: protocol for a single arm, mixed methods study to assess the impact of the Argus® II Retinal Prosthesis System on the quality of life of patients with ultra-low vision due to retinitis pigmentosa. (Preprint)

2019 ◽  
Author(s):  
Judith White ◽  
Laura Knight ◽  
Lyndon da Cruz ◽  
Paulo Eduardo Stanga ◽  
Hannah Patrick ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Retinitis Pigmentosa ◽  
Low Vision ◽  
Retinal Prosthesis ◽  
Mixed Methods Study ◽  
Ordinal Scale ◽  
Argus Ii ◽  
The Impact

BACKGROUND Retinitis pigmentosa (RP) is an incurable, degenerative retinal condition causing progressive sight loss, impacting significantly on patients’ quality of life. The Argus® II Retinal Prosthesis is a surgically implanted medical device which delivers electrical stimulation to the retina. It is intended to produce a form of artificial vision to blind people with severe to profound RP by stimulating remaining viable retinal cells to induce visual perception. This study has been initiated by NHS England’s Commissioning through Evaluation programme and funded through the UK’s National Institute of Health Research OBJECTIVE To assess the impact of the Argus II device on patient’s daily activities and quality of life. METHODS This protocol is a prospective, single arm, open-label, mixed methods study on 10 consecutive participants receiving the Argus II device. Patient representatives have played an integral role in the design of the study. Eligibility criteria include ultra-low vision in both eyes as a result of end-stage RP and a willingness and capacity to complete the post-implantation rehabilitation programme. Participants will be interviewed by independent researchers at baseline and 12 months later using a semi-structured, in-depth approach, alongside validated questionnaires (Impact of Vision Impairment Very Low Vision, EQ-5D-5L and EQ-VAS, and Hospital Anxiety and Depression Scale) and a bespoke device-related questionnaire which includes questions about users’ experiences with the procedure, the device, and rehabilitation. The impact of the device on patients’ functional vision and activities of daily living will be assessed by vision rehabilitation specialists using a set of tests measured on an ordinal scale (e.g. ability to locate objects and avoid obstacles). Clinical outcomes include full-field stimulus light threshold, square localization, direction of motion, grating visual acuity, Landolt-C, procedural success and adverse events. Qualitative and quantitative outcomes will be linked on a single database to enable individual participant measures to be considered in toto, comparing baseline to final review. RESULTS Ethics approval has been obtained and funding has been awarded. The manufacturer recently withdrew the Argus II device from sale in the UK, therefore the study is not going ahead at this time. CONCLUSIONS The mixed method approach provides a rich and in-depth assessment of the impact of the device on participants’ quality of life. Despite the work not going ahead, publication of this publicly-funded protocol is important for researchers planning similar work. CLINICALTRIAL

scholarly journals The impact of transcatheter aortic valve implantation on quality of life: A mixed methods study

Heart & Lung ◽  
2017 ◽  
Vol 46 (6) ◽  
pp. 432-438 ◽  
Author(s):  
Felicity Astin ◽  
Judith Horrocks ◽  
Jim McLenachan ◽  
Daniel J. Blackman ◽  
John Stephenson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Aortic Valve ◽  
Transcatheter Aortic Valve Implantation ◽  
Mixed Methods Study ◽  
Transcatheter Aortic Valve ◽  
Aortic Valve Implantation ◽  
Valve Implantation ◽  
The Impact

scholarly journals The Impact of the COVID-19 Pandemic on ICU Healthcare Professionals: A Mixed Methods Study

2021 ◽  
Vol 18 (17) ◽  
pp. 9243
Author(s):  
Cristina Moreno-Mulet ◽  
Noemí Sansó ◽  
Alba Carrero-Planells ◽  
Camelia López-Deflory ◽  
Laura Galiana ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Healthcare Professionals ◽  
Mixed Methods Study ◽  
Self Report ◽  
Professional Quality Of Life ◽  
Professional Quality ◽  
Distress Scale ◽  
The Impact

The large numbers of patients admitted to intensive care units due to COVID-19 has had a major impact on healthcare professionals. The incidence of mental health disorders among these professionals has increased considerably and their professional quality of life has suffered during the pandemic. This study aims to explore the impact of the provision of COVID-19 patient care on ICU healthcare professionals. A mixed methods study with an exploratory concurrent design was conducted between June and November 2020 in the Balearic Islands, Spain. Data were collected using a self-report online survey (n = 122) based on three validated questionnaires, and individual semi-structured in-depth online interviews (n = 11). Respondents scored 2.5 out of 5 on the moral distress scale, moderate/high on the compassion satisfaction scale, and moderate on the burnout and compassion fatigue subscales. Age was significantly and negatively related to professional quality of life but was positively related to workload and unavailability of protective equipment. Three main groups of themes relating to the impact of the pandemic emerged from the in-depth interviews: (a) clinical, (b) professional, and (c) personal and family impacts in the two waves. ICU healthcare professionals should be viewed as second victims of the COVID-19 pandemic as they have suffered significant psychological, professional, and moral harm.

Patient and Caregiver Outcomes and Experiences With Team-Based Memory Care: A Mixed Methods Study

2019 ◽  
pp. 073346481988883
Author(s):  
Tsai-Ling Liu ◽  
Traci D. Yates ◽  
Yhenneko J. Taylor ◽  
Whitney Rossman ◽  
Deanna Mangieri ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Caregiver Burden ◽  
Psychosocial Support ◽  
Positive Impact ◽  
Emergency Department Visits ◽  
Mixed Methods Study ◽  
Memory Clinic ◽  
The Impact

Patients with dementia and their caregivers need ongoing educational and psychosocial support to manage their complex diagnosis. This mixed methods study evaluated the impact of a memory clinic with an embedded dementia navigator on the experiences and health outcomes of patients with dementia and their caregivers. At the 12-month follow-up, patients receiving memory clinic services ( n = 238) had higher emergency department visits than a matched cohort with dementia ( n = 938), although hospitalizations did not differ. Patient quality of life and caregiver burden scores also did not differ between baseline and 12-months. Interviews revealed that caregivers ( n = 12) valued the educational and social support components of the memory clinic and perceived that the clinic had a positive impact on their experiences. Findings suggest that this embedded navigator model is useful for addressing caregiver needs and may have potential to stem increases in caregiver burden and patient quality of life that occur with disease progression.

scholarly journals A mixed-methods study evaluating the impact of an excursion-based social group on quality of life of older adults

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Joyce Siette ◽  
Mikaela Jorgensen ◽  
Amy Nguyen ◽  
Gilbert Knaggs ◽  
Stuart Miller ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Mixed Methods ◽  
Social Isolation ◽  
Aged Care ◽  
Mixed Methods Study ◽  
Care Staff ◽  
Care Services ◽  
The Impact

Abstract Background Social isolation is an increasing concern for older adults who live in the community. Despite some availability of social support programs to address social isolation, their effectiveness is not routinely measured. This study aimed to evaluate an innovative excursion-based program offering unique social experiences to older adults receiving aged care services. Methods This six-month before and after mixed-methods study evaluated the outcomes of an Australian excursion-based program which offered social and physical outings to bring older adults receiving aged care services into the wider community. The study combined two parts: Part 1 was a pre-post survey assessing the quality of life of older adults who received the excursion-based program for 6 months (n = 56; two time-points, analysed using signed rank test) and Part 2 involved qualitative in-depth, semi-structured interviews (n = 24 aged care staff, older adults and carers; analysed using thematic analysis). Results Older adults experienced a significant increase in quality of life scores (p < 0.001) between baseline and 6 months. Interviews confirmed these observations and suggested that benefits of participation included increased opportunities for social participation, psychological wellbeing, physical function, and carer respite. Interviews also revealed being in a group setting, having tailored, convenient and accessible activities, alongside supportive staff were key drivers in improving the wellbeing of participants. Conclusions Participating in an excursion-based community program may improve wellbeing in older adults. Aging policy should focus on prioritizing initiatives that promote social connectivity with the wider community and assist in improving outcomes for older adults.

scholarly journals Housing with support for older people: a mixed-methods systematic review protocol

2020 ◽  
Vol 3 ◽  
pp. 64
Author(s):  
Camille Coyle ◽  
Sarah Buggy ◽  
Olivia Cagney ◽  
Louise Farragher ◽  
Caitriona Lee ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Mixed Methods ◽  
Older People ◽  
Grey Literature ◽  
Qualitative And Quantitative ◽  
Ovid Medline ◽  
The Impact ◽  
People’S Perceptions

Background: The implementation of housing with support is rapidly expanding, particularly as life expectancy is increasing throughout the world. This expansion is likely to intensify in the context of coronavirus disease 2019 (COVID-19), which has revealed the risks of relying primarily on nursing homes. This mixed-methods systematic review aims to: 1) explore older people’s perceptions and experiences of housing with support and 2) examine the impact of providing housing with support for older people on their quality of life. Methods: The databases Ovid Medline, Ovid Social Policy & Practice, EBSCO CINAHL, and EBSCO SOCIndex will be searched, and grey literature will also be identified. Quality assessment will be carried out using Joanna Briggs Institute’s Critical Appraisal Checklist for Qualitative Research as well as a tool from the National Institutes of Health for observational cohort studies. This review will employ convergent parallel design; as such, qualitative and quantitative findings will be synthesised separately in the initial stage of analysis. The results from the qualitative and quantitative syntheses will then be integrated in the final stage of the analysis. Conclusion: This systematic review will synthesise the evidence regarding older people’s perceptions and experiences of housing with support and the impact of providing housing with support for older people on their quality of life.

scholarly journals Impact of low vision services on the quality of life of low vision patients in Ghana

2016 ◽  
Vol 75 (1) ◽  
Author(s):  
Godwin O. Ovenseri-Ogbomo ◽  
Harriette Osafo-Agyei ◽  
Ralph E.U. Akpalaba ◽  
James Addy ◽  
Elizabeth O. Ovenseri
Keyword(s):  
Quality Of Life ◽  
Visual Acuity ◽  
Positive Impact ◽  
Low Vision ◽  
Care Quality ◽  
Eastern Region ◽  
Post Intervention ◽  
Low Vision Clinic ◽  
The Impact

Patients’ perspectives on the impact of clinical interventions have been recognised as critical elements in patient care. Quality-of-life instruments are designed to measure these perspectives. We used the National Eye Institute’s 25-item Visual Function Questionnaire (NEI VFQ) to measure the impact of optical low vision devices on the quality of life of 22 low vision patients who obtained and were using low vision devices from a secondary low vision clinic in the Eastern Region, Ghana. The study employed a pre- and post-intervention technique. We found statistically significant improvements in measured visual acuity and NEI VFQ scores in 8 of the 10 domains evaluated. We conclude that optical low vision devices have a positive impact on the quality of life of low vision patients in Ghana.Keywords: low vision; quality of life; visual acuity; visual impairment; Ghana

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