scholarly journals The uses of personal health records for communication among colorectal cancer survivors, caregivers, and providers (Preprint)

10.2196/16447 ◽  
2019 ◽  
Author(s):  
Thomas Carr ◽  
David Haggstrom
Keyword(s):  
Colorectal Cancer ◽  
Cancer Survivors ◽  
Personal Health Records ◽  
Personal Health ◽  
Health Records ◽  
Colorectal Cancer Survivors

The uses of personal health records for communication among colorectal cancer survivors, caregivers, and providers (Preprint)

2019 ◽  
Author(s):  
Thomas Carr ◽  
David Haggstrom
Keyword(s):  
Colorectal Cancer ◽  
Cancer Survivors ◽  
Primary Care Physicians ◽  
Healthcare Providers ◽  
Personal Health Records ◽  
Personal Health ◽  
Discrete Observations ◽  
Health Records ◽  
Colorectal Cancer Survivors

BACKGROUND Personal Health Records (PHRs) may be useful for patient self-management, as well as participation in communication with their caregivers and healthcare providers. As each potential participant’s role is different, their perception of the best uses of a PHR may vary. OBJECTIVE The perspectives of patients, caregivers, and providers were all evaluated concurrently in relation to a PHR developed for colorectal cancer survivors. METHODS We explored group perceptions of a colorectal cancer (CRC) PHR prototype. Scenario-based testing across eight use cases, with semi-structured follow-up interviews, was videotaped in a human-computer interaction laboratory with patients, caregivers, and healthcare providers. Providers included oncology, gastroenterology, and primary care physicians. Discrete observations underwent grounded theory visual affinity analysis to identify emergent themes. RESULTS All groups noted the added value of linking the PHR to an electronic health record; tracking follow-up testing; and secure messaging. Patients and caregivers valued the journal as a tool for reflection and to receive emotional support. Providers felt the PHR would facilitate patient-physician communication, but worried that sharing journal access would make the doctor-patient relationship less professional and had reservations about the time burden of reviewing. CONCLUSIONS PHR perceptions differed by role, with providers seeing the PHR as informational, while patients and caregivers viewed the tool as more relational. Patients and providers should establish shared expectations about the optimal use of the PHR in the patient-provider relationship.

scholarly journals Electronic Personal Health Records for Childhood Cancer Survivors: An Exploratory Study

2014 ◽  
Vol 3 (3) ◽  
pp. 117-122 ◽  
Author(s):  
Lisa K. Sharp ◽  
Priscilla Carvalho ◽  
Matthew Southward ◽  
Mary Lou Schmidt ◽  
Leslie N. Jabine ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Childhood Cancer ◽  
Exploratory Study ◽  
Childhood Cancer Survivors ◽  
Personal Health Records ◽  
Personal Health ◽  
Health Records ◽  
Electronic Personal Health Records

Predictors of SF-6D scores among long-term colorectal cancer survivors

2010 ◽  
Author(s):  
Mark C. Hornbrook ◽  
Christopher S. Wendel ◽  
Stephen Joel Coons ◽  
Marcia Grant ◽  
Lisa J. Herrinton ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Cancer Survivors ◽  
Colorectal Cancer Survivors

Personal health records

2011 ◽  
Vol 17 (1) ◽  
pp. 63-71 ◽  
Author(s):  
Deborah Beranek Lafky ◽  
Thomas A. Horan
Keyword(s):  
Personal Health Records ◽  
Personal Health ◽  
Health Records

Secret Sharing-based Personal Health Records Management for the Internet of Health Things

2021 ◽  
pp. 103129
Author(s):  
Parsa Sarosh ◽  
Shabir A. Parah ◽  
G. Mohiuddin Bhat ◽  
Ali Asghar Heidari ◽  
Khan Muhammad
Keyword(s):  
Secret Sharing ◽  
Personal Health Records ◽  
The Internet ◽  
Personal Health ◽  
Records Management ◽  
Health Records
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