scholarly journals Development of Comprehensive Personal Health Records Integrating Patient-Generated Health Data Directly From Samsung S-Health and Apple Health Apps: Retrospective Cross-Sectional Observational Study

10.2196/12691 ◽  
2019 ◽  
Vol 7 (5) ◽  
pp. e12691 ◽  
Author(s):  
Se Young Jung ◽  
Jeong-Whun Kim ◽  
Hee Hwang ◽  
Keehyuck Lee ◽  
Rong-Min Baek ◽  
...  
2018 ◽  
Author(s):  
Se Young Jung ◽  
Jeong-Whun Kim ◽  
Hee Hwang ◽  
Keehyuck Lee ◽  
Rong-Min Baek ◽  
...  

BACKGROUND Patient-generated health data (PGHD), especially lifelog data, are important for managing chronic diseases. Additionally, personal health records (PHRs) have been considered an effective tool to engage patients more actively in the management of their chronic diseases. However, no PHRs currently integrate PGHD directly from Samsung S-Health and Apple Health apps. OBJECTIVE The purposes of this study were (1) to demonstrate the development of an electronic medical record (EMR)–tethered PHR system (Health4U) that integrates lifelog data from Samsung S-Health and Apple Health apps and (2) to explore the factors associated with the use rate of the functions. METHODS To upgrade conventional EMR-tethered PHRs, a task-force team (TFT) defined the functions necessary for users. After implementing a new system, we enrolled adults aged 19 years and older with prior experience of accessing Health4U in the 7-month period after November 2017, when the service was upgraded. RESULTS Of the 17,624 users, 215 (1.22%) integrated daily steps data, 175 (0.99%) integrated weight data, 51 (0.29%) integrated blood sugar data, and 90 (0.51%) integrated blood pressure data. Overall, 61.95% (10,919/17,624) had one or more chronic diseases. For integration of daily steps data, 48.3% (104/215) of patients used the Apple Health app, 43.3% (93/215) used the S-Health app, and 8.4% (18/215) entered data manually. To retrieve medical documentation, 324 (1.84%) users downloaded PDF files and 31 (0.18%) users integrated their medical records into the Samsung S-Health app via the Consolidated-Clinical Document Architecture download function. We found a consistent increase in the odds ratios for PDF downloads among patients with a higher number of chronic diseases. The age groups of ≥60 years and ≥80 years tended to use the download function less frequently than the others. CONCLUSIONS This is the first study to examine the factors related to integration of lifelog data from Samsung S-Health and Apple Health apps into EMR-tethered PHRs and factors related to the retrieval of medical documents from PHRs. Our findings on the lifelog data integration can be used to design PHRs as a platform to integrate lifelog data in the future.


Computer ◽  
2012 ◽  
Vol 45 (11) ◽  
pp. 27-33 ◽  
Author(s):  
Inmaculada Carrion Senor ◽  
Jose Luis Fernandez Aleman ◽  
Ambrosio Toval

Computer ◽  
2019 ◽  
pp. 1-1 ◽  
Author(s):  
Inma Carrion ◽  
Jose Fernandez Aleman ◽  
Ambrosio Toval

2017 ◽  
Vol Volume 13 ◽  
pp. 411-419 ◽  
Author(s):  
Ye-Seul Lee ◽  
Won-Mo Jung ◽  
Hyunchul Jang ◽  
Sanghyun Kim ◽  
Sun-Yong Chung ◽  
...  

2017 ◽  
Author(s):  
Yu Rang Park ◽  
Yura Lee ◽  
Ji Young Kim ◽  
Jeonghoon Kim ◽  
Hae Reong Kim ◽  
...  

2018 ◽  
Vol 6 (4) ◽  
pp. e89 ◽  
Author(s):  
Yu Rang Park ◽  
Yura Lee ◽  
Ji Young Kim ◽  
Jeonghoon Kim ◽  
Hae Reong Kim ◽  
...  

2020 ◽  
Author(s):  
Chang Lu ◽  
Danielle Batista ◽  
Hoda Hamouda ◽  
Victoria Lemieux

BACKGROUND Although researchers are giving increased attention to blockchain-based personal health records (PHRs) and data sharing, the majority of research focuses on technical design. Very little is known about health care consumers’ intentions to adopt the applications. OBJECTIVE This study aims to explore the intentions and concerns of health care consumers regarding the adoption of blockchain-based personal health records and data sharing. METHODS Three focus groups were conducted, in which 26 participants were shown a prototype of a user interface for a self-sovereign blockchain-based PHR system (ie, a system in which the individual owns, has custody of, and controls access to their personal health information) to be used for privacy and secure health data sharing. A microinterlocutor analysis of focus group transcriptions was performed to show a descriptive overview of participant responses. NVivo 12.0 was used to code the categories of the responses. RESULTS Participants did not exhibit a substantial increase in their willingness to become owners of health data and share the data with third parties after the blockchain solution was introduced. Participants were concerned about the risks of losing private keys, the resulting difficulty in accessing care, and the irrevocability of data access on blockchain. They did, however, favor a blockchain-based PHR that incorporates a private key recovery system and offers a health wallet hosted by government or other positively perceived organizations. They were more inclined to share data via blockchain if the third party used the data for collective good and offered participants nonmonetary forms of compensation and if the access could be revoked from the third party. CONCLUSIONS Health care consumers were not strongly inclined to adopt blockchain-based PHRs and health data sharing. However, their intentions may increase when the concerns and recommendations demonstrated in this study are considered in application design.


10.2196/21995 ◽  
2020 ◽  
Vol 4 (11) ◽  
pp. e21995
Author(s):  
Chang Lu ◽  
Danielle Batista ◽  
Hoda Hamouda ◽  
Victoria Lemieux

Background Although researchers are giving increased attention to blockchain-based personal health records (PHRs) and data sharing, the majority of research focuses on technical design. Very little is known about health care consumers’ intentions to adopt the applications. Objective This study aims to explore the intentions and concerns of health care consumers regarding the adoption of blockchain-based personal health records and data sharing. Methods Three focus groups were conducted, in which 26 participants were shown a prototype of a user interface for a self-sovereign blockchain-based PHR system (ie, a system in which the individual owns, has custody of, and controls access to their personal health information) to be used for privacy and secure health data sharing. A microinterlocutor analysis of focus group transcriptions was performed to show a descriptive overview of participant responses. NVivo 12.0 was used to code the categories of the responses. Results Participants did not exhibit a substantial increase in their willingness to become owners of health data and share the data with third parties after the blockchain solution was introduced. Participants were concerned about the risks of losing private keys, the resulting difficulty in accessing care, and the irrevocability of data access on blockchain. They did, however, favor a blockchain-based PHR that incorporates a private key recovery system and offers a health wallet hosted by government or other positively perceived organizations. They were more inclined to share data via blockchain if the third party used the data for collective good and offered participants nonmonetary forms of compensation and if the access could be revoked from the third party. Conclusions Health care consumers were not strongly inclined to adopt blockchain-based PHRs and health data sharing. However, their intentions may increase when the concerns and recommendations demonstrated in this study are considered in application design.


2016 ◽  
Vol 07 (02) ◽  
pp. 573-586 ◽  
Author(s):  
Peyman Khaneghah ◽  
Antonio Miguel-Cruz ◽  
Pamela Bentley ◽  
Lili Liu ◽  
Eleni Stroulia ◽  
...  

SummaryPrevention and management of chronic conditions is a priority for many healthcare systems. Personal health records have been suggested to facilitate implementation of chronic care programs. However, patients’ attitude towards personal health records (PHRs) can significantly affect the adoption rates and use of PHRs.to evaluate the attitude of patients with Type II diabetes towards using a PHR to manage their condition.We used a cross-sectional exploratory pilot study. Fifty-four (54) patients used a PHR to monitor and record their blood glucose levels, diet, and activities for 30 days, and to communicate with their clinicians. At the end of the study, patients responded to a survey based on three constructs borrowed from different technology acceptance frameworks: relative advantage, job fit, and perceived usefulness. A multivariate predictive model was formed using partial least squaring technique (PLS) and the effect of each construct on the patients’ attitude towards system use was evaluated. Patients also participated in a semi-structured interview.We found a significant positive correlation between job fit and attitude (JF → ATT = +0.318, p<0.01). There was no statistical evidence of any moderating or mediating effect of other main constructs or any of the confounding factors (i.e., age, gender, time after diagnosed) on attitude.The attitude of patients towards using PHR in management of their diabetes was positive. Their attitude was mainly influenced by the extent to which the system helped them better perform activities and self-manage their condition.


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