scholarly journals An Automated Text-Messaging Platform for Enhanced Retention and Data Collection in a Longitudinal Birth Cohort: Cohort Management Platform Analysis

10.2196/11666 ◽  
2019 ◽  
Vol 5 (2) ◽  
pp. e11666
Author(s):  
Caroline M Barry ◽  
Aditi Sabhlok ◽  
Victoria C Saba ◽  
Alesha D Majors ◽  
Julia C Schechter ◽  
...  
Keyword(s):  
Data Collection ◽  
Birth Cohort ◽  
Text Messaging ◽  
Management Platform

scholarly journals An Automated Text-Messaging Platform for Enhanced Retention and Data Collection in a Longitudinal Birth Cohort: Cohort Management Platform Analysis (Preprint)

2018 ◽  
Author(s):  
Caroline M Barry ◽  
Aditi Sabhlok ◽  
Victoria C Saba ◽  
Alesha D Majors ◽  
Julia C Schechter ◽  
...  
Keyword(s):  
Data Collection ◽  
Cohort Studies ◽  
Birth Cohort ◽  
Text Messaging ◽  
Birth Cohort Study ◽  
Short Message ◽  
Management Platform ◽  
Message Service ◽  
Study Participants

BACKGROUND Traditional methods for recruiting and maintaining contact with participants in cohort studies include print-based correspondence, which can be unidirectional, labor intensive, and slow. Leveraging technology can substantially enhance communication, maintain engagement of study participants in cohort studies, and facilitate data collection on a range of outcomes. OBJECTIVE This paper provides an overview of the development process and design of a cohort management platform (CMP) used in the Newborn Epigenetic STudy (NEST), a large longitudinal birth cohort study. METHODS The platform uses short message service (SMS) text messaging to facilitate interactive communication with participants; it also semiautomatically performs many recruitment and retention procedures typically completed by research assistants over the course of multiple study follow-up visits. RESULTS Since February 2016, 302 participants have consented to enrollment in the platform and 162 have enrolled with active engagement in the system. Daily reminders are being used to help improve adherence to the study’s accelerometer wear protocol. At the time of this report, 213 participants in our follow-up study who were also registered to use the CMP were eligible for the accelerometer protocol. Preliminary data show that texters (138/213, 64.8%), when compared to nontexters (75/213, 35.2%), had significantly longer average accelerometer-wearing hours (165.6 hours, SD 56.5, vs 145.3 hours, SD 58.5, P=.01) when instructed to wear the devices for 1 full week. CONCLUSIONS This platform can serve as a model for enhancing communication and engagement with longitudinal study cohorts, especially those involved in studies assessing environmental exposures.

scholarly journals Assessing DNA rates within first time psychiatric referrals and the extent to which DNA rates are reduced by an SMS reminder service

BJPsych Open ◽  
2021 ◽  
Vol 7 (S1) ◽  
pp. S315-S315
Author(s):  
Henry Coates
Keyword(s):  
Data Collection ◽  
Waiting Time ◽  
Text Messaging ◽  
Positive Impact ◽  
Waiting Times ◽  
National Guidelines ◽  
Medical Specialties ◽  
Number Of Patients ◽  
First Time ◽  
Communication Preference

Aims1) To assess the average wait time for patients to be offered an appointment and to establish any correlations between longer waiting times and 'Did not attend (DNA)' rates 2) To assess the number of patients who have opted into the text message appointment reminder service and whether this had an effect on DNA rates.BackgroundResearch has indicated that the Did Not Attend (DNA) rate in Psychiatry is estimated at 20%, twice that of other medical specialties (1). With NHS Digital estimating that DNAs cost the NHS £1 Billion per annum, there has been much interest in reducing the rate of DNAs within Psychiatry (2). Findings have shown that short waiting times are associated with higher rates of attendance (3). In addition, poor appointment attendance within Psychiatry is also associated with increased disease severity and higher rates of hospital admission (4).MethodWe conducted retrospective data collection on 99 patients referred to Professor Oyebode between January 2018 and August 2019. Our data collection involved assessing time the referral was received, time to first appointment and the patient's communication preference (e.g. whether they opted in to the SMS alert service). All data collection was conducted through use of RIO and coded/ammonized into a Excel spreadsheet. No sampling methods were employed and our population only consisted of first-time referrals to Professor Oyebodes clinic.Result1) We found no correlation between a longer waiting time to first appointment and an increased DNA rate.2) All patient waiting times between 1st January - 31st August were within the maximum limit set by national guidelines3) Opting into the text messaging service remains severely low. Of the patients audited, 95% had not completed a communication preference form. Overall, it is still unclear whether the text messaging service has a positive impact on DNA rates.ConclusionOur data have shown no significant correlation between a longer waiting time and an increased DNA rate for first time Psychiatry appointments. Secondly, we have concluded that between the audited period, waiting times were still within the maximum 18 week wait set by the Mental Health Standards. Finally, we can conclude that uptake of the text messaging service remains very low at 4%. Due to a limited sample size of only 4 patients, it is still unclear from this audit whether opting into the text messaging services will have a positive decrease on the number of DNA's.

Developing a Data Management Platform for the Ocean Science Community

2018 ◽  
Vol 52 (3) ◽  
pp. 28-32 ◽  
Author(s):  
Chris Turner ◽  
Ian Gill
Keyword(s):  
Data Collection ◽  
Data Management ◽  
High Performance ◽  
Project Planning ◽  
Data Sets ◽  
Management Platform ◽  
Ocean Science ◽  
Science Community ◽  
Oceanographic Data ◽  
Data Management Platform

AbstractThe management of oceanographic data is particularly challenging given the variety of protocols for the analysis of data collection and model output, the vast range of environmental conditions studied, and the potentially enormous extent and volume of the resulting data sets and model results. Here, we describe the Research Workspace (the Workspace), a web platform designed around data management best practices to meet the challenges of managing oceanographic data throughout the research life cycle. The Workspace features secure user accounts and automatic file versioning to assist with the early stages of project planning and data collection. Jupyter Notebooks have been integrated into the Workspace to support reproducible numerical analysis and data visualization while making use of high-performance computer resources collocated with data assets. An ISO-compliant metadata editor has also been integrated into the Workspace to support data synthesis, publication, and reuse. The Workspace currently supports stakeholders across the ocean science community, from funding agencies to individual investigators, by providing a data management platform to meet the needs of big ocean data.

Using text messaging to obtain weekly data on infant feeding in a Danish birth cohort resulted in high participation rates

2016 ◽  
Vol 105 (6) ◽  
pp. 648-654 ◽  
Author(s):  
Signe Bruun ◽  
Niels Wedderkopp ◽  
Christian Mølgaard ◽  
Henriette B Kyhl ◽  
Gitte Zachariassen ◽  
...  
Keyword(s):  
Birth Cohort ◽  
Infant Feeding ◽  
Text Messaging ◽  
Participation Rates ◽  
High Participation

scholarly journals Metadata Correction: Mobile Phone Ownership Is Not a Serious Barrier to Participation in Studies: Descriptive Study (Preprint)

2018 ◽  
Author(s):  
Emily J Harvey ◽  
Leslie F Rubin ◽  
Sabrina L Smiley ◽  
Yitong Zhou ◽  
Hoda Elmasry ◽  
...  
Keyword(s):  
Data Collection ◽  
Mobile Phone ◽  
Mobile Phones ◽  
Text Messaging ◽  
Online Survey ◽  
Smoking History ◽  
Inclusion Criteria ◽  
Study Participation ◽  
Major Barrier ◽  
Ema Data

BACKGROUND Rather than providing participants with study-specific data collection devices, their personal mobile phones are increasingly being used as a means for collecting geolocation and ecological momentary assessment (EMA) data in public health research. OBJECTIVE The purpose of this study was to (1) describe the sociodemographic characteristics of respondents to an online survey screener assessing eligibility to participate in a mixed methods study collecting geolocation and EMA data via the participants’ personal mobile phones, and (2) examine how eligibility criteria requiring mobile phone ownership and an unlimited text messaging plan affected participant inclusion. METHODS Adult (≥18 years) daily smokers were recruited via public advertisements, free weekly newspapers, printed flyers, and word of mouth. An online survey screener was used as the initial method of determining eligibility for study participation. The survey screened for twenty-eight inclusion criteria grouped into three categories, which included (1) cell phone use, (2) tobacco use, and (3) additional criteria. RESULTS A total of 1003 individuals completed the online screener. Respondents were predominantly African American (605/1003, 60.3%) (60.4%), male (514/1003, 51.3%), and had a median age of 35 years (IQR 26-50). Nearly 50% (496/1003, 49.5%) were unemployed. Most smoked menthol cigarettes (699/1003, 69.7%), and had a median smoking history of 11 years (IQR 5-21). The majority owned a mobile phone (739/1003, 73.7%), could install apps (86.8%), used their mobile phone daily (89.5%), and had an unlimited text messaging plan (871/1003, 86.8%). Of those who completed the online screener, 302 were eligible to participate in the study; 163 were eligible after rescreening, and 117 were enrolled in the study. Compared to employed individuals, a significantly greater proportion of those who were unemployed were ineligible for the study based on mobile phone inclusion criteria (P<.001); yet, 46.4% (333/717) of the individuals who were unemployed met all mobile phone inclusion criteria. CONCLUSIONS Inclusion criteria requiring participants to use their personal mobile phones for data collection was not a major barrier to study participation for most respondents who completed the online screener, including those who were unemployed. CLINICALTRIAL ClinicalTrials.gov NCT02261363; https://clinicaltrials.gov/ct2/show/NCT02261363 (Archived by WebCite at http://www.webcitation.org/6wOmDluSt)

scholarly journals One-Way and Two-Way Mobile Phone Text Messages for Treatment Adherence Among Patients With HIV: Protocol for a Randomized Controlled Trial (Preprint)

2019 ◽  
Author(s):  
Dickson Shey Nsagha ◽  
Vincent Verla Siysi ◽  
Same Ekobo ◽  
Thomas Obinchemti Egbe ◽  
Odette Dzemo Kibu
Keyword(s):  
Quality Of Life ◽  
Data Collection ◽  
Text Messaging ◽  
Controlled Trial ◽  
Text Message ◽  
Text Messages ◽  
Randomized Controlled ◽  
The Impact ◽  
Sms Text Messaging

BACKGROUND Incomplete adherence to antiretroviral therapy (ART) is one of the factors that contribute to HIV drug resistance, and it is a major problem for the public health system in controlling the HIV pandemic. There is emerging evidence that SMS can play an important role in health care delivery among patients with HIV on ART, especially in resource-limited settings. OBJECTIVE This paper aims to assess the impact of two-way and one-way SMS text messaging on adherence to HIV treatment. We hypothesized that sending weekly text messages through the one-way and two-way SMS text messaging approach will improve adherence to ART among patients with HIV and improve associated clinical outcomes (quality of life). METHODS A randomized controlled trial is being carried out among participants with HIV who have been on ART for at least one month from an accredited treatment center, namely the Buea Regional Hospital and Kumba District Hospital of South West Region, Cameroon. Participants with HIV, both male and female, aged 21 years and older make up a sample size of 207. The interventions involved the use of mobile phone text messages. Before commencing the intervention, a focus group discussion was carried out among the participants to understand their perception about the use of SMS-based interventions to improve adherence. A total of 246 participants were randomized to receive either a one-way text message (SMS sent to a recipient without recipient sending a reply) or two-way text message (SMS sent to a recipient and recipient sends a reply) or the control (no SMS, only standard care). Data on adherence and quality of life were collected at baseline and after 6 months and will be analyzed using SPSS version 21, while qualitative data will be analyzed using Atlas.ti 7.5. RESULTS Data collection began in September 2019 with focus group discussions and baseline data collection. After 1 month of baseline data collection, the intervention began in October 2019, and postintervention data were collected after 6 months (March 2020). At the end of the study, we will be able to understand the perception of patients toward SMS text messaging–based interventions and also assess the impact of one-way and two-way SMS text messages on treatment adherence among patients with HIV and on associated clinical outcomes (quality of life). CONCLUSIONS The impact of SMS text messaging varies across different settings. The results from this study will determine the perception of patients toward an SMS text messaging–based intervention and its impact on adherence to ART. INTERNATIONAL REGISTERED REPORT DERR1-10.2196/16127

scholarly journals YINGSHAO: A FLEXIBLE DATA COLLECTION AND MANAGEMENT PLATFORM FOR CHINA’S HERITAGE SITES

2021 ◽  
Vol XLVI-M-1-2021 ◽  
pp. 383-389
Author(s):  
B. Li ◽  
W. Zhao ◽  
P. Gu ◽  
G. Zhang
Keyword(s):  
Data Collection ◽  
Data Storage ◽  
National Level ◽  
Management Tool ◽  
Time Dimension ◽  
Management Scenarios ◽  
Heritage Sites ◽  
Management Platform ◽  
Lifecycle Management ◽  
Collection And Management

Abstract. The advancement of geoinformatics technologies promotes national-level attention to heritage inventories and digital platforms. The management of heritage sites requires a more efficient and flexible collection methodology to collect GIS data and support extended applications. This paper discusses the system design and application of Yingshao platform, a more flexible and efficient data collection platform for Chinese heritage sites and full lifecycle management. It applis a framework of WebGIS, MobileGIS and WebGL and adopts a data storage scheme of MySQL and MangoDB. Based on the advanced system architecture, the platform has formed better solutions: (1) establishing a standard and cooperative workflow; (2) integrating diverse data sources; (3) building a flexible geospatial database with a time dimension; (4) ensuring data security and safety. In the applications in China's heritage sites, it significantly improves the efficiency and flexibility during collection. Meanwhile, the collected data could well support management scenarios. We believe that the platform could become an effective and flexible data collection and management tool for China's heritage sites, and it has the potential to become the foundation for full lifecycle management.

Feasibility of Using Text Messaging to Gather Qualitative Diary Data from COPD Sufferers: An Ecological Momentary Assessment and BYOD Approach (Preprint)

2021 ◽  
Author(s):  
Richard Stachel-Hilldorfer ◽  
Ben Stachel-Hilldorfer
Keyword(s):  
Data Collection ◽  
Ecological Momentary Assessment ◽  
Text Messaging ◽  
Qualitative Data ◽  
Chronically Ill ◽  
Diary Data ◽  
Depth Of Response ◽  
Ecological Momentary ◽  
Momentary Assessment ◽  
Sms Text Messaging

BACKGROUND The ubiquitous use of SMS text messaging offers a viable data collection method that aligns well with ecological momentary assessment (EMA) coupled with a bring-your-own-device (BYOD) approach. This unique conceptual model may extend to qualitative data collection through diary entries, which promises novel, in-the-moment insights for researchers interested in subjective patient-reported outcome measures (PROMS). OBJECTIVE This study aims to investigate the feasibility of using SMS text messaging to gather qualitative diary data from COPD sufferers, using EMA and participants’ mobile phones. It compares data gathered through this method with similar qualitative data gathered through email and with responses to quantitative, closed-ended categorical questions. METHODS This study involved 93 COPD-affected Alpha-1 sufferers who participated in a two-month long pilot intervention that used push messaging to respondents 2-to-3 times a day, either via SMS text messaging or email. In the first month of the study, respondents received 2 push messages a day urging them to answer closed-ended questions. The second month of the study integrated push messages which encouraged participants to engage in completion of daily, qualitative diary entries, in addition to the closed-ended questions. This research tracked and compared speed to answer and depth of responses between 69 (74%) individuals completing the push message requests through email and 24 (26%) who completed them through text messaging. It also compared completion rates of the diary entries to those of the closed-ended categorical questions. RESULTS Analysis of speed to answer, or the quickness in which respondents replied to the push messages, indicated that those answering by SMS text messaging were faster than those answering by email, both for categorical closed-ended questions and for diary questions. For the diary questions, specifically, those answering by SMS text messaging responded 6 hours and 29 minutes faster than those responding by email. We deemed this difference to be statistically significant. Depth of response, as measured by word count, varied between the two delivery methods as well, with those answering by email using, on average, 5.3 more words per entry than those answering by SMS text messaging (24.9 words per entry compared to 19.6 words per entry). Average compliance to the closed-ended questions over the study period was 94.4% (12,642/13,392) compared to 90.8% (2365/2604) for diary entries. This difference was also statistically significant. CONCLUSIONS SMS text messaging is a viable option for qualitative diary data collection among chronically ill individuals using an EMA and BYOD methodology. However, researchers must weigh considerations of time versus response rate and depth of response when employing SMS text messaging for this methodological approach. Benefits include quick response times, which matches the EMA method of responding as near to a trigger or intervention as possible. Weaknesses include the fact that qualitative diary data collected by SMS text messaging have inherent limits regarding depth of response. This study also recognized a lower compliance rate for those participating by SMS text messaging than by email, even though rates for both were quite high.

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