scholarly journals A Web-Based Intervention for Relatives of People Experiencing Psychosis or Bipolar Disorder: Design Study Using a User-Centered Approach

10.2196/11473 ◽  
2018 ◽  
Vol 5 (4) ◽  
pp. e11473 ◽  
Author(s):  
Mahsa Honary ◽  
Naomi Ruth Fisher ◽  
Roisin McNaney ◽  
Fiona Lobban

BackgroundRelatives of people experiencing bipolar mood episodes or psychosis face a multitude of challenges (eg, social isolation, limited coping strategies, and issues with maintaining relationships). Despite this, there is limited informational and emotional support for people who find themselves in supporting or caring roles. Digital technologies provide us with an opportunity to offer accessible tools, which can be used flexibly to provide evidence-based information and support, allowing relatives to build their understanding of mental health problems and learn from others who have similar experiences. However, to design tools that are useful to relatives, we first need to understand their needs.ObjectiveThe aim of this study was to use a user-centered design approach to develop an accessible Web-based intervention, based on the Relatives Education And Coping Toolkit (REACT) booklet, to support the informational and emotional needs of relatives of people experiencing psychosis or bipolar disorder.MethodsWe engaged relatives of people with experiences of bipolar disorder or psychosis in workshops to identify their needs and design requirements for developing a Web-based version of a paper-based toolkit. We used a 2-phase qualitative approach to explore relatives’ views on content, design, and functionalities, which are considered to be engaging and useful in a Web-based intervention. In phase 1, we consulted 24 relatives in 2 workshops to better understand their existing support infrastructure, their barriers for accessing support, unmet needs, and relatives’ views on online support. On the basis of the results of these workshops, we developed a set of design considerations to be explored in a smaller workshop. Workshop 3 then involved working with 2 digitally literate relatives to design a usable and acceptable interface for our Web-based toolkit. Finally, in phase 2, we conducted a heuristic evaluation to assess the usability of the toolkit.ResultsOur findings indicated that relatives require technologies that (1) they can place their trust in, particularly when discussing a highly sensitive topic, (2) enable learning from the lived experiences of others while retaining confidentiality, and (3) they can work through at their own pace in a personalized manner.ConclusionsOur study highlights the need for providing a trustworthy, supportive tool where relatives can engage with people who have similar experiences to their own. Our heuristic evaluation showed promise in terms of perceived usability of the REACT Web-based intervention. Through this work, we emphasize the need to involve stakeholders with various characteristics, including users with limited computer literacy or experience in online support.

2018 ◽  
Author(s):  
Mahsa Honary ◽  
Naomi Ruth Fisher ◽  
Roisin McNaney ◽  
Fiona Lobban

BACKGROUND Relatives of people experiencing bipolar mood episodes or psychosis face a multitude of challenges (eg, social isolation, limited coping strategies, and issues with maintaining relationships). Despite this, there is limited informational and emotional support for people who find themselves in supporting or caring roles. Digital technologies provide us with an opportunity to offer accessible tools, which can be used flexibly to provide evidence-based information and support, allowing relatives to build their understanding of mental health problems and learn from others who have similar experiences. However, to design tools that are useful to relatives, we first need to understand their needs. OBJECTIVE The aim of this study was to use a user-centered design approach to develop an accessible Web-based intervention, based on the Relatives Education And Coping Toolkit (REACT) booklet, to support the informational and emotional needs of relatives of people experiencing psychosis or bipolar disorder. METHODS We engaged relatives of people with experiences of bipolar disorder or psychosis in workshops to identify their needs and design requirements for developing a Web-based version of a paper-based toolkit. We used a 2-phase qualitative approach to explore relatives’ views on content, design, and functionalities, which are considered to be engaging and useful in a Web-based intervention. In phase 1, we consulted 24 relatives in 2 workshops to better understand their existing support infrastructure, their barriers for accessing support, unmet needs, and relatives’ views on online support. On the basis of the results of these workshops, we developed a set of design considerations to be explored in a smaller workshop. Workshop 3 then involved working with 2 digitally literate relatives to design a usable and acceptable interface for our Web-based toolkit. Finally, in phase 2, we conducted a heuristic evaluation to assess the usability of the toolkit. RESULTS Our findings indicated that relatives require technologies that (1) they can place their trust in, particularly when discussing a highly sensitive topic, (2) enable learning from the lived experiences of others while retaining confidentiality, and (3) they can work through at their own pace in a personalized manner. CONCLUSIONS Our study highlights the need for providing a trustworthy, supportive tool where relatives can engage with people who have similar experiences to their own. Our heuristic evaluation showed promise in terms of perceived usability of the REACT Web-based intervention. Through this work, we emphasize the need to involve stakeholders with various characteristics, including users with limited computer literacy or experience in online support.


2020 ◽  
Author(s):  
Chantal Backman ◽  
Anne Harley ◽  
Craig Kuziemsky ◽  
Jay Mercer ◽  
Liam Peyton

BACKGROUND When older adults return home from geriatric rehabilitation in a hospital, remembering the plethora of medical advice and medical instructions provided can be overwhelming for them and for their caregivers. OBJECTIVE The overall objective was to develop and test the feasibility of a novel web-based application called <i>MyPath to Home</i> that can be used to manage the personalized needs of geriatric rehabilitation patients during their transition from the hospital to home. METHODS This study involved (1) co-designing a patient- and clinician-tailored web-based application and (2) testing the feasibility of the application to manage the needs of geriatric rehabilitation patients when leaving the hospital. In phase 1, we followed a user-centered design process integrated with the modern agile software development methodology to iteratively co-design the application. The approach consisted of three cycles in which we engaged patients, caregivers, and clinicians to design a series of prototypes (cycles 1-3). In phase 2, we conducted a single-arm feasibility pilot test of <i>MyPath to Home</i>. Baseline and follow-up surveys, as well as select semistructured interviews were conducted. RESULTS In phase 1, semistructured interviews and talk-aloud sessions were conducted with patients/caregivers (n=5) and clinicians (n=17) to design the application. In phase 2, patients (n=30), caregivers (n=18), and clinicians (n=20) received access to use the application. Patients and their caregivers were asked to complete baseline and follow-up surveys. A total of 91% (21/23) of patients would recommend this application to other patients. In addition, clinicians (n=6) and patients/caregivers (n=6) were interviewed to obtain further details on the value of the web-based application with respect to engaging patients and facilitating communication and sharing of information with the health care team. CONCLUSIONS We were successful at designing the <i>MyPath to Home</i> prototype for patients and their caregivers to engage with their clinicians during the transition from geriatric rehabilitation to home. Further work is needed to increase the uptake and usage by clinicians, and determine if this translates to meaningful changes in clinical and functional outcomes. INTERNATIONAL REGISTERED REPORT RR2-10.2196/11031


10.2196/18169 ◽  
2020 ◽  
Vol 4 (9) ◽  
pp. e18169
Author(s):  
Chantal Backman ◽  
Anne Harley ◽  
Craig Kuziemsky ◽  
Jay Mercer ◽  
Liam Peyton

Background When older adults return home from geriatric rehabilitation in a hospital, remembering the plethora of medical advice and medical instructions provided can be overwhelming for them and for their caregivers. Objective The overall objective was to develop and test the feasibility of a novel web-based application called MyPath to Home that can be used to manage the personalized needs of geriatric rehabilitation patients during their transition from the hospital to home. Methods This study involved (1) co-designing a patient- and clinician-tailored web-based application and (2) testing the feasibility of the application to manage the needs of geriatric rehabilitation patients when leaving the hospital. In phase 1, we followed a user-centered design process integrated with the modern agile software development methodology to iteratively co-design the application. The approach consisted of three cycles in which we engaged patients, caregivers, and clinicians to design a series of prototypes (cycles 1-3). In phase 2, we conducted a single-arm feasibility pilot test of MyPath to Home. Baseline and follow-up surveys, as well as select semistructured interviews were conducted. Results In phase 1, semistructured interviews and talk-aloud sessions were conducted with patients/caregivers (n=5) and clinicians (n=17) to design the application. In phase 2, patients (n=30), caregivers (n=18), and clinicians (n=20) received access to use the application. Patients and their caregivers were asked to complete baseline and follow-up surveys. A total of 91% (21/23) of patients would recommend this application to other patients. In addition, clinicians (n=6) and patients/caregivers (n=6) were interviewed to obtain further details on the value of the web-based application with respect to engaging patients and facilitating communication and sharing of information with the health care team. Conclusions We were successful at designing the MyPath to Home prototype for patients and their caregivers to engage with their clinicians during the transition from geriatric rehabilitation to home. Further work is needed to increase the uptake and usage by clinicians, and determine if this translates to meaningful changes in clinical and functional outcomes. International Registered Report Identifier (IRRID) RR2-10.2196/11031


2017 ◽  
Vol 24 (5) ◽  
pp. 975-980 ◽  
Author(s):  
Aanand D Naik ◽  
Molly J Horstman ◽  
Linda T Li ◽  
Michael K Paasche-Orlow ◽  
Bryan Campbell ◽  
...  

Abstract Objectives: Readmission following colorectal surgery, typically due to surgery-related complications, is common. Patient-centered discharge warnings may guide recognition of early complication signs after colorectal surgery. Materials and Methods: User-centered design of a discharge warnings tool consisted of iterative health literacy review and a heuristic evaluation with human factors and clinical experts as well as patient end users to establish content validity and usability. Results: Literacy evaluation of the prototype suggested &gt;12th-grade reading level. Subsequent revisions reduced reading level to 8th grade or below. Contents were formatted during heuristic evaluation into 3 action-oriented zones (green, yellow, and red) with relevant warning lexicons. Usability testing demonstrated comprehension of this 3-level lexicon and recognition of appropriate patient actions to take for each level. Discussion: We developed a discharge warnings tool for colorectal surgery using staged user-centered design. The lexicon of surgical discharge warnings could structure communication among patients, caregivers, and clinicians to improve post-discharge care.


2019 ◽  
Vol 5 (1) ◽  
Author(s):  
Ni Ketut Dewi Ari Jayanti

ABSTRACT<br />The Quality Assurance Center (PJM) is one of the units at STMIK STIKOM Bali which has the task of assisting the Chair in overseeing and controlling the entire process. One of the controls carried out is controlling customer satisfaction through implementing customer satisfaction evaluations. PJM STIKOM Bali uses a web-based quality assurance information. The use of web-based quality assurance information systems has never been measured by usability system to see whether the system built is acceptability for the PJM STIKOM Bali unit in carrying out its activities. In this study, researchers conducted a study to analyze usability in the STIKOM Bali quality assurance information system. The method used to measure usability is User Centered Design (UCD) because this method focuses on the user. In implementing the UCD method, three types of statements have been established, namely Task Complete Rate, Time on Task, and Usability Rate of System. The results achieved in this study were the success rates of respondents in completing the STIKOM Bali quality assurance information system task task of 97.67%. The average time needed by respondents to complete all tasks is 92 minutes. The usability level felt by respondents when using the quality assurance information system is 88.75%.<br />Keywords : Quality Assurance System, Usability, User Centered Design<br />ABSTRAK<br />Pusat Jaminan Mutu (PJM) adalah salah satu unit di STMIK STIKOM Bali yang memiliki tugas membantu Ketua dalam mengawasi dan mengendalikan seluruh proses. Salah satu pengendalian yang dilakukan adalah pengendalian kepuasan pelanggan melalui pelaksanaan evaluasi kepuasan pelanggan. PJM STIKOM Bali menggunakan sistem informasi penjaminan mutu berbasis web untuk mempermudah akses penjadwalan dimulai dan diakhirinya proses evaluasi kepuasan pelanggan yang diintegrasikan dengan sistem lain yang ada di STIKOM Bali. Penggunaan sistem informasi penjaminan mutu berbasis web belum pernah dilakukan pengukuran usability sistem untuk melihat apakah sistem yang dibangun sudah akseptabilitas bagi unit PJM STIKOM Bali dalam melaksanakan aktivitasnya. Pada penelitian ini peneliti melakukan penelitian untuk menganalisa usability pada sistem informasi penjaminan mutu STIKOM Bali. Metode yang digunakan untuk mengukur usability adalah User Centered Design (UCD) karena metode ini berfokus pada pengguna. Dalam implementasi metode UCD, telah ditetapkan tiga jenis pernyataan yaitu Task Complete Rate, Time on Task, dan Usability Rate of System. Hasil yang dicapai pada penelitian ini adalah tingkat keberhasilan responden dalam menyelesaikan task sistem informasi penjaminan mutu STIKOM Bali sebesar 97,67%. Waktu rata-rata yang diperlukan responden untuk menyelesaikan seluruh task adalah sebesar 92 menit. Tingkat usability yang dirasakan responden saat menggunakan sistem informasi penjaminan mutu adalah 88,75 %.<br />Kata kunci : Sistem Penjaminan Mutu, Usability, User Centered Design


Author(s):  
Jayde King ◽  
John Kleber ◽  
Ashlee Harris ◽  
Barbara Chaparro ◽  
Beth Blickensderfer

General Aviation flight operations have been negatively affected by the slow decreasing weather related accident rate for the last 20 years. Upon further investigation, research suggests, that poor preflight planning and a lack of aviation weather experience and knowledge may be contributing factors to the stagnant weather related accident rate. Our team developed a Preflight Weather Decision Support Tool (PWDST) to help novice pilots access, interpret, and apply weather information. We used a user-centered design process which involved an initial task analysis, low-fidelity prototyping, low-fidelity usability testing, user interviews and expert review. This study assessed and compared the perceived usability, difficulty, and the system assistance satisfaction of the PWDST. Participants (n=9) completed a usability study and a series of surveys during, as well as, after the completion of the preflight planning scenario. A series of Mann-Whitney U Tests were conducted to compare the difference between Private Pilot and Certified Flight Instructors (CFI) perceived usability, difficulty, and system assistance satisfaction ratings. Results indicated, there were no significant differences between group ratings. Overall, both groups reported above average usability, system assistance and low difficulty rating for the PWDST. Future research and possible implications are discussed.


2017 ◽  
Vol 29 (3) ◽  
pp. 148-160 ◽  
Author(s):  
Heather L. Colquhoun ◽  
Deborah Sattler ◽  
Christine Chan ◽  
Taheera Walji ◽  
Rachel Palumbo ◽  
...  

The objective of this study was to optimize a planned audit and feedback (A&F) intervention for home and community care through incorporating user-centered design principles. Phase 1 comprised the development of a paper prototype, followed by testing of the prototype using semistructured interviews and focus groups. Phase 2 involved the development of a revised and online prototype based on the results of Phase 1, followed by user testing. A total of 39 participants across Phase 1 ( n = 33) and Phase 2 ( n = 6) provided input into the design of the A&F intervention. Key changes included improving clarity of the variables, reducing cognitive load, and highlighting opportunities for action. Preliminary findings suggest potential usefulness in this approach to optimize home care management.


2019 ◽  
Author(s):  
Mandi L Klamerus ◽  
Laura J Damschroder ◽  
Jordan B Sparks ◽  
Sarah E Skurla ◽  
Eve A Kerr ◽  
...  

BACKGROUND Overtreatment and overtesting expose patients to unnecessary, wasteful, and potentially harmful care. Reducing overtreatment or overtesting that has become ingrained in current clinical practices and is being delivered on a routine basis will require solutions that incorporate a deep understanding of multiple perspectives, particularly those on the front lines of clinical care: patients and their clinicians. Design approaches are a promising and innovative way to incorporate stakeholder needs, desires, and challenges to develop solutions to complex problems. OBJECTIVE This study aimed (1) to engage patients in a design process to develop high-level deintensification strategies for primary care (ie, strategies for scaling back or stopping routine medical services that more recent evidence reveals are not beneficial) and (2) to engage both patients and primary care providers in further co-design to develop and refine the broad deintensification strategies identified in phase 1. METHODS We engaged stakeholders in design charrettes—intensive workshops in which key stakeholders are brought together to develop creative solutions to a specific problem—focused on deintensification of routine overuse in primary care. We conducted the study in 2 phases: a 6.5-hour design charrette with 2 different groups of patients (phase 1) and a subsequent 4-hour charrette with clinicians and a subgroup of phase 1 patients (phase 2). Both phases included surveys and educational presentations related to deintensification. Phase 1 involved several design activities (mind mapping, business origami, and empathy mapping) to help patients gain a deeper understanding of the individuals involved in deintensification. Following that, we asked participants to review hypothetical scenarios where patients, clinicians, or the broader health system context posed a barrier to deintensification and then to brainstorm solutions. The deintensification themes identified in phase 1 were used to guide phase 2. This second phase primarily involved 1 design activity (<italic>WhoDo</italic>). In this activity, patients and clinicians worked together to develop concrete actions that specific stakeholders could take to support deintensification efforts. This activity included identifying barriers to the actions and approaches to overcoming those barriers. RESULTS A total of 35 patients participated in phase 1, and 9 patients and 7 clinicians participated in phase 2. The analysis of the deintensification strategies and survey data is currently underway. The results are expected to be submitted for publication in early 2020. CONCLUSIONS Health care interventions are frequently developed without input from the people who are most affected. The exclusion of these stakeholders in the design process often influences and limits the impact of the intervention. This study employed design charrettes, guided by a flexible user-centered design model, to bring clinicians and patients with differing backgrounds and with different expectations together to cocreate real-world solutions to the complex issue of deintensifying medical services.


Under the national educational policy of Nine-Year Integrated Curriculum, elementary and junior high school teachers are expected to design their own instructional materials, and to teach their courses which could be linked to students’ daily lives. The policy also allocates funding to create a variety of web-based instructional resource systems in order to assist these teachers in preparing their classes. Upon the basis of a user-centered design approach, this study is aimed at constructing a set of suggestions of planning, designing, and developing a web-based instructional resource system for the homeland education. This research team takes Nei-Li area in Taiwan as an example to develop such a system, and constructs a user-centered design model. The study results indicate that, unlike the traditional instructional design approach, the proposed model takes into account the user’s needs, the capability of the project team, the resource availability for implementation, the national educational reform policy, the development of information technology industry, and the socio-cultural context of a community at the initial phase. In addition, the development process is divided into two courses, one for contents design while the other for system construction, both of which are implemented at the same time.


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