scholarly journals Digitizing a Face-to-Face Group Fatigue Management Program: Exploring the Views of People With Multiple Sclerosis and Health Care Professionals Via Consultation Groups and Interviews

10.2196/10951 ◽  
2019 ◽  
Vol 3 (2) ◽  
pp. e10951 ◽  
Author(s):  
Sarah Thomas ◽  
Andy Pulman ◽  
Peter Thomas ◽  
Sarah Collard ◽  
Nan Jiang ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Health Care ◽  
Health Care Professionals ◽  
Management Program ◽  
Face To Face ◽  
Fatigue Management

scholarly journals Digitizing a Face-to-Face Group Fatigue Management Program: Exploring the Views of People With Multiple Sclerosis and Health Care Professionals Via Consultation Groups and Interviews (Preprint)

2018 ◽  
Author(s):  
Sarah Thomas ◽  
Andy Pulman ◽  
Peter Thomas ◽  
Sarah Collard ◽  
Nan Jiang ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Health Care ◽  
Service Delivery ◽  
Health Care Professionals ◽  
Research Team ◽  
Management Program ◽  
Web Based ◽  
Face To Face ◽  
Fatigue Management ◽  
Starting Point

BACKGROUND Fatigue is one of the most common and debilitating symptoms of multiple sclerosis (MS) and is the main reason why people with MS stop working early. The MS Society in the United Kingdom funded a randomized controlled trial of FACETS—a face-to-face group-based fatigue management program for people with multiple sclerosis (pwMS)—developed by members of the research team. Given the favorable trial results and to help with implementation, the MS Society supported the design and printing of the FACETS manual and materials and the national delivery of FACETS training courses (designed by the research team) for health care professionals (HCPs). By 2015 more than 1500 pwMS had received the FACETS program, but it is not available in all areas and a face-to-face format may not be suitable for, or appeal to, everyone. For these reasons, the MS Society funded a consultation to explore an alternative Web-based model of service delivery. OBJECTIVE The aim of this study was to gather views about a Web-based model of service delivery from HCPs who had delivered FACETS and from pwMS who had attended FACETS. METHODS Telephone consultations were undertaken with FACETS-trained HCPs who had experience of delivering FACETS (n=8). Three face-to-face consultation groups were held with pwMS who had attended the FACETS program: London (n=4), Liverpool (n=4), and Bristol (n=7). The interviews and consultation groups were digitally recorded and transcribed. A thematic analysis was undertaken to identify key themes. Toward the end of the study, a roundtable meeting was held to discuss outcomes from the consultation with representatives from the MS Society, HCPs, and pwMS. RESULTS Key challenges and opportunities of designing and delivering an integrated Web-based version of FACETS and maintaining user engagement were identified across 7 themes (delivery, online delivery, design, group, engagement, interactivity, and HCP relationships). Particularly of interest were themes related to replicating the group dynamics and the lack of high-quality solutions that would support the FACETS’ weekly homework tasks and symptom monitoring and management. CONCLUSIONS A minimum viable Web-based version of FACETS was suggested as the best starting point for a phased implementation, enabling a solution that could then be added to over time. It was also proposed that a separate study should look to create a free stand-alone digital toolkit focusing on the homework elements of FACETS. This study has commenced with a first version of the toolkit in development involving pwMS throughout the design and build stages to ensure a user-centered solution.

Potentially Inappropriate Medications Use in A Population of Iraqi Geriatric Outpatients According to Beers Criteria

2019 ◽  
Vol 10 (02) ◽  
Author(s):  
Ola Albaghdadi ◽  
Salam , Mohammad Hassan Morteza, Firas A Ahjel ◽  
Mohammad Hassan Morteza ◽  
Firas Aziz Rahi
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Public Health Issue ◽  
Beers Criteria ◽  
Potentially Inappropriate Medications ◽  
Cross Sectional ◽  
Face To Face ◽  
Inappropriate Drugs ◽  
Elderly Outpatients ◽  
Inappropriate Medications

Aims: Elderly in Iraq kept suffering multiple burdens, as they are a truly fragile and vulnerable segment. A major public health issue among elderly is adverse drug reactions. This study is aimed at contributing in overcoming this treatment gap by determining the prevalence of inappropriate medications used by a group of Iraqi elderly outpatients. Methods: A cross-sectional, questionnaire-based study was conducted in a sample of 85 Iraqi elderly aged ≥65 years of either gender. Participants had face-to-face interviews to answer a comprehensive questionnaire. Each drug taken by the patient was evaluated according to Beers criteria. Results: Females constituted 45.9% of the total. The average age was 69.9 years (± 4.6). Nearly 30% of the patients had 3 different diseases, and 17.8% had ≥4 different ones, with cardiovascular diseases were the most prevalent. Polypharmacy was notably identified in 47.1% of the total studied population. Twenty-eight out of 85 patients did not know the actual reason of taking at least one of their medications, and 42% were not taking their drugs as directed. Remarkably, 43.5% of patients were recognized as taking at least one medication to be avoided in elderly people according to the Beers criteria. The most common inappropriate drugs were glyburide, and proton-pump inhibitors. Conclusion: There was an obvious absence of any role of pharmacists in the health care system for our studied population. Health care professionals are encouraged to review the medications prescribed for geriatric patients using updated safety guidelines to prevent the risks associated with potentially inappropriate medications.

Experiences of Volunteers Supporting Parents Following a Fatal Fetal Anomaly Diagnosis

2021 ◽  
pp. 104973232098783
Author(s):  
Stacey Power ◽  
Keelin O’Donoghue ◽  
Sarah Meaney
Keyword(s):  
Health Care ◽  
Peer Support ◽  
Thematic Analysis ◽  
Health Care Professionals ◽  
Fetal Anomaly ◽  
Voluntary Organizations ◽  
Face To Face ◽  
Bereaved Parents ◽  
Collaborative Working ◽  
And Training

Ireland has had a reliance on voluntary groups to provide peer-to-peer bereavement support. The aim of this study was to explore volunteers’, within these voluntary groups, experiences of supporting parents following a fatal fetal anomaly diagnosis. Purposive sampling was used to recruit volunteers ( n = 17) and face-to-face interviews undertaken. NVivo12 was utilized to assist in the thematic analysis of the data. Five themes; “motivation for altruistic acts,” “being challenged,” “value of education and training,” “supporting volunteers to support others,” and “it is not a sprint, it is a marathon” were identified. Volunteers felt comfortable in their peer-support role but found the lack of knowledge regarding newly implemented termination of pregnancy (TOP) services challenging. The importance of education/training was identified, emphasizing the need for collaboration with health care professionals and other voluntary organizations for support. The findings illustrate the need for collaborative working between health care professionals and volunteers to assist them in supporting bereaved parents.

Do Health-Care Students Know About Chemical Biological Radioactive Nuclear Weapons?

2021 ◽  
pp. 1-6
Author(s):  
Cagla Yigitbas
Keyword(s):  
Health Care ◽  
Nuclear Weapons ◽  
Health Care Professionals ◽  
Field Education ◽  
Health Care Education ◽  
Cross Sectional ◽  
Health Care Students ◽  
Face To Face ◽  
Survey Form ◽  
Ongoing Training

Abstract Objective: The aim of this study was to determine the level of knowledge of students receiving different levels of health-care education (doctors, nurses, paramedics) on chemical, biological, radioactive, and nuclear weapons (CBRNW). Methods: This study was designed as a qualitative, descriptive, and cross-sectional research. The study reached 87.68% of the population. A survey form was created by the researcher in line with the literature. Ethical permission and verbal consents were obtained. The data were collected by face-to-face interviews. Results: It was observed that there was no difference between the enrolled departments, that the participants had very low levels of knowledge on the subject despite considering it a likely threat for Turkey, and that they thought the public and the health-care professionals in this field had insufficient knowledge. Sex, age, and field education were the variables that created a difference. Conclusion: Training regarding CBRNW should be further questioned and individuals should receive ongoing training to increase and update their knowledge and skills.

scholarly journals Randomized trial of a teleconference-delivered fatigue management program for people with multiple sclerosis

2011 ◽  
Vol 17 (9) ◽  
pp. 1130-1140 ◽  
Author(s):  
Marcia Finlayson ◽  
Katharine Preissner ◽  
Chi Cho ◽  
Matthew Plow
Keyword(s):  
Multiple Sclerosis ◽  
Management Education ◽  
Management Program ◽  
Secondary Outcome ◽  
Control Group ◽  
Wait List ◽  
Impact Fatigue ◽  
Wait List Control ◽  
Fatigue Management ◽  
Fatigue Severity

Background: Previous studies support the efficacy and effectiveness of face-to-face group-based fatigue management education for people with multiple sclerosis (MS). Nevertheless, many people are unable to access these programs due to environmental barriers. Objectives: To test the efficacy and effectiveness of a group-based, teleconference-delivered fatigue management program for people with MS. Methods: A randomly allocated two-group time series design with a wait-list control group was used. In total 190 participants were allocated (94 intervention, 96 wait-list control). Primary outcomes (fatigue impact, fatigue severity, health-related quality of life (HRQOL)) were measured before, immediately after, at 6 weeks, 3 months, and 6 months post. Secondary outcome (self-efficacy) was measured at the same points. Effectiveness (intent-to-treat) and efficacy (per protocol) analyses were conducted. Results: The program was more effective and efficacious than control for reducing fatigue impact but not fatigue severity. Before and after comparisons with the pooled sample demonstrated efficacy and effectiveness for fatigue impact, fatigue severity, and 6 of 8 HRQOL dimensions. Changes were maintained for 6 months with small to moderate effect sizes. Conclusion: The results offer strong support for the viability of teleconference-delivered fatigue management education for enabling people with MS to manage this disabling symptom.

scholarly journals Interpreting in Sexual and Reproductive Health Consults With Burma Born Refugees Post Settlement: Insights From an Australian Qualitative Study

2021 ◽  
Vol 6 ◽  
Author(s):  
Amita Tuteja ◽  
Elisha Riggs ◽  
Lena Sanci ◽  
Lester Mascarenhas ◽  
Di VanVliet ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Health Care Professionals ◽  
Best Practice ◽  
Qualitative Methodology ◽  
Future Research ◽  
Care Providers ◽  
Face To Face ◽  
Consultation Room ◽  
Privacy And Confidentiality

Interpreters work with health care professionals to overcome language challenges during sexual and reproductive (SRH) health discussions with people from refugee backgrounds. Disclosures of traumatic refugee journeys and sexual assault combined with refugees’ unfamiliarity with Western health concepts and service provision can increase the interpreting challenges. Published literature provides general guidance on working with interpreters in primary care but few studies focus on interpretation in refugee SRH consults. To address this, we explored the challenges faced by providers of refugee services (PRS) during interpreter mediated SRH consultations with Burma born refugees post settlement in Australia. We used qualitative methodology and interviewed 29 PRS involved with migrants from Burma including general practitioners, nurses, interpreters, bilingual social workers, and administrative staff. The interviews were audio-recorded, transcribed, and subjected to thematic analysis following independent coding by the members of the research team. Key themes were formulated after a consensus discussion. The theme of “interpretation related issues” was identified with six sub-themes including 1) privacy and confidentiality 2) influence of interpreter’s identity 3) gender matching of the interpreter 4) family member vs. professional interpreters 5) telephone vs. face-to-face interpreting 6) setting up the consultation room. When faced with these interpretation related challenges in providing SRH services to people from refugee backgrounds, health care providers combine best practice advice, experience-based knowledge and “mundane creativity” to adapt to the needs of the specific patients. The complexity of interpreted SRH consultations in refugee settings needs to be appreciated in making good judgments when choosing the best way to optimize communication. This paper identifies the critical elements which could be incorporated when making such a judgement. Future research should include the experiences of refugee patients to provide a more comprehensive perspective.

Mobility in Multiple Sclerosis: More than just a Physical Problem

2000 ◽  
Vol 2 (1) ◽  
pp. 51-61 ◽  
Author(s):  
A Chan ◽  
CS Heck
Keyword(s):  
Multiple Sclerosis ◽  
Health Care ◽  
Population Health ◽  
Health Care Professionals ◽  
Physical Disability ◽  
Physical Problem ◽  
Societal Issue ◽  
Individual Level ◽  
Mobility Devices ◽  
The Individual

Abstract Mobility restriction is a common physical disability among individuals with multiple sclerosis (MS). Psychological, sociocultural, environmental, political, and economic influences are among the factors that affect the mobility of a person with MS. These factors have also been identified as elements of the determinants of individual and population health. Health care professionals providing services to the MS population often prescribe appropriate mobility devices for those with mobility restrictions. The goal is to enhance activities and participation in all domains of the individual's life. In addition to directing their services at the individual level, health care professionals addressing mobility issues of individuals with MS should include the additional factors and other determinants of health at the population and societal levels. Therefore, mobility is not only an individual's physical problem, but it is also a population health issue and a societal issue.

Disaster Medicine Online: evaluation of an online, modular, interactive, asynchronous curriculum

CJEM ◽  
2002 ◽  
Vol 4 (06) ◽  
pp. 408-413 ◽  
Author(s):  
Adam Lund ◽  
Kenneth Lam ◽  
Paul Parks
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Disaster Medicine ◽  
Face To Face ◽  
Degree Of Satisfaction ◽  
Lesson Content ◽  
The University ◽  
Formal Training Program ◽  
High Degree ◽  
Attending Physicians

ABSTRACT Canada has no formal training program in disaster medicine for health care professionals. The University of Alberta’s Division of Emergency Medicine has developed a means to fill the gap. Disaster Medicine Online (DMO) is an Internet-based, interactive, facilitator-guided distance-learning course on the fundamentals of disaster medicine. The 3-week pilot of DMO was offered in March 2002 and taken by a multidisciplinary group of 22 health care professionals, including resident and attending physicians, paramedics and nurses. Evaluation of the learning materials and educational methodology by experts and learners demonstrated a high degree of satisfaction with the Web interface, site usability, lesson content and format, and the interactive components of the online course. Learners reported spending a mean of 11.2 hours (range = 5–20) over the 3-week course period. Twenty of 22 learners completed the final assignment, and all 20 were successful in passing the course. Overall, 95% of learners said they would pursue another module if offered, and 100% would recommend DMO to their colleagues. DMO is a viable option for health care professionals who would like to pursue continuing medical education in this area without having to take time out of their personal and professional lives to travel to a face-to-face, traditional educational program.

scholarly journals Multiple Sclerosis and Sexuality: A Survey of MS Health Professionals' Comfort, Training, and Inquiry About Sexual Dysfunction

2003 ◽  
Vol 5 (2) ◽  
pp. 37-51 ◽  
Author(s):  
Germaine A. Griswold ◽  
Frederick W. Foley ◽  
June Halper ◽  
Nicholas G. LaRocca ◽  
Vance Zemon
Keyword(s):  
Multiple Sclerosis ◽  
Health Care ◽  
Sexual Dysfunction ◽  
Health Professionals ◽  
Health Care Professionals ◽  
Sexual Functioning ◽  
Human Sexuality ◽  
Comfort Level ◽  
And Training ◽  
Frequent Problem

When health care professionals were asked about their perceptions of, assessment of, and treatment methods for sexual dysfunction, they acknowledged that sexual dysfunction was a frequent problem for MS patients, although few addressed the issue with their patients. Most also believed that very few of the patients actually sought help for sexual dysfunction. In addition to comfort level and training as the strongest predictors determining inquiry behavior, respondents indicated that lack of time with patients was an important factor in not inquiring about sexual function. As a whole, the group had minimal training in human sexuality. This questionnaire-based study found that amount of training was a significant predictor of both comfort level in discussing sexual functioning and the frequency in which discussions were initiated with patients. The results suggest that more training would facilitate MS health care professionals' comfort and assessment behaviors of sexual dysfunction. (Int J MS Care. 2003; 5: 37–38, 44–51)

Sign in / Sign up

Export Citation Format

Share Document