scholarly journals Reliability of Cancer Treatment Information on the Internet: Observational Study

JMIR Cancer ◽  
10.2196/10031 ◽  
2018 ◽  
Vol 4 (2) ◽  
pp. e10031 ◽  
Author(s):  
Ryo Ogasawara ◽  
Noriyuki Katsumata ◽  
Tatsushi Toyooka ◽  
Yuko Akaishi ◽  
Takaaki Yokoyama ◽  
...  
Keyword(s):  
Observational Study ◽  
Cancer Treatment ◽  
The Internet ◽  
Treatment Information

scholarly journals Reliability of Cancer Treatment Information on the Internet: Observational Study (Preprint)

2018 ◽  
Author(s):  
Ryo Ogasawara ◽  
Noriyuki Katsumata ◽  
Tatsushi Toyooka ◽  
Yuko Akaishi ◽  
Takaaki Yokoyama ◽  
...  
Keyword(s):  
Medical Students ◽  
Cancer Survivors ◽  
Cancer Treatment ◽  
Information Search ◽  
Medical Information ◽  
The Internet ◽  
Reliability Level ◽  
Treatment Information ◽  
Medical Oncologists ◽  
Kappa Value

BACKGROUND Finding the correct medical information in a flood of information from the internet is a significant issue for patients with cancer. OBJECTIVE We investigated the reliability of the information on cancer treatment methods available on the internet based on an evaluation by medical oncologists, medical students, and cancer survivors. METHODS Using Google and Yahoo as the search engines, we carried out the information search using 2 keywords, “cancer treatment” and “cancer cure,” and the top 20 information sites were identified. A similar search was conducted on 5 types of cancer. The reliability of the information presented was rated on a 3-level scale (A, B, or C). Level A referred to reliable sites (providing information complying with the clinical practice guidelines for various types of cancer), Level B included sites not falling under either Level A or Level C, and Level C comprised dangerous or harmful sites (providing information on treatment not approved by the regulatory authority in Japan and bombastic advertisements without any relevant clinical evidence). The evaluation was conducted by medical oncologists, medical students, and cancer survivors. The consistency of the information reliability level rating between the medical students or cancer survivors with that of the medical oncologists was assessed by using the kappa value. RESULTS A total of 247 sites were evaluated for reliability. The ratings provided by the medical students’ group were as follows: Level A, 12.1% (30/247); Level B, 56.3% (139/247); and Level C, 31.6% (78/247). The ratings provided by the cancer survivors’ group were as follows: Level A, 16.8% (41/244); Level B, 44.7% (109/244); and Level C, 38.5% (94/244). The ratings provided by the oncologists’ group were as follows: Level A, 10.1% (25/247); Level B, 51.4% (127/247); and Level C, 38.5% (95/247). The intergroup rating consistency between the medical students’ group and oncologists’ group was 87.4% (216/247, kappa=0.77) and that between the cancer survivors’ group and oncologists’ group was 76.2% (186/244, kappa=0.61). CONCLUSIONS Of the investigated sites providing information on cancer treatment on the internet, the percentage of sites that seemed to provide harmful information was much higher than that of sites providing reliable information. The reliability level rating was highly consistent between the medical students’ group and the medical oncologists’ group and also between the cancer survivors’ group and the medical oncologists’ group.

Quality and accessibility of oncology-related clinical trials information: A content analysis of Internet media.

2013 ◽  
Vol 31 (15_suppl) ◽  
pp. 6547-6547
Author(s):  
Gregory Alan Abel ◽  
Angel Cronin ◽  
Angela Stroupe ◽  
Kristofer Earles ◽  
Stacy W. Gray
Keyword(s):  
Prostate Cancer ◽  
Lung Cancer ◽  
Clinical Trial ◽  
Clinical Trials ◽  
Cancer Treatment ◽  
Observer Agreement ◽  
The Internet ◽  
Communication Tool ◽  
Treatment Information ◽  
Few Data

6547 Background: The Internet is a communication tool that may be used to improve awareness of and access to cancer-related clinical trials; however, few data characterize how the Internet may encourage clinical trial education and accrual. Methods: In January of 2013, we simulated the experience of a user without knowledge of clinical trials by simply searching “breast cancer treatment”; “lung cancer treatment”; “MDS treatment”; and “prostate cancer treatment” in three popular search engines (Google, Bing, and Yahoo). The top ten unsponsored websites for each were recorded, after eliminating news articles and duplications. Sites were independently evaluated for quality and accessibility by two coders, and discordant data were resolved by consensus. Differences in content by disease type were evaluated using Fisher’s exact tests. Results: The searches yielded 40 unique websites. Before consensus, inter-observer agreement ranged from 75% to 100% (average kappa .67). Overall, 85% of the sites (95% CI: 70% to 94%) mentioned clinical trials on the landing page. Selected measures of quality and accessibility are detailed in the table. Lung cancer and MDS sites were less likely to have interactive features as compared to breast and prostate cancer sites (20% vs. 82%, p=0.004). Conclusions: These data suggest that basic clinical trial information is widely available for naive users searching for cancer treatment information. The quality of that information is highly variable, with only about three-quarters of sites defining clinical trials, one-half providing information about the benefits and risks of enrollment, and only one third of sites Health on Net certified. Moreover, for certain cancers, few sites offer interactive features to facilitate access to information about relevant clinical trials. [Table: see text]

Quality and Accessibility of Autism Treatment Information on the Internet

2009 ◽  
Author(s):  
Lindsay A. Deling ◽  
Erin Olufs ◽  
Katherine Frazier ◽  
Nicole Kressin ◽  
Michael B. Himle
Keyword(s):  
The Internet ◽  
Treatment Information ◽  
Autism Treatment

scholarly journals The role of rehabilitation measures in reintegration of children with brain tumours or leukaemia and their families after completion of cancer treatment: a study protocol

BMJ Open ◽  
2017 ◽  
Vol 7 (8) ◽  
pp. e014505 ◽  
Author(s):  
Mona Leandra Peikert ◽  
Laura Inhestern ◽  
Corinna Bergelt
Keyword(s):  
Observational Study ◽  
Cancer Treatment ◽  
Childhood Cancer ◽  
Quantitative Study ◽  
Prospective Observational Study ◽  
Daily Life ◽  
Oncological Rehabilitation ◽  
Rehabilitation Measures

IntroductionFor ill children as well as for their parents and siblings, childhood cancer poses a major challenge. Little is known about the reintegration into daily life of childhood cancer survivors and their families. The aim of this prospective observational study is to further the understanding of the role of rehabilitation measures in the reintegration process of childhood leukaemia or brain tumour survivors and their family members after the end of cancer treatment.Methods and analysisThis prospective observational study consists of three study arms: a quantitative study in cooperation with three German paediatric oncological study registries (study arm 1), a quantitative study in cooperation with a rehabilitation clinic that offers a family-oriented paediatric oncological rehabilitation programme (study arm 2) and a qualitative study at 12-month follow-up including families from the study arms 1 and 2 (study arm 3). In study arm 1, children, parents and siblings are surveyed after treatment (baseline), 4–6 months after baseline measurement and at 12-month follow-up. In study arm 2, data are collected at the beginning and at the end of the rehabilitation measure and at 12-month follow-up. Families are assessed with standardised questionnaires on quality of life, emotional and behavioural symptoms, depression, anxiety, fear of progression, coping and family functioning. Furthermore, self-developed items on rehabilitation aims and reintegration into daily life are used. Where applicable, users and non-users of rehabilitation measures will be compared regarding the outcome parameters. Longitudinal data will be analysed by means of multivariate analysis strategies. Reference values will be used for comparisons if applicable. Qualitative data will be analysed using thematic analysis.Ethics and disseminationThis study has been approved by the medical ethics committee of the Medical Chamber of Hamburg. Data will be published in peer-reviewed journals and presented at conferences.

Assessment of The Digestive System Malignancy Information in Wikipedia and Baidu Encyclopedia: Longitudinal Study (Preprint)

2021 ◽  
Author(s):  
Jianchen Luo ◽  
Jing Ma ◽  
Liangliang Xu ◽  
Lian Li ◽  
Ming Zhang ◽  
...  
Keyword(s):  
Digestive System ◽  
Medical Information ◽  
Statistical Significance ◽  
Relevant Information ◽  
Medical Professional ◽  
The Internet ◽  
Treatment Information ◽  
International Statistical Classification ◽  
The Difference ◽  
Search For Information

BACKGROUND The Internet has gradually become the most important way for people to search for information. Increasing number of people searched for relevant information or even treatment plans on the Internet when they get health problem. The reliability of the medical information provided online remains to be proved. Wikipedia and Baidu Encyclopedia are the most widely used search engines in English and Chinese, respectively. The quality of the medical information they provide needs to be assessed. OBJECTIVE This study aimed to evaluate the quality and timeliness of medical information related with digestive system malignancy retrieved from Wikipedia and Baidu Encyclopedia. Comparison was made between the 2 encyclopedias. We conducted a 3-year follow-up to find out if the quality and timeliness of articles improved. METHODS We conducted a search based on International Statistical Classification of Diseases and Related Health Problems 10th Revision Version 2016 codes in Wikipedia and Baidu Encyclopedia, and evaluated articles related to digestive system malignancy by using the DISCERN instrument. We calculated the update interval of the webpages to evaluate the update timeliness of these websites. RESULTS In 2017 and 2020, we searched out a total of 50 and 52 articles from Baidu Encyclopedia, with 2 articles increased and no article missed. 30 and 32 articles were found in Wikipedia, with 1 article increased and no article missed. According to the scores evaluated by DISCERN instrument. In both 2017 and 2020, Wikipedia scored higher than Baidu Encyclopedia in section1 and section2, and it's statistically significant. Wikipedia scored higher than Baidu Encyclopedia in Section3, but it's not statistically significant. The total score of Wikipedia was higher than Baidu Encyclopedia, and the difference was statistically significant. The update interval of Wikipedia is shorter than that of Baidu Encyclopedia, with better timeliness and statistical significance. CONCLUSIONS The quality and timeliness of digestive system malignancy relative articles on Wikipedia are better than those on Baidu Encyclopedia. Both Baidu Encyclopedia and Wikipedia articles have improved in quality over the past three years. However, the treatment information obtained from the Internet still can’t guarantee its comprehensiveness or reliability. Patients should consult a medical professional directly.

An observational study of cancer treatment-induced dental abnormalities in paediatric cancer patients

2015 ◽  
Vol 3 (4) ◽  
pp. 228
Author(s):  
Kaberi Das ◽  
Munlima Hazarika ◽  
Manigreeva Krishnatreya ◽  
AmalChandra Kataki
Keyword(s):  
Observational Study ◽  
Cancer Treatment ◽  
Cancer Patients ◽  
Paediatric Cancer ◽  
Dental Abnormalities

scholarly journals Time to initial cancer treatment in the United States and association with survival over time: An observational study

PLoS ONE ◽  
2019 ◽  
Vol 14 (3) ◽  
pp. e0213209 ◽  
Author(s):  
Alok A. Khorana ◽  
Katherine Tullio ◽  
Paul Elson ◽  
Nathan A. Pennell ◽  
Stephen R. Grobmyer ◽  
...  
Keyword(s):  
United States ◽  
Observational Study ◽  
Cancer Treatment ◽  
The United States ◽  
Over Time

scholarly journals Correction: Time to initial cancer treatment in the United States and association with survival over time: An observational study

PLoS ONE ◽  
2019 ◽  
Vol 14 (4) ◽  
pp. e0215108
Author(s):  
Alok A. Khorana ◽  
Katherine Tullio ◽  
Paul Elson ◽  
Nathan A. Pennell ◽  
Stephen R. Grobmyer ◽  
...  
Keyword(s):  
United States ◽  
Observational Study ◽  
Cancer Treatment ◽  
The United States ◽  
Over Time

scholarly journals Inequities in breast cancer treatment in sub-Saharan Africa: findings from a prospective multi-country observational study

2019 ◽  
Vol 21 (1) ◽  
Author(s):  
Milena Foerster ◽  
Benjamin O. Anderson ◽  
Fiona McKenzie ◽  
Moses Galukande ◽  
Angelica Anele ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Observational Study ◽  
Cancer Treatment ◽  
Breast Cancer Treatment ◽  
Sub Saharan Africa ◽  
Sub Saharan

PDQ?A database of clinical trials and cancer treatment information

1988 ◽  
Vol 7 (3) ◽  
pp. 209-221 ◽  
Author(s):  
David J. Perry ◽  
Susan M. Hubbard
Keyword(s):  
Clinical Trials ◽  
Cancer Treatment ◽  
Treatment Information
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