scholarly journals Sampling, Recruitment, and Retention in a Bereavement Intervention Study: Experiences from the Living after Loss Project

2010 ◽  
Vol 61 (3) ◽  
pp. 181-203 ◽  
Author(s):  
Michael Caserta ◽  
Rebecca Utz ◽  
Dale Lund ◽  
Brian de Vries

This article reports on the sampling and recruitment challenges, as well as the strategies used to address them in the Living After Loss (LAL) project, a bereavement intervention study conducted in Salt Lake City and San Francisco comparing two 14-week group conditions with follow-up. We encountered three major challenges: 1) difficulty determining eligibility for some potential participants who were contacted, 2) locating and recruiting nonwhites, and 3) unavailable phone numbers for approximately one-third of those we attempted to contact. Despite these challenges, we achieved a 42% response rate with a sample size of 328 participants comprising 15% non-white. Eighty-five percent of the participants completed all of the follow-up data points. Leading factors in participants' decisions to join and remain in the study were 1) opportunities to obtain help and support, 2) to potentially help other bereaved individuals, 3) to contribute to research, and 4) their on-going interactions with a professional, empathetic, and culturally sensitive project staff. Effectively focusing recruitment efforts and carefully and systematically training research staff were among the most effective strategies we employed and therefore suggest for those planning similar investigations.

2016 ◽  
Vol 9 (3) ◽  
pp. 219-223 ◽  
Author(s):  
Dana Johns ◽  
Erin Anstadt ◽  
Daniel Donato ◽  
John Kestle ◽  
Jay Riva-Cambrin ◽  
...  

Posterior cranial vault distraction (PCVD) has become an important modality in the management of complex craniosynostosis to increase intracranial volume and improve the cranial vault appearance. This technique can safely be performed as early as 3 months of age for the initial management of patients with complex craniosynostosis. A retrospective review was performed of all the patients with syndromic, multiple-suture synostosis treated with PCVD at Primary Children's Hospital in Salt Lake City, Utah, between 2012 and 2014. During this time period, a total of nine children with an average corrected age of 21.4 weeks were treated. Demographics, intraoperative data, and postoperative distraction data were collected. Occipital frontal head circumferences (OFCs) were recorded pre- and postdistraction, and at 3- and 6-month follow-up examinations. All patients had a substantial increase in head circumference with subjective improvement of the posterior calvarium shape. The average increase in OFC from preoperative to postdistraction was 4.9 cm. Only two significant postoperative complications were encountered, one hardware infection and one cerebrospinal fluid leak. PCVD is an effective procedure in the management of complex craniosynostosis and can be safely initiated very early in life.


2017 ◽  
Vol 42 (6) ◽  
pp. E10 ◽  
Author(s):  
Al-Wala Awad ◽  
Karam Moon ◽  
Nam Yoon ◽  
Marcus D. Mazur ◽  
M. Yashar S. Kalani ◽  
...  

OBJECTIVEFlow diversion has proven to be an efficacious means of treating cerebral aneurysms that are refractory to other therapeutic means. Patients with tandem aneurysms treated with flow diversion have been included in larger, previously reported series; however, there are no dedicated reports on using this technique during a single session to treat this unique subset of patients. Therefore, the authors analyzed the outcomes of patients who had undergone single-session flow diversion for the treatment of tandem aneurysms.METHODSThe authors conducted a retrospective review of flow diversion with the Pipeline embolization device (PED) for the treatment of tandem aneurysms in a single session at 2 participating medical centers: University of Utah, Salt Lake City, Utah, and Barrow Neurological Institute, Phoenix, Arizona. Patient demographic data, aneurysm characteristics, treatment strategy and results, complications, and follow-up data were collected from the medical record and analyzed.RESULTSBetween January 2011 and December 2015, 17 patients (12 female, 5 male) with a total of 38 aneurysms (mean size 4.7 ± 2.7 mm, mean ± SD) were treated. Sixteen patients had aneurysms in the anterior circulation, and 1 patient had tandem aneurysms in the posterior circulation. Twelve patients underwent only placement of a PED, whereas 5 underwent adjunctive coil embolization of at least 1 aneurysm. One PED was used in each of 9 patients, and 2 PEDs were required in each of 8 patients. There were 2 intraprocedural complications; however, in both instances, the patients were asymptomatic at the last follow-up. The follow-up imaging studies were available for 15 patients at a mean of 7 months after treatment (216 days, range 0–540 days). The mean initial Raymond score after treatment was 2.7 ± 0.7, and the mean final score was 1.3 ± 0.7.CONCLUSIONSIn this series, the use of flow diversion for the treatment of tandem cerebral aneurysms had an acceptable safety profile, indicating that it should be considered as an effective therapy for this complicated subset of patients. Further prospective studies must be performed before more definitive conclusions can be made.


PEDIATRICS ◽  
1990 ◽  
Vol 85 (5) ◽  
pp. 808-812
Author(s):  
Gordon L. Larsen ◽  
Scott D. Williams

Because postneonatal circumcision includes the risk of general anesthesia and costs more than elective neonatal circumcision, a retrospective study was performed to describe the population currently undergoing postneonatal circumcision and to identify the factors influencing decisions that lead to this procedure. A chart review and follow-up telephone survey were done to gather information concerning patients admitted for postneonatal circumcision to two Salt Lake City hospitals during a 2-year period. From the 135 patients eligible for analysis, two distinct groups emerged: the "sick" group (n = 52)—those who had neonatal complications, and the "well" group (n = 83)—those with no neonatal complications. The median age at circumcision was 5.5 months for the boys in the sick group and 35 months for the boys in the well group (P < .001, Student's t test). During the neonatal period, 32% of families in the well group received anticircumcision advice from their primary care physician. The decision in favor of circumcision was made by two thirds of the families of sick infants before their sons were 6 weeks of age. Other surgery was performed concurrent with the circumcision in 44% of patients in the sick group and 24% of patients in the well group (P < .0001, χ2). Balanitis, phimosis, or a physician's recommendation were listed as the primary reason for postneonatal circumcision by 50% of patents in the well group. Phimosis was listed by the surgeon as an indication for postneonatal circumcision in 65% of all patients's charts, although only 13% of parents listed phimosis as an indication for their children's circumcision. According to this profile of two distinct populations of postneonatal circumcision patients, pediatricians may be able to reduce the incidence of this procedure by providing support of individual preferences and objective information regarding circumcision to families of healthy infants during the neonatal period; by anticipating and facilitating the decisions surrounding neonatal circumcision for families of sick infants; and by educating families of uncircumcised boys about foreskin care and development during regular well-child visits.


PEDIATRICS ◽  
1973 ◽  
Vol 51 (2) ◽  
pp. 357-359

This preliminary data are on the subject of neonatal meningitis caused by gram-negative organisms. During 1970 and 1971, Dr. George Mc Cracken of Dallas designed a study to investigate therapy of gram-negative meningitis. Thirteen centers if the United States and Canada were chosen on the basis of their experience with the disease over the preceding few years. Together they had seen some 50 infants yearly with meningitis from their cummulative population base of 100,000-150,000 births yearly. Participants of the study include centers in Dallas, Birmingham, Memphis, Atlanta, New Orleans, Baltimore, Cleveland, Cincinnati, San Francisco, Los Angeles, Salt Lake City, Montreal, and Boston. The study began on September 1, 1971 with some of the 13 centers officially enrolling as late as December. Initially the number of patients enrolled in the study met expectations. In 1972 enrollees fell off so severely that changes in study design were suggested at the last meeting of investigators in May. The total number of infants entered in the study from September through May is 15. In examining the experience before December 8, 1971 compared to the experience after December 8th the number of newborn infants with meningitis fell from .09 per day to .05 per day. This highly significant change is in the face of a greater mean population base in the second period. The change is associated, at least in time, with the decrease in use of hexachlorophene bathing in nurseries (.32/1000 to .18/1000). For my second topic, I'd like to review some of the alternatives available to the clinician faced with a nursery outbreak of Staphylococcal disease.


1995 ◽  
Vol 3 (4) ◽  
pp. 14-15
Author(s):  
Walter C. McCrone

Teaching on-site courses for the McCrone Research Institute has enabled me to see a lot of the USA. The van and I have been to all of the states except Hawaii and Alaska besides all of the Canadian provinces except Newfoundland and the Northwest Territories. Some parts of the USA have become nearly as familiar to me (and van) as the Outer Drive in Chicago, Rte. 1 down the California coast, Rtes. 80 and 90 to New York and New England, 55 and 65 South, 40 Southeast to Los Angeles and 80 to Salt Lake City and San Francisco, in particular. The latter route across the Great Salt Lake Desert is one of my favorites. That route is always different because of the Great Salt Lake. It's a large lake under normal conditions but conditions are never normal.


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