Change in Depression of Spousal Caregivers of Dementia Patients Following Patient's Death

2008 ◽  
Vol 56 (3) ◽  
pp. 217-228 ◽  
Author(s):  
Maureen P. Tweedy ◽  
Charles A. Guarnaccia
Keyword(s):  
Patient Care ◽  
Theoretical Models ◽  
Spousal Caregivers ◽  
Care Recipient ◽  
Dementia Patient ◽  
Dementia Patients ◽  
Heavy Burden ◽  
Stress Models ◽  
Conjugally Bereaved ◽  
Retirement Study

Caring for an elderly spouse with dementia places a heavy burden on spousal caregivers and often results in chronic depression. Little has been written about change in depression caregivers experience from before to after the death of the spouse with dementia. This longitudinal study examines change in depression of spousal caregivers that occurs following death of the dementia patient. Two theoretical models, the Relief and Stress Models, are discussed in terms of caregiver depression after the death of the dementia-patient care-recipient spouse. These two theoretical models were tested using longitudinal data from the National Institute on Aging sponsored Health and Retirement Study. Both male and female spousal caregivers report an increase in depression after the death of the dementia-patient care-recipient spouse. As time passed following the spouse's death, the conjugally bereaved husbands showed a decrease in depression while the conjugally bereaved wives continued to report increased depression.

scholarly journals Where is God when dementia sneaks into our house? Practical theology and the partners of dementia patients

2016 ◽  
Vol 72 (4) ◽  
Author(s):  
Maria Bons-Storm
Keyword(s):  
Practical Theology ◽  
Dementia Patient ◽  
Dementia Patients ◽  
Theological Perspective ◽  
Heavy Burden ◽  
The Subject ◽  
Night And Day ◽  
Practical Theological ◽  
Person With Dementia ◽  
Creation Stories

How can hope, love and faith stay alive when dementia enters a home? In this article I shall look especially at the spouse or partner who shares an abode with a person with dementia. Most of the authors in this field, also John Swinton who is perhaps the best known author whose books are written from a (practical) theological perspective, focus on care in institutions, that means care by professionals. A partner living with a dementia patient has two main roles: as partner and caregiver. Night and day a partner is witness to the ongoing deterioration of her or his beloved partner, without being a professional. This article is founded not only on literature about dementia patients, but also on the experiences of several partners, as well as my own experiences as a partner. The question we all ask is: ‘From where does our strength come?’ I argue that what is said in the literature on the subject of (the pastoral care for) dementia patients does not help the partners, because it lays a heavy burden on them, who are already suffering from feelings of grief and guilt. I do not agree with John Swinton’s idea that God created dementia. Looking for different ways of thinking about God and faith to survive with hope and love, I turn to the exegesis of the creation stories by Ellen van Wolde. These give the opportunity to take the evil of the situation of the deterioration of the personality of a patient with dementia seriously, and at the same time grant the possibility to turn the grief and guilt feelings into strength to fight evil, together with a God whose empathy and love stays with a partner in her or his loneliness and grief.Keywords: dementia; partner care; guilt feelings; evil; God as ally

scholarly journals Spousal Caregiving and Cognitive Trajectories: Does Care Recipient Dementia Status Matter?

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 359-360
Author(s):  
Taylor Atkinson ◽  
Dylan Jester ◽  
William Haley
Keyword(s):  
Cognitive Decline ◽  
Population Based ◽  
Cognitive Status ◽  
Spousal Caregivers ◽  
Care Recipient ◽  
Spousal Caregiving ◽  
Before And After ◽  
Race Ethnicity ◽  
Home Placement ◽  
Retirement Study

Abstract Caregiving is often considered stressful, even more so if the care recipient has been diagnosed with dementia. The current study examines the rate of cognitive decline of spousal caregivers of persons with dementia (CG-D) when compared to spousal caregivers of persons without dementia (CG) before and after the death of the care recipient. Health and Retirement Study (HRS) data from 1998-2016 were used to examine cognitive trajectories of CG-D (n=364) and CG (n=1,649) before and after the care recipient death. Cognition was measured through the HRS’s shortened Telephone Interview of Cognitive Status and separated into measures of total cognition and memory. Covariates included age, education, sex, race, ethnicity, care hours, frailty, socioeconomic status, nursing home placement of the recipient, and whether the death was expected. Piecewise mixed models were constructed to examine two two-year periods of decline leading up to the death of the care recipient, and two two-year periods of decline after the death of the care recipient. CG-D and CG declined at equivalent rates on measures of total cognition and memory (ps > .05). In all caregivers, total cognition and memory declined at a stable rate before the death of the care recipient. However, an accelerated decline was evident after the death of the care recipient (ps < .001). Our results suggest that cognitive decline is not differentially affected by care recipient dementia diagnosis. We find evidence that the death of a spousal care recipient is accompanied by hastened cognitive decline in our population-based sample.

scholarly journals Adapting Resources for Enhancing Alzheimer's Caregiver Health for Dementia-Capable Services

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 55-55
Author(s):  
Mindi Spencer ◽  
Maggi Miller ◽  
Diana Jahries ◽  
James Davis ◽  
S Melinda Spencer
Keyword(s):  
Problem Behaviors ◽  
Caregiver Burden ◽  
Care Recipient ◽  
Caregiver Training ◽  
Training Support ◽  
Caregiver Health ◽  
Dementia Patients ◽  
Post Test ◽  
And Coping ◽  
Training And Support

Abstract The overall goal of the PRISMA Health - REACH (PH-REACH) project was to reduce caregiver burden and improve caregiving skills among caregivers of community-living Alzheimer's disease and related dementia patients and, as a result, improve care and quality of life for both the patients and their caregivers. This evidence-based, person-centered program emphasizes positive aspects of caregiving and provides tools to improve stress management, caregiver self-care, and coping skills for managing problem behaviors. PH-REACH provided in-home caregiver training, support, and service referral to 126 caregivers in the Greenville area. Trained coaches delivered the program to caregivers of persons with moderate to severe dementia in its original format but later adapted it to better fit the caregivers’ needs. Analysis of pre- and post-test data showed that both the standard and adapted interventions provided benefits across multiple caregiver outcomes, including reduced caregiver burden, ability to manage disruptive behaviors of the care recipient, increased caregiver self-efficacy, reduced depression, and a slight improvement in the number of chronic health conditions. This supports and expands on previous research that has demonstrated the ability of this program to translate across different community-based and clinical settings. The tailored version of PH-REACH succeeded in assisting these caregivers, meeting them where they were in their caregiving journey, and provided measurable benefits to both their mental and physical health. Overall, this project provided evidence of the utility of the PH-REACH intervention and laid the groundwork to extend caregiver training and support to other institutions, both inside and outside the health system.

scholarly journals Dementia Caregiving, Care Recipient Health, and Financial Burdens

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 56-56
Author(s):  
Rashmita Basu
Keyword(s):  
Physical Health ◽  
Healthcare Costs ◽  
Financial Burden ◽  
Care Recipient ◽  
Positive Feeling ◽  
Nationally Representative ◽  
Financial Burdens ◽  
Health Deterioration ◽  
Retirement Study

Abstract Objective: While about 75% of people with ADRD receive care informally by their family members, relatively little is known about the effect of the quality of caregiving on maintaining carerecipient’s health and financial burden of out-of-pocket (OOP) healthcare costs. The goal of this study is to examine the quality of caregiving on the out-of-pocket healthcare costs among ADRD patients and if caregiving prevents deterioration of physical health of carerecipients. Data and Sample: We used a nationally representative sample of people diagnosed with ADRD from the Aging Demographic and Memory Study, subsample of the Health and Retirement Study. The study sample includes carerecipients whose caregivers participated in the survey (N=261). Outcome measures: Primary outcomes were deterioration of carerecipients’ health (1=yes, 0=no) and annual OOP healthcare costs. The quality of caregiving is captured by if caregiving made them feel good, feel useful and fee closer to carerecipients. More than 70% caregivers reported that caregiving make them feel good or useful. About 60% of carerecipients’ physical health was maintained, and average out-of-pocket costs was $3,701/year ($0-$31,051). Multivariable logit for binary health outcome and OLS regression for OOP cost were estimated. Results: The likelihood of health deterioration was significantly lower for carerecipients whose caregivers reported that caregiving made them feel useful (AOR=5.1, 95% CI: 1.9- 14.5) and lower OOP remained significantly associated with presence of usefulness of caregiving (cost decrease, $3000 [95% CI: $6309-$918). Positive feeling of caregiving is independently associated with lower OOP cost and deterioration of physical health among ADRD patients.

The Relative Contribution of Subjective Factors to Expressed Burden among Spousal Caregivers of Suspected Dementia Patients

1996 ◽  
Vol 15 (4) ◽  
pp. 583-596 ◽  
Author(s):  
Norm O'Rourke ◽  
Beth E. Haverkamp ◽  
Holly Tuokko ◽  
Sherri Hayden ◽  
B. Lynn Beattie
Keyword(s):  
Nous Avons ◽  
Spousal Caregivers ◽  
Relative Contribution ◽  
Dementia Patients ◽  
Cette Question

RÉSUMÉLa perception des personnes-soutien de l'importance de leur fardeau dépend à la fois de facteurs objectifs et subjectifs. En plus des demandes réelles, d'autres facteurs influencent la perception de l'importance du fardeau. La contribution relative des facteurs objectifs et subjectifs reste cependant inconnue. Nous avons entrepris de clarifier cette question en interviewant 70 individus ayant la charge de leur(e) conjoint(e). Les participants furent recrutés dans une clinique d'évaluation des démences. Après avoir pris en considération la tendance des participants à donner les réponses socialement désirables, les deux groupes de facteurs semblent contribuer de façon significative à la prédiction de la perception du fardeau. La similitude des caractéristiques démographiques des participants comparativement à celles d'un échantillon aléatoire de participants de l'Etude sur la santé et le vieillissement au Canada, suggere que les résultats peuvent être généralisés avec plus de confiance.

Dementia patient care in the diagnostic medical imaging department

Radiography ◽  
2018 ◽  
Vol 24 ◽  
pp. S33-S42 ◽  
Author(s):  
R. Challen ◽  
L.-F. Low ◽  
M.F. McEntee
Keyword(s):  
Medical Imaging ◽  
Patient Care ◽  
Dementia Patient ◽  
Imaging Department

Response biases as a confound to expressed burden among spousal caregivers of suspected dementia patients.

1996 ◽  
Vol 11 (2) ◽  
pp. 377-380 ◽  
Author(s):  
Norm O'Rourke ◽  
Beth E. Haverkamp ◽  
Sandra Rae ◽  
Holly Tuokko ◽  
Sherri Hayden ◽  
...  
Keyword(s):  
Spousal Caregivers ◽  
Dementia Patients ◽  
Response Biases

scholarly journals Studi Literatur: Peran Caregiver Untuk Peningkatan Perawatan Kesehatan Pada Pasien Demensia

2020 ◽  
Vol 1 (2) ◽  
pp. 166-175
Author(s):  
Riskha Dora Candra Dewi ◽  
Kushariyadi
Keyword(s):  
Health Care ◽  
English Language ◽  
Health Workers ◽  
Dementia Patient ◽  
Inclusion Criteria ◽  
Improve Health Care ◽  
Dementia Patients ◽  
Psychological Pressure ◽  
Improve Health

The role of caregivers for dementia patients to improve health care is not yet optimal. Dementia patient care is an experience-based effort for complex dementia patients that can increase the psychological pressure of caregivers. The aim of the study was to determine the effectiveness of the caregiver's role in dementia patients to improve health care. Search strategies for English-language studies that are relevant to the topic are carried out using the ScienceDirect, SagePub, Springer databases limited from 2014 to 2020. The keywords used are "caregiver", "dementia", "health care", "role". Fulltext articles are reviewed to select studies that fit the criteria. The inclusion criteria in this review are  health workers, caregivers. A search using the keywords above with the ScienceDirect, SagePub, Springer database that met the inclusion criteria was only 22 articles. Research examined in this article uses a variety of methods, namely systematic literature review by 1 articles, RCT by 4 articles, interview by 1 articles, qualitative study by 5 articles, quasi-experimental study 2 article, participatory research of 1 article, bootstrapping methods of 1 article, scoping review of published literature by 1 articles, quantitative study by 1 articles, cohort study path analysis by 1, a survey to clarify the evaluation by 1, SEM by 1, standardized protocol by 1. Research using random techniques as much as 10 articles, while those using non-random techniques as many as 12 articles. The role of caregivers for dementia patients to improve health care is an effective experience-based effort and is the most appropriate activity for elderly patients with dementia. Enhance the role of the caregiver by changing the caregiver's perception of a more positive view of his role.

scholarly journals Systematic Review of Exercise for Caregiver–Care Recipient Dyads: What Is Best for Spousal Caregivers—Exercising Together or Not at All?

2020 ◽  
Author(s):  
Kecia L Doyle ◽  
Max Toepfer ◽  
Abigail F Bradfield ◽  
Alicia Noffke ◽  
Karla K Ausderau ◽  
...  
Keyword(s):  
Systematic Review ◽  
Spousal Caregivers ◽  
Care Recipient ◽  
Inclusion Criteria ◽  
Exercise Interventions ◽  
Care Recipients ◽  
Quantitative Studies ◽  
Older Adult Caregivers ◽  
Design And Methods ◽  
Psychosocial Benefits

Abstract Background and Objectives Though exercise for care recipients receives considerable emphasis, few dyadic studies focus on caregivers. This systematic review identified dyadic exercise interventions, which measured outcomes for older adult caregivers. Studies that met inclusion criteria were examined to better understand whether caregivers derived greater benefit from exercising with care recipients, or not exercising at all. Research Design and Methods PRISMA guidelines were followed to identify quantitative studies of dyadic exercise interventions in which caregivers enrolled with care recipients, and either coparticipated in exercise; or while their care recipients exercised independently, caregivers received a separate, nonexercise intervention or usual care (UC). To be included, studies had to measure physical or psychosocial outcomes for caregivers. Study quality was assessed via the Downs and Black checklist. Results Eleven studies met inclusion criteria. In six, the dyad exercised; in five, care recipients exercised while caregivers received a separate program, or UC. Results suggest that caregivers may improve both psychosocial and physical health when exercising together with care recipients. Caregivers who did not exercise but received a separate, nonexercise intervention, such as support, education, or respite, showed psychosocial benefits. Those who received UC were less likely to derive physical or psychosocial benefits. Included studies were fair to good quality with moderate to high risk of bias. Discussion and Implications Often examined secondarily, caregivers are overlooked for participation in interventions with care recipients. This analysis suggests that caregivers may benefit from dyadic interventions in which they either exercise together with their care recipients or receive a separate nonexercise intervention or respite.

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