Family Care before and after Bereavement

2008 ◽  
Vol 56 (1) ◽  
pp. 21-32 ◽  
Author(s):  
David Kissane ◽  
Wendy G. Lichtenthal ◽  
Talia Zaider

Distress reverberates throughout the family during palliative care and bereavement, inviting consideration of a family-centered model of care. Targeting families thought to be “at risk” has merit. The Family Focused Grief Therapy model was tested in a randomized controlled trial of 81 families (353 individuals) and bereavement outcome is reported here for treatment completers compared to controls. There were no significant baseline differences between treatment completers and non-completers. Significant reduction in distress occurred at 13 months post death for the families completing treatment, with further improvements for the 10% of individuals most distressed at baseline. A preventive model of family-centered care applied to those at greatest risk is meritorious and in keeping with the aspirations of Cicely Saunders for improving the quality of hospice care.

Author(s):  
Joanna Sturhahn Stratton ◽  
Katherine Buck ◽  
Allison M. Heru

The patient-centered medical home is a strong model of care that can be improved by harnessing the power of the patient’s family. This chapter highlights a three-step model of family involvement in patient care: (1) family inclusion, (2) family education and support, and (3) family systems therapy. The model is grounded in evidence-based research and incorporates the essential components of integrated care. A clinical case example illustrates how to involve the family in a stepwise progression. This model of family-centered care is applicable in any health care setting.


2019 ◽  
Vol 9 (4) ◽  
pp. 225-230
Author(s):  
Fariba NasiriZiba ◽  
Shadie Kanani

Introduction:Colorectal cancer is known as the third leading cause of death from cancer in the world and the second cause of death in developing countries. Family care can positively affect the patient's general health system. The present study was conducted to determine and compare the effect of family-centered and client-centered training approaches on the life quality of individuals with digestive ostomy. Methods: This is a semi-experimental study conducted on 60 individuals. The individuals participating in the present study were chosen from either those with digestive ostomy or their attendants. The participants fulfilled the requirements (criteria) for entering the present study. For conducting the training procedure, both groups received family-centered or client-centered training. Two months later, the quality of life of the individuals with digestive ostomy was measured once more. The data were then analyzed in SPSS ver.21 by using chi-squared test, paired t-test, and independent t-test. Results: According to the findings of the present study, there is no significant difference between the family-centered and the client-centered groups in terms of demographic features. By investigating the mean changes of both groups, There was a significant difference between quality of life score and spiritual-psychological aspect of scores before and after the intervention in the family-centered group. Conclusion: The findings of the present study showed that family-centered education can increase the quality of life for people with gastrointestinal ostomy. This study concluded that family-centered education can be considered an effective intervention in people with gastrointestinal ostomy.


2019 ◽  
Vol 9 (3) ◽  
pp. 213-218
Author(s):  
Erna Susilowati ◽  
Hengky Irawan

Status gizi seorang anak menggambarkan tingkat kesehatannya, hal tersebut menunjukkan keseimbangan dari kebutuhan dan asupan zat – zat gizi. Mulai usia 6 bulan bayi umumnya tidak lagi mendapatkan cukup energy dan zat gizi dari ASI saja dalam proses pertumbuhannya. Tujuan penelitian untuk mengetahui perubahan berat badan sebelum dan sesudah penerapan model family Centered Care dalam penyediaan makanan pendamping ASI. Desain penelitian pra eksperimen dengan pendekatan one group pre-post test design. Responden 50 ibu yang mempunyai anak usia 6- 12 bulan di wilayah posyandu kelurahan Lirboyo Kota Kediri. Variabel bebas adalah penerapan Model Family Centered Care. Variabel terikat adalah peningkatan berat badan bayi usia 6 – 12 bulan.  Data dianalisis menggunakan uji Wilcoxon dengan T-Test dengan p<0,05 Terdapat perbedaan yang sigifikan berat badan sebelum dan sesudah penerapan model Family Centered Care dengan nilai p =0,00.   Kata kunci:  berat badan bayi, makanan  pendamping ASI   IMPROVEMENT OF BABY BODY THROUGH THE APPLICATION OF THE FAMILY CENTERED CARE MODEL IN ASI ASSEMBLY   ABSTRACT The nutritional status of a child describes the level of his health, it shows a balance of the needs and intake of nutrients. Starting at the age of 6 months babies generally no longer get enough energy and nutrients from breast milk alone in the process of growth. The aim of the study was to determine changes in body weight before and after the application of the family centered care model in the supply of complementary breast milk. Pre-experimental research design with one group pre-post test design approach. Respondents were 50 mothers who had children aged 6-12 months in the Posyandu area, Lirboyo village, Kediri City. The independent variable is the application of the Family Centered Care Model. The dependent variable is the increase in infant weight between the ages of 6-12 months. Data were analyzed using the Wilcoxon test with T-Test with p <0.05. There were significant differences in body weight before and after the application of the Family Centered Care model with a value of p = 0.00.    Keywords: infant weight, ASI complementary food


2019 ◽  
Vol 26 (7-8) ◽  
pp. 2494-2510 ◽  
Author(s):  
Natalie S McAndrew ◽  
Rachel Schiffman ◽  
Jane Leske

Background: Frequent exposure to ethical conflict and a perceived lack of organizational support to address ethical conflict may negatively influence nursing family care in the intensive care unit. Research aims: The specific aims of this study were to determine: (1) if intensive care unit climate of care variables (ethical conflict, organizational resources for ethical conflict, and nurse burnout) were predictive of nursing family care and family wellbeing and (2) direct and indirect effects of the climate of care on the quality of nursing family care and family wellbeing. Research design: A cross-sectional, correlational design was used. Participants and research context: Convenience sample of 111 nurses and 44 family members from five intensive care units at a Midwest hospital in the United States. Instruments: The Ethical Conflict Questionnaire-Critical Care Version, Maslach Burnout Inventory-Human Services Survey and Hospital Ethical Climate Scale were used to measure climate of care. The Family-Centered Care-Adult Version and Nurse Provided Family Social Support Scale were family measures of the quality of nursing family care. The Family Wellbeing Index was used to measure family wellbeing. Data analysis: Hierarchical regression and mediation analysis were used to answer the study aims. Ethical considerations: The study was approved by the Institutional Review Board at the study site. Findings: In separate regression models, organizational resources for ethical conflict (β = .401, p = .006) and depersonalization (β = −.511, p = .006), a component of burnout, were significant predictors of family-centered care. In simple mediation analysis the relationship between organizational resources for ethical conflict and family-centered care was mediated by depersonalization (β = .341, 95% confidence interval (.015, .707)). Discussion: Inadequate organizational resources and depersonalization may be related to family care delivery, and present obstacles to family-centered care in the intensive care unit. Conclusion: Further research to explicate the relationships among organizational resources, ethical conflict, burnout, and family-centered care is needed to guide the development of effective interventions that enhance the quality of nursing family care in the intensive care unit.


Author(s):  
Emma Kainiemi ◽  
Pilvi Hongisto ◽  
Liisa Lehtonen ◽  
Bernd Pape ◽  
Anna Axelin

Abstract Objective The aim of this study was to evaluate the effects of a single family room architecture in a neonatal intensive care unit (SFR-NICU) on parents’ presence, parent–infant skin-to-skin contact (SSC) and the quality of family centered care. Study design Two cohorts of parents of preterm infants were compared: those in the unit before and after the move to SFR-NICU. The parents used daily diaries to report their presence and SSC, and they responded to daily text message questions about the quality of family centered care. Results Parents spent more time in the SFR-NICU, but no significant change was found in SSC. Parents rated the quality of family centered care highly in both unit architectures, without a change in rating after the move. Conclusion The SFR-NICU increased parents’ presence but not SSC. The change in architecture did not affect parents’ evaluations of the quality of family centered care, which was already highly rated before the move.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S427-S428
Author(s):  
Carol Whitlatch

Abstract Dr. M. Powell Lawton was an inspirational and productive scholar whose work had application for improving personal care and well-being for older adults and their families. He held strong to the principles of Person- and Family-Centered Care long before this terminology and model of care was commonly practiced. He was a living example of PFCC always wearing comfortable clothes and shoes to ensure his unique creativity was not obstructed by physical discomfort. Dr. Lawton’s work has inspired countless gerontologists who have taken the next steps towards ensuring quality of care by understanding personal preferences, activities, and care values. Dr. Whitlatch will discuss Dr. Lawton’s ongoing influence on care and best practices focusing on her own research that gives voice to the care values, preferences, and activities of families facing early-stage dementia. Dr. Whitlatch encourages attendees to wear their most comfortable shoes to the lecture in honor of Dr. Lawton.


2018 ◽  
Vol 26 (0) ◽  
Author(s):  
Cristiana Araújo Guiller Ferreira ◽  
Flávia Simphronio Balbino ◽  
Maria Magda Ferreira Gomes Balieiro ◽  
Myriam Aparecida Mandetta

ABSTRACT Objective: to develop and validate instruments to identify health professionals’ beliefs related to the presence of the child’s family in invasive procedures and in cardiopulmonary resuscitation. Method: study based on Psychometrics to conduct the theoretical, empirical and analytical stages, developed in a neonatal unit of a university hospital. The two instruments were constructed based on the literature and applied to 96 health professionals. Results: the Cronbach’s Alpha of the instrument related to the professionals’ beliefson invasive procedures was 0.863 and the instrument on cardiopulmonary resuscitation was 0.882. In both instruments, the tests performed indicated a correlation between the items. From the factorial analysis, four factors were generated: (1) benefits of the presence of the family; (2) impairment for professional practice; (3) strategies for the inclusion of the family; and (4) limitation of learning and decision making by the professional. Conclusion: the instruments analyzed obtained a good internal consistency and are indicators of the professionals’ beliefs with the potential to evaluate the quality of family care in this context.


1994 ◽  
Vol 5 (3) ◽  
pp. 289-295 ◽  
Author(s):  
Nancy E. Page ◽  
Nancy M. Boeing

Much controversy has arisen in the last few decades regarding parental and family visitation in the intensive care setting. The greatest needs of parents while their child is in an intensive care unit include: to be near their child, to receive honest information, and to believe their child is receiving the best care possible. The barriers that exist to the implementation of open visitation mostly are staff attitudes and misconceptions of parental needs. Open visitation has been found in some studies to make the health-care providers’ job easier, decrease parental anxiety, and increase a child’s cooperativeness with procedures. To provide family-centered care in the pediatric intensive care unit, the family must be involved in their child’s care from the day of admission. As health-care providers, the goal is to empower the family to be able to advocate and care for their child throughout and beyond the life crisis of a pediatric intensive care unit admission


Author(s):  
Alkali Ibrahim Abubakar ◽  
Mohd Hamdan Hj Ahmad ◽  
Ismail Said

Objective- The need for patients and family centered care as promoted by patient and family centered care (PFCC) model suggests the active involvement of patients' families and friends in caring for their hospitalized patients by use of collaboration, demonstration of dignity and respect, sharing information, and encouraging participation. Even though there are literatures that investigated the nature and typologies of family care actions that revealed the reasons for family participation, little is known of the influence of religion/spiritualism on this informal caregiving. This qualitative study was set out to explore religious role in promoting family participation in caring for their hospitalised relations. Methodology/Technique Non-participant observation was employed to study the typology of family care actions in male and female surgical wards of a tertiary institution in Nigeria. Findings Findings from the study reveals the significant influence of religion in identifying what constitute family care actions in Nigerian hospitals. Novelty - The benefits of family participation in care were seen to be influenced by the psychological and emotional support a patient requires, however this study reveals the significant religious influence. Type of Paper: Review Keywords: , Patient,Family, Religion, Caregiving


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