scholarly journals Journeying with Morrie: Challenging Notions of Professional Delivery of Spiritual Care at the End of Life

2008 ◽  
Vol 16 (4) ◽  
pp. 305-319 ◽  
Author(s):  
Jacqueline H. Watts
Keyword(s):  
End Of Life ◽  
Spiritual Care ◽  
Health Care Professionals ◽  
Contextual Knowledge ◽  
Study Approach ◽  
Inner Self ◽  
Whole Person ◽  
Collective Competence ◽  
The Ideal

The spiritual welfare of dying people has in recent years moved from the domain of religion to become the concern of health care professionals, particularly as part of the ideal of holism that underpins palliative care. Professional delivery of spiritual care incorporates the features of assessment, control, and treatment which may involve varying degrees of intrusion into the patient's deeply personal inner self. Using a case study approach, this article explores meanings of spirituality and understandings of what is meant by the term “spiritual care.” It argues that biographical and community approaches to spiritual care of dying people may be more congruent with the concept of the “whole person” because this support is rooted in an intimate contextual knowledge of the dying person by the caregiver. This challenges the dominant discourses of professional expertise to embrace informal personal and collective competence in this important aspect of end of life care.

scholarly journals KONSEP DIRI ANAK PEKERJA SEKS KOMERSIAL YANG TINGGAL DITENGAH MASYARAKAT

2017 ◽  
Vol 1 (1) ◽  
pp. 78
Author(s):  
Fatchun Nikmah
Keyword(s):  
Physical Condition ◽  
Sex Workers ◽  
Self Concept ◽  
Snowball Sampling ◽  
Ideal Self ◽  
Study Approach ◽  
Ideal Situation ◽  
The Subject ◽  
The Ideal

Abstract  Stigma in today's society considers more sex workers as the dregs of society who only regarded as an immoral person who violates the norms of religion and society, so they are not appreciated. A prostitute is almost the majority have families, both parents, brother, husband or child. Communities usually negative view sex workers family and those views may influence the psychological development of child prostitutes. This study aims to determine the child's self-concept of prostitutes who live in the community.This study uses a qualitative case study approach, which is a special phenomenon that is present in a limited context, although the boundaries between phenomenon and context are not entirely clear. Determination techniques are the subject of the researchers used snowball sampling or chain sampling. The research was conducted in two villages that are within the scope of the district in one district on the island of Java. The subject of this study were children and adolescents aged prostitute who is still undergoing formal schooling.This study found that the first subject has a good self concept. There is not much of a gap between the basic self-concept and ideal self-concept on the subject. The first subject has a perceptual self-concept is not good because the subject is not satisfied with the current physical condition and there are gaps in the basic perceptual components and ideal self-concept. As for the conceptual and attitudinal self concept self concept can be considered a good subject because there is no gap between the conceptual and attitudinal components of the basic categories and ideal self-concept. While the second subject has a poor self-concept, as there are many gaps between the basic self-concept and ideal self concept on the subject. The subject has a perceptual selfconcept is not good, because the subject was not satisfied with his physical condition and his subjects make the situation as a benchmark of the ideal situation for him. In addition, the subject has attitudinal poor self concept.  Keywords: Self-concept, children, sex workers, society, qualitative

Health Care Professionals’ Awareness of a Child’s Impending Death

2020 ◽  
Vol 30 (9) ◽  
pp. 1314-1325
Author(s):  
Kathie Kobler ◽  
Cynthia Bell ◽  
Karen Kavanaugh ◽  
Agatha M. Gallo ◽  
Colleen Corte ◽  
...  
Keyword(s):  
Health Care ◽  
End Of Life ◽  
Health Care Professionals ◽  
End Of Life Care ◽  
Life Care ◽  
Structured Interviews ◽  
Study Approach ◽  
Multiple Data ◽  
Impending Death ◽  
Record Review

Health care professionals’ (HCPs) experiences during early pediatric end-of-life care were explored using a theory-building case study approach. Multiple data collection methods including observation, electronic medical record review, and semi-structured interviews were collected with 15 interdisciplinary HCPs across four cases. Within- and across-case analyses resulted in an emerging theory. HCPs’ initial awareness of a child’s impending death is fluid, ongoing, and informed through both relational and internal dimensions. Initial cognitive awareness is followed by a deeper focus on the child through time-oriented attention to the past, present, and future. HCPs engage in a “delicate dance of figuring out” key issues. Awareness was exemplified through four themes: professional responsibility, staying connected, grounded uncertainty, and holding in. The emerging theoretical model provides a framework for HCPs to assess their ongoing awareness, identify personal assumptions, and inform gaps in understanding when facilitating early end-of-life care discussions with families.

scholarly journals Palliative Nursing and Sacred Medicine: A Holistic Stance on Entheogens, Healing, and Spiritual Care

2018 ◽  
Vol 37 (1) ◽  
pp. 100-106 ◽  
Author(s):  
William E. Rosa ◽  
Stephanie Hope ◽  
Marianne Matzo
Keyword(s):  
Patient Outcomes ◽  
Spiritual Care ◽  
Holistic Nursing ◽  
Serious Illness ◽  
Raising Awareness ◽  
Whole Person ◽  
Healing Environments ◽  
History Of ◽  
Nursing Literature

The fields of palliative and holistic nursing both maintain a commitment to the care of the whole person, including a focus on spiritual care. Advanced serious illness may pose a plethora of challenges to patients seeking to create meaning and purpose in their lives. The purpose of this article is to introduce scholarly dialogue on the integration of entheogens, medicines that engender an experience of the sacred, into the spiritual and holistic care of patients experiencing advanced serious illness. A brief history of the global use of entheogens as well as a case study are provided. Clinical trials show impressive preliminary findings regarding the healing potential of these medicinal agents. While other professions, such as psychology, pharmacy, and medicine, are disseminating data related to patient outcomes secondary to entheogen administration, the nursing literature has not been involved in raising awareness of such advancements. Research is illustrating their effectiveness in achieving integrative experiences for patients confronting advanced serious illness and their ability to promote presence, introspection, decreased fear, and increased joy and acceptance. Evidence-based knowledge surrounding this potentially sensitive topic is necessary to invite understanding, promote scientific knowledge development, and create healing environments for patients, nurses, and researchers alike.

Identity work and illness careers of patients with medically unexplained symptoms

2017 ◽  
Vol 23 (5) ◽  
pp. 551-567
Author(s):  
Camilla Blach Rossen ◽  
Niels Buus ◽  
Elsebeth Stenager ◽  
Egon Stenager
Keyword(s):  
Health Care ◽  
Health Care System ◽  
Health Care Professionals ◽  
Medically Unexplained Symptoms ◽  
Identity Work ◽  
Study Approach ◽  
Medically Unexplained ◽  
Unexplained Symptoms ◽  
Care System

This article reports a case study of the illness career and identity work of patients who have had medically unexplained symptoms for many years with a particular emphasis on their interactions with a specialized and standardized health care system. Patients with medically unexplained symptoms often experience being met with mistrust and feel their identity threatened as a consequence of being illegitimately ill. There is a strong tendency in health care towards assessment thorough standardized so-called assessment packages. The study used a case study approach. Ethnographic fieldwork was carried out and several types of data were sampled through theoretical sampling, resulting in data from and about a sample of 13 patients, from which two patients were selected as cases. The study showed that a standardized health care system characterized by a tendency towards narrow diagnostic assessment with limited time can lead to a diagnostic limbo and that patients and health care professionals keep on searching for legitimate explanations for the patients’ still unexplained symptoms. Consequently the patients were left in a constant identity negotiation.

Spiritual issues in palliative medicine

2021 ◽  
pp. 1063-1071
Author(s):  
Susan McClement ◽  
Genevieve Thompson ◽  
Jamie Penner
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Spiritual Care ◽  
Healthcare Providers ◽  
Future Research ◽  
Care Needs ◽  
Spiritual Assessment ◽  
Whole Person ◽  
Future Research Directions ◽  
Spiritual Suffering

The focus of palliative care is the whole person, including biopsychosocial, cultural, and spiritual dimensions of patient needs. The burgeoning literature examining the topic of spirituality within healthcare in general, and within palliative care in particular, underscores the notion that attending to patients’ spiritual care needs is a vital part of providing optimal palliative care. Yet healthcare providers frequently report that they feel ill equipped to provide spiritual care at the end of life and wrestle with many questions and uncertainties: What is spirituality? Why is it important? What is spiritual suffering? Who should provide spiritual care? How is a spiritual assessment conducted? What are some spiritual interventions for end of life care? What are some future research directions in the area of spiritual care? Answers to these questions form the basis of this chapter.

scholarly journals A Case Study On Anticipated End-of-Life Caregiving Among The Millennial American Born Chinese

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 775-775
Author(s):  
Tongtong Li ◽  
Aileen Zhang ◽  
Ruotong Liu ◽  
Iris Chi
Keyword(s):  
End Of Life ◽  
Terminal Illness ◽  
Filial Piety ◽  
Chinese Culture ◽  
Minority Group ◽  
Stage Iv ◽  
Immigrant Parents ◽  
Study Approach ◽  
Stage Iv Lung Cancer

Abstract Millennial American Born Chinese (ABCs) are in a double jeopardy position with end-of-life (EOL) care for their immigrant parents, because of both cultural and generational clashes. There is no existing empirical study about the millennial ABCs’ attitudes or behaviors towards EOL caregiving. Our study is the first one to explore the millennial ABCs’ anticipated EOL caregiving behaviors, support and resources needed, attitudes towards terminal illness disclosure and advance care planning (ACP) discussion with their parents, and how acculturation influences. A qualitative in-depth phone interview using a case study approach, with a scenario of caring for parents with Parkinson’s disease and stage IV lung cancer, was adopted. Participants were recruited via convenience sampling, and a total of 27 (18 females and 9 males with an average age of 25) passed the screening and completed the interviews. Using the directed content analysis, researchers identified two themes: EOL caregiving and EOL decision making, which included five sub-themes: caregiving behaviors, needed supports and resources, care arrangement decision, terminal illness disclosure, and ACP. Both traditional Chinese culture of familism and filial piety, and western culture of autonomy and patients’ rights to know were exhibited in every theme. Most participants did not fully understand ACP concept, but they were willing to initiate ACP conversation after comprehending ACP concept. This study constitutes an essential step towards understanding the millennial ABC EOL caregivers’ financial, physical, and emotional needs from family, community and government, better establishing corresponding policies, and promoting public education in ACP to benefit this minority group.

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