scholarly journals Culture, law, ethics, and social implications: Is society ready for advanced genomic medicine?

2014 ◽  
Vol 7 (4) ◽  
Author(s):  
Jon Cornwall ◽  
Tania Slatter ◽  
Parry Guilford ◽  
Cristin G Print ◽  
Mark Henaghan ◽  
...  
Keyword(s):  
Genomic Medicine ◽  
Social Implications

scholarly journals From “Personalized” to “Precision” Medicine: The Ethical and Social Implications of Rhetorical Reform in Genomic Medicine

2016 ◽  
Vol 46 (5) ◽  
pp. 21-33 ◽  
Author(s):  
Eric Juengst ◽  
Michelle L. McGowan ◽  
Jennifer R. Fishman ◽  
Richard A. Settersten
Keyword(s):  
Precision Medicine ◽  
Genomic Medicine ◽  
Social Implications

scholarly journals What is genomic medicine?

2019 ◽  
Vol 107 (3) ◽  
Author(s):  
Stephanie Clare Roth
Keyword(s):  
Health Care ◽  
Genomic Medicine ◽  
Social Implications ◽  
Research And Practice ◽  
The Future ◽  
Integral Role

Genomic medicine is rapidly changing the future of medicine. Medical librarians need to understand this field of research and keep current with its latest advancements. Even if they are not directly involved in genomic medicine, librarians can play an integral role by helping health care consumers and practitioners who may also need to expand their knowledge in this area. This article provides a basic introduction to genomic medicine, gives a brief overview of its recent advancements, and briefly describes some of the ethical, legal, and social implications of this emerging area of research and practice.

scholarly journals Genetic/genomic testing: defining the parameters for ethical, legal and social implications (ELSI)

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Tania Ascencio-Carbajal ◽  
Garbiñe Saruwatari-Zavala ◽  
Fernando Navarro-Garcia ◽  
Eugenio Frixione
Keyword(s):  
International Organizations ◽  
Personal Information ◽  
Genomic Medicine ◽  
Genomic Research ◽  
Social Implications ◽  
Genomic Testing ◽  
National Regulation ◽  
Starting Point ◽  
The Social ◽  
Minimum Criteria

Abstract Background Genetic/genomic testing (GGT) are useful tools for improving health and preventing diseases. Still, since GGT deals with sensitive personal information that could significantly impact a patient’s life or that of their family, it becomes imperative to consider Ethical, Legal and Social Implications (ELSI). Thus, ELSI studies aim to identify and address concerns raised by genomic research that could affect individuals, their family, and society. However, there are quantitative and qualitative discrepancies in the literature to describe the elements that provide content to the ELSI studies and such problems may result in patient misinformation and harmful choices. Methods We analyzed the major international documents published by international organizations to specify the parameters that define ELSI and the recognized criteria for GGT, which may prove useful for researchers, health professionals and policymakers. First, we defined the parameters of the ethical, legal and social fields in GGT to avoid ambiguities when using the acronym ELSI. Then, we selected nine documents from 44 relevant publications by international organizations related to genomic medicine. Results We identified 29 ELSI sub-criteria concerning to GGT, which were organized and grouped within 10 minimum criteria: two from the ethical field, four from the legal field and four from the social field. An additional analysis of the number of appearances of these 29 sub-criteria in the analyzed documents allowed us to order them and to determine 7 priority criteria for starting to evaluate and propose national regulations for GGT. Conclusions We propose that the ELSI criteria identified herein could serve as a starting point to formulate national regulation on personalized genomic medicine, ensuring consistency with international bioethical requirements.

scholarly journals Genetic/Genomic Testing: Defining The Parameters For Ethical, Legal and Social Implications (ELSI)

2021 ◽  
Author(s):  
Tania Ascencio-Carbajal ◽  
Garbiñe Saruwatari-Zavala ◽  
Fernando Navarro-Garcia ◽  
Eugenio Frixione
Keyword(s):  
Personal Information ◽  
Genomic Medicine ◽  
Genomic Research ◽  
Social Implications ◽  
Genomic Testing ◽  
Life Choices ◽  
National Regulation ◽  
Starting Point ◽  
The Social ◽  
Minimum Criteria

Abstract Background Genetic/genomic testing (GGT) are useful tools for improving health and preventing diseases. Still, since GGT deals with sensitive personal information that could significantly impact a patient life or family, it becomes imperative to consider Ethical, Legal and Social Implications (ELSI). Thus, ELSI studies aim to identify and address concerns raised by genomic research that could affect individuals, their family, and society. However, there are quantitative and qualitative discrepancies in the literature to describe the elements that provide content to the ELSI studies and such problems may result in patient misinformation and making wrong life choices. Methods Here, we analyzed the major international bioethics literature to specify the parameters that define ELSI and the recognized criteria for GGT, which may prove useful for researchers, health professionals and policymakers. First, we defined the parameters of the ethical, legal and social fields in GGT to avoid ambiguities when using the acronym ELSI. Then, we selected nine documents from 44 relevant publications by international organizations related to genomic medicine. Results A thorough analysis of these documents allowed us to group and extract criteria by thematic affinity. We identified 29 ELSI sub-criteria concerning to GGT, which were organized and grouped within 10 minimum criteria: two from the ethical field, four from the legal field and four from the social field. An additional analysis of the number of appearances of these 29 sub-criteria in the analyzed documents allow us to order them and to determine 7 priority criteria for starting to evaluate and propose national regulations for GGT. Conclusions We propose that the ELSI criteria identified herein could serve as a starting point to formulate national regulation on personalized genomic medicine, ensuring consistency with international bioethical requirements.

Ethical, Legal, and Social Implications of Personalized Genomic Medicine Research: Current Literature and Suggestions for the Future

Bioethics ◽  
2016 ◽  
Vol 30 (9) ◽  
pp. 698-705 ◽  
Author(s):  
Shawneequa L. Callier ◽  
Rachel Abudu ◽  
Maxwell J. Mehlman ◽  
Mendel E. Singer ◽  
Duncan Neuhauser ◽  
...  
Keyword(s):  
Current Literature ◽  
Genomic Medicine ◽  
Social Implications ◽  
Medicine Research ◽  
The Future

Teachers' Stereotypes of Children Who Wear Hearing Aids

1981 ◽  
Vol 12 (3) ◽  
pp. 139-144 ◽  
Author(s):  
Cletus G. Fisher ◽  
Kenneth Brooks
Keyword(s):  
Elementary School ◽  
School Child ◽  
Hearing Aids ◽  
Hearing Aid ◽  
Social Implications ◽  
Elementary School Child ◽  
Classroom Teachers ◽  
Frequency Of Occurrence ◽  
Service Training

Classroom teachers were asked to list the traits they felt were characteristic of the elementary school child who wears a hearing aid. These listings were evaluated according to the desirability of the traits and were studied regarding frequency of occurrence, desirability, and educational, emotional, and social implications. The results of the groupings are discussed in terms of pre-service and in-service training.

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