scholarly journals Experiences from a Participatory Ergonomics Project Among Home Care Personnel, Informal Carers and Unit Leaders in a Swedish Municipality

2011 ◽  
Vol 3 (1) ◽  
pp. 48-56
Author(s):  
Ingegerd Skoglind-Ohman
Keyword(s):  
Home Care ◽  
Participatory Ergonomics ◽  
Informal Carers

scholarly journals Home care in dementia: The views of informal carers from a co-designed consultation

Dementia ◽  
2021 ◽  
pp. 147130122199050
Author(s):  
Elizabeth L Dalgarno ◽  
Vincent Gillan ◽  
Amy Roberts ◽  
Jean Tottie ◽  
David Britt ◽  
...  
Keyword(s):  
Home Care ◽  
Working Conditions ◽  
Public Involvement ◽  
Framework Analysis ◽  
Electronic Survey ◽  
The United Kingdom ◽  
People With Dementia ◽  
Dementia Research ◽  
Informal Carers ◽  
A Current

Background In the United Kingdom, there is a current priority for high-quality dementia care provided at home. However, home care or domiciliary care is an area where problems have been reported, in terms of a lack of consistency, coordination and appropriate responses to the specific needs of those with dementia. The views of informal carers, who often must respond to these problems when supporting relatives, are crucial in shedding light on the issues and in seeking to promote solutions. Methods This study explored the views of informal carers of those with dementia concerning home care, through a consultation using an electronic survey. The survey questions were designed by informal carers, through a public involvement group within an existing programme of dementia research. The survey elicited responses from 52 informal carers in 2017/18. The data were analysed qualitatively using framework analysis. Findings Carers’ views focused on the need for investment into meaningful personalisation, recognising the value of providing care and valuing formal carers, systemic failings of care coordination and provision and the importance of ongoing collaboration and care planning. Conclusion Based on a framework drawn from the views of informal carers themselves, this study articulated issues of concern for home care and its delivery for people with dementia. Attempts should be made to make dementia home care more consistently personalised, inclusive and collaborative with informal carers and key others involved. Further areas to explore include working conditions of formal carers and current models utilised in homecare provision.

scholarly journals A Groupware Tool to Facilitate Caregiving for Home-Dwelling Frail Older Persons in the Netherlands: Mixed-Methods Study (Preprint)

2018 ◽  
Author(s):  
Hanneke Breebaart ◽  
Marjolein Broese van Groenou
Keyword(s):  
The Netherlands ◽  
Home Care ◽  
Digital Communication ◽  
Care Organization ◽  
Care Network ◽  
Formal Caregivers ◽  
Care Recipients ◽  
Frail Older Persons ◽  
Informal Carers

BACKGROUND Collaboration among informal and formal caregivers in a mixed care network of home-dwelling elderly may benefit from using a groupware app for digital networked communication (DNC). OBJECTIVE This study aimed to describe and explain differences in the use and evaluation of a DNC app by members of the care network and to come up with a list of conditions that facilitate (or restrict) the implementation of a DNC app by a home care organization. METHODS A pilot study collected information on digital communication in 7 care networks of clients of a home care organization in the Netherlands. Semistructured interviews with 4 care recipients, 7 informal carers (of which 3 spoke on behalf of the care receiver as well on account of receivers’ suffering from dementia), 3 district nurses, 5 auxiliary nurses, and 3 managers were conducted 3 times in a period of 6 months. In addition, we observed relevant workshops initiated by the home care organization and studied log-in data created by the users of the DNC app. RESULTS The qualitative data and the monthly retrieved quantitative log-in data revealed 3 types of digital care networks: arranging the care network, discuss the care network, and staying connected network. Differences between network types were attributed to health impairment and digital illiteracy of the care recipients, motivation of informal caregivers, and commitment of formal caregivers. The easy availability of up-to-date information, the ability to promote a sense of safety for the carers, and short communication lines in case of complex care situations were positively evaluated. CONCLUSIONS It is concluded that digital communication is beneficial for organizing and discussing the care within a care network. More research is needed to study its impact on care burden of informal carers, on quality of care, and on quality of life of home-dwelling frail older adults.

Participatory ergonomics for reducing load and strain in home care work

1998 ◽  
Vol 21 (5) ◽  
pp. 345-352 ◽  
Author(s):  
Tiina Pohjonen ◽  
Anne Punakallio ◽  
Veikko Louhevaara
Keyword(s):  
Home Care ◽  
Care Work ◽  
Participatory Ergonomics

Home Care Systems for the Management of Patients With Mental Disorders

2019 ◽  
pp. 72-101
Author(s):  
Maria Haritou ◽  
Dimitris Koutsouris
Keyword(s):  
Home Care ◽  
Service Oriented Architecture ◽  
Cognitive Stimulation ◽  
Detection Mechanism ◽  
Home Based ◽  
Support Tools ◽  
Care Systems ◽  
Service Oriented ◽  
Informal Carers ◽  
Reliable Solution

This chapter provides an overview of the various aspects involved in the development of a home care system for the management of dementia, based on the experience of ALADDIN implementation. The ALADDIN platform aims to provide a trustworthy and reliable solution supporting patients and their informal carers in the management of the disease from home. Based on a set of monitoring parameters and measuring scales feeding a reconfigurable Event Detection mechanism used for Risk Assessment and Analysis, the system aims to early detect symptoms predicting decline, avoid emergencies and secondary effects and thus prolong the period that patients can remain safely cared at home. Informal carers are also monitored by the system whereas additional features supporting networking, education and cognitive stimulation are also integrated along with decision support tools for the clinicians. It is an open, secure, interoperable, integrated IT-solution designed according to Service Oriented Architecture principles and credible methodologies for patient follow-up, risk detection and adaptive care.

A longitudinal study of home care clients and their informal carers

2005 ◽  
Vol 10 (6) ◽  
pp. 284-291 ◽  
Author(s):  
Christopher Armstrong-Esther ◽  
Brad Hagen ◽  
Mark Sandilands ◽  
Robert Williams ◽  
Christine Smith
Keyword(s):  
Longitudinal Study ◽  
Home Care ◽  
Informal Carers

scholarly journals Costs of formal and informal care at home for people with dementia: ‘Expert panel’ opinions from staff and informal carers

Dementia ◽  
2016 ◽  
Vol 18 (1) ◽  
pp. 210-227 ◽  
Author(s):  
Clarissa M Giebel ◽  
Susan Davies ◽  
Paul Clarkson ◽  
Caroline Sutcliffe ◽  
David Challis ◽  
...  
Keyword(s):  
Home Care ◽  
Care Home ◽  
Nursing Home Admission ◽  
Term Care ◽  
Data Set ◽  
Home Support ◽  
People With Dementia ◽  
Individual Needs ◽  
Informal Carers ◽  
The Individual

Effective home support in dementia is key in delaying nursing home admission. However, home support is frequently not tailored to the individual needs of people with dementia. Staff allocating home support services may not identify important care needs, which only be recognised by informal carers. The purpose of this study was to explore the balance of informal and formal home support and their associated costs from the perspectives of both informal carers and paid staff. Five case vignettes of people with dementia were designed based on an existing English data set from a European study into transition into long-term care (the RightTimePlaceCare programme), representing 42 per cent of the English sample. In total, 14 informal carers and 14 paid staff were consulted in separate groups, as expert panels, regarding their recommendations for home care services for each vignette. Care recommendations of carers and staff were costed based on nationally available unit costs and compared. Informal carers allocated fewer hours of care than staff. Personal and domestic home care and day care centres were the most frequently recommended formal services by both groups, and some vignettes of people with dementia were recommended for care home admission. The ratio of costs of informal versus formal support was relatively equal for paid staff, yet unbalanced from the perspectives of informal carers with a greater proportion of formal care costs. Recommendations from this study can help shape dementia care to be more tailored to the individual needs of people with dementia and their carers.

Home Care Systems for the Management of Patients with Mental Disorders

2017 ◽  
pp. 881-910
Author(s):  
Maria Haritou ◽  
Dimitris Koutsouris
Keyword(s):  
Home Care ◽  
Service Oriented Architecture ◽  
Cognitive Stimulation ◽  
Detection Mechanism ◽  
Home Based ◽  
Support Tools ◽  
Care Systems ◽  
Service Oriented ◽  
Informal Carers ◽  
Reliable Solution

This chapter provides an overview of the various aspects involved in the development of a home care system for the management of dementia, based on the experience of ALADDIN implementation. The ALADDIN platform aims to provide a trustworthy and reliable solution supporting patients and their informal carers in the management of the disease from home. Based on a set of monitoring parameters and measuring scales feeding a reconfigurable Event Detection mechanism used for Risk Assessment and Analysis, the system aims to early detect symptoms predicting decline, avoid emergencies and secondary effects and thus prolong the period that patients can remain safely cared at home. Informal carers are also monitored by the system whereas additional features supporting networking, education and cognitive stimulation are also integrated along with decision support tools for the clinicians. It is an open, secure, interoperable, integrated IT-solution designed according to Service Oriented Architecture principles and credible methodologies for patient follow-up, risk detection and adaptive care.

Home Care Systems for the Management of Patients with Mental Disorders

2016 ◽  
pp. 382-411
Author(s):  
Maria Haritou ◽  
Dimitris Koutsouris
Keyword(s):  
Home Care ◽  
Service Oriented Architecture ◽  
Cognitive Stimulation ◽  
Detection Mechanism ◽  
Home Based ◽  
Support Tools ◽  
Care Systems ◽  
Service Oriented ◽  
Informal Carers ◽  
Reliable Solution

This chapter provides an overview of the various aspects involved in the development of a home care system for the management of dementia, based on the experience of ALADDIN implementation. The ALADDIN platform aims to provide a trustworthy and reliable solution supporting patients and their informal carers in the management of the disease from home. Based on a set of monitoring parameters and measuring scales feeding a reconfigurable Event Detection mechanism used for Risk Assessment and Analysis, the system aims to early detect symptoms predicting decline, avoid emergencies and secondary effects and thus prolong the period that patients can remain safely cared at home. Informal carers are also monitored by the system whereas additional features supporting networking, education and cognitive stimulation are also integrated along with decision support tools for the clinicians. It is an open, secure, interoperable, integrated IT-solution designed according to Service Oriented Architecture principles and credible methodologies for patient follow-up, risk detection and adaptive care.

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