scholarly journals Impact of human genome initiative-derived technology on genetic testing, screening and counseling: Cultural, ethical and legal issues. Progress report

1993 ◽  
Author(s):  
R.W. Trottier ◽  
F.C. Hodgin ◽  
M. Imara ◽  
D. Phoenix ◽  
S. Lybrook ◽  
...  
Keyword(s):  
Genetic Testing ◽  
Human Genome ◽  
Progress Report ◽  
Legal Issues ◽  
Ethical And Legal Issues ◽  
Human Genome Initiative

Legal and Ethical Considerations of the Human Genome Project

1994 ◽  
Vol 1 (2) ◽  
pp. 159-175 ◽  
Author(s):  
Sheila A.M. McLean ◽  
Dieter Giesen
Keyword(s):  
Human Genome ◽  
Human Genome Project ◽  
Scientific Progress ◽  
Genome Project ◽  
Legal Issues ◽  
Human Society ◽  
Ethical Considerations ◽  
Self Monitoring ◽  
Ethical And Legal Issues ◽  
The Human Genome Project

This article seeks to highlight some of the more important ethical and legal issues raised by the Human Genome Project. It is recognized that hithertofore ethical control over the pace and scope of scientific progress has been only partly successful, due largely to the resistance of the professionals involved to outside interference and to the ineffectiveness of self-monitoring. The Human Genome Project has the potential to alter the lives of individuals and the structure of human society as a whole. It is essential therefore that individuals be empowered through the application and development of existing heads of liability in constitutional and private law to effect at least some of the necessary control. The transnational aspects of the project and the ethical and legal issues which it raises are also stressed.

scholarly journals Current ethical and legal issues in health-related direct-to-consumer genetic testing

2017 ◽  
Vol 14 (5) ◽  
pp. 433-445 ◽  
Author(s):  
Emilia Niemiec ◽  
Louiza Kalokairinou ◽  
Heidi Carmen Howard
Keyword(s):  
Genetic Testing ◽  
Legal Issues ◽  
Direct To Consumer ◽  
Health Related ◽  
Ethical And Legal Issues

Lovotics

2017 ◽  
Author(s):  
Adrian David Cheok ◽  
Kasun Karunanayaka ◽  
Emma Yann Zhang
Keyword(s):  
Science Fiction ◽  
Intimate Relationships ◽  
Intelligent Systems ◽  
Humanoid Robots ◽  
Legal Issues ◽  
Sex Communication ◽  
Ethical And Legal Issues ◽  
Recent Activity ◽  
Academic Area ◽  
Robot Companions

Intimate relationships, such as love and sex, between human and machines, especially robots, has been one of the themes of science fiction. However, this topic has never been treated in the academic area until recently. It was first raised and discussed by David Levy in his book Love and Sex with Robotics (2007). Since then, researchers have come up with many implementations of robot companions, like sex robots, emotional robots, humanoid robots, and artificial intelligent systems that can simulate human emotions. This chapter presents a summary of significant recent activity in this field, predicts how the field is likely to develop, and discusses ethical and legal issues. We also discuss our research in physical devices for human–robot love and sex communication.

scholarly journals The patient advisor, an organizational resource as a lever for an enhanced oncology patient experience (PAROLE-onco): a longitudinal multiple case study protocol

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
M. P. Pomey ◽  
M. de Guise ◽  
M. Desforges ◽  
K. Bouchard ◽  
C. Vialaron ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Clinical Oncology ◽  
Patient Experience ◽  
Emotional Support ◽  
Social Care ◽  
Legal Issues ◽  
Care Services ◽  
Health And Social Care ◽  
Ethical And Legal Issues ◽  
The Impact

Abstract Background Quebec is one of the Canadian provinces with the highest rates of cancer incidence and prevalence. A study by the Rossy Cancer Network (RCN) of McGill university assessed six aspects of the patient experience among cancer patients and found that emotional support is the aspect most lacking. To improve this support, trained patient advisors (PAs) can be included as full-fledged members of the healthcare team, given that PA can rely on their knowledge with experiencing the disease and from using health and social care services to accompany cancer patients, they could help to round out the health and social care services offer in oncology. However, the feasibility of integrating PAs in clinical oncology teams has not been studied. In this multisite study, we will explore how to integrate PAs in clinical oncology teams and, under what conditions this can be successfully done. We aim to better understand effects of this PA intervention on patients, on the PAs themselves, the health and social care team, the administrators, and on the organization of services and to identify associated ethical and legal issues. Methods/design We will conduct six mixed methods longitudinal case studies. Qualitative data will be used to study the integration of the PAs into clinical oncology teams and to identify the factors that are facilitators and inhibitors of the process, the associated ethical and legal issues, and the challenges that the PAs experience. Quantitative data will be used to assess effects on patients, PAs and team members, if any, of the PA intervention. The results will be used to support oncology programs in the integration of PAs into their healthcare teams and to design a future randomized pragmatic trial to evaluate the impact of PAs as full-fledged members of clinical oncology teams on cancer patients’ experience of emotional support throughout their care trajectory. Discussion This study will be the first to integrate PAs as full-fledged members of the clinical oncology team and to assess possible clinical and organizational level effects. Given the unique role of PAs, this study will complement the body of research on peer support and patient navigation. An additional innovative aspect of this study will be consideration of the ethical and legal issues at stake and how to address them in the health care organizations.

Perception of the general public towards the ethical and legal issues surrounding DNA paternity testing in Lebanon

2021 ◽  
Vol 17 ◽  
pp. 100640
Author(s):  
M. Azoury ◽  
F.A. Mrad ◽  
I. Mansour ◽  
J.-N. Ibrahim ◽  
Z.A. Rjeily ◽  
...  
Keyword(s):  
General Public ◽  
Legal Issues ◽  
Paternity Testing ◽  
Ethical And Legal Issues
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