scholarly journals Web-based collaboration in individual care planning challenges the user and the provider roles – toward a power transition in caring relationships

2014 ◽  
pp. 561 ◽  
Author(s):  
Jorunn Bjerkan ◽  
Solfrid Vatne ◽  
Anne Hollingen
Keyword(s):  
Care Planning ◽  
Power Transition ◽  
Web Based ◽  
Caring Relationships ◽  
Individual Care

scholarly journals Information needs of patients with chronic diseases and their relatives for web-based advance care planning: a qualitative interview study

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Doris van der Smissen ◽  
Judith A. C. Rietjens ◽  
Lisette van Gemert-Pijnen ◽  
Sandra van Dulmen ◽  
Agnes van der Heide ◽  
...  
Keyword(s):  
Chronic Diseases ◽  
Advance Care Planning ◽  
Information Needs ◽  
Care Planning ◽  
Web Based ◽  
Disease Trajectory ◽  
Search Terms ◽  
Practical Support ◽  
Advance Care ◽  
Search For Information

Abstract Background Advance care planning (ACP) enables persons to identify preferences for future treatment and care, and to discuss, record and review these preferences. However, the uptake of ACP among patients with chronic diseases is relatively low. Web-based ACP programs can support patients and their relatives in ACP. However, information needs of patients and their relatives for ACP are unknown. The aim of this study is to explore information needs of patients with chronic disease and their relatives for web-based ACP. Methods We conducted semi-structured interviews with patients with chronic diseases and relatives at their home or at the study center. In three cases, the patient and relative were paired since they preferred to be interviewed together. We asked about information they would search for when to start with ACP, where they would search for information, what search terms they would use on the Internet, and what content and information they would consider important on an ACP website. The interviewer asked participants to clarify their responses during the interview. We used thematic analysis to analyze the interviewees’ responses. Results We interviewed nine patients with different chronic diseases including amyotrophic lateral sclerosis (ALS), multiple sclerosis (MS), chronic obstructive pulmonary disease (COPD) and kidney diseases, and seven relatives, namely partners or (adult) children. The interviewees were aged 24 to 80 years, nine were female and seven were male. Both patients with a chronic disease and relatives mentioned comparable information needs. Many interviewees indicated they would use the Internet to search for information about ACP. Mentioned search terms were “advance care planning”, “treatment plan”, “disease trajectory” and names of patient associations. Information needs concerned their disease trajectory and quality of life, medical treatment decisions, practical support in arranging care, the concept of ACP and guidance in ACP, communication of treatment and care preferences, peer support of others with chronic diseases, and information for relatives. Many appreciated encouragement of their healthcare providers to take a pro-active role in ACP. Conclusions We conclude that information needs for ACP included guidance in ACP, support in making decisions about medical treatment, and practical support in arranging care. We recommend adapting web-based ACP information to the information needs of patients and their relatives to increase its findability, uptake and usefulness.

Lose It!

2011 ◽  
Vol 6 (2) ◽  
pp. 60-65
Author(s):  
Michael Dohan ◽  
Joseph Tan
Keyword(s):  
Information Technology ◽  
Weight Control ◽  
Self Care ◽  
Lifestyle Changes ◽  
Web Based ◽  
Body Of Knowledge ◽  
Individual Care ◽  
Key Variables ◽  
Exercise Diary

Lose It! is a web-based, food and exercise diary application, assisting its users in weight control. It is part of a growing form of information technology developed to transform self-care through influencing individual care behaviors and impacting on lifestyle changes. Future implications for the development of such electronic tools require research into the connection of key variables dictated by the relevant theoretical body of knowledge and the translation of such knowledge to practice.

Evaluation of an advance care planning web-based resource: applicability for cancer treatment patients

2017 ◽  
Vol 26 (3) ◽  
pp. 853-860 ◽  
Author(s):  
Martha A. Cresswell ◽  
Carole A. Robinson ◽  
Gillian Fyles ◽  
Joan L. Bottorff ◽  
Rebecca Sudore
Keyword(s):  
Cancer Treatment ◽  
Advance Care Planning ◽  
Care Planning ◽  
Web Based ◽  
Advance Care
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