scholarly journals Evaluation of a staff well-being program in a pediatric oncology, hematology, and palliative care services group

2018 ◽  
Vol Volume 10 ◽  
pp. 67-85 ◽  
Author(s):  
Penelope J. Slater ◽  
Rachel M. Edwards ◽  
Ashraf Badat
Keyword(s):  
Palliative Care ◽  
Pediatric Oncology ◽  
Well Being ◽  
Care Services ◽  
Palliative Care Services

Unmet spiritual needs in palliative care: psychometrics of a screening checklist

2020 ◽  
pp. bmjspcare-2020-002636
Author(s):  
Natasha G Michael ◽  
Irene Bobevski ◽  
Ekavi Georgousopoulou ◽  
Clare C O'Callaghan ◽  
Josephine M Clayton ◽  
...  
Keyword(s):  
Palliative Care ◽  
Concurrent Validity ◽  
Screening Tool ◽  
Reliability And Validity ◽  
Well Being ◽  
Spiritual Needs ◽  
Care Services ◽  
Chronic Illness Therapy ◽  
Spiritual Well Being ◽  
Palliative Care Services

BackgroundWhile studies in palliative care use measures of spirituality and religious belief, there have been few validation studies of a screening tool that identifies unmet spiritual needs.MethodsA multidisciplinary research team developed and examined the usefulness, reliability and validity of a 17-item Spiritual Concerns Checklist (SCC) as a screening tool for unmet spiritual needs. A cohort of patients recruited from three palliative care services in Sydney and Melbourne, Australia completed anonymous questionnaires. Factor structure and item response theory were used to examine its properties; concurrent validity employed the Functional Assessment of Chronic Illness Therapy—Spiritual Well-Being Scale (FACIT-Sp-12).ResultsAmong 261 patients, while only 15% directly sought spiritual care, nearly 62% identified at least one spiritual concern. Existential needs (fear of the dying process 32%; loss of control 31%), regret (20%), need for forgiveness (17%), guilt (13%), loss of hope (13%) and meaning (15%) were prominent concerns. Eleven concerns were present for more than 10% of the participants and 25% of religiously orientated participants expressed >4 concerns. The 17-item SCC was unidimensional, with satisfactory reliability. Concurrent validity was evident in the reduced sense of meaning and peace on the FACIT-Sp-12.ConclusionThis preliminary Rasch analysis of the newly developed SCC has demonstrated its usefulness, reliability and validity. Our findings encourage refinement and ongoing development of the SCC with further investigation of its psychometric properties in varying populations.

HSR19-080: Situational Analysis and Needs Assessment Regarding the Availability and Extent of Pediatric Palliative Care Services in the Philippines

2019 ◽  
Vol 17 (3.5) ◽  
pp. HSR19-080
Author(s):  
Loyda Amor N. Cajucom ◽  
Rita C. Ramos ◽  
Raymund Kernell B. Mañago ◽  
Raya Kathreen T. Fuentes ◽  
Primo G. Garcia ◽  
...  
Keyword(s):  
Palliative Care ◽  
Pediatric Oncology ◽  
Healthcare Providers ◽  
The Philippines ◽  
Situational Analysis ◽  
Care Needs ◽  
Care Services ◽  
Palliative Care Services ◽  
The Common ◽  
Palliative Care Needs

Background: Around 200,000 pediatric clients are diagnosed with cancer each year globally. Majority (84%) of cancer cases are found in developing countries with 20% average survival rate (Ferlay et al, 2012). Two-thirds of pediatric oncology clients in the Philippines are diagnosed at advanced stages (Lecciones, 2015). Abandonment of treatment is high at 80%. Only about 10%–20% of clients attain long-term survival despite availability of multidisciplinary management. These outcomes reflect the gap in service delivery for pediatric oncology clients (Ferlay et al, 2012). Therefore, to improve accessibility to healthcare, it is necessary to determine the perceived palliative care needs of clients, their caregivers, and healthcare providers. Objective: To identify the availability of palliative care services in the country, identify barriers in service delivery, and determine the palliative care needs of pediatric oncology clients, their caregivers, and healthcare providers. Methods: The descriptive, cross-sectional study design involved a situational analysis by mapping 2 Philippine palliative centers. Focus group discussions (FGD) and interviews with healthcare professionals were conducted to determine the extent of services, geographical coverage, and perceived palliative care needs. The needs assessment tool by WHO (2004) was adopted to identify the palliative care needs of pediatric oncology clients as perceived by caregivers. Results: From a total of 181 primary caregivers, the identified main problems in caring was the economical (95.6%) aspect. Financial support (92%) was the most pressing need. Caregivers would like to learn more about general cancer care (39%) and nutrition counseling (24%). The most common palliative care needs as perceived by caregivers included accessibility to cancer facility (27%), free cancer medications (12.7%), and financial assistance (14.9%). The common barriers in rendering care were financial constraints (66%), behavioral changes (12.7%), and travel limitations (6%). The common themes found during the FGDs and interviews were: (1) inadequate human and structural health resources; (2) need to focus on psychosocial care; (3) addressing economic constraints; and (4) need to increase cancer awareness among caregivers. Conclusion: The findings of the study documented the need for the development of structured programs for pediatric palliative care in the Philippines.

scholarly journals Evaluating Palliative Care—A Review of the Literature

2009 ◽  
Vol 3 ◽  
pp. PCRT.S2178
Author(s):  
Hubert R. Jocham RN ◽  
Theo Dassen ◽  
Guy Widdershoven ◽  
Ruud Halfens
Keyword(s):  
Palliative Care ◽  
Systems Of Care ◽  
Well Being ◽  
Clinical Approach ◽  
Care Services ◽  
Empathic Communication ◽  
Palliative Care Services ◽  
Published Research ◽  
Quality Evidence

The purpose of this article was to investigate the outcome measures developed and used in palliative care. The paper involved a literature review of published research. Many of the reviewed papers concluded similarly that there was lack of good quality evidence on which to base conclusions. More high quality evidence is needed to compare the relative merits of the differences in models of palliative care services, so that we can learn from other appropriate systems of care at end of life. It follows that quality of life is the main outcome of palliative care, in which the patient instead of the disease represents the target of the clinical approach. Patients struggling with serious illness have other concerns, including managing pain and other symptoms, coordinating care among multiple providers and settings, ensuring that treatments reflect preferences and balance benefits and harms as well as clinical appropriateness, achieving empathic communication and care, fostering well-being, maintaining function and practically supporting family and caregivers through illness and bereavement.

scholarly journals Palliative Care Services in Childhood Cancer in Bangladesh: Current Situation and Challenges

2020 ◽  
Vol 5 (2) ◽  
pp. 226
Author(s):  
Abu Sadat Mohammad Nurunnabi
Keyword(s):  
Palliative Care ◽  
Quality Of Care ◽  
Pain Management ◽  
Childhood Cancer ◽  
Pediatric Oncology ◽  
Access To Treatment ◽  
Private Hospitals ◽  
Care Services ◽  
Palliative Care Services

Background: Palliative care is a major priority in childhood cancer care strategy as it provides compassionate support both for the children and their families.Objective: The aim of the present study was to observe the current situation of palliative care services in childhood cancer in Bangladesh and its challenges.Methods: An anonymous survey was done between July and December of 2013 in some specialized pediatric oncology units of different public and private hospitals in Dhaka city of Bangladesh, based on a semi‐structured questionnaire. A total of 300 respondents including physicians, nurses, caregivers, hospital managers who deal with childhood cancer, and parents of children suffering from cancer took part in this survey. Queries addressed are access to treatment, availability of drugs, palliative care, pain management, cost of treatment, quality of care and perceived challenges.Results: Difficulty in access to treatment (86%), out‐of‐pocket payment for oncology therapies (88%), palliative care (91%) were evident. 93% reported that availability of specialized palliative care services, pain management and psychological plus decision‐making support were directly related to income level. Overall, 96% of respondents indicated that palliative care is important for their patients and 79% indicated that they were competent to provide this care; however, only 64% indicated that they had enough time to deliver quality palliative care. Challenges include lack of awareness, less availability of facility, high cost, limited and inefficient manpower, low quality of care, less communication between health professionals and parents/family members of the patient.Conclusion: In Bangladesh, pediatric oncology is usually practiced in resourcestrained oncology units of pediatric divisions in different public hospitals along with few private hospitals. However, this survey confirmed that many of the children lack access to quality palliative care. Effective palliative care requires establishment of more facilities with cancer registry, availability of drugs for therapies and pain management, manpower development, communication with patients and families in decision‐making.International Journal of Human and Health Sciences Vol. 05 No. 02 April’21 Page: 226-229

Prognostic Acceptance and the Well-Being of Patients Receiving Palliative Care for Cancer

2009 ◽  
Vol 27 (34) ◽  
pp. 5757-5762 ◽  
Author(s):  
Genevieve N. Thompson ◽  
Harvey M. Chochinov ◽  
Keith G. Wilson ◽  
Christine J. McPherson ◽  
Srini Chary ◽  
...  
Keyword(s):  
Palliative Care ◽  
Advanced Cancer ◽  
Well Being ◽  
Survival Duration ◽  
Passive Coping ◽  
Care Services ◽  
Palliative Care Services ◽  
Relational Concerns ◽  
To Come ◽  
The Impact

Purpose To identify the impact of prognostic acceptance/nonacceptance on the physical, psychological, and existential well-being of patients with advanced cancer. Patients and Methods A Canadian multicenter prospective national survey was conducted of patients diagnosed with advanced cancer with an estimated survival duration of 6 months or less (n = 381) receiving palliative care services. Results Of the total number of participants, 74% reported accepting their situation and 8.6% reported accepting with “moderate” to “extreme” difficulty. More participants with acceptance difficulties than without acceptance difficulties met diagnostic criteria for a depressive or anxiety disorder (χ2 = 8.67; P < .01). Nonacceptors were younger (t = 4.13; P < .000), had more than high school education (χ2 = 4.69; P < .05), and had smaller social networks (t = 2.53; P < .05) than Acceptors. Of the Nonacceptors, 42% described their experience as one of “moderate” to “extreme” suffering compared with 24.1% of Acceptors (χ2 = 5.28; P < .05). More than one third (37.5%) of Nonacceptors reported feeling hopeless compared with 8.6% who had no difficulty accepting (χ2 = 24.76; P < .000). Qualitatively, participants described active and passive coping strategies that helped them accept what was happening to them, as well as barriers that made it difficult to come to terms with their current situation. Conclusion The challenge of coming to terms with a terminal prognosis is a complex interplay between one's basic personality, the availability of social support, and one's spiritual and existential views on life. Nonacceptance appears to be highly associated with feelings of hopelessness, a sense of suffering, depression, and anxiety, along with difficulties in terms of social–relational concerns.

Accessing general health services

2018 ◽  
pp. 347-416
Author(s):  
Owen Barr ◽  
Bob Gates
Keyword(s):  
Mental Health ◽  
Palliative Care ◽  
Intellectual Disabilities ◽  
Well Being ◽  
Healthcare Services ◽  
Practice Nurses ◽  
Care Services ◽  
Palliative Care Services ◽  
People With Intellectual Disabilities ◽  
Community Mental Health Nurses

The knowledge of practical-focused and applied information within this chapter builds on the underpinning information in Chapter 5 relating to physical health and well-being. This provides essential information to nurses for people with intellectual disabilities, so that they can support people access general healthcare services. It explores the remit of general primary, secondary, and palliative care services and the roles of people who work within these services. It provides clear information on the role of all members of the primary care team and the key professionals with whom people with intellectual disabilities will often be in contact, including dentists, podiatrists, audiologists, dieticians, physiotherapists, occupational therapists, community mental health nurses, and practice nurses. It also gives clear practical information about how to support people with intellectual disabilities to access services in general hospital, children departments, emergency departments, dental departments, mental health, and maternity and palliative care.

scholarly journals Palliative care services in pediatric oncology

2019 ◽  
Vol 8 (S1) ◽  
pp. S49-S57
Author(s):  
Jessica L. Spruit ◽  
Maryjo Prince-Paul
Keyword(s):  
Palliative Care ◽  
Pediatric Oncology ◽  
Care Services ◽  
Palliative Care Services
Sign in / Sign up

Export Citation Format

Share Document