scholarly journals Implementing chronic care for COPD: planned visits, care coordination, and patient empowerment for improved outcomes

Author(s):  
Len Fromer
2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Nina Abrahams ◽  
Lucy Gilson ◽  
Naomi S. Levitt ◽  
Joel A. Dave

Abstract Background The burden of non-communicable diseases is growing rapidly in low- and middle-income countries. Research suggests that health interventions that aim to improve patient self-management and empower patients to care actively for their disease will improve health outcomes over the long-term. There is, however, a gap in the literature about the potential role of the inpatient setting in supporting chronic care. This is particularly important in low-and-middle income countries where hospitals may be a rare prolonged point of contact between patient and health provider. The aim of this small scale, exploratory study was to understand what factors within the inpatient setting may affect patients’ feelings of empowerment in relation to their chronic disease care and provides recommendations for future inpatient-based interventions to support self-management of disease. Methods This study was based in a public, academic hospital in South Africa. Eighteen qualitative, semi-structured interviews were conducted with multiple participants with experience of diabetes care: inpatients and health professionals such as nurses, endocrinologists, and dieticians. Findings were analysed using a broad, exploratory, thematic approach, guided by self-management and chronic care literature. Results Interviews with both patients and providers suggest that patients living in low socio-economic contexts are likely to struggle to access appropriate healthcare information and services, and may often have financial and emotional priorities that take precedence over their chronic illness. Younger people may also be more dependent on their family and community, giving them less ability to take control of their disease care and lifestyle. In addition, hospital care remains bound by an acute care model; and the inpatient setting of focus is characterised by perceived staff shortages and ineffective communication that undermine the implementation of patient empowerment-focused interventions. Conclusions Patient and provider contexts are likely to make supporting patient engagement in long-term chronic care difficult in lower income settings. However, knowledge of these factors can be harnessed to improve chronic care interventions in South Africa and other similar countries.


2018 ◽  
Vol 8 (3) ◽  
pp. 468-480 ◽  
Author(s):  
Constance O van Eeghen ◽  
Benjamin Littenberg ◽  
Rodger Kessler

Author(s):  
Ester Risco ◽  
Gloria Sauch Valmaña ◽  
Anna Albero ◽  
Nihan Acar-Denizli ◽  
Adela Zabalegui ◽  
...  

Introduction Older people with complex, chronic conditions often receive insufficient or inefficient care provision. And few instruments are able to measure their perception on care provision. The "User Reported Measure of Care Coordination" instrument has been satisfactorily used to evaluate chronic care provision and integration. The aim of this study is to validate this instrument into Spanish. Methods The questionnaire was adapted and validate in two phases: translation and cultural adaptation of the questionnaire, and psychometric property measurement. Study population were chronic care conditions patients. Results A total of 332 participants completed test re-test as part of the questionnaire validation process. The final version of the questionnaire had 6 domains: Health and Well-being (D1), Health day to day (D2), Social Services (D3), Planned Care (D4), Urgent Care (D5) and Hospital Care (D6). Cronbach's alpha for the overall questionnaire was 0.86, indicating good internal consistency. When analysing each domain, only Planned Care (D4) and Urgent Care (D5) had Cronbach’s Alphas slightly lower than 0.7, although this could be related to the low number of items in each domain. A good temporal stability was observed for the distinct subscales and items, with intraclass correlation coefficients varying from 0.412 to 0.929 (p < 0.05). Conclusion The adapted version of the “User Reported Measure of Care Coordination” into Spanish proved to be a practical tool for use in our daily practice and an efficient instrument for assessment of care coordination in chronic, complex conditions in older people across services and levels of care.


Author(s):  
Mark D. Sullivan

The history of proposals for patient-centered medicine begins with Michael Balint’s proposal for patient-centered medicine as an alternative to illness-centered medicine. This has been weakened in more recent calls for patient-centered care from clinicians, foundations, and professional organizations. It is argued that patient-centeredness consists of both taking the patient’s perspective and activating the patient. Taking the patient’s perspective involves communication skills and may involve developing a “shared mind” with the patient. Two programs for activating patients are contrasted, 1) the Expert Patient program based on the Chronic Disease Self-Management Program of Lorig and Holman and 2) the Patient-Centered Medical Home based on the Chronic Care Model developed by Wagner and colleagues. Patient empowerment involves activating patients on their own behalf and in service of their own goals. A truly patient-centered chronic care model aims not only for patient empowerment, but also for patient capability to pursue health and other vital goals.


2011 ◽  
Vol 28 (6) ◽  
pp. 724-730 ◽  
Author(s):  
N. Musacchio ◽  
A. Lovagnini Scher ◽  
A. Giancaterini ◽  
L. Pessina ◽  
G. Salis ◽  
...  

2003 ◽  
Vol 9 (2) ◽  
pp. 189-195 ◽  
Author(s):  
Rita Kobb ◽  
Nannette Hoffman ◽  
Robert Lodge ◽  
Sheri Kline

Author(s):  
Katarzyna Badora-Musiał ◽  
Anna Sagan ◽  
Alicja Domagała ◽  
Iwona Kowalska-Bobko

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