scholarly journals Threading the cloak: palliative care education for care providers of adolescents and young adults with cancer

2015 ◽  
pp. 1 ◽  
Author(s):  
Lori Wiener ◽  
Meaghann Shaw Weaver ◽  
Ursula M. Sansom Daly ◽  
Cynthia J. Bell
Keyword(s):  
Palliative Care ◽  
Young Adults ◽  
Adolescents And Young Adults ◽  
Care Providers ◽  
Care Education ◽  
Palliative Care Education

scholarly journals “It’s More Difficult…”: Clinicians’ Experience Providing Palliative Care to Adolescents and Young Adults Diagnosed With Advanced Cancer

2020 ◽  
Vol 16 (1) ◽  
pp. e100-e108 ◽  
Author(s):  
Jonathan Avery ◽  
Arielle Geist ◽  
Norma Mammone D’Agostino ◽  
Sarah K. Kawaguchi ◽  
Ramona Mahtani ◽  
...  
Keyword(s):  
Palliative Care ◽  
Young Adults ◽  
Advanced Cancer ◽  
Health Care Providers ◽  
Nurse Practitioners ◽  
Adolescents And Young Adults ◽  
Care Providers ◽  
Practice Nurses ◽  
Radiation Oncologists ◽  
Constant Comparative Analysis

PURPOSE: Adolescents and young adults (AYAs; age 15-39 years) with advanced cancer are a population in whom quality of life is uniquely affected because of their stage of life. However, training focused on palliative care for AYAs is not routinely provided for health care providers (HCPs) in oncology. This study aims to explore the experiences of HCPs involved in introducing and providing palliative care caring for AYAs with advanced cancer and their families to understand the unique challenges HCPs experience. METHODS: Using a qualitative descriptive design, semistructured interviews were conducted with medical and radiation oncologists, palliative care physicians, psychiatrists, and advanced practice nurses involved in caring for AYAs diagnosed with advanced cancer (N = 19). Interviews were transcribed verbatim and analyzed using thematic analysis in combination with constant comparative analysis and theoretical sampling. RESULTS: There were 19 participants, 9 men and 10 women, with a median age of 45 years (range, 24-67 years). Six were palliative care physicians, 5 medical oncologists, 4 nurse practitioners, and 2 each radiation oncologists and psychiatrists. Overall, participants perceived the provision of palliative care for AYAs to be more difficult compared with older adults. Four themes emerged: (1) challenges helping AYAs/families to engage in and accept palliative care, (2) uncertainty regarding how to involve the family, (3) HCP sense of tragedy, and (4) HCP sense of emotional proximity. CONCLUSION: Findings from this study support the development of dedicated training for HCPs involved in palliative care for AYA.

HOPE. Home Care Outreach for Palliative Care Education.

1998 ◽  
Vol 6 (2) ◽  
pp. 79-85 ◽  
Author(s):  
BR Ferrell ◽  
R Virani ◽  
M Grant
Keyword(s):  
Palliative Care ◽  
Home Care ◽  
Care Education ◽  
Palliative Care Education

scholarly journals Chinese medical teachers’ cultural attitudes influence palliative care education: a qualitative study

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Antonia M. Willemsen ◽  
Piret Paal ◽  
Silja Zhang ◽  
Stephen Mason ◽  
Frank Elsner
Keyword(s):  
Health Care ◽  
Palliative Care ◽  
Death And Dying ◽  
Developed Countries ◽  
Special Importance ◽  
Cultural Attitudes ◽  
Care Education ◽  
Palliative Care Education ◽  
Education In China ◽  
Medical Teachers

Abstract Background China holds one fifth of the world’s population and faces a rapidly aging society. In its ambition to reach a health care standard comparable to developed countries by 2030, the implementation of palliative care gains special importance. Until now, palliative care education in China is limited and disparate. This study aims to explore and determine factors that have impeded the development and implementation of palliative care education in China. Methods We conducted semi-structured interviews with n=28 medical teachers from seven Chinese universities. Interviews were transcribed, and thematic analysis applied. Results Three themes with two subthemes were constructed from data analysis. Theme 1 covers the still ambivalent perception of palliative care and palliative care education among participants. The second theme is about cultural attitudes around death and communication. The third theme reflects participants’ pragmatic general understanding of teaching. All themes incorporate obstacles to further implementation of palliative care and palliative care education in China. Conclusions According to the study participants, palliative care implementation through palliative care education in China is hindered by cultural views of medical teachers, their perception of palliative care and palliative care education, and their understanding of teaching. The study demonstrates that current attitudes may work as an obstacle to the implementation of palliative care within the health care system. Approaches to changing medical teachers’ views on palliative care and palliative care education and their cultural attitudes towards death and dying are crucial to further promote the implementation of palliative care in China.

scholarly journals Obesity in Children and Adolescents during COVID-19 Pandemic

Children ◽  
2021 ◽  
Vol 8 (2) ◽  
pp. 135
Author(s):  
Androniki Stavridou ◽  
Evangelia Kapsali ◽  
Eleni Panagouli ◽  
Athanasios Thirios ◽  
Konstantinos Polychronis ◽  
...  
Keyword(s):  
Physical Activity ◽  
Young Adults ◽  
Health Care Providers ◽  
Eating Behaviors ◽  
Adolescents And Young Adults ◽  
Care Providers ◽  
Weight Changes ◽  
Sugary Drinks ◽  
Precautionary Measures ◽  
Obesity In Children

Background: The COVID-19 pandemic has led to special circumstances and changes to everyday life due to the worldwide measures that were imposed such as lockdowns. This review aims to evaluate obesity in children, adolescents and young adults during the COVID-19 pandemic. Methods: A literature search was conducted to evaluate pertinent studies up to 10 November 2020. Results: A total of 15 articles were eligible; 9 identified 17,028,111 children, adolescents and young adults from 5–25 years old, 5 pertained to studies with an age admixture (n = 20,521) and one study included parents with children 5–18 years old (n = 584). During the COVID-19 era, children, adolescents and young adults gained weight. Changes in dietary behaviors, increased food intake and unhealthy food choices including potatoes, meat and sugary drinks were noted during the ongoing COVID-19 pandemic. Food insecurity associated with financial reasons represents another concern. Moreover, as the restrictions imposed reduced movements out of the house, physical activity was limited, representing another risk factor for weight gain. Conclusions: COVID-19 restrictions disrupted the everyday routine of children, adolescents and young adults and elicited changes in their eating behaviors and physical activity. To protect them, health care providers should highlight the risk of obesity and provide prevention strategies, ensuring also parental participation. Worldwide policies, guidelines and precautionary measures should ideally be established.

scholarly journals Palliative Care in Adolescents and Young Adults with Cancer

2015 ◽  
Vol 22 (4) ◽  
pp. 475-479 ◽  
Author(s):  
Kristine A. Donovan ◽  
Dianne Knight ◽  
Gwendolyn P. Quinn
Keyword(s):  
Palliative Care ◽  
Young Adults ◽  
Adolescents And Young Adults
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