scholarly journals Quality of life predictors in informal caregivers of seniors with a functional performance deficit – an example of home care in Poland

2019 ◽  
Vol Volume 14 ◽  
pp. 889-903
Author(s):  
Barbara Ślusarska ◽  
Agnieszka Bartoszek ◽  
Katarzyna Kocka ◽  
Alina Deluga ◽  
Agnieszka Chrzan-Rodak ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Home Care ◽  
Functional Performance ◽  
Informal Caregivers ◽  
Performance Deficit

scholarly journals A Comprehensive Assessment of Informal Caregivers of Patients in a Primary Healthcare Home-Care Program

2021 ◽  
Vol 18 (21) ◽  
pp. 11588
Author(s):  
Virginia Rodrigo-Baños ◽  
Marta del Moral-Pairada ◽  
Luis González-de Paz
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Home Care ◽  
Primary Healthcare ◽  
Informal Caregivers ◽  
Care Program ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Studies of the characteristics of informal caregivers and associated factors have focused on care-receiver disease or caregiver social and psychological traits; however, an integral description may provide better understanding of informal caregivers’ problems. A multicenter cross-sectional study in primary healthcare centers was performed in Barcelona (Spain). Participants were a random sample of informal caregivers of patients in a home-care program. Primary outcomes were health-related quality of life and caregiver burden, and related factors were sociodemographic data, clinical and risk factors, social support and social characteristics, use of healthcare services, and care receivers’ status. In total, 104 informal caregivers were included (mean age 68.25 years); 81.73% were female, 54.81% were retired, 58.65% had high comorbidity, and 48.08% of care receivers had severe dependence. Adjusted multivariate regression models showed health-related quality of life and the caregivers’ burden were affected by comorbidity, age, time of care, and dependency of care receiver, while social support and depression also showed relative importance. Aging, chronic diseases, and comorbidity should be included when explaining informal caregivers’ health status and wellbeing. The effectiveness of interventions to support informal caregivers should comprehensively evaluate caregivers when designing programs, centering interventions on informal caregivers and not care receivers’ conditions.

scholarly journals THE ROLE OF INFORMAL CAREGIVERS FROM THE COMMUNITY NURSE’S PERSPECTIVE: QUALITATIVE STUDY

2021 ◽  
Vol 31 (7) ◽  
pp. 181-189
Author(s):  
Aurelija Blaževičienė ◽  
Alina Vaškelytė ◽  
Aušra Kunčienė
Keyword(s):  
Quality Of Life ◽  
Home Care ◽  
Informal Caregivers ◽  
The Elderly ◽  
Home Care Services ◽  
Formal Caregivers ◽  
Care For The Elderly ◽  
The Impact

Patients with chronic health care conditions who require long-tern care are nursed at home, therefore, there is a shift in responsibility for their care from paid formal caregivers to unpaid family members. Aim of this study was to assess the role of informal caregiver’s in-home care from the community nurse’s perspective. Thirty-one nurses, providing home care services to patients with special needs requiring constant care, participated in five semi-structured focus-group discussions. The data analysis was based on descriptive phenomenology. Three distinct phases in the development of informal caregiver–nurse relationship was uncovered: (1) the first phase is associated with the organization of home care in the family context, (2) the management of possibilities and challenges faced by informal caregivers in-home care phase; (3) the impact of home care on informal caregivers‘ quality of life and health phase. This study result shows that in organizing home care for the elderly are lack of cross-sectoral cooperation and teamwork between informal caregivers and community nurses. Therefore, informal caregivers must accept a new role in life as a provider of care, advocating, and supporter roles. Furthermore, as a result of daily fatigue, the informal caregivers‘ quality of life is deteriorating and their social exclusion is increasing.

scholarly journals Desempenho ocupacional de cuidadores informais em atenção domiciliar / Occupational performance of informal caregivers of patients at home care

2018 ◽  
Vol 2 (2) ◽  
pp. 338-356
Author(s):  
Mateus Menezes Ribeiro ◽  
Fernando Coelho Dias ◽  
Camilla Oleiro Da Costa ◽  
Stefanie Griebeler Oliveira
Keyword(s):  
Quality Of Life ◽  
Home Care ◽  
Informal Caregivers ◽  
Self Care ◽  
Care Process ◽  
Occupational Performance ◽  
Demographic Questionnaire ◽  
And Performance ◽  
At Home

O processo de cuidado pode interferir diretamente na qualidade de vida e nas ocupações de cuidadores informais, afetando seu bem-estar e sua saúde. O estudo objetivou compreender como acontece o desempenho ocupacional de cuidadores informais em atenção domiciliar. Trata-se de um estudo transversal de abordagem quali-quantitativa e com amostra composta por dez cuidadores informais assistidos pelo Programa de Internação Domiciliar Interdisciplinar e Melhor em Casa na cidade de Pelotas-RS. Foram aplicados um questionário sociodemográfico e um questionário de saúde e desempenho em atividades de autocuidado, lazer e produtividade. Os dados do questionário sócio demográfico foram analisados por média e frequência absoluta. Os dados do questionário de saúde e desempenho em atividades de autocuidado, lazer e produtividade foram analisados pelo método de análise de conteúdo de Bardin. Dos resultados, foi evidenciado que a maioria dos cuidadores não dispõem de auxílio, ou seja, contar com outra pessoa para a realização e divisão de tarefas relativas ao cuidado. Ainda sobre os resultados, foi identificado que desde que os indivíduos assumiram o papel de cuidador sofreram com alterações em seu desempenho em atividades cotidianas, repercutindo de modo negativo na saúde e qualidade de vida. Assim, conclui-se que os cuidadores informais participantes do estudo possuem comprometimento em seu desempenho ocupacional. AbstractThe care process may interfere directly in informal caregivers quality of life and in their occupations affecting their welfare and health. This study objected understand how the occupation performance of informal caregivers at home care. It is a cross-sectional and quali-quantitative study with a sample of ten informal caregivers helped by the home care Programa de Internação Domiciliar Interdisciplinar (Interdisciplinary Home Hospitalization Program) and Melhor em Casa (Better at Home) in Pelotas, RS. The following instruments were used: a socio-demographic questionnaire and a questionnaire of health and performance in self-care, leisure and productivity activities. The data of the socio-demographic questionnaire were analyzed by average and absolute frequency. The data of the questionnaire of health and performance in self-care, leisure and productivity activities were analyzed by the Bardin content analysis method. The results showed that the majority of caregivers reported that they did not have another person to share the caring tasks, in addition, was identified that since that assumed the role of caregiver they suffered with alterations in their performance in daily activities, negatively affecting the health and quality of life. Thus, it is concluded that the informal caregivers participating in the study have a compromise in their occupational performance.Keywords: Caregivers; Occupational performance; Occupations; quality of life; health.

scholarly journals Health, Quality of Life, and Economic Impacts of Home Care Vouchers for Middle-Income Adults

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 355-356
Author(s):  
Joanne Spetz ◽  
Laura Wagner ◽  
Jacqueline Miller ◽  
Susan Chapman ◽  
Connie Kwong
Keyword(s):  
Quality Of Life ◽  
Emergency Department ◽  
Economic Analysis ◽  
Home Care ◽  
Informal Caregivers ◽  
Financial Stress ◽  
Emergency Department Visits ◽  
Life Questionnaire ◽  
Middle Income

Abstract The Support at Home pilot program provided financial support for home care services by middle-income adults with disabilities in San Francisco to support aging in place. This presentation reports the results of the mixed-methods evaluation of the program, which incorporated administrative records, surveys of clients and comparison group members, surveys of informal caregivers of clients, surveys of the care providers hired by clients, and focus groups with clients and with informal caregivers. Outcome measures included the Older People’s Quality of Life Questionnaire, Patient Health Questionnaire-2, an adapted Burden Scale for Family Caregivers, and self-reported falls, emergency department visits, and hospitalizations. Analyses included pre-post chi-squared and t-test comparisons and comparisons of changes between the client and comparison groups. Multivariate regression analyses were conducted to control for demographic differences between the groups. An economic analysis was conducted to learn whether changes in costs associated with medical appointments, emergency department visits, and hospitalizations were greater than the costs of the program, including both voucher and administrative costs. Results indicated statistically significant positive changes in personal stress and financial stress, but not in the composite quality of life score. There also were statistically significant reductions in attendance at medical appointments, falls, emergency department visits, and hospitalizations. The focus group data supported the findings regarding personal and financial stress, and also indicated that clients and their caregivers perceived positive quality of life benefits. The economic analysis indicated substantial cost savings from the program due to reduced use of medical services.

scholarly journals Evaluating the provision of Further Enabling Care at Home (FECH+) for informal caregivers of older adults discharged home from hospital: protocol for a multicentre randomised controlled trial

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e046600
Author(s):  
Anne-Marie Hill ◽  
Rachael Moorin ◽  
Susan Slatyer ◽  
Christina Bryant ◽  
Keith Hill ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Randomised Controlled Trial ◽  
Usual Care ◽  
Controlled Trial ◽  
Informal Caregivers ◽  
Care Recipient ◽  
Care At Home ◽  
Randomised Controlled

IntroductionThere are personal and societal benefits from caregiving; however, caregiving can jeopardise caregivers’ health. The Further Enabling Care at Home (FECH+) programme provides structured nurse support, through telephone outreach, to informal caregivers of older adults following discharge from acute hospital care to home. The trial aims to evaluate the efficacy of the FECH+ programme on caregivers’ health-related quality of life (HRQOL) after care recipients’ hospital discharge.Methods and analysisA multisite, parallel-group, randomised controlled trial with blinded baseline and outcome assessment and intention-to-treat analysis, adhering to Consolidated Standards of Reporting Trials guidelines will be conducted. Participants (N=925 dyads) comprising informal home caregiver (18 years or older) and care recipient (70 years or older) will be recruited when the care recipient is discharged from hospital. Caregivers of patients discharged from wards in three hospitals in Australia (one in Western Australia and two in Queensland) are eligible for inclusion. Participants will be randomly assigned to one of the two groups. The intervention group receive the FECH+ programme, which provides structured support and problem-solving for the caregiver after the care recipient’s discharge, in addition to usual care. The control group receives usual care. The programme is delivered by a registered nurse and comprises six 30–45 min telephone support sessions over 6 months. The primary outcome is caregivers’ HRQOL measured using the Assessment of Quality of Life—eight dimensions. Secondary outcomes include caregiver preparedness, strain and distress and use of healthcare services. Changes in HRQOL between groups will be compared using a mixed regression model that accounts for the correlation between repeated measurements.Ethics and disseminationParticipants will provide written informed consent. Ethics approvals have been obtained from Sir Charles Gairdner and Osborne Park Health Care Group, Curtin University, Griffith University, Gold Coast Health Service and government health data linkage services. Findings will be disseminated through presentations, peer-reviewed journals and conferences.Trial registration numberACTRN12620000060943.

The experiences, priorities, and perceptions of informal caregivers of people with dementia in nursing homes: A scoping review

Dementia ◽  
2021 ◽  
pp. 147130122110126
Author(s):  
Alexandra E Harper ◽  
Lauren Terhorst ◽  
Marybeth Moscirella ◽  
Rose L Turner ◽  
Catherine V Piersol ◽  
...  
Keyword(s):  
Nursing Home ◽  
Nursing Homes ◽  
Home Care ◽  
Scoping Review ◽  
Informal Caregivers ◽  
Nursing Home Care ◽  
Person Centered Care ◽  
People With Dementia ◽  
Centered Care

Background Person-centered care has been shown to increase desired outcomes for people with dementia, yet informal caregivers’ dissatisfaction with care is often reported. For those living in a nursing home, informal caregivers are uniquely situated to provide key insights into the individual’s care. However, little is known of the informal caregivers’ perspective, which hinders efforts to improve their satisfaction with person-centered nursing home care. Thus, we examined the comprehensive experiences, priorities, and perceptions of informal caregivers of nursing home residents with dementia. Methods In collaboration with stakeholders, a scoping review of Medline (Ovid), EMBASE.com , CINAHL (EBSCO), the Cochrane Library (Wiley), and PsycINFO (Ovid) databases from January 2000 to July 2020 was conducted. Data were extracted reflecting the experiences, priorities, and preferences of caregivers of people with dementia residing in nursing homes. Results We identified 114 articles that revealed nine themes: (1) communication, (2) transition to nursing home, (3) quality of care, (4) quality of life, (5) informal caregiver role, (6) knowledge of dementia, (7) end-of-life preferences, (8) medication use to manage neuropsychiatric behaviors, and (9) finances. Conclusion Informal caregivers described aspects of care that led to both positive and negative experiences with and perceptions of nursing home care. The shortcomings in communication were discussed most frequently, indicating a high priority area. While researchers define the identified themes individually, informal caregivers perceive them to be interwoven as they relate to person-centered care delivery. Although we did not assess the quality of included articles, by identifying themes relevant to caregivers’ perspectives of nursing home care, our findings may help to inform efforts to optimize caregivers’ satisfaction with nursing home care for residents with dementia.

scholarly journals Quality of life of caregivers of cancer patients in home palliative care: a non-interventional study

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
E Faggian ◽  
S Favero ◽  
D Gregori ◽  
M Martinato
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cancer Patient ◽  
Home Care ◽  
Continuity Of Care ◽  
Physical Stress ◽  
Private Life ◽  
Phone Call ◽  
Average Score

Abstract Background caregivers of home-cared cancer patient during palliative phase are often under psychological and physical pressure. This can lead to a low level quality of life (QoL). This study assesses the QoL of this type of caregiver, more specifically it aims to outline which factors (age, type of palliative care, amount of time spent daily with the patient) affect positively or negatively the QoL score. Methods The AC-QoL questionnaire has been completed by 25 caregivers of oncological patients in home care in north-eastern Italy. The questionnaire is made of 40 items divided into 8 subjects: support in care, choice of care, stress, economic issues, personal growth, sense of value, care skills and personal satisfaction. It has been administered during a home visit or during a follow-up phone call. Results The average score obtained is 71/120, which means a medium level of QoL. The factors which worsen the QoL are the psychological and physical stress (average score 5/15) and restrictions on caregivers' private life (average score 6/15). No significant differences in the QoL of the caregivers are related to social and personal variables (such as age, working condition, relationship with the patient, type of palliative care, amount of time spent daily with the patient). Conclusions These caregivers play a fundamental role in the management of an appropriate continuity of care and their health and QoL are important. Stress and restrictions on private life are the factors which worsen QoL, that's why nurses should evaluate the caregivers' wellbeing during home-visits. Caregivers usually feel able to offer adequate assistance if they have been adequately trained to by healthcare professionals: nurses should provide every useful tool to aloud the caregiver to feel able of and comfortable providing assistance to his/her relative trough an “empowerment process”. Key messages Caregiver of cancer patient in charge of home palliative care is fundamental for an appropriate continuity of care and his health and quality of life (QoL) are important to provide good assistance. Psycho-physical stress and restrictions on private life worsen QoL. Caregiver’s wellbeing should be assessed and useful tools should be provided by home care nurses to ease caregivers’ job.

scholarly journals Associations between posttraumatic stress symptoms and quality of life in cardiac arrest survivors and informal caregivers: A pilot survey study

2021 ◽  
Vol 5 ◽  
pp. 100085
Author(s):  
Alex Presciutti ◽  
Mary M. Newman ◽  
Jim Grigsby ◽  
Ana-Maria Vranceanu ◽  
Jonathan A. Shaffer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cardiac Arrest ◽  
Posttraumatic Stress ◽  
Informal Caregivers ◽  
Posttraumatic Stress Symptoms ◽  
Survey Study ◽  
Pilot Survey ◽  
Stress Symptoms

scholarly journals Health, Quality of Life, and Economic Impacts of Home Care Vouchers for Middle-Income Adults With Disabilities

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 78-78
Author(s):  
Joanne Spetz ◽  
Jacqueline Miller ◽  
Connie Kwong ◽  
Laura Wagner
Keyword(s):  
Quality Of Life ◽  
Emergency Department ◽  
Economic Analysis ◽  
Home Care ◽  
San Francisco ◽  
Comparison Group ◽  
Financial Stress ◽  
Emergency Department Visits ◽  
Middle Income

Abstract The Support at Home pilot program provided financial support for the purchase of home care services by middle-income adults with disabilities in San Francisco to support aging in place. Enrollees had income below the area median and made copayments based on household income. The mixed-methods evaluation of the program incorporated administrative records, surveys of clients and comparison group members, surveys of unpaid caregivers, surveys of paid care providers, and focus groups with clients and unpaid caregivers. Outcome measures included the Older People’s Quality of Life Questionnaire, Patient Health Questionnaire-2, an adapted Burden Scale for Family Caregivers, and self-reported falls, emergency department visits, and hospitalizations. Analyses included pre-post chi-squared and t-test comparisons between client and comparison groups and multivariate regressions. An economic analysis was conducted to learn whether changes in costs associated with reduced health care utilization were greater than the costs of the program. Results indicated statistically significant positive changes in client ratings of personal and financial stress, but not in the composite quality of life score. There were statistically significant reductions in attendance at medical appointments, falls, emergency department visits, and hospitalizations. Similar changes were not found in the comparison group. The focus group data supported the findings regarding personal and financial stress and indicated that clients and their caregivers perceived quality of life benefits. The economic analysis indicated substantial cost savings from the program due to reduced use of medical services. Due to its positive impacts, San Francisco has made Support at Home a permanent program.

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