A Priority Setting Partnership to Identify Research Priorities for Expectant Families and Those With Children to Age 24 Months: The Family Research Agenda Initiative Setting (FRAISE) Project

2020 ◽  
Author(s):  
Meredith Lee Brockway ◽  
Elizabeth Morgan Keys ◽  
K.S. Bright ◽  
Carla Ginn ◽  
J. Wilson ◽  
...  
Keyword(s):  
Priority Setting ◽  
Research Agenda ◽  
Research Priorities ◽  
Family Research ◽  
The Family ◽  
A Priority ◽  
Priority Setting Partnership

scholarly journals Long-term views on chronic kidney disease research priorities among stakeholders engaged in a priority-setting partnership: A qualitative study

2018 ◽  
Vol 21 (6) ◽  
pp. 1142-1149 ◽  
Author(s):  
Meghan J. Elliott ◽  
Joanna E. M. Sale ◽  
Zahra Goodarzi ◽  
Linda Wilhelm ◽  
Andreas Laupacis ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Qualitative Study ◽  
Priority Setting ◽  
Research Priorities ◽  
Disease Research ◽  
A Priority ◽  
Priority Setting Partnership

scholarly journals Partnering For Pain: a Priority Setting Partnership to identify patient-oriented research priorities for pediatric chronic pain in Canada

CMAJ Open ◽  
2019 ◽  
Vol 7 (4) ◽  
pp. E654-E664 ◽  
Author(s):  
Kathryn A. Birnie ◽  
Katherine Dib ◽  
Carley Ouellette ◽  
Mary Anne Dib ◽  
Kimberly Nelson ◽  
...  
Keyword(s):  
Chronic Pain ◽  
Priority Setting ◽  
Research Priorities ◽  
Pediatric Chronic Pain ◽  
A Priority ◽  
Priority Setting Partnership ◽  
Oriented Research

scholarly journals Common hand and wrist conditions: creation of UK research priorities defined by a James Lind Alliance Priority Setting Partnership

BMJ Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. e044207
Author(s):  
Alexia Karantana ◽  
Tim Davis ◽  
Donna Kennedy ◽  
Debbie Larson ◽  
Dominic Furniss ◽  
...  
Keyword(s):  
Priority Setting ◽  
Research Priorities ◽  
Treatment Modalities ◽  
Grant Applications ◽  
Charitable Organisation ◽  
James Lind Alliance ◽  
Treatment Uncertainties ◽  
The Uk ◽  
Survey Responses ◽  
Priority Setting Partnership

ObjectivePrioritisation of important treatment uncertainties for ‘Common Conditions Affecting the Hand and Wrist’ via a UK-based James Lind Alliance Priority Setting Partnership.SettingThis process was funded by a national charitable organisation and based in the UK.ParticipantsAnyone with experience of common conditions affecting the adult hand and wrist, including patients, carers and healthcare professionals. All treatment modalities delivered by a hand specialist, including therapists, surgeons or other allied professionals, were considered.InterventionsEstablished James Lind Alliance Priority Setting Partnership methods were employed.Electronic and paper questionnaires identified potential uncertainties. These were subsequently confirmed using relevant, up-to-date systematic reviews. A final list of top 10 research uncertainties was developed via a face-to-face workshop with representation from patients and clinicians. Impact of research was sought by surveying hand clinicians electronically.Outcome measuresThe survey responses and prioritisation—both survey and workshop based.ResultsThere were 889 individually submitted questions from the initial survey, refined to 59 uncertainties across 32 themes. Eight additional uncertainties were added from published literature before prioritisation by 261 participants and the workshop allowed the final top 10 list to be finalised. The top 10 has so far contributed to the award of over £3.8 million of competitively awarded funding.ConclusionsThe Common Conditions in the Hand and Wrist Priority Setting Partnership identified important research questions and has allowed research funders to identify grant applications which are important to both patients and clinicians

scholarly journals The kidney cancer research priority-setting partnership: Identifying the top 10 research priorities as defined by patients, caregivers, and expert clinicians

2017 ◽  
Vol 11 (12) ◽  
pp. 379-87 ◽  
Author(s):  
Jennifer Jones ◽  
Jaimin Bhatt ◽  
Jonathan Avery ◽  
Andreas Laupacis ◽  
Katherine Cowan ◽  
...  
Keyword(s):  
Cancer Research ◽  
Kidney Cancer ◽  
Priority Setting ◽  
Research Priorities ◽  
Research Network ◽  
Cancer Research Network ◽  
Research Priority ◽  
Funding Agencies ◽  
James Lind Alliance ◽  
Priority Setting Partnership

It is critically important to define disease-specific research priorities to better allocate limited resources. There is growing recognition of the value of involving patients and caregivers, as well as expert clinicians in this process. To our knowledge, this has not been done this way for kidney cancer. Using the transparent and inclusive process established by the James Lind Alliance, the Kidney Cancer Research Network of Canada (KCRNC) sponsored a collaborative consensus-based priority-setting partnership (PSP) to identify research priorities in the management of kidney cancer. The final result was identification of 10 research priorities for kidney cancer, which are discussed in the context of current initiatives and gaps in knowledge. This process provided a systematic and effective way to collaboratively establish research priorities with patients, caregivers, and clinicians, and provides a valuable resource for researchers and funding agencies.

scholarly journals Global health trials methodological research agenda: results from a priority setting exercise

Trials ◽  
2018 ◽  
Vol 19 (1) ◽  
Author(s):  
Anna Rosala-Hallas ◽  
Aneel Bhangu ◽  
Jane Blazeby ◽  
Louise Bowman ◽  
Mike Clarke ◽  
...  
Keyword(s):  
Global Health ◽  
Priority Setting ◽  
Research Agenda ◽  
Methodological Research ◽  
A Priority ◽  
Priority Setting Exercise

Prioritization of therapy uncertainties in congenital ichthyosis: results from a Priority Setting Partnership

2015 ◽  
Vol 173 (5) ◽  
pp. 1280-1283 ◽  
Author(s):  
A. Hernández-Martín ◽  
P. Dávila-Seijo ◽  
R. de Lucas ◽  
E. Baselga ◽  
P. Redondo ◽  
...  
Keyword(s):  
Priority Setting ◽  
Congenital Ichthyosis ◽  
A Priority ◽  
Priority Setting Partnership

scholarly journals The top 10 research priorities for psoriasis in the U.K.: results of a James Lind Alliance psoriasis Priority Setting Partnership

2019 ◽  
Vol 181 (4) ◽  
pp. 871-873 ◽  
Author(s):  
R. Majeed‐Ariss ◽  
M. McPhee ◽  
H. McAteer ◽  
C.E.M. Griffiths ◽  
H. Young
Keyword(s):  
Priority Setting ◽  
Research Priorities ◽  
James Lind Alliance ◽  
Priority Setting Partnership
Sign in / Sign up

Export Citation Format

Share Document