Legal Issues Regarding Protection of Genetic Information

Genetic Information, Law, Legal Issues in Law Enforcement DNA Databanks

Encyclopedia of Ethical, Legal and Policy Issues in Biotechnology ◽

10.1002/0471250597.mur102 ◽

2002 ◽

Author(s):

Paul Giannelli ◽

Sharona Hoffman ◽

Wendy Wagner

Keyword(s):

Law Enforcement ◽

Genetic Information ◽

Legal Issues ◽

Information Law

Download Full-text

Communication of genetic information in the palliative care context: Ethical and legal issues

Medical Law International ◽

10.1177/0968533218762239 ◽

2018 ◽

Vol 18 (4) ◽

pp. 219-240 ◽

Cited By ~ 3

Author(s):

Katie M. Saulnier ◽

Margherita Cinà ◽

Benny Chan ◽

Sylvie Pelletier ◽

Michel Dorval ◽

...

Keyword(s):

Palliative Care ◽

End Of Life ◽

Genetic Information ◽

Social Issues ◽

Life Stage ◽

Legal Issues ◽

Care Providers ◽

Cultural Dynamics ◽

Normative Documents ◽

Ethical And Legal Issues

As scientific understanding of the heritable aspects of cancer deepens, the need to effectively communicate genetic information within the families of cancer patients becomes more acute. In the palliative care context, the question of when and how to disclose a patient’s genetic information raises a host of ethical, legal, and social issues, including the challenges of communicating during the end-of-life stage and complex familial and cultural dynamics. In this paper, the authors outline the legal components of these issues in three civil law jurisdictions with similarly comprehensive approaches to healthcare and palliative care - Quebec, Belgium, and France - and provide insights from bioethics literature and normative documents on the disclosure of genetic information at the end of life. From this research, the authors propose a strategy for palliative care providers who are considering available options to communicate hereditary health information.

Download Full-text