Redefining Models of Childhood Cancer Survivorship Care: A Mixed-Methods Evaluation of Patient-Reported Barriers to, and Preferences for, Care

2019 ◽  
Author(s):  
Christina Signorelli
Keyword(s):  
Mixed Methods ◽  
Childhood Cancer ◽  
Cancer Survivorship ◽  
Survivorship Care ◽  
Mixed Methods Evaluation ◽  
Patient Reported ◽  
Childhood Cancer Survivorship ◽  
Preferences For Care

Models of childhood cancer survivorship care in Australia and New Zealand: Strengths and challenges

2017 ◽  
Vol 13 (6) ◽  
pp. 407-415 ◽  
Author(s):  
Christina Signorelli ◽  
Claire E. Wakefield ◽  
Jordana K. McLoone ◽  
Joanna E. Fardell ◽  
Renae A. Lawrence ◽  
...  
Keyword(s):  
New Zealand ◽  
Childhood Cancer ◽  
Cancer Survivorship ◽  
Survivorship Care ◽  
Childhood Cancer Survivorship

scholarly journals The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews

2018 ◽  
Vol 24 (5) ◽  
pp. 710-719 ◽  
Author(s):  
Christina Signorelli ◽  
Claire E. Wakefield ◽  
Joanna E. Fardell ◽  
Tali Foreman ◽  
Karen A. Johnston ◽  
...  
Keyword(s):  
Primary Care ◽  
Childhood Cancer ◽  
Cancer Survivorship ◽  
Primary Care Physicians ◽  
Survivorship Care ◽  
Childhood Cancer Survivorship

Mother–child communication about possible cancer recurrence during childhood cancer survivorship

2020 ◽  
Author(s):  
Lexa K. Murphy ◽  
Lauren C. Heathcote ◽  
Kemar V. Prussien ◽  
Erin M. Rodriguez ◽  
Jackson A. Hewitt ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Cancer Survivorship ◽  
Cancer Recurrence ◽  
Childhood Cancer Survivorship

scholarly journals eHealth tools for childhood cancer survivorship care: A qualitative analysis of survivors’, parents’, and general practitioners’ views.

2021 ◽  
Author(s):  
Maria Schaffer ◽  
Jordana McLoone ◽  
Claire Wakefield ◽  
Mary-Ellen Brierley ◽  
Afaf Girgis ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Childhood Cancer ◽  
General Practitioners ◽  
Medical Information ◽  
Childhood Cancer Survivors ◽  
Survivorship Care ◽  
Perceived Benefits ◽  
Telephone Interviews ◽  
Childhood Cancer Survivorship ◽  
Survivors Of Childhood Cancer

Purpose: The long-term management of childhood cancer survivors is complex. Electronic health (eHealth) technology has the potential to significantly improve the management of late effects for childhood cancer survivors and assist their General Practitioners (GP) to coordinate their care. We assessed the acceptability of and perceived benefits and barriers to eHealth use amongst survivors, parents, and GPs. Methods: We conducted semi-structured telephone interviews with survivors of childhood cancer, parents of childhood cancer survivors and their nominated GP. We described a hypothetical eHealth tool and asked participants how likely they would use the tool to manage their survivorship care and their perceived benefits and concerns for use of the tool. We used content analysis to synthesise the data using QSR NVivo12. Results: We interviewed 31 survivors (mean age: 27.0), 29 parents (survivors’ mean age: 12.6) and 51 GPs (mean years practising: 28.2). Eighty-five percent of survivors and parents (n=51), and 75% of GPs (n=38) indicated that they would be willing to use an eHealth tool. Survivors and parents reported that an eHealth tool would increase their confidence in their ability, and their GP’s ability, to manage their survivorship care. GPs agreed that an eHealth tool would provide easier access to survivors’ medical information and increase their capacity to provide support during survivorship. 7% of GPs (n= 4) and 43% of survivors (n=26) reported being hesitant to use eHealth tools due to privacy/security concerns. Conclusion: Overall, eHealth tools were reported to be acceptable to childhood cancer survivors, their parents, and their GPs.

Training in Long-Term Follow-Up: Fellowship in Childhood Cancer Survivorship

2020 ◽  
Author(s):  
Emily S. Tonorezos ◽  
Dana Barnea ◽  
Charles A. Sklar ◽  
Danielle Novetsky Friedman
Keyword(s):  
Childhood Cancer ◽  
Cancer Survivorship ◽  
Long Term Follow Up ◽  
Childhood Cancer Survivorship
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