WIDENING ACCESS; DEVELOPING A COMMUNITY E-LEARNING RESOURCE FOR HEALTH PROFESSIONALS CARING FOR CHILDREN AND YOUNG PEOPLE WITH CANCER

2016 ◽  
Author(s):  
Wendy McInally ◽  
Maria Jose Pouso Lista ◽  
Ruth Whitlock
Keyword(s):  
Young People ◽  
Health Professionals ◽  
Learning Resource ◽  
Children And Young People ◽  
Widening Access ◽  
E Learning

scholarly journals Improving continence in children and young people with neurodisability: a systematic review and survey

2021 ◽  
Vol 25 (73) ◽  
pp. 1-258
Author(s):  
Helen Eke ◽  
Harriet Hunt ◽  
Susan Ball ◽  
Morwenna Rogers ◽  
Rebecca Whear ◽  
...  
Keyword(s):  
Systematic Review ◽  
Spinal Cord ◽  
Cost Effectiveness ◽  
Young People ◽  
Technology Assessment ◽  
Health Professionals ◽  
Current Practice ◽  
Health Technology ◽  
Care Staff ◽  
Children And Young People

Background Children and young people with neurodisability often need help to achieve socially acceptable bladder and bowel control. Approaches vary depending on whether or not the impairment results from spinal cord pathology that impairs motor control and sensation of the bladder and bowel. Currently, there is uncertainty about which interventions are effective. Objective The objective was to summarise the available evidence on and current practice for improving continence in children and young people with neurodisability. Design A systematic review of the effectiveness, cost-effectiveness and factors that modify intervention implementation, alongside a cross-sectional, online survey of current practice with health professionals, parent carers, school and care staff and young people with neurodisability. Results Twelve databases were searched in the review, resulting in 5756 references; 71 studies (72 papers) were included in the analyses. Most of the evidence was for children with spinal cord pathology, which involved evaluations of pharmacological approaches and surgical techniques, whereas the evidence pertaining to those with non-spinal-cord-related pathology tended to be for behavioural interventions. The methodological quality of studies was rated as being moderate to poor. There were three robust qualitative studies about the experience of continence among children with spinal cord pathology. We found substantial heterogeneity across the interventions that we evaluated in terms of quality, study design and outcomes measured. No economic studies were found. The results were synthesised narratively and reported in text and tables. We did not find any eligible studies evaluating interventions using toilet and clothing adaptations in the review, although the survey highlighted that these types of interventions are frequently used and considered. In total, 949 people responded to the survey: 202 health professionals, 605 parent carers, 122 school and social care staff, and 20 young people. The survey results illustrated the different roles that professionals have in improving continence, highlighting the importance of a multidisciplinary approach to supporting children and young people and their families. Clinicians employ a range of assessments and interventions to improve continence or independent toileting, depending on the needs of the child. Limitations Quantitative studies in the review were not methodologically robust. The survey had a risk of response bias. Conclusions Our research found a dearth of good-quality evidence for many of the interventions currently in use, and no evidence of experiences of implementing interventions for children with non-spinal-cord-related pathology. There was also no evidence of cost-effectiveness of any of the interventions. Future work There is a need to involve young people and families in the design of high-quality evaluative research for interventions that aim to improve continence. This is especially the case for children with autism and learning disability, who have been neglected in previous evaluative and qualitative research. We recommend better training for health, education and care professionals about toileting, informed by evidence and the lived experiences of children and their families. We recommend a joined-up multidisciplinary and holistic approach to improving continence to maximise independence, dignity and comfort. It is vital that children and young people with neurodisability have early access to regular, integrated assessment of their bladder and bowel health, and are fully supported with appropriate personalised treatment. Study registration This study is registered as PROSPERO CRD42018100572. Funding This project was funded by the National Institute for Health Research (NIHR) Health Technology Assessment programme and will be published in full in Health Technology Assessment; Vol. 25, No. 73. See the NIHR Journals Library website for further project information.

scholarly journals Public health for paediatricians: Fifteen-minute consultation on addressing child poverty in clinical practice

2020 ◽  
pp. edpract-2020-319636
Author(s):  
Guddi Singh ◽  
Hannah Zhu ◽  
C Ronny Cheung
Keyword(s):  
Public Health ◽  
Clinical Practice ◽  
Young People ◽  
Child Health ◽  
Health Professionals ◽  
Child Poverty ◽  
Evidence Based ◽  
Children And Young People ◽  
Clinical Consultation ◽  
Practical Guidance

Paediatricians and other child health professionals have a key role in identifying, preventing or mitigating the impacts of poverty on child health. Approaching a problem as vast and intractable as poverty can seem daunting. This article will outline how social determinants impact child health, and provide practical guidance on how to address this problem through a public health lens. The aim is to give frontline practitioners a straightforward, evidence-based framework and practical solutions for tackling child poverty, across three levels: (1) the clinical consultation; (2) the clinical service for the population of children and young people we serve and (3) with a broader policy and social view.

Nutritional support for children and young people: nasogastric tubes

2021 ◽  
Vol 30 (13) ◽  
pp. S12-S18
Author(s):  
Leah Rosengarten ◽  
Barbara Davies
Keyword(s):  
Young People ◽  
Health Professionals ◽  
Nutritional Support ◽  
Children And Young People ◽  
Nasogastric Tubes

The need to offer nutritional support to children and young people is commonplace for health professionals. This article explores the use and indication of nasogastric tubes (NGT) in children and young people, before explaining the process of inserting NGTs and the ongoing management of this method of nutritional support.

scholarly journals Improving mental health literacy among young people aged 11–15 years in Java, Indonesia: the co-development of a culturally-appropriate, user-centred resource (The IMPeTUs Intervention)

2021 ◽  
Vol 15 (1) ◽  
Author(s):  
Helen Brooks ◽  
Armaji Kamaludi Syarif ◽  
Rebecca Pedley ◽  
Irman Irmansyah ◽  
Benny Prawira ◽  
...  
Keyword(s):  
Mental Health ◽  
Health Literacy ◽  
Young People ◽  
Health Professionals ◽  
Mental Health Literacy ◽  
Mental Health Problems ◽  
Health Problems ◽  
Adverse Outcomes ◽  
Self Management ◽  
Children And Young People

Abstract Background Many mental health problems emerge in late childhood and contribute significantly to the global burden of disease. Adverse outcomes can extend into adulthood if left untreated. This impact is exacerbated in low- and middle-income countries where significant treatment gaps persist. Improving mental health literacy may offer an effective strategy for early intervention but remains underexplored in these contexts. Methods An intervention was co-developed with children and young people (CYP) by undertaking a needs analysis combined with stakeholder consensus activities. A systematic review of mental health literacy interventions in South-East Asia was undertaken in addition to semi-structured interviews with 43 children and young people (19 with and 24 without experience of anxiety and depression), 19 parents of children with experience of mental health problems and 25 education and health professionals. A focus group was also held with 8 key stakeholders immersed nationally in policy and practice. Interview schedules explored participants’ experiences of mental health, unmet needs and priorities for intervention. Data were synthesised and presented at a 3-day co-production workshop. Attendees included 13 CYP, 6 parents/guardians, 2 teachers, 8 health professionals, 2 academics and 3 game designers. Consensus exercises were utilised to identify the preferred format, content and delivery of the intervention. A smaller group of patient and public involvement contributors worked with designers to further iterate the intervention. Results An immersive storyline digital application was co-developed for young people aged 11–15 with the primary aim of improving mental health literacy and self-management. The intervention comprises two chapters; one depression focussed, and the other anxiety focussed. The storyline format is interspersed with interactive games and exercises to promote engagement and encourage self-management. CYP also take part in group sessions delivered by trained facilitators before and after intervention use to discuss outcomes of and issues raised during the game. Conclusion The IMPeTUs intervention has been co-designed for CYP aged 11–15 to improve mental health literacy and enhance self-management abilities. To the best of our knowledge, this is the first Indonesian digital intervention to improve mental health literacy and self-management for this population. Implementation, acceptability, and impact are currently being explored in a multi-site case study evaluation.

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