scholarly journals Perceived knowledge of palliative care among immigrants to the United States: a secondary data analysis from the Health Information National Trends Survey

2019 ◽  
Vol 8 (4) ◽  
pp. 451-461 ◽  
Author(s):  
Amelia Barwise ◽  
Andrea Cheville ◽  
Mark L. Wieland ◽  
Ognjen Gajic ◽  
Alexandra J. Greenberg-Worisek
Keyword(s):  
United States ◽  
Palliative Care ◽  
Data Analysis ◽  
Health Information ◽  
Secondary Data ◽  
The United States ◽  
Secondary Data Analysis ◽  
Perceived Knowledge ◽  
National Trends

scholarly journals 3095 Perceived Knowledge of Palliative Care among Immigrants: A Secondary Data Analysis from the Health Information National Trends Survey

2019 ◽  
Vol 3 (s1) ◽  
pp. 136-137
Author(s):  
Amelia Barwise ◽  
Andrea Cheville ◽  
Mark Wieland ◽  
Ognjen Gajic ◽  
Alexandra Greenberg-Worisek
Keyword(s):  
Health Care ◽  
Palliative Care ◽  
Health Information ◽  
Secondary Outcome ◽  
Sociodemographic Characteristics ◽  
Care Providers ◽  
Perceived Knowledge ◽  
The Us ◽  
National Trends ◽  
Source Of Information

OBJECTIVES/SPECIFIC AIMS: Immigrants to North America receive more interventions at end of life.The reasons for this are not entirely clear but may potentially be due to knowledge gaps. The primary objective of this study was to measure and describe levels of perceived knowledge about palliative care among immigrants to the US compared to those born in the US. Our secondary objective was to identify trusted sources for seeking information about palliative care among immigrants and compare these trusted sources with those born in the US. We hypothesized that immigrants would have less knowledge of palliative care than those born in US and would trust different sources for information about palliative care. METHODS/STUDY POPULATION: We analyzed data from the nationally representative 2018 Health Information National Trends Survey (HINTS 5, cycle 2). Questionnaires were administered via mail between January and May 2018 to a population-based sample of adults. The primary outcome of interest was assessed using the item “How would you describe your level of knowledge about palliative care?” The secondary outcome of interest was determined using the item “Imagine you had a strong need to get information about palliative care, which of the following would you most trust as a source of information about palliative care?” All analyses were complete case analyses and conducted with survey commands using SAS 9.3 (SAS Institute Inc, Cary, NC, USA). Descriptive statistics were calculated, and bivariate analyses run between the outcomes of interest and sociodemographic characteristics (age, sex, education, race/ethnicity, nativity, English language proficiency). Multivariable logistic regressions were conducted to assess the role of nativity, controlling for statistically significant and relevant sociodemographic variables. Jackknife weighting was used to generate population-level estimates. RESULTS/ANTICIPATED RESULTS: The response rate was 33% (n=3384) and included 2846 (85.3% weighted) born in the US and 492 (14.7% weighted) not born in the USA. About 70% of those born in the US and 77% of immigrants (weighted) responded that they had “never heard of palliative care.” Trusted sources of palliative care were very similar between the groups (all p > 0.05). Both groups’ preferred trusted source of palliative care knowledge was “health care provider,” with over 80% of respondents in each group selecting this option. Printed materials and social media were the least popular trusted sources among both groups. After adjusting for relevant sociodemographic characteristics, we found no association between poor knowledge of palliative care and nativity (p=0.22). Female respondents had 2.5-fold increased odds of reporting low levels of perceived knowledge of palliative care (OR = 2.58, 95% CI = 1.76-3.78; p<0.001). Education was an important predictor of perceived knowledge of palliative care; as education level increased, so did perceived knowledge of palliative care (p < 0.001). DISCUSSION/SIGNIFICANCE OF IMPACT: Perceived knowledge of palliative care is poor generally, regardless of birthplace. Trusted sources for palliative care are similar between immigrants and those born in the US. Education is important and is a strong predictor of perceived knowledge of palliative care. Women perceive they have lower levels of knowledge of PC than men. Differences in end of life care between immigrants and non-immigrants cannot be explained by knowledge differences. Further research is needed to examine the potential factors including suboptimal communication between providers and immigrant patients to understand why these differences are noted. Future strategies for improving knowledge of palliative care should target health care providers as the key trusted source of information to help address deficits noted in this study.

The Role of Physical Therapists Within Hospice and Palliative Care in the United States and Canada

2016 ◽  
Vol 34 (1) ◽  
pp. 34-41 ◽  
Author(s):  
Christopher M. Wilson ◽  
Christine H. Stiller ◽  
Deborah J. Doherty ◽  
Kristine A. Thompson
Keyword(s):  
United States ◽  
Palliative Care ◽  
Data Analysis ◽  
Physical Therapy ◽  
Physical Therapists ◽  
The United States ◽  
Direct Patient Care ◽  
Life Threatening ◽  
Hospice And Palliative Care

Purpose: Little is known regarding the extent to which physical therapy is integrated into Hospice and Palliative Care (HPC). The purpose of this study was to describe perceptions of physical therapists (PTs) regarding their role within HPC or working with patients having life-threatening illnesses and to develop a conceptual framework depicting a PTs role within HPC and factors affecting it. Participants: Ten PTs, 5 from the United States and 5 from Canada, with at least 5 years of physical therapy experience and 5 years working experience with patients having life-threatening illnesses or in HPC. Methods: Demographic data were collected by electronic questionnaire. A semistructured interview was conducted with each participant to investigate their perceptions about the role of PTs in HPC. Data Analysis: Interview results were analyzed for trends between participants, practice settings, regions, and other sociocultural aspects. The constant comparative method of qualitative data analysis was used to identify similarities and differences and to develop themes and concepts relative to the role of PT in HPC. Results: Participants identified their 3 primary roles in HPC: providing patient/family care, serving as an interdisciplinary team member, and fulfilling professional responsibilities outside of direct patient care. They described factors within and outside direct patient care which influenced their roles. Concepts included shifting priorities, care across the continuum, and changing perceptions of PTs within HPC. Clinical Relevance: This study described perceptions of the role of PTs within HPC that may be utilized when coordinating future strategies to appropriately promote and expand the role.

Expanding the NCI Health Information National Trends Survey From the United States to China and Beyond: Examining the Influences of Consumer Health Information Needs and Practices on Local and Global Health

2017 ◽  
Vol 94 (2) ◽  
pp. 515-525 ◽  
Author(s):  
Gary L. Kreps ◽  
Guoming Yu ◽  
Xiaoquan Zhao ◽  
Sylvia Wen-Ying Chou ◽  
Bradford Hesse
Keyword(s):  
United States ◽  
Global Health ◽  
Health Information ◽  
Research Program ◽  
Information Needs ◽  
The United States ◽  
Consumer Health ◽  
National Trends ◽  
Health Promotion Interventions ◽  
International Research Program

The Health Information National Trends Survey (HINTS) is a major source for data about the U.S. public’s access to and use of health information. A collaboration has been established between the United States and China to conduct the HINTS survey in China, under the auspices of the Chinese Ministry of Health. Pilot data have been collected in two major Chinese cities. The HINTS-China research will guide evidence-based health promotion interventions across China. This exciting international research program opens the door to expanding the HINTS research program to many other countries around the world to help promote global health.

scholarly journals Heterogeneity in Trust of Cancer Information among Hispanic Adults in the United States: An Analysis of the Health Information National Trends Survey

2020 ◽  
Vol 29 (7) ◽  
pp. 1348-1356 ◽  
Author(s):  
Marlene Camacho-Rivera ◽  
Christopher J. Gonzalez ◽  
Jason Amilcar Morency ◽  
Kelly D. Blake ◽  
Rose Calixte
Keyword(s):  
United States ◽  
Health Information ◽  
The United States ◽  
Cancer Information ◽  
Hispanic Adults ◽  
National Trends
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