scholarly journals Developing palliative care programs in Indigenous communities using participatory action research: a Canadian application of the public health approach to palliative care

2018 ◽  
Vol 7 (S2) ◽  
pp. S52-S72 ◽  
Author(s):  
Mary Lou Kelley ◽  
Holly Prince ◽  
Shevaun Nadin ◽  
Kevin Brazil ◽  
Maxine Crow ◽  
...  
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
Action Research ◽  
Participatory Action Research ◽  
Indigenous Communities ◽  
Public Health Approach ◽  
Participatory Action ◽  
The Public

scholarly journals Peran Dinas Kesehatan Provinsi dan Kabupaten/Kota dalam Implementasi Program Indonesia Sehat dengan Pendekatan Keluarga (PIS-PK) di Lima Provinsi, Indonesia

2020 ◽  
pp. 13-22
Author(s):  
Made Dewi Susilawati ◽  
Eva Sulistiowati ◽  
Nova Sri Hartati
Keyword(s):  
Public Health ◽  
Action Research ◽  
Participatory Action Research ◽  
Success Factors ◽  
Monitoring And Control ◽  
Participatory Action ◽  
The Public ◽  
Family Approach ◽  
The Family ◽  
External Sector

Abstrak Program Indonesia Sehat dengan Pendekatan Keluarga (PIS-PK) bertujuan untuk meningkatkan akses pelayanan komprehensif dan skrining kesehatan, mencapai standar pelayanan minimal (SPM), mendukung pelaksanaan jaminan kesehatan nasional (JKN) dengan meningkatkan kesadaran menjadi peserta JKN. Peran dinas kesehatan (dinkes) provinsi, kabupaten/kota yaitu pengembangan sumber daya, koordinasi dan bimbingan, serta pemantauan dan pengendalian. Keberhasilan dalam implementasi PIS-PK di puskesmas tidak terlepas dari peran dinkes kabupaten/kota dan provinsi. Penelitian ini bertujuan untuk memberikan gambaran peran dinkes dalam memfasilitasi, mengoordinasi, membimbing, memonitor dan mengevaluasi pelaksanaan PIS-PK di wilayahnya. Metode penelitian ini adalah kualitatif dengan pendekatan Parcipatory Action Research (PAR) melalui wawancara mendalam dan observasi. Informan adalah penanggung jawab PIS-PK di dinkes provinsi dan kabupaten/kota. Lokus penelitian dilakukan di Dinkes Provinsi Lampung, Jawa Tengah, Kalimantan Selatan, Sulawesi Tengah dan Nusa Tenggara Timur tahun 2018. Sementara untuk dinkes kota/kabupaten dilakukan di Kabupaten Lampung Selatan, Kabupaten Banjarnegara, Kabupaten Tanah Bumbu, Kota Palu dan Kabupaten Sumba Barat. Hasil penelitian menunjukkan peran dinkes dalam pengembangan sumber daya, koordinasi, bimbingan dan monev sudah dilaksanakan sesuai dengan Permenkes No 39 Tahun 2016. Beberapa dinkes telah melakukan upaya inovatif untuk mengatasi keterbatasan anggaran, tenaga dan sarana yang terjadi selama implementasi PIS-PK. Namun dapat lebih optimal jika telah ada persamaan persepsi di internal dinas, integrasi lintas program dan lintas sektor yang mengarah pada pencapaian tujuan PIS-PK. Kata kunci: dinas kesehatan, program Indonesia sehat dengan Pendekatan Keluarga (PIS-PK), Parcipatory Action Research (PAR) Abstract The purpose of the Healthy Indonesia Program with the Family Approach (PIS-PK) is to improve access to comprehensive services and health screening, achieve minimum service standards (SPM), support the implementation of national health insurance (JKN) by increasing awareness of being JKN participants. Resource development, coordination, and guidance, monitoring, and control are the roles of provincial and district/city health offices in implementing PIS-PK. The involvement of the regional health offices is one of the success factors of the implementation of PISPK in the public health center. The research method is qualitative with Participatory Action Research (PAR) and was done by in-depth interviews and observation. The informants were pic of PIS-PK in the public health office. The research site was provincial of health office i.e Lampung, Jawa Tengah, Kalimantan Selatan, Sulawesi Tengah dan Nusa Tenggara Timur in 2018. It also was done in district/city of health office i.e Lampung Selatan, Banjarnegara, Tanah Bumbu, Sumba Barat, and Palu city. The result shows that the role of public health offices monthly have been performed thoroughly according to the regulation of health ministry number 3 in 2016. On the other side, several health offices have made an innovative program to overcome the limitations of the budget, personnel, and facilities that occur during the implementation of PIS-PK. However, it could be optimum to reach PISPK objectives if there was the same perception in internal of health office, integration of health program in the internal and external sector. Keywords: health office, Healthy Indonesia Program with the Family Approach, Participatory Action Research (PAR)

scholarly journals Implementation of Evidence-based Guidance for Dementia Palliative Care using Participatory Action Research: Examining Implementation through the Consolidated Framework for Implementation Research (CFIR)

2021 ◽  
Author(s):  
Alice Coffey ◽  
Irene Hartigan ◽  
Suzanne Timmons ◽  
Catherine Buckley ◽  
Elaine Lehane ◽  
...  
Keyword(s):  
Palliative Care ◽  
Action Research ◽  
Participatory Action Research ◽  
Situational Analysis ◽  
Evidence Based ◽  
Guidance Document ◽  
Participatory Action ◽  
Term Care ◽  
Learning Groups ◽  
Inner Setting

Abstract Background The importance of providing evidence-based palliative care for people with dementia is increasingly acknowledged. In Ireland, evidence-based guidance has been developed in order to address key features of dementia palliative care, including the management of pain, medications and hydration and nutrition. The aim of this study was to identify and explore the factors affecting the implementation of evidence-based guidance on dementia palliative care. Methods The Consolidated Framework for Implementation (CFIR) guided a mixed-method pre-post study. One guidance document pertaining to the management of pain, medication or hydration and nutrition was implemented in three long-term care facilities. Participatory Action Research in the form of work-based learning groups was used to implement the guidance, drawing on a situational analysis (pre-implementation). Staff questionnaires and audits were conducted pre and post-implementation while champion interviews were also conducted post-implementation. Results Features of the guidance (innovation), the inner setting, and the process of implementation were most frequently identified as impacting implementation. Components of the outer setting and individual characteristics featured less commonly. The guidance was perceived as advantageous or complimentary to previous care provided. Within the inner setting, leadership and support from other colleagues facilitated implementation. However, limited availability of other healthcare professionals to assist with carrying out guidance actions presented a barrier in some facilities. The external facilitators of the work-based learning groups (WBLGs) were perceived as experienced and encouraged active participation and reflection on practices. Despite the challenge of releasing staff to attend the WBLGs, a trend toward reduced staff de-motivation among those who did attend was noted post-implementation. Conclusions A situational analysis informed by the CFIR framework in conjunction with a participatory action research approach helped to advance implementation of the guidance. The progress of implementation depended on the extent to which evidence-based care was previously being implemented at each site. Post-implementation analysis using CFIR, identified challenges to address in future projects such as staff cover on the ward and timing of training to facilitate attendance for staff with different working hours. Facilitators included multidisciplinary engagement with the intervention and champions at each site to support the implementation process.

scholarly journals Menuju Kampung Bersinar dengan Pelatihan Kreasi Tanaman Hias bagi Ibu-Ibu PKK di Kelurahan Gadang Kota Malang

2020 ◽  
Vol 1 (2) ◽  
pp. 38
Author(s):  
Ernaning Setiyowati ◽  
Nunik Junara ◽  
Prima Kurniawaty
Keyword(s):  
Action Research ◽  
Participatory Action Research ◽  
Community Service ◽  
Ornamental Plants ◽  
Community Action ◽  
Ornamental Plant ◽  
Participatory Action ◽  
The Public ◽  
New Knowledge

Malang City has an annual program of activities for villages namely Kampung Bersinar (Clean, Healthy, Beautiful, Beautiful and Neat). One of the areas that have greening problems is RW 04, Gadang, Malang City on the banks of the Brantas river. Lack of greening in this area causes this area to be prone to landslides because the area is very contoured. That's why the focus of community service is to educate the public in the field of greening to improve the quality of the environment in the area. The method used is Participatory Action Research (PAR) which involves community action in its activities. The activity carried out was to train the creation of ornamental plants in the form of spheres growing to PKK women in RW 04, Gadang, Malang. The results of this activity are PKK mothers who have new knowledge by making ornamental plant creations that can be applied in the area so that it will improve the quality of the green environment in the area..

scholarly journals Uncovering the Public/Private Dilemma for Rural Youth Using Participatory Action Research

2019 ◽  
Vol 18 (1) ◽  
Author(s):  
Trish Van Katwyk ◽  
Denise Soueidan Oleary
Keyword(s):  
Action Research ◽  
Participatory Action Research ◽  
Public Life ◽  
Final Analysis ◽  
Rural Youth ◽  
Participatory Action ◽  
Public And Private ◽  
The Public ◽  
Rural Location ◽  
Youth Identity

While the rural youth identity is an intersectional experience that creates a heterogeneous group of young people, a close exploration of a specific rural location can illuminate an experience that is both unique and shared. In this participatory action research study, a group of youth participated in one-on-one interviews and focus group discussions to describe their experience of their rural location. Reports, statistics, and youth counsellors also provided information about the local youth experience. What emerged was a consideration of the unique divide between public and private social realms that can create a dilemma for youth who are simultaneously encouraged to succeed in public life while provided with limited access to opportunities in that public life. The research project culminated in a sculpture created by a team of youth artists that incorporated the final analysis about the public/private divide. The sculpture is now a permanent display in the region.

scholarly journals 4.B. Skills building seminar: Participatory action research: sharing power to improve public health research outcomes

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
◽  
Keyword(s):  
Public Health ◽  
Action Research ◽  
Participatory Action Research ◽  
Health Professionals ◽  
Health Research ◽  
Real Life ◽  
Public Health Research ◽  
Participatory Action ◽  
Care Programme ◽  
Caregiver Support

Abstract This skills building seminar addresses the use of Participatory Action Research (PAR) as strategy to involve professionals and practitioners from (non-academic) health organizations in public health research. These so-called stakeholders possess external -experiential practice-based- knowledge important for a successful realization of a public health research project. After a short introduction on the why and when of PAR as a suitable strategy in public health research, and the why and when in a project's life cycle stakeholders can or must join, levels of participatory practices will be discussed, as well as consequences of transfer of power from academic researchers to professionals and practitioners in the field. The first part of the seminar will be followed by two real life examples from two projects in Germany: 1) a psycho-oncological care project -hospital-based-, where alarm bells went off during the external prospective evaluation of the new care programme. In the development phase of this new programme,key stakeholders had not been involved yet; and 2) the optimization, by inserting PAR cycles, of a stroke family caregiver support programme before implementation in a public health care system. The audience is invited to discuss research dilemmas, as well as pros and cons of the PAR strategy Key messages Participatory action research is about active collaboration between academics and health professionals to bring transformative change through the process of taking action and doing research. Sharing power between academics and health professionals is vital to improve public health research.

scholarly journals Implementation of evidence-based guidance for dementia palliative care using participatory action research: examining implementation through the Consolidated Framework for Implementation Research (CFIR)

2021 ◽  
Vol 2 (1) ◽  
Author(s):  
Alice Coffey ◽  
Irene Hartigan ◽  
Suzanne Timmons ◽  
Catherine Buckley ◽  
Elaine Lehane ◽  
...  
Keyword(s):  
Palliative Care ◽  
Action Research ◽  
Participatory Action Research ◽  
Situational Analysis ◽  
Evidence Based ◽  
Guidance Document ◽  
Participatory Action ◽  
Term Care ◽  
Learning Groups ◽  
Inner Setting

Abstract Background The importance of providing evidence-based palliative care for people with dementia is increasingly acknowledged as important for patient outcomes. In Ireland, evidence-based guidance has been developed in order to address key features of dementia palliative care, including the management of pain, medications and hydration and nutrition. The aim of this study was to identify and explore the factors affecting the implementation of evidence-based guidance on dementia palliative care. Methods The Consolidated Framework for Implementation (CFIR) guided a mixed-method pre-post study. One guidance document pertaining to the management of pain, medication or hydration and nutrition was implemented in three long-term care facilities. Participatory action research in the form of work-based learning groups was used to implement the guidance, drawing on a situational analysis (pre-implementation). Staff questionnaires and audits were conducted pre- and post-implementation while champion interviews were also conducted post-implementation. Results Features of the guidance, the inner setting components such as readiness to change, and the process of implementation were most frequently identified as impacting implementation. Components of the outer setting, such as external policy incentives and individual characteristics, featured less commonly. Data from qualitative interviews revealed that the guidance was perceived as advantageous or complimentary to previous care provided. Within the inner setting, leadership and support from other colleagues facilitated implementation. However, limited availability of other healthcare professionals to assist with carrying out guidance actions presented a barrier in some facilities. The external facilitators of the work-based learning groups (WBLGs) were perceived as experienced and encouraged active participation and reflection on practices. Despite the challenge of releasing staff to attend the WBLGs, quantitative data demonstrated reduced staff de-motivation amongst those who did attend was noted post-implementation (pre-Mdn = 19.50 versus post-Mdn = 22.00, U = 497.00, p = 0.07). Conclusions A situational analysis informed by the CFIR framework in conjunction with a participatory action research approach helped to advance the implementation of the guidance. The progress of implementation depended on the extent to which evidence-based care was previously being implemented at each site. Post-implementation analysis using CFIR identified challenges to address in future projects such as staff cover and timing of training to facilitate attendance for staff with different working hours. Facilitators included multidisciplinary engagement with the intervention and champions at each site to support the implementation process.

Patient-centred supportive and palliative care

2013 ◽  
Author(s):  
Genevieve Thompson ◽  
Carla Ens ◽  
Harvey Chochinov
Keyword(s):  
Public Health ◽  
Health Care ◽  
Palliative Care ◽  
Care Delivery ◽  
Cancer Control ◽  
Public Health Approach ◽  
Low Resource Settings ◽  
The Public ◽  
Low Resource

Chapter 14 expands on the role of palliative care within the framework of cancer control. In addition, the public health approach outlined by the WHO, including appropriate policy, adequate drug availability, education, and palliative care delivery at all levels of health care, will be discussed. Finally, the challenges in adapting these principles into high and low resource settings will be described.

scholarly journals Palliative care integration for patients with advanced chronic obstructive pulmonary disease (COPD): Identifying essential components using participatory action research

2021 ◽  
pp. 026921632110289
Author(s):  
Tanja Fusi-Schmidhauser ◽  
Katherine Froggatt ◽  
Nancy Preston
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
Palliative Care ◽  
Action Research ◽  
Participatory Action Research ◽  
Pulmonary Disease ◽  
Healthcare Professionals ◽  
Chronic Obstructive ◽  
Care Model ◽  
Participatory Action ◽  
Obstructive Pulmonary Disease

Background: Chronic obstructive pulmonary disease (COPD) is a life-limiting condition with palliative care needs. Despite increasing awareness about the role palliative care can play in care provision for patients with advanced COPD, integration in standard care remains underdeveloped. The unpredictability of the disease progression and misconceptions about palliative care being equivalent to end-of-life care often prevent a timely integrated approach in advanced COPD. Aim: To identify practices designed to increase integration of palliative care in the management of patients with advanced COPD in a respiratory service in Southern Switzerland. Design: A participatory action research approach was chosen and key stakeholders were involved to develop new knowledge and practices, supported by a Theory of Change framework. Data from each cycle and retrospective analysis at the end of the whole research were analysed using thematic analysis. Setting/participants: Five action research cycles with seven healthcare professionals working in palliative or respiratory care settings were conducted. Results: Three elements of integrated palliative care in advanced COPD were identified: multidimensional assessment, healthcare professionals’ education and interdisciplinary team meetings, which are the pillars of a new integrated palliative care model for patients with advanced COPD. Conclusions: The new integrated palliative care model in advanced COPD includes essential elements with a focus on patients, healthcare professionals and care delivery. Further research on testing this model in clinical practice, service development, implementation processes and possible outcomes, including evaluation of the financial impact of integrated palliative care is necessary to foster this care approach across all possible settings.

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