scholarly journals Confidentiality, partner notification and ethical issues: A qualitative research on people living with HIV in Istanbul

Author(s):  
Gamze Şenyürek ◽  
Yesim Isil Ulman

Abstract from the Proceedings of the 1st International Conference on Medical Humanities in the Middle East; 2018 Nov 17-18: Doha, Qatar.

2006 ◽  
Vol 40 (1) ◽  
pp. 45-52 ◽  
Author(s):  
Rachel Kaplan

The 2005 UNAIDS/WHO Epidemic Update reports that the number of people living with HIV last year worldwide was 40.3 million (1). In 2005, approximately 3.2 million people became newly infected by HIV in Sub-Saharan Africa, the region of the world that is considered the epicenter of the AIDS epidemic (2).Although the rates of HIV are much less in the Middle East and North Africa (MENA) than in Sub-Saharan Africa, some experts believe that without appropriate implementation of surveillance and prevention services, the epidemic will spread to the general population (3). Reportedly, 67,000 people in MENA became infected with HIV in 2005; there are approximately 510,000 people living with HIV in the region (2). Because of cultural and social taboos surrounding the discussion of the acquisition of HIV around the world in general, and in MENA in particular, it is difficult to develop a clear representation of HIV's presence and risk in countries in the Middle East. Based on the information that is available, the main mode of transmission of HIV is sexual contact, with injecting drug use recognized as the second mode of increasing prevalence (2). Without sufficient implementation of surveillance in the region, however, estimated rates of infection may indeed be lower than the actual number of people infected with HIV (4).


2013 ◽  
Vol 89 (Suppl 1) ◽  
pp. A334.4-A335
Author(s):  
P Y Chiou ◽  
C C Wang ◽  
P Chuang ◽  
M Y Yen ◽  
C L Chang

Author(s):  
Abdalla A. B. Khairi ◽  
Aisha A. Abdelkareem ◽  
Bushra Elhusein

Abstract from the Proceedings of the 1st International Conference on Medical Humanities in the Middle East; 2018 Nov 17-18: Doha, Qatar.


Author(s):  
Pi-Hua Tsai

Abstract from the Proceedings of the 1st International Conference on Medical Humanities in the Middle East; 2018 Nov 17-18: Doha, Qatar.


Author(s):  
Cherif Mohamed Amor ◽  
Michael O'Boyle ◽  
Debajyoti Pati

Abstract from the Proceedings of the 1st International Conference on Medical Humanities in the Middle East; 2018 Nov 17-18: Doha, Qatar.


Author(s):  
Shahd Alshammari

Abstract from the Proceedings of the 1st International Conference on Medical Humanities in the Middle East; 2018 Nov 17-18: Doha, Qatar.


2013 ◽  
Vol 2013 ◽  
pp. 1-6 ◽  
Author(s):  
Alain B. Labrique ◽  
Gregory D. Kirk ◽  
Ryan P. Westergaard ◽  
Maria W. Merritt

We aim to raise awareness and stimulate dialogue among investigators and research ethics committees regarding ethical issues that arise specifically in the design and conduct of mHealth research involving persons living with HIV/AIDS and substance abuse. Following a brief background discussion of mHealth research in general, we offer a case example to illustrate the characteristics of mHealth research involving people living with HIV/AIDS and substance abuse. With reference to a well-established systematic general ethical framework for biomedical research with human participants, we identify a range of ethical issues that have particular salience for the protection of participants in mHealth research on HIV/AIDS and substance abuse.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Gamze Senyurek ◽  
Mustafa Volkan Kavas ◽  
Yesim Isil Ulman

Abstract Background Human immunodeficiency virus (HIV) infection rates have been gradually increasing in Istanbul, Turkey. Many people living with HIV (PLWH) here encounter difficulties, for example, in adapting to the chronic disease and obtaining continuous access to healthcare services. In this study, we aimed to explore the challenges PLWH face in their daily lives and understand their perceptions of themselves, healthcare professionals and services, and their social spheres via their expressed lived experiences in the healthcare setting. Method Individual semi-structured in-depth interviews were conducted face-to-face with 20 PLWH in Istanbul. All the interviews were voice-recorded and transcribed verbatim except one, upon participant request, for which the interviewer took notes. These logs and the interviewer’s notes were analyzed thematically using the inductive content analysis method. Results The themes concerned experiences in three distinct contexts: 1) Interactions with healthcare providers; 2) Participants’ responses to their HIV diagnosis; and 3) Interactions with their social networks. Firstly, the results highlighted that the participants perceived that healthcare professionals did not inform them about the diagnosis properly, failed to protect patients’ confidentiality and exhibited discriminative behaviors towards them. Secondly, after the diagnosis the participants had difficulty in coping with their unsettled emotional state. While many ceased sexual activities and isolated themselves, some sought support. Lastly, living with HIV affected their relationships with their families and friends either positively or negatively. Moreover, they had to face the difficulties concerning spouse/partner notification issues about which many needed professional support. Conclusion Healthcare professionals’ discriminative or inappropriate attitudes and customs in healthcare institutions are perceived to impair PLWH’s utilization of healthcare services. Structural factors such as social pressure, societal ignorance about HIV, limited access to HIV prevention, and regulatory barriers might contribute to these challenges. The results suggest that it is necessary to raise healthcare professionals’ and society’s awareness about HIV and develop national policies to establish a well-functioning referral system and appropriate spouse/partner notification services.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Gede Benny Setia Wirawan ◽  
Pande Putu Januraga ◽  
I. Gusti Agung Agus Mahendra ◽  
Ngakan Putu Anom Harjana ◽  
Tiara Mahatmi ◽  
...  

Abstract Background Voluntary assisted partner notification (aPN) services are effective in increasing access to and uptake of HIV testing among partners of people with HIV. Following recommendations by the World Health Organization in 2016, Indonesia evaluated various approaches to aPN. We present the lessons learned from formative operational research undertaken to understand provider and patient perspectives on aPN from three demonstration sites in cities with a high HIV burden. Methods We conducted a formative qualitative study in three cities: Jakarta, Semarang, and Denpasar between September and October 2019. We conducted six focus group discussions (FGDs) (n = 44 participants) among health-care providers, people living with HIV and the general population. We explored participant preferences and concerns about how aPN should be delivered, including the methods of and messaging for contacting partners. All FGDs were conducted in the Indonesian language. Qualitative data were analysed using thematic analysis. Results aPN was acceptable across different participant populations, although with caveats. Some differences were observed between the general population, providers and people living with HIV. People living with HIV were mainly concerned with confidentiality of the procedure and preferred the use of telecommunication and messages that avoid explicit mention of HIV exposure. Providers preferred similar approaches but for different reasons, being concerned mainly with self-efficacy and security. There was consensus regarding dual referral models. The use of phone calls and short messages were preferred as these are perceived to minimize negative reactions and stigma, protect client confidentiality and are suitable in the current legal situation. The general population was mainly concerned with effectiveness and prefer direct provider-led approaches, such as preferring in-person meeting with explicit notification of potential HIV exposure. Conclusions We found consensus among stakeholders on acceptance of aPN, especially dual referral methods. Development and implementation of aPN protocols should also consider clients’ individual situations and concerns regarding safeguarding of confidentiality, and offer a range of options to accommodate all stakeholders involved.


Introduction: According to the Nigeria National HIV/AIDS Indicator and Impact Survey (NAIIS) conducted in 2018 but released in 2019 the current HIV prevalence in Nigeria is 1.4% among adults aged 15–49 years. This implies that there are about 1.9 million people living with HIV in Nigeria. Yet the percentage of Nigerians that had access to HIV counselling and testing services was just 37% in 2018 and about 46.9% of PLHIV aged 15-64 years knew their HIV status according to NAIIS 2018 report. . To improve on the HIV testing coverage, HIV testing services programming must be focused on utilizing strategies that maximise efficiency while expanding access to accurate, high-quality services. One of such strategies is to prioritise index case testing services for sexual partners of index clients. Partner Notification Services (PNS) Partner HIV Testing service is a type of index case testing among sexual network of an index case. Methods: Partner Notification Services (PNS) is a voluntary process where sexual partners of HIV-infected persons are contacted, counselled and are offered HIV test administered by a trained counselor. Each infected contact can then become the starting point for new contact tracing, until no more contacts can be found. This study was a retrospective review of the hospital records of HIV positive clients who participated in the HIV partner notification services. Results: A total of 705 HIV patients (Female-68%, Male-32%) enrolled in care at the two centers accessed the HIV partner notification services (PNS). These index cases were counselled and brought their 719 sexual partners to the hospitals for HIV testing. About 27% of the sexual partners were HIV infected and 71% were HIV negative while 2% were of unknown HIV status because they did not take the HIV test. Viral load suppression rate was about 48% among the index cases., more female are virally suppressed than men (71% vs 29%). About 100% of the index with suppressed viral load had one sexual partner while for index cases with unsuppressed viral load 80% had one sexual partner, 19% had two sexual partners and 1% had 3 sexual partners. The frequency of unmarried sexual partners was higher among index cases with suppressed viral load (22%) compared with index cases with unsuppressed viral load (36%). Surprisingly, incidence of HIV infection was higher at 36% among partners of index cases with suppressed viral load when compared with HIV incidence of 11% among partners of index with unsuppressed viral load. Conclusion and Recommendations: Uptake of PNS was 100% among index cases while 98% of their sexual contacts received HIV testing services. This shows PNS as a very effective strategy in increasing HIV testing services. Likewise, the HIV testing yield of 27% was higher than the yield from routine walk-in clients at the centers. It is therefore recommended that PNS be the standard of care at all centers offering HIV testing services


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