scholarly journals Health Centre Staff Are Satisfied with Librarian-Mediated Search Services, Especially When Librarians Follow Up

2018 ◽  
Vol 13 (1) ◽  
pp. 43-46
Author(s):  
Peace Ossom Williamson
Keyword(s):  
Critical Incident ◽  
Response Rate ◽  
Health Centre ◽  
Health Sciences ◽  
Literature Searching ◽  
Staff Members ◽  
Health Centre Staff ◽  
Online Form

A Review of: McKeown, S., Konrad, S.-L., McTavish, J., & Boyce, E. (2017). Evaluation of hospital staff’s perceived quality of librarian-mediated literature searching services. Journal of the Medical Library Association, 105(2), 120-131. http://dx.doi.org/10.5195/jmla.2017.201 Abstract Objective – To determine the effects of the professional designation and communication method on clinical, educational, and research activities and related users’ reported satisfaction with and perceived quality of a librarian-mediated literature searching service. Design – Online survey. Setting – A large teaching hospital in Ontario, Canada. Subjects – 237 health sciences centre staff who were requesting librarian-mediated literature searching over a one-year period. Methods – From February 1, 2014 to January 31, 2015, one-third of the health centre staff members requesting searching services, representing a systematic sample of the user group, were invited to participate in the survey. The survey centred on questioning participants on a critical incident, which, according to the critical incident technique, is an actual event upon which recollections are made, rather than hypothetical situations. In the case of this study, the critical incident was the service they received upon requesting literature searching by a librarian who was blinded concerning the originator of the request. With a 71% response rate, the researchers received 137 responses to the survey by health sciences staff. Participants were asked how many literature searches they had requested in the previous year, the reason they requested the service, how they submitted the request, and whether the librarian followed up for further clarification of their need. They also reported on the relevance of the results and their method of delivery, along with their perceptions of the overall quality of the service. Main Results – The results came from 137 completed surveys, for a 71% response rate. Physicians, nurses, and allied health professionals comprised 85% of the responses, at 35%, 27%, and 23% respectively. Scientists, researchers, research coordinators, and other staff made up the remainder of responses. Responses indicated frequent search requests, with the average number of searches being five, and 68% of respondents reported searching for the information themselves before contacting the library for assistance. Most searches were for research/publishing (34%) and teaching/training (20%). Requests were submitted via email (44%), online form (32%), in person (17.5%), and phone (6.5%), and most respondents rated themselves extremely satisfied (54%) or very satisfied (42%). Most respondents (72%) reported that the librarian followed up for further clarification of the request, and staff who received follow-up rated themselves extremely satisfied at a significantly higher rate than those who did not (p=0.002). Respondents whose request was submitted verbally (i.e., by phone or in person), in comparison with those whose request was submitted by email or online form, rated themselves extremely satisfied at a significantly higher rate (p=0.004) and rated the quality of results as excellent at a significantly higher rate (p=0.005). Conclusion – The need for comprehensive and expert searching when publishing or completing research and the availability of easy to use point-of-care resources may be why librarian-mediated literature searching was used for research and publishing at a rate much higher than for patient care. In addition, the fact that the institution was also engaged in efforts toward evidence-based standardization of care and electronic health records during that year may have also affected results. While satisfaction with the service was higher for those communicating verbally with a librarian, it is unclear whether this was caused by other factors or differences between staff members who engage in phone or in-person communication and those who submit forms and online requests. Because following up was correlated with higher satisfaction, adjustments in service encouraging librarians to follow up are recommended. Following up in person and via phone may help further.

Distance education for health centre staff in rural Japan

2000 ◽  
Vol 6 (2_suppl) ◽  
pp. 67-69 ◽  
Author(s):  
K Saeki ◽  
H Izumi ◽  
T Ohyanagi ◽  
A Sugiyama ◽  
I Sawada ◽  
...  
Keyword(s):  
Community Health ◽  
Health Workers ◽  
Health Centre ◽  
Computer Software ◽  
Professional Staff ◽  
Health Care Planning ◽  
Staff Members ◽  
Dental Assistants ◽  
Health Centre Staff

We have evaluated a course delivered by videoconferencing to rural health centre staff in Hokkaido. The course focused on the planning and evaluation of community health interventions. It included four 90 min sessions and two follow-up sessions. Fourteen professional staff members (public health nurses, nutritionists and dental assistants) attended each class. Knowledge of community health-care planning and evaluation was higher at post-education testing than pre-education testing. Ratings for ‘using a computer’, ‘using some computer software’, ‘using the Internet’ and ‘interest in telehealth’ increased significantly in post-education testing compared with pre-education testing. The course had an additional benefit in increasing the collaboration between community health workers and university staff.

Post Tandem Autologous Stem Cell Transplant Maintenance Therapy with Bortezomib Improves Remission Duration and Quality of Response in Multiple Myeloma Patients.

Blood ◽  
2009 ◽  
Vol 114 (22) ◽  
pp. 4939-4939
Author(s):  
Rosa Greco ◽  
Benedetto Ronci ◽  
Barbara Anaclerico ◽  
Velia Bongarzoni ◽  
Fulvio Pauselli ◽  
...  
Keyword(s):  
Maintenance Treatment ◽  
Overall Response Rate ◽  
Response Rate ◽  
Single Agent ◽  
Control Group ◽  
Single Center ◽  
Single Center Study ◽  
Center Study

Abstract Abstract 4939 Background Single or tandem Autologous Stem Cell Transplantation (ASCT) has been considered standard approach in adult (<65y) Multiple Myeloma (MM) patients (pts), however post ASCT disease progression occurs in the majority of cases suggesting that post ASCT maintenance treatment might be useful. The role of Bortezomib in the post-ASCT context is still not well defined. In December 2007 this single center study was activated in the aims to assess the impact of Bortezomib maintenance a) on time to progression (TTP), b) the possible toxicity related to a prolonged administration of the agent. Patients and Methods Between October 2002 and July 2008, at Hematology Unit of S. Giovanni Hospital, 24 pts (median age 59.5y, min 38-max 67y) with newly diagnosed intermediate/advanced MM underwent single (8), or tandem (16) ASCT, respectively. Of these, 13 pts autotransplanted (8 single and 5 tandem) between 2002 and 2007, who did not receive any treatment post-ASCT, were considered as historic control group, while the remaining 11 autotransplanted from December 2007 to September 2008, received Bortezomib as maintenance treatment. Maintenance schedule consisted of Bortezomib as single agent given at dosage 1.5 mg (total dose) every 15 days until progression. Response was evaluated according to the International Myeloma Working Group uniform response criteria, while minimal residual disease (MRD) was assessed every 3 months on bone marrow (BM) samples by 6-colour BDFACS CANTO II. Abnormal plasma cells (APC) were identified using an Ab panel against the following markers: CD38, CD138, CD19, CD20, CD45, CD56, CD117, CD28, CD200. The condition was optimized in order to obtain a sensitivity level ' 1×10-3 (<0.01). Moreover, the presence of peripheral neuropathy (PN) was monitored before maintenance start, then every 3 mo by neurophysiologic tests including motor and sensory conducting studies. Results In the Bortezomib group, post -2nd ASCT, 5 pts achieved complete (CR) or a very good partial response (VGPR), 4 partial response (PR), and 2 maintained stable disease (SD), respectively; the overall response rate was 82%, with 45% CR+VGPR. Maintenance was started in a median time of 3.8 mo (min 1.7 - max 13.7 mo). As of July 2009, after a median maintenance length of 16.2 mo (min 4.1 - max 19 mo), all 11 pts are alive. As disease status, of the 4 pts in PR after 2nd ASCT, 1 achieved stringent CR (sCR), 1 CR and 2 progressed, respectively. The 5 pts who were previously in CR/VGPR maintained the same type of response, with no detectable MRD (< 0.01), except 1 pt who shifted to PR. Finally, of the 2 pts in SD, 1 persisted in SD after 10 months from the beginning of the Bortezomib maintenance, while the other one progressed. Thus, to date, of the 11 pts entered in the study, 55% are sCR+CR+VGPR, with an overall response rate of 63%. It is noteworthy that the 3 pts who relapsed (at 3, 4, 16 mo from maintenance start) had chromosome 13 deletion at diagnosis. Considering that not all pts underwent 2nd ASCT, TTP was evaluated from 1st ASCT. In the Bortezomib group (median follow-up 26 mo; range: 15 – 33 mo), median TTP has not yet been reached, whereas in the control group (median follow-up 34 mo; range: 14 – 62 mo), median TTP was 13 mo (log-rank P<0.01) (Fig 1). Finally, none of the pts in the Bortezomib group experienced grade 3 or 4 haematologic toxicity and/or PN requiring dose reduction or discontinuation of the drug. Conclusion The preliminary results of this single center study, even though limited to a small cohort of pts, suggest that Bortezomib as single agent in post-ASCT maintenance may improve the quality of previously achieved response and prolong TTP. However, these preliminary results need to be confirmed by a longer follow-up and a randomized multicenter study. Disclosures No relevant conflicts of interest to declare.

scholarly journals Rituximab as Single Agent in Primary MALT Lymphoma of the Ocular Adnexa

2015 ◽  
Vol 2015 ◽  
pp. 1-8 ◽  
Author(s):  
Ombretta Annibali ◽  
Francesca Chiodi ◽  
Chiara Sarlo ◽  
Magdalena Cortes ◽  
Francesco M. Quaranta-Leoni ◽  
...  
Keyword(s):  
Overall Response Rate ◽  
Response Rate ◽  
Single Agent ◽  
Line Treatment ◽  
First Line ◽  
Indolent Disease ◽  
Anti Cd20 ◽  
First Line Treatment

Ocular Adnexal Lymphomas are the first cause of primary ocular malignancies, and among them the most common are MALT Ocular Adnexal Lymphomas. Recently systemic immunotherapy with anti-CD20 monoclonal antibody has been investigated as first-line treatment; however, the optimal management for MALT Ocular Adnexal Lymphomas is still unknown. The present study evaluated retrospectively the outcome of seven consecutive patients with primary MALT Ocular Adnexal Lymphomas, of whom six were treated with single agent Rituximab. All patients received 6 cycles of Rituximab 375 mg/mq every 3 weeks intravenously. The overall response rate was 100%; four patients (67%) achieved a Complete Remission, and two (33%) achieved a partial response. In four patients an additional Rituximab maintenance every 2-3 months was given for two years. After a median follow-up of 29 months (range 8–34), no recurrences were observed, without of therapy- or disease-related severe adverse events. None of the patients needed additional radiotherapy or other treatments. Rituximab as a single agent is highly effective and tolerable in first-line treatment of primary MALT Ocular adnexal Lymphomas. Furthermore, durable responses are achievable with the same-agent maintenance. Rituximab can be considered the agent of choice in the management of an indolent disease in whom the “quality of life” matter is of primary importance.

Follow-up of tetralogy of Fallot patients: tertiary centre versus satellite clinic

2011 ◽  
Vol 21 (4) ◽  
pp. 444-453 ◽  
Author(s):  
Camille L. Hancock Friesen ◽  
Mark Robertson ◽  
David Liu ◽  
Haley Burton ◽  
Katherine Fleming ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Tetralogy Of Fallot ◽  
Health Centre ◽  
Subjective Health ◽  
Subjective Health Status ◽  
Sf 36 ◽  
Patient Reported

AbstractBackgroundCanadian Cardiovascular Society consensus guidelines recommend that tetralogy of Fallot patients be seen by a congenital cardiologist every 2 years. In Atlantic Canada, tetralogy of Fallot patients are followed up at either tertiary or satellite clinics, which are held in the community and attended by paediatric cardiologists. The effectiveness of satellite clinics in congenital cardiac disease follow-up is unproven. Our objective was to compare patient-reported quality of life measures to determine whether these were impacted by the site of follow-up.MethodsWe included patients with tetralogy of Fallot undergoing surgical repair at the Izaak Walton Killam Health Centre from 1 November, 1972 to 31 May, 2002. Quality of life surveys, SF-10 or SF-36v2, were administered to consenting patients. We analysed the subjective health status by patient age and site of follow-up.ResultsOf the 184 eligible patients, 72 were lost to follow-up. Of the locatable patients, 61% completed the questionnaires. In all, 90% (101 out of 112) were followed up at recommended intervals. Of the 112 (68%) patients, 76 were followed up at a tertiary clinic. These patients were older, with a mean age of 18.4 years versus 14.7 years, and scored higher on the SF-36 physical component summary (52.6 versus 45.7, p = 0.02) compared with satellite clinic patients. The SF-36 mental component summary scores were similar for patients regardless of the site of follow-up. SF-10 physical and psychosocial scores were similar regardless of the site of follow-up.ConclusionTetralogy of Fallot patients followed at either satellite or tertiary clinics have similar subjective health status.

P578Multipoint pacing in cardiac resynchronization therapy - how to improve remodeling criteria and its impact in quality of life

EP Europace ◽  
2020 ◽  
Vol 22 (Supplement_1) ◽  
Author(s):  
A Nunes Ferreira ◽  
P S Antonio ◽  
I Aguiar-Ricardo ◽  
T Rodrigues ◽  
N Cunha ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Response Rate ◽  
Reverse Remodeling ◽  
Resynchronization Therapy ◽  
Rate Reduction ◽  
Systolic Volume ◽  
End Systolic Volume ◽  
The Impact

Abstract Background Despite the reduction in mortality and hospitalization rates, resynchronization therapy still has 30-40% of non-responders. Several studies are ongoing to evaluate if novel programming techniques such as multipoint pacing (MPP) increase the conversion rate of non-responder to responder to CRT. However, there is still lack of information about conversion to super-responders and the impact in quality of life of MPP. Purpose To evaluate the impact of MPP in conversion to super-responders and its impact in the quality of life of patients. Methods Randomized clinical trial of non-AF patients with indication for CRT and who implanted the Quartet™ quadripolar left ventricle (LV) lead. After implant, CRTs were programmed on biventricular pacing according to the latest activated area for 6 months. After a 6-month follow-up, patients were randomized in a 1:1 fashion to MPP ON or MPP OFF. MPP was programmed with the two widest spaced LV electrodes and with a LV1-LV2 to LV2-RV delay of 5ms. Patients were followed-up for 12 months with a 6-month evaluation of NTproBNP, echocardiographic remodeling criteria (LV end systolic volume (ESV) and LV ejection fraction), and quality of life (QoL) evaluated by EQ-5D, Minnesota Living with Heart Failure (MLWHF) questionnaire and 6-minute walk test (6MWT). Results  76 patients were included in this trial, 62 with a completed 12-month follow-up (average age 67.2 ± 10.2 years old, 32.3% female gender, dilated cardiomyopathy in 77.4%). Among these patients, 24 were randomized to MPP ON, 28 to MPP OFF. Six patients died and 4 were lost to follow-up. Baseline clinical and echocardiographic characteristics were similar between groups (p = NS). At 6 months, the overall response rate (reduction in ESV≥15%) was 75%. At twelve months, patients randomized to MPP ON had a super-response rate (reduction in ESV≥30%) higher than patients with MPP OFF (75% vs 39.3%, p = 0.01). Between 6-12 months, patients assigned to MPP ON had a higher reduction in ESV (93.4 ± 52.3mL to 82.1 ± 40.5mL, p = 0.04) and an improvement in LVEF (38.3 ± 9.8% to 45.1 ± 11.1%, p &lt; 0.01) compared to patients with MPP OFF (92.2 ± 47.3mL to 95.4 ± 47.5mL, p = NS; 37.1 ± 12.0% to 40.2 ± 9.2%, p = NS). Additionally, QoL of patients with MPP ON improved during follow up (EQ-5D 78.3% to 86.3%, p &lt; 0.01; MLWHF 12.1 to 6.6, p = 0.03, 6MWT 316m to 239m, p = NS; NTproBNP 1608 ± 2450pg/mL to 775 ± 914pg/mL, p = NS) and was unchanged in MPP OFF patients (76.6% to 74.2%; MLWHF 12.7 to 12.7; 6MWT 338m to 299m, NTproBNP 1112 ± 1442pg/mL to 1383 ± 2118pg/mL, for all p = NS). Conclusion In our population, patients with CRT programmed with MPP ON, when compared to MPP OFF, had an improvement in the super-response rate and in quality of life. These results may be consequence from a more favorable reverse remodeling due to MPP, with a higher reduction in the LV end systolic volume. Abstract Figure.

scholarly journals The Experience of Online Marking and the Future Development of Online Marking Practice

2012 ◽  
Vol 3 (6) ◽  
Author(s):  
Sandra Rankin ◽  
James Demetre
Keyword(s):  
Online Survey ◽  
Social Care ◽  
Response Rate ◽  
Teaching Staff ◽  
Storage Space ◽  
Staff Members ◽  
The University ◽  
Limited Period

This case study describes a snapshot of the use and the perceptions of online marking (OM) via Turnitin within the School of Health & Social Care at the University of Greenwich. A small online survey was made available to teaching staff for a limited period of three weeks. The purpose of the survey was to informally review how staff felt about using online marking (OM) compared to paper marking. Those staff members who had already used online marking were invited to respond to three quantitative and two qualitative questions about their online marking preferences. A 28% response rate indicated that those who used online marking identified several positive aspects of OM such as handling less paper, the need for less storage space and increased quality of feedback to students.

FC21-01 - Physical health of residents in psychiatric and social care facilities

2011 ◽  
Vol 26 (S2) ◽  
pp. 1927-1927
Author(s):  
P. Hjorth
Keyword(s):  
Physical Health ◽  
Psychiatric Treatment ◽  
Staff Members ◽  
Vulnerable Patients ◽  
Second Generation Antipsychotics ◽  
Somatic Illness ◽  
Study Population ◽  
Randomised Controlled

BackgroundPrevalence of physical illness among patients suffering from psychiatric illness is higher than in the average population. This is especially true for persons diagnosed with schizophrenia who mainly suffer from heart disease and metabolic disorders. Some of the second generation antipsychotics are likely to cause weight gain and metabolic syndrome associated with a two- to threefold increase in cardiovascular mortality and a twofold increase in all-cause mortality. The quality of the general health care in patients with severe mental illness and the lack of consensus about the prevention of somatic illness in this group of vulnerable patients need to be improved.HypothesisThere is a correlation between the awareness of physical health and the physical health among patients as well as staff members.Material and methodsThe investigation is designed as a randomised controlled intervention study with follow-up after nine months.The study population is from six facilities in the region of North Jutland in Denmark for severe chronically mental ill patients. All six facilities offer specialised social psychiatric treatment. The six facilities have 184 patients and approximately 200 staff members. A subsample of seven patients and seven staff members will be selected from the three interventions facilities and be invited to participate in separate focus groupsIn the intervention facilities, a detailed feedback of all index measures will be distributed to the patients and the staff. Individual health promotion and guidance will be carried out.

scholarly journals Nursing Professionals Use and Value Information but Favour Work-based Sources and Colleagues in Preference to Libraries

2007 ◽  
Vol 2 (4) ◽  
pp. 92
Author(s):  
Andrew Booth
Keyword(s):  
Reflective Practice ◽  
Critical Incident ◽  
Value Of Information ◽  
Response Rate ◽  
Information Services ◽  
Health Visitors ◽  
Nursing Professionals ◽  
The Impact ◽  
Information Providers

A review of: Urquhart, C., and R. Davies. ”EVINCE: The Value of Information in Developing Nursing Knowledge and Competence.” Health Libraries Review 14.2 (1997): 61-72. Objective – To examine the impact of information on the clinical knowledge and practice of nurses, midwives and health visitors. Design – Two surveys: a one-page critical incident questionnaire survey sent weekly over four weeks, and a questionnaire attached to information requests and searches, followed up by interviews. Setting – UK health information providers serving nurses (national information providers, National Health Service trust libraries, higher education funded library and information services, and a health promotion library). Subjects – A random sample of 210 nurses, midwives and health visitors were targeted in the critical incident survey, and 776 of those requesting information or searches at participating library and information centres received questionnaires for the second survey. Methods – Opinion leaders were consulted to inform a pilot study. A critical incident type questionnaire survey was then administered to a random sample of 210 nurses, midwives and health visitors. The same one-page questionnaire was sent weekly (for four weeks) to 10% of a randomly selected sample of staff at each site. Staff were asked to identify one occasion during that week when they needed information, the purpose of the information needed, the sources chosen to answer the query and how successful the quest was. The impact of the information provided by the library and information services on present and future professional practice was examined through a complementary survey. Responses were coded using three categories of competence: assessment, monitoring of care and evaluation of care. Follow-up interviews then explored the nature of the incident described or the quality of information provided. Main results – The response rate for the critical incident survey was 52% (434 out of 840 completed questionnaires returned) with 78% (163/210) of participants replying at least once. The total response rate for the second survey was 40% (311/776). Ninety percent of respondents stated that the information they obtained from the library or information service added to their knowledge, and 86% had been able to use some information immediately. Sixty-one percent reported that information had refreshed their memory, and 75% agreed that information substantiated what they had known or suspected. Seventy-six percent of respondents agreed that they needed to obtain more information on the topic, while 23% had expected to find something else. Eighty-eight percent of respondents indicated that they would share the information with colleagues. Ninety-six percent of respondents agreed that the information obtained would contribute to future practice. Seventy percent felt that the information would or did help in evaluation of practice outcomes, 68% for improved quality of life for patient and/or family and 61% in interpersonal relations with clients/patients. Other majority responses were for Audit or standards of care (57%), Monitoring of care (56%) and Legal or ethical issues (51%). Base or ward sources were used in 72% of patient care related incidents and colleagues in 56% of these incidents. Of 148 incidents involving use of a library, the primary purposes were personal updating (62%), coursework (54%), patient care – specific drug or therapy (44%), and teaching staff, students or colleagues (39%). Conclusion – The findings demonstrate the value of information to nursing professionals while acknowledging that the library is not necessarily a principal source of such information. Ward-based resources and information from colleagues continue to play a dominant part in information use. Rather than reducing uncertainty, the value of information may lie in encouraging uncertainty and reflective practice. Information professionals must seek a greater understanding of situations and methods of presentation by which they might encourage reflective practice.

scholarly journals Evolving partnerships: engagement methods in an established health services research team

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Stephanie A. Chamberlain ◽  
Andrea Gruneir ◽  
Janice M. Keefe ◽  
Charlotte Berendonk ◽  
Kyle Corbett ◽  
...  
Keyword(s):  
Nursing Homes ◽  
Research Team ◽  
Response Rate ◽  
Decision Makers ◽  
Citizen Engagement ◽  
Services Research ◽  
Team Members ◽  
Academic Researchers

Abstract Background The Translating Research in Elder Care (TREC) program is a partnered health services research team that aims to improve the quality of care and quality of life for residents and quality of worklife for staff in nursing homes. This team includes academic researchers, trainees, research staff, citizens (persons living with dementia and family/friend caregivers of persons living in nursing homes), and decision-makers (ministries of health, health authorities, operators of nursing homes). The TREC team has experience working with health system partners but wanted to undertake activities to enhance the collaboration between the academic researchers and citizen members. The aim of this paper is to describe the TREC team members’ experiences and perceptions of citizen engagement and identify necessary supports to promote meaningful engagement in health research teams. Methods We administered two online surveys (May 2018, July 2019) to all TREC team members (researchers, trainees, staff, decision-makers, citizens). The surveys included closed and open-ended questions guided by regional and international measures of engagement and related to respondents’ experience with citizen engagement, their perceptions of the benefits and challenges of citizen engagement, and their needs for training and other tools to support engagement. We analyzed the closed-ended responses using descriptive statistics. Results We had a 78% response rate (68/87) to the baseline survey, and 27% response rate (21/77) to the follow-up survey. At baseline, 30 (44%) of respondents reported they were currently engaged in a research project with citizen partners compared to 11(52%) in the follow-up survey. Nearly half (10(48%)) of the respondents in the follow-up reported an increase in citizen engagement over the previous year. Respondents identified many benefits to citizen engagement (unique perspectives, assistance with dissemination) and challenges (the need for specific communication skills, meeting organizing and facilitation, and financial/budget support), with little change between the two time points. Respondents reported that the amount of citizen engagement in their research (or related projects) had increased or stayed the same. Conclusions Despite increasing recognition of the benefits of including persons with lived experience and large-scale promotion efforts, the research team still lack sufficient training and resources to engage non-academic partners. Our research identified specific areas that could be addressed to improve the engagement of citizens in health research.

scholarly journals Patient Empowerment Among People Attending Cancer Follow-Up – Results from a Nationwide Questionnaire Survey

2021 ◽  
Author(s):  
Nanna Bjerg Eskildsen ◽  
Lone Ross ◽  
Clara Rübner Jørgensen ◽  
Susanne S Pedersen ◽  
Thora Grothe Thomsen ◽  
...  
Keyword(s):  
Healthcare Professionals ◽  
Response Rate ◽  
Patient Empowerment ◽  
Late Complications ◽  
Questionnaire Response ◽  
Perceived Importance ◽  
Diagnosis Of Cancer ◽  
Low Levels

Abstract PurposeTo investigate levels of empowerment, possibilities for empowerment and perceived importance of empowerment among Danes in cancer follow-up. MethodsFrom nation-wide registers a randomly selected group of people diagnosed with one of ten different cancer diagnoses between one and five years ago were invited to complete the newly developed ‘Cancer Patient Empowerment Questionnaire’ (CPEQ). Respondents who reported that they were in a follow-up program were included in the analysis. Frequencies of answers to the items in the questionnaire were calculated. ResultsIn total, 1,418 people with a diagnosis of cancer returned the questionnaire (response rate 54%). Of these, 1,042 reported being in follow-up and were included in the analysis. Most respondents experienced that there was a plan for their follow-up (83%) and felt at ease with both the frequency (80%) and content of the follow-up (78%). However, many also reported lack of possibilities for and/or low levels of empowerment. They were not aware of any decisions being made during their follow-up, had not received information about relevant patient associations, or had any conversations with healthcare professionals regarding their needs and wishes for their follow-up. Furthermore, almost 20% lacked information on and confidence in managing treatment-related side-effects, late complications and alarm symptoms. ConclusionMany respondents reported lack of possibilities for and/or low levels of empowerment in their cancer follow-up. This may have consequences for their quality of life and capabilities and opportunities for managing their own care.

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