scholarly journals Cedar Project: Conducting Health Research with Indigenous Peoples in a Good Way

2021 ◽  
Vol 5 (1) ◽  
Author(s):  
◽  
Richa Sharma ◽  
Violet Bozoki ◽  
Earl Henderson ◽  
Lou Demerais ◽  
...  
Keyword(s):  
Indigenous Peoples ◽  
Historical Trauma ◽  
Indigenous Communities ◽  
Cultural Safety ◽  
Multiple Perspectives ◽  
Hepatitis C Infection ◽  
Community Based Research ◽  
Indigenous Voice ◽  
Indigenous Perspectives ◽  
Conducting Research

The Cedar Project is an interdisciplinary, community-driven research project responding to the crises of HIV and Hepatitis C infection and contributing to the healing of young Indigenous people who use or have used drugs. We are a collective membership of Indigenous Elders, health/social service experts, researchers, and non-Indigenous allies. We situate our work in the context of strength, resilience, and rights to self-determination for Indigenous peoples while also acknowledging the ongoing impacts of historical, intergenerational, and current trauma, specifically those related to the child welfare systems. We provide epidemiological and qualitative evidence that reflects Indigenous perspectives of health and wellness. In this paper, we highlight over seventeen years of shared learnings on conducting research with Indigenous communities in a good way. Specifically, we elaborate on four key components of our unique project. First, our paradigm is to build on young Indigenous people's strengths while acknowledging grief and historical trauma. We recognize that Cedar participants are not statistics—they are relatives of Indigenous partners governing this study. Second, our processes are determined by Indigenous governance, led by Elders and rooted in cultural safety. Third, our research ethics are determined by terms of reference created by the Cedar Project Partnership and by embracing guidelines of TCPS and community-based research. Fourth, we are informed by multiple perspectives and research relationships between Elders, partners, students, academics, and research staff. Sharing our learnings with the larger research community can contribute to decolonizing research spaces by centering Indigenous knowledges and privileging Indigenous voice.

Barriers and Enablers to Older Indigenous People Engaging in Physical Activity—A Qualitative Systematic Review

2021 ◽  
pp. 1-13
Author(s):  
Margaret J.R. Gidgup ◽  
Marion Kickett ◽  
Tammy Weselman ◽  
Keith Hill ◽  
Julieann Coombes ◽  
...  
Keyword(s):  
Physical Activity ◽  
Systematic Review ◽  
Indigenous Peoples ◽  
Indigenous Communities ◽  
Cultural Safety ◽  
Barriers And Enablers ◽  
Qualitative Systematic Review ◽  
Physical Activity Programs ◽  
Key Barrier ◽  
Appraisal Tool

The objective of this qualitative systematic review was to synthesize all evidence to understand the barriers and enablers to older Indigenous peoples (aged 40 years and older) engaging in physical activity. Four databases were searched. Study quality was assessed from an Indigenous perspective, using an Aboriginal and Torres Strait Islander quality appraisal tool. Data were analyzed using thematic synthesis. There were 4,246 articles screened with 23 articles and one report included from over 30 Indigenous communities across four countries. Cultural Safety and Security was a key enabler, including developing physical activity programs which are led by Indigenous communities and preference Indigenous values. Colonization was a key barrier that created mistrust and uncertainty. Social Determinants of Health, including cost, were supported by successful programs, but if not addressed, were demotivators of engagement. Older Indigenous peoples identified barriers and enablers that can direct the development of sustainable, culturally appropriate physical activity programs.

scholarly journals An Approach to Improve Dementia Health Literacy in Indigenous Communities

2019 ◽  
Vol 35 (1) ◽  
pp. 69-83 ◽  
Author(s):  
Sharlene Webkamigad ◽  
Wayne Warry ◽  
Melissa Blind ◽  
Kristen Jacklin
Keyword(s):  
Health Promotion ◽  
Health Literacy ◽  
Indigenous Knowledge ◽  
Health Care Providers ◽  
Indigenous Communities ◽  
Cultural Safety ◽  
Evidence Based ◽  
Culturally Appropriate ◽  
Care Providers ◽  
Indigenous Perspectives

AbstractThis project aims to improve health literacy in Indigenous communities through the development of evidence-based culturally relevant health promotion materials on dementia that bridge the gap between Indigenous and Western perspectives of the illness. The research team worked in partnership with Health Canada’s First Nations and Inuit Home and Community Care Program (FNIHCC) and consulted with Indigenous elders to utilize a two-eyed seeing framework that draws upon Indigenous knowledge and Western biomedicine. A consolidated review of materials and research involving Indigenous perspectives of Alzheimer’s and age-related dementias led to the development of two culturally appropriate fact sheets. Two Indigenous-specific fact sheets were developed “What is Dementia? Indigenous Perspectives and Cultural Understandings” and “Signs and Symptoms of Dementia: An Indigenous Guide.” The fact sheets prioritize Indigenous knowledge and pay particular attention to Indigenous languages, diverse Indigenous cultures, and literacy levels. The content uses phrasing and words from Indigenous people involved in the research to share information. Biomedical concepts and words were included when necessary but language or presentation of these aspects were often modified to reflect Indigenous conceptualizations. This project provides a foundation for evidence-based knowledge translation in relation to cultural safety in dementia care. Specifically, the researchers outline how health care providers can develop culturally appropriate health promotion material, thus increasing Indigenous cultural understandings of dementia and health literacy.

scholarly journals Otsin: Sharing the spirit--Development of an indigenous rural nursing practice course

2018 ◽  
Vol 8 (12) ◽  
pp. 29 ◽  
Author(s):  
Sheila Blackstock
Keyword(s):  
Indigenous Peoples ◽  
Nursing Practice ◽  
Cultural Practices ◽  
Indigenous Communities ◽  
Cultural Safety ◽  
Student Centered ◽  
Teaching Pedagogy ◽  
Rural Nursing ◽  
Undergraduate Nursing ◽  
Northern Community

Otsin is the spirt of Gitxsan Peoples and is reflected by the Gitxsan author sharing the journey in the development of a unique third year undergraduate nursing practice course. The nursing practice course immerses students in a combined rural and an interdisciplinary indigenous nursing practice. The practice course is based on a student centered, context-based teaching pedagogy using a two-eyed seeing approach. The theoretical tenet of place is reconceptualized to reflect Indigenous communities and rural nursing practice. The metaphor of weaving together cedar strips is used to reflect a journey that takes students through the experiences of living and practicing in a rural northern community while embracing on the land experiences, cultural practices, traditions, language and ceremonies. The traditional academy curricula are challenged to broaden the lens beyond the classroom theatre walls to rural, indigenous nursing practice experiences. The weaving of the cedar strips together and allows students to construct their understanding of the impacts of colonization on Indigenous Peoples and an opportunity to be guided by the community to practice cultural safety.

Community University Research Agreement

2007 ◽  
Vol 36 (S1) ◽  
pp. 38-44
Author(s):  
Priscilla Settee ◽  
Shelley Thomas-Prokop
Keyword(s):  
Indigenous Knowledge ◽  
First Nations ◽  
Indigenous Peoples ◽  
Policy Development ◽  
Indigenous Communities ◽  
Urban Housing ◽  
Research Projects ◽  
Community Based ◽  
Community Based Research ◽  
The University

AbstractThis paper describes the process of engaging the extended Indigenous community within Saskatoon and the surrounding First Nations communities in what would be a first major research project between Indigenous communities and the University of Saskatchewan. A management committee was established comprised of all the major Saskatoon/Saskatchewan Indigenous organisations, such as the Federation of Saskatchewan Indians, Saskatoon Tribal Council, First Nations University of Canada and other community-based groups to ensure that research reflected First Nations and Metis needs. The project called “Bridges and Foundations” awarded some 35 projects close to two million dollars in research funds. The money was awarded through graduate student research bursaries, and community-based projects which highlighted the needs of Indigenous women, youth, students, elders and urban populations. The three research themes included respectful protocol, knowledge creation, and policy development. The research projects, which were largely Indigenous designed and driven, created one of the most extensive research collections over a period of four years and included major data collection on community-based research, Indigenous peoples and Indigenous knowledge systems and protocols. The paper relates the development of the project and speaks about the need for Indigenous peoples to lead their own research as well as the benefits of collaboration. It also highlights several of the research projects including a conference on Indigenous knowledge (2004), a video project describing the community mobilisation process behind Quint Urban Housing Co-operatives,

scholarly journals Neo-extractivist controversies in Bolivia: indigenous perspectives on global norms

2018 ◽  
Vol 15 (1) ◽  
pp. 88-102
Author(s):  
Jessika Eichler
Keyword(s):  
Human Rights ◽  
Indigenous Peoples ◽  
Indigenous Rights ◽  
Indigenous Communities ◽  
Fundamental Rights ◽  
Self Determination ◽  
Collective Rights ◽  
Implementation Processes ◽  
Indigenous Perspectives ◽  
Increasing Demand

AbstractEver since Evo Morales Ayma became Bolivia's first indigenous president in 2006 and the promulgation of a human-rights-enhancing Constitution (2009) thereafter, indigenous peoples’ rights were gradually recognised. Yet, with the increasing demand for natural resources, indigenous communities have been adversely affected by the state's neo-extractivist policies. While global indigenous rights norms protect their fundamental rights, legal-implementation processes in the country's lowlands reveal dilemmas in terms of the value of laws in practice as well as its reinterpretation on the ground. Namely, in the communities, different positions and camps have emerged in terms of the role and functions of participatory rights. Despite the potential of the latter in strengthening collective-rights regimes and self-determination, community leaders, advisers and other members report how such processes fracture and weaken decision-making mechanisms and human rights claims.

scholarly journals Wise Practices for Cultural Safety in Electronic Health Research and Clinical Trials With Indigenous People: Secondary Analysis of a Randomized Clinical Trial (Preprint)

2019 ◽  
Author(s):  
Marion A Maar ◽  
Valerie Beaudin ◽  
Karen Yeates ◽  
Lisa Boesch ◽  
Peter Liu ◽  
...  
Keyword(s):  
Clinical Trial ◽  
Indigenous Peoples ◽  
Indigenous Communities ◽  
Lessons Learned ◽  
Cultural Safety ◽  
Controlled Clinical Trial ◽  
Data Set ◽  
Evaluation Data ◽  
Electronic Health ◽  
Wise Practices

BACKGROUND There is a paucity of controlled clinical trial data based on research with Indigenous peoples. A lack of data specific to Indigenous peoples means that new therapeutic methods, such as those involving electronic health (eHealth), will be extrapolated to these groups based on research with other populations. Rigorous, ethical research can be undertaken in collaboration with Indigenous communities but requires careful attention to culturally safe research practices. Literature on how to involve Indigenous peoples in the development and evaluation of eHealth or mobile health apps that responds to the needs of Indigenous patients, providers, and communities is still scarce; however, the need for community-based participatory research to develop culturally safe technologies is emerging as an essential focus in Indigenous eHealth research. To be effective, researchers must first gain an in-depth understanding of Indigenous determinants of health, including the harmful consequences of colonialism. Second, researchers need to learn how colonialism affects the research process. The challenge then for eHealth researchers is to braid Indigenous ethical values with the requirements of good research methodologies into a culturally safe research protocol. OBJECTIVE A recent systematic review showed that Indigenous peoples are underrepresented in randomized controlled trials (RCTs), primarily due to a lack of attention to providing space for Indigenous perspectives within the study frameworks of RCTs. Given the lack of guidelines for conducting RCTs with Indigenous communities, we conducted an analysis of our large evaluation data set collected in the Diagnosing Hypertension-Engaging Action and Management in Getting Lower Blood Pressure in Indigenous Peoples and Low- and Middle- Income Countries (DREAM-GLOBAL) trial over a period of five years. Our goal is to identify wise practices for culturally safe, collaborative eHealth and RCT research with Indigenous communities. METHODS We thematically analyzed survey responses and qualitative interview/focus group data that we collected over five years in six culturally diverse Indigenous communities in Canada during the evaluation of the clinical trial DREAM-GLOBAL. We established themes that reflect culturally safe approaches to research and then developed wise practices for culturally safe research in pragmatic eHealth research. RESULTS Based on our analysis, successful eHealth research in collaboration with Indigenous communities requires a focus on cultural safety that includes: (1) building a respectful relationship; (2) maintaining a respectful relationship; (3) good communication and support for the local team during the RCT; (4) commitment to co-designing the innovation; (5) supporting task shifting with the local team; and (6) reflecting on our mistakes and lessons learned or areas for improvement that support learning and cultural safety. CONCLUSIONS Based on evaluation data collected in the DREAM-GLOBAL RCT, we found that there are important cultural safety considerations in Indigenous eHealth research. Building on the perspectives of Indigenous staff and patients, we gleaned wise practices for RCTs in Indigenous communities. CLINICALTRIAL ClinicalTrials.gov NCT02111226; https://clinicaltrials.gov/ct2/show/NCT02111226

Reclaiming Land

2019 ◽  
pp. 108-121 ◽  
Author(s):  
Shanondora Billiot ◽  
Jessica Parfait
Keyword(s):  
United States ◽  
Indigenous Peoples ◽  
Environmental Changes ◽  
Social Systems ◽  
Historical Trauma ◽  
Indigenous Communities ◽  
The United States ◽  
Health Impacts ◽  
The World

Environmental changes are projected to have adverse impacts on marginalized populations through additional pressures placed on already struggling social systems. Indigenous communities, given their attachment to and dependence on the land, are especially vulnerable. Though indigenous peoples throughout the world contribute the least to changes in the environment, they are disproportionally affected. To date, there has been limited research on health impacts resulting from environmental changes, especially among indigenous peoples in the United States. This chapter presents a case study on how environmental change exposure (e.g., observations, frequency, threats) and indigenous-specific sensitivities (e.g., historical trauma, ethnic identity, discrimination) affect the likelihood of participation in adaptation activities by indigenous peoples living in a physically vulnerable coastal area of the United States. It connects these findings with themes arising within other indigenous communities experiencing environmental changes.

scholarly journals ASSESSING THE IMPACT OF INTEGRATING INDIGENOUS KNOWLEDGES AND PERSPECTIVES IN ENGINEERING CURRICULA ON STUDENTS’ LEARNING: THE DEVELOPMENT OF A CLASSROOM CASE STUDY

2019 ◽  
Author(s):  
Afua Adobea Mante ◽  
Jillian Seniuk Cicek ◽  
Marcia Friesen ◽  
Leonnie Kavanagh
Keyword(s):  
Engineering Education ◽  
Indigenous Peoples ◽  
Curriculum Design ◽  
Climate Change Impacts ◽  
Indigenous Communities ◽  
Global Scale ◽  
Indigenous Knowledges ◽  
Indigenous Perspectives ◽  
The Impact

Indigenous Peoples in Canada have practiced sustainability for centuries. Their knowledges, perspectives and design principles are applicable on both a local and global scale especially in our quest to find sustainable approaches to food security, energy independence, and climate change impacts. However, the opportunities for Indigenous Peoples to fully participate and formally offer knowledge and guidance on sustainable development in engineering education have been limited. Engineering training in Canada requires students to develop competency in the area of assessing the impact of engineering on society and the environment. Within this competency is the ability to understand and apply the concepts of sustainability to engineering activities. Engaging with Indigenous Peoples to understand their perspectives on engineering and society provides a platform to critically assess existing engineering curricula, expand the concept of sustainability, and come closer to a common place of understanding. Understanding the impact of incorporating Indigenous perspectives in the curricula on students’ learning and understandings will help inform the further incorporation of Indigenous perspectives in engineering education. This paper presents the research methodology and instruments for a case study designed to explore students’ learning in one engineering course that integrates an Indigenous Elder’s perspectives on how to effectively communicate, engage, and obtain local knowledge on engineering projects with Indigenous communities in Manitoba. Findings will be used to inform engineering curriculum design that are enhanced by Indigenous knowledges and perspectives.

scholarly journals Wise Practices for Cultural Safety in Electronic Health Research and Clinical Trials With Indigenous People: Secondary Analysis of a Randomized Clinical Trial

10.2196/14203 ◽  
2019 ◽  
Vol 21 (11) ◽  
pp. e14203 ◽  
Author(s):  
Marion A Maar ◽  
Valerie Beaudin ◽  
Karen Yeates ◽  
Lisa Boesch ◽  
Peter Liu ◽  
...  
Keyword(s):  
Clinical Trial ◽  
Indigenous Peoples ◽  
Indigenous Communities ◽  
Lessons Learned ◽  
Cultural Safety ◽  
Controlled Clinical Trial ◽  
Data Set ◽  
Evaluation Data ◽  
Electronic Health ◽  
Wise Practices

Background There is a paucity of controlled clinical trial data based on research with Indigenous peoples. A lack of data specific to Indigenous peoples means that new therapeutic methods, such as those involving electronic health (eHealth), will be extrapolated to these groups based on research with other populations. Rigorous, ethical research can be undertaken in collaboration with Indigenous communities but requires careful attention to culturally safe research practices. Literature on how to involve Indigenous peoples in the development and evaluation of eHealth or mobile health apps that responds to the needs of Indigenous patients, providers, and communities is still scarce; however, the need for community-based participatory research to develop culturally safe technologies is emerging as an essential focus in Indigenous eHealth research. To be effective, researchers must first gain an in-depth understanding of Indigenous determinants of health, including the harmful consequences of colonialism. Second, researchers need to learn how colonialism affects the research process. The challenge then for eHealth researchers is to braid Indigenous ethical values with the requirements of good research methodologies into a culturally safe research protocol. Objective A recent systematic review showed that Indigenous peoples are underrepresented in randomized controlled trials (RCTs), primarily due to a lack of attention to providing space for Indigenous perspectives within the study frameworks of RCTs. Given the lack of guidelines for conducting RCTs with Indigenous communities, we conducted an analysis of our large evaluation data set collected in the Diagnosing Hypertension-Engaging Action and Management in Getting Lower Blood Pressure in Indigenous Peoples and Low- and Middle- Income Countries (DREAM-GLOBAL) trial over a period of five years. Our goal is to identify wise practices for culturally safe, collaborative eHealth and RCT research with Indigenous communities. Methods We thematically analyzed survey responses and qualitative interview/focus group data that we collected over five years in six culturally diverse Indigenous communities in Canada during the evaluation of the clinical trial DREAM-GLOBAL. We established themes that reflect culturally safe approaches to research and then developed wise practices for culturally safe research in pragmatic eHealth research. Results Based on our analysis, successful eHealth research in collaboration with Indigenous communities requires a focus on cultural safety that includes: (1) building a respectful relationship; (2) maintaining a respectful relationship; (3) good communication and support for the local team during the RCT; (4) commitment to co-designing the innovation; (5) supporting task shifting with the local team; and (6) reflecting on our mistakes and lessons learned or areas for improvement that support learning and cultural safety. Conclusions Based on evaluation data collected in the DREAM-GLOBAL RCT, we found that there are important cultural safety considerations in Indigenous eHealth research. Building on the perspectives of Indigenous staff and patients, we gleaned wise practices for RCTs in Indigenous communities. Trial Registration ClinicalTrials.gov NCT02111226; https://clinicaltrials.gov/ct2/show/NCT02111226

INTEGRATED METHODOLOGY FOR TAKING INTO ACCOUNT THE VIEWS AND OPINONSOF INDIGENOUS PEOPLES IN THEIR INTERACTION WITH PUBLIC AUTHORITIES (ON THE EXAMPLE OF THE YAMAL-NENETS AUTONOMOUS DISTRICT)

2020 ◽  
Vol 6 (2) ◽  
pp. 124-147
Author(s):  
Elena F. GLADUN ◽  
Gennady F. DETTER ◽  
Olga V. ZAKHAROVA ◽  
Sergei M. ZUEV ◽  
Lyubov G. VOZELOVA
Keyword(s):  
Indigenous Peoples ◽  
Citizen Participation ◽  
Indigenous Communities ◽  
The Arctic ◽  
Legal Issue ◽  
Public Authorities ◽  
Autonomous District ◽  
Integrated Methodology ◽  
The World ◽  
Nenets Autonomous

Developing democracy institutions and citizen participation in state affairs, the world community focuses on postcolonial studies, which allow us to identify new perspectives, set new priorities in various areas, in law and public administration among others. In Arctic countries, postcolonial discourse has an impact on the methodology of research related to indigenous issues, and this makes possible to understand specific picture of the world and ideas about what is happening in the world. Moreover, the traditions of Russian state and governance are specific and interaction between indigenous peoples and public authorities should be studied with a special research methodology which would reflect the peculiarities of domestic public law and aimed at solving legal issue and enrich public policy. The objective of the paper is to present a new integrated methodology that includes a system of philosophical, anthropological, socio-psychological methods, as well as methods of comparative analysis and scenario development methods to involve peripheral communities into decision-making process of planning the socio-economic development in one of Russia’s Arctic regions — the Yamal-Nenets Autonomous District and to justify and further legislatively consolidate the optimal forms of interaction between public authorities and indigenous communities of the North. In 2020, the Arctic Research Center conducted a sociological survey in the Shuryshkararea of the Yamal-Nenets Autonomous District, which seems to limit existing approaches to identifying public opinion about prospects for developing villages and organizing life of their residents. Our proposed methodology for taking into account the views of indigenous peoples can help to overcome the identified limitations.

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