scholarly journals Understanding Social Support Programs for Individuals Living with Type 1 Diabetes: The Perspectives of Support Program Leaders

Author(s):  
Patrick Brady ◽  
Hee-Jung Song ◽  
Nadine Sahyoun ◽  
Mira Mehta
2015 ◽  
Vol 33 (3) ◽  
pp. 159-159
Author(s):  
Ashby F. Walker ◽  
Desmond A. Schatz ◽  
Cathryn Johnson ◽  
Janet H. Silverstein ◽  
Henry J. Rohrs

Author(s):  
Kristin G. Maki ◽  
Aisha K. O'Mally

Social support has been linked with many health outcomes, ranging from heart disease to depression. Although its importance has been recognized, less is known about how individuals with chronic illnesses may use social media to provide and seek social support. This chapter's focus is on the way in which people with Type 1 diabetes (T1D) use social media to provide and solicit social support. A mixed-methods approach is utilized. First, posts from two social media platforms were qualitatively content analyzed. Second, the data were quantitatively analyzed to provide a finer-grained understanding of the messages. The results show informational support as the most prevalent on both sites, although there are some differences in content and use. This chapter's implications highlight the importance of social media as a conduit for social support among caregivers and individuals affected by T1D.


2019 ◽  
Vol 15 ◽  
pp. P1244-P1244
Author(s):  
Laura Kate Farnsworth ◽  
Paola Gilsanz ◽  
Mary E. Lacy ◽  
Andrew J. Karter ◽  
Chloe W. Eng ◽  
...  

2006 ◽  
Vol 22 (1) ◽  
pp. 53-58 ◽  
Author(s):  
Ruth Cheung ◽  
Virginia Young Cureton ◽  
Daryl L. Canham

Quality of life in adolescents with Type 1 diabetes is a growing area of interest in pediatric research. The complex diabetes regimen imposes challenges for an adolescent. Adolescents diagnosed with diabetes are a group that appears to be at risk for having a poor health-related quality of life. Although research supports the positive relationship of social support and well-being in adolescents, there are few studies discussing quality of life in adolescents that are based on the factor of social support. This study compared the quality of life in adolescents with Type 1 diabetes who have attended at least one diabetes camp to the quality of life of those who have never attended diabetes camp. Results provided evidence of the value of social support.


2020 ◽  
Vol 46 (2) ◽  
pp. 191-196
Author(s):  
Susan Sullivan-Bolyai ◽  
Carol Bova ◽  
Kimberly Johnson

Purpose The purpose of this study was to develop and evaluate the psychometric properties of the Peer-Mentor Support Scale (PMSS), a measure of peer-mentor support provided to parents of children with type 1 diabetes (T1D) and to youths with T1D. Methods A multistage process was undertaken to include the following: item construction based on qualitive data from those who have experienced peer-mentor support, cognitive interviewing with parents and youths, content validity assessment, pilot testing of the scale, and psychometric evaluation of the PMSS with 165 participants. Results The final version of the PMSS included 17 items, scored on a 4-point Likert scale, with higher scores corresponding with greater peer-mentor support. The Cronbach’s alpha was .85 (n = 165), and the intraclass correlation coefficient was .78 (n = 38). No significant relationship was found between the PMSS score and general social support, suggesting that peer-mentor support is distinct from general social support. Principal components factor analysis with varimax rotation was performed, indicating that the scale was unidimensional and explained 59.3% of the variance in peer-mentor support. Conclusion The PMSS is a reliable and valid 17-item instrument that can be used to measure the unique contributions of peer mentorship for parents of children with T1DM and for youths with T1DM.


2011 ◽  
Vol 50 (2) ◽  
pp. 209-216 ◽  
Author(s):  
Gabriele Forlani ◽  
Chiara Nuccitelli ◽  
Chiara Caselli ◽  
Simona Moscatiello ◽  
Arianna Mazzotti ◽  
...  

2021 ◽  
Vol 45 (7) ◽  
pp. S3
Author(s):  
Nancy Wu ◽  
Susan Wang ◽  
Anne-Sophie Brazeau ◽  
Elham Rahme ◽  
Meranda Nakhla ◽  
...  

2012 ◽  
Vol 40 (4) ◽  
pp. 400-411 ◽  
Author(s):  
Antje Horsch ◽  
Freda McManus ◽  
Paul Kennedy

Background: The experience of having a child diagnosed with type 1 diabetes mellitus (T1DM) can negatively impact on the mother's well-being and trigger posttraumatic stress symptoms. To date, only one study has examined the role of non-cognitive factors in predicting the occurrence of PTSD in parents of children diagnosed with diabetes. However, in the broader PTSD literature is has been shown that both non-cognitive variables and cognitive variables predict PTSD in traumatized populations. Aims: The current study aimed to investigate the relationship of both non-cognitive (trauma severity, psychiatric history and social support) and cognitive variables (negative cognitive appraisals and dysfunctional cognitive appraisals) with PTSD in mothers of children recently diagnosed with diabetes. Method: A single group survey design and self-report questionnaires were used to investigate the relationship between both non-cognitive (trauma severity, psychiatric history and history of trauma, and social support) and cognitive factors (negative cognitive appraisals and dysfunctional strategies) and PTSD symptoms in mothers of children who had been diagnosed with type 1 diabetes in the last 5 years. Results: All cognitive variables were positively associated with PTSD symptoms. In contrast, of the non-cognitive variables, only social support was significantly (negatively) associated with PTSD symptoms. Moreover, regression analysis found that cognitive variables explained variance in PTSD symptoms over and above that contributed by the non-cognitive variables. Conclusions: This supports the cognitive model of PTSD. The implications of the study with regards to early detection of and therapies for PTSD in this population are discussed.


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