scholarly journals Iranian participatory research impacts: A knowledge translation perspective

2020 ◽  
Vol 20 (5) ◽  
Author(s):  
Nina Loori ◽  
Jamal Ahmadzadeh ◽  
Kazhal Mobaraki ◽  
Ensiyeh Jamshidi ◽  
Nasrin Hossein Gholizadeh ◽  
...  
Keyword(s):  
Knowledge Translation ◽  
Participatory Research ◽  
Research Impacts

scholarly journals The use of a participatory patient engagement research project to meaningfully engage those with lived experience of diabetes and homelessness

2021 ◽  
Author(s):  
David J.T. Campbell ◽  
Rachel B. Campbell ◽  
Anna DiGiandomenico ◽  
Matthew Larsen ◽  
Marleane A. Davidson ◽  
...  
Keyword(s):  
Knowledge Translation ◽  
Participatory Research ◽  
Patient Engagement ◽  
List Type ◽  
Research Projects ◽  
Community Members ◽  
Disadvantaged Populations ◽  
Socially Disadvantaged ◽  
Academic Researchers ◽  
Group Members

AbstractIntroductionParticipatory research is a study method that engages patient partners in research programs from study design through to completion. It has seldom been used in diabetes health services research. Our objectives were to describe the process and challenges of conducting a patient-engagement project and to highlight the experiences of patient participants and academic researchers.Research Design & MethodsWe recruited PWLEH and diabetes in Toronto, Canada to be patient partners. Group members were asked to commit to attending biweekly meetings. We undertook two major research projects: Concept mapping to choose a research focus; and photovoice to explore accessing healthy food while homeless. We used a convergent mixed methods design to evaluate their experience.ResultsA diverse group of 8 PWLEH had an average attendance of 82% over 21 meetings – despite this success, we encountered a number of challenges to conducting this research. Group members reported that participation improved their ability to be self-advocates in their diabetes care and provided them with tangible skills and social benefits. Group members stated that they valued being involved in all aspects of the research, in particular knowledge translation activities, including advocating for nutritious food at shelters; presenting to stakeholders; and meeting with policy makers.ConclusionsThe use of participatory patient engagement research methods enables academic researchers to support community members in pursuing research that is pertinent to them and which has a positive impact. In our study, group members contributed in meaningful ways and also valued the experience.What is already known about this subject?Patient oriented research is important to public health research as it helps with the development of relevant interventions and knowledge translation.Participatory research is a form of research that maximally involves patients in all phases of the research.Participatory research has rarely been used in research on diabetes and diabetes-related interventions.What are the new findings?Patient engagement is important for studies involving socially disadvantaged populations with diabetes.Community members involved in research contribute substantially to research projects but also find the experience to be enriching and valuable.How might these results change the focus of research or clinical practice?Those who conduct research with and develop programs to provide diabetes care, especially to socially disadvantaged populations, should involve community members through all phases of the process to ensure the intervention is maximally useful for patients.

scholarly journals Catalyzing Action on First Nations Respiratory Health Using Community-based Participatory Research: Integrated Knowledge Translation through Strategic Symposia

2017 ◽  
Vol 2 (1) ◽  
pp. 57-70
Author(s):  
Tarun Reddy Katapally ◽  
Sylvia Abonyi ◽  
Jo-Ann Episkenew ◽  
Vivian Ramsden ◽  
Chandima Karunanayake ◽  
...  
Keyword(s):  
Knowledge Translation ◽  
First Nations ◽  
Participatory Research ◽  
Respiratory Health ◽  
Community Based Participatory Research ◽  
Integrated Knowledge Translation ◽  
Community Members ◽  
Community Based ◽  
Nations Community ◽  
Integrated Knowledge

 Assess, Redress, Re-assess: Addressing Disparities in Respiratory Health Among First Nations is an ongoing community-based participatory research initiative involving two First Nations communities in Saskatchewan. The initiative’s rationale is grounded in the ethos of transformative community-based participatory research and facilitated through integrated knowledge translation with the aim of building community capacity. The initiative’s goal was to engage community members to actively participate in all research phases, from the development of the research questions to dissemination of results and evaluation of community-chosen interventions that evolved from the results. After baseline assessment of predictors and indicators of respiratory health, a program of integrated knowledge translation was adopted. As part of this program, a community-researcher collaboration was put in place that produced two knowledge translation symposia. The two symposia have brought together First Nations community members, interdisciplinary researchers, federal and provincial policy makers, and multiple Aboriginal organizational stakeholders. The symposia provided a pathway for knowledge synthesis and sharing to ultimately integrate knowledge into practice and enable First Nations’ community capacity building in addressing and redressing critical respiratory health issues. This article delineates the processes involved in developing this model of integrated knowledge translation and highlights the continuing engagement with the participating communities supported by Knowledge Translation (KT) Symposia.

Unpacking knowledge translation in participatory research: a micro-level study

2016 ◽  
Vol 21 (4) ◽  
pp. 217-222 ◽  
Author(s):  
Ida Lillehagen ◽  
Kristin Heggen ◽  
Eivind Engebretsen
Keyword(s):  
Knowledge Translation ◽  
Participatory Research ◽  
Micro Level

scholarly journals Protocol for a qualitative study of knowledge translation in a participatory research project

BMJ Open ◽  
2013 ◽  
Vol 3 (8) ◽  
pp. e003328 ◽  
Author(s):  
Ida Lillehagen ◽  
Nina Vøllestad ◽  
Kristin Heggen ◽  
Eivind Engebretsen
Keyword(s):  
Qualitative Study ◽  
Knowledge Translation ◽  
Participatory Research ◽  
Research Project

scholarly journals Menopause experience in First Nations women and initiatives for menopause symptom awareness; a community-based participatory research approach

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Beate C. Sydora ◽  
Bonny Graham ◽  
Richard T. Oster ◽  
Sue Ross
Keyword(s):  
Quality Of Life ◽  
Knowledge Translation ◽  
First Nations ◽  
Participatory Research ◽  
Family Members ◽  
Community Based Participatory Research ◽  
Community Members ◽  
Community Based ◽  
Menopause Symptom

Abstract Background Little research has been conducted about menopause in First Nations women. In response to the wishes of Cree women living in Maskwacis, Alberta, to start a dialogue on menopause, we undertook community-based participatory research (CBPR) to explore menopause experience and raise awareness of menopause symptoms in the community. Methods The research adhered to the principles of Ownership, Control, Access and Possession (OCAP™) and was guided by the interest of the participating women. Local women (target age 40–65 years) were invited to participate in workshops using word-of-mouth and community posters in health centers. Five research workshops were held in community settings, attended by experienced women’s health researchers and consenting women. The participants guided the informal discussions. They also completed questionnaires which included menopause-related quality of life. The researchers used extensive hand-written field notes to record data; qualitative content analysis was applied to identify themes. Simple descriptive analysis was used for the questionnaire results. The findings were discussed at a community feedback session and laid the basis for further knowledge translation initiatives. Results The five workshops included a total of 37, mostly post-menopausal women with 6–11 women/workshop. The main discussion themes were: "experiences of menopause symptoms" including their impact on quality of life; "menopause knowledge prior to their own experience" with most women feeling that they had insufficient information before menopause; "menopause symptom management" which mainly included practical strategies; "impact of menopause on family members" which was of prime concern with uncontrollable mood changes affecting the whole family and sometimes causing matrimonial disharmony. Questionnaire responses corroborated the workshop discussions. Knowledge translation of the research findings produced two information pamphlets specifically for the Maskwacis community: one for husband/partner, the other for women and family members. These pamphlets have been distributed in all areas of the community. Conclusion This CBPR project addressed a topic identified by the community as being important. Community members developed informative pamphlets in response to the women’s concern of lack of understanding for menopause symptoms among families. This simple solution has been widely accepted by community members, opening the possibility of wider discussion about menopause.

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