scholarly journals Creating a sense of security in palliative home care: Interviews with public health nurses

2018 ◽  
Vol 3 (1) ◽  
Author(s):  
Karin Josefsson ◽  
Madeleine Bomberg ◽  
Madelene Krans
Keyword(s):  
Public Health ◽  
Home Care ◽  
Public Health Nurses ◽  
Palliative Home Care ◽  
Sense Of Security

scholarly journals How to support patients who are crying in palliative home care: an interview study from the nurses’ perspective

2016 ◽  
Vol 17 (05) ◽  
pp. 479-488 ◽  
Author(s):  
Kerstin Rydé ◽  
Katarina Hjelm
Keyword(s):  
Home Care ◽  
Qualitative Content Analysis ◽  
Close Contact ◽  
Structured Interviews ◽  
Palliative Home Care ◽  
Pain Anxiety ◽  
Explorative Study ◽  
Sense Of Security ◽  
Practical Support ◽  
Different Types

AimThe aim of this study was to explore how nurses can support patients who are crying in a palliative home care context.BackgroundIn palliative care the nurse has a central role in the team whose duty it is to create a sense of security and trust, as well as to give comfort and support the patients. The nurse’s responsibility is to identify different needs of the patients for support and develop a relationship with them. Patients may express their pain, anxiety, fear and suffering by crying. No studies have been found which focus on how nurses can support patients who are crying in different ways and crying for different reasons.MethodsA qualitative explorative study was performed. Semi-structured interviews were held with eight nurses aged 32–63 years (Median 40) working in Swedish palliative home care. The data were analysed using Qualitative Content analysis.FindingsIt was reported that the nurse should meet and confirm the patient during different types of crying episodes and should also be able to alternate between being close and physically touching the in such close contact with the patients, the nurse can provide emotional support by showing empathy, merely being present and letting the patients cry as much as they want. When the crying finally stops, the nurse can support the person by speaking with them, showing sensitivity, humility and respect for the patient’s wishes. A few examples of the patients’ need for information or practical support emerged. The nurse can emotionally support the person who is crying by just being present, confirming, showing empathy, offering a chance to talk and showing respect for their individual needs and the different ways they may cry.

Availability as key determinant in the palliative home care setting from the patients’ and family caregivers’ perspectives: A quantitative-qualitative-content analysis approach

2020 ◽  
pp. 1-10
Author(s):  
Kim Dillen ◽  
Melanie Joshi ◽  
Norbert Krumm ◽  
Michaela Hesse ◽  
Holger Brunsch ◽  
...  
Keyword(s):  
Home Care ◽  
Family Caregivers ◽  
Professional Competence ◽  
Factor Model ◽  
Qualitative Content Analysis ◽  
Structured Interview ◽  
Patient Centeredness ◽  
Palliative Home Care ◽  
Sense Of Security ◽  
Three Factor

Abstract Objective A sense of security is important in palliative home care. Yet, knowledge about which components contribute most to feeling secure from the patients’ and family caregivers’ perspectives, especially since the introduction of specialist palliative home care, is sparse. The goal of the current study was to determine the key components contributing to a sense of security and how they relate to each other as experienced by patients and family caregivers in specialist and generalist palliative home care. Methods The current sub-study, as part of a larger study, was performed in different regions in Germany. Palliative care patients and family caregivers of at least 18 years of age, being cared for at home were interviewed using semi-structured interview guides following a three-factor model and analyzed by using a combined quantitative-qualitative-content approach. Results One hundred and ninty-seven patients and 10 carers completed interviews between December 2017 and April 2019. The majority of patients were diagnosed with an oncological disease. Sense of security was mentioned particularly often suggesting its high relevance. We identified nine subcategories that were all mentioned more frequently by specialist than generalist palliative home care recipients in the following order of priority and relation: (i) patient-centeredness: availability, provision of information/education, professional competence, patient empowerment, and trust (ii) organizational work: comprehensive responsibility, external collaboration, and internal cooperation, and (iii) direct communication. Significance of results The work of specialist palliative home care services in particular was perceived as very effective and beneficial. Our findings confirm a previously developed three-factor model allowing for generalizability and revealed that availability was most important for improving the sense of security for effective palliative home care.

scholarly journals Dying within dyads: Stress, sense of security and support during palliative home care

PLoS ONE ◽  
2021 ◽  
Vol 16 (9) ◽  
pp. e0257274
Author(s):  
Maria Liljeroos ◽  
Per Milberg ◽  
Barbro Krevers ◽  
Anna Milberg
Keyword(s):  
Home Care ◽  
Family Caregivers ◽  
Attachment Style ◽  
Family Caregiver ◽  
Clinical Characteristics ◽  
Model Building ◽  
Palliative Home Care ◽  
Sense Of Security ◽  
The Family ◽  
Perception Of Support

Objectives To examine similarities and dissimilarities in patient and family caregiver dyads in their experience of stress, support, and sense of security. Methods 144 patients and their family caregivers participated. Patients were admitted to six Swedish specialist palliative home care units and diagnosed with a non-curable disease with an expected short survival. We analysed similarity patterns of answers within dyads (correlations) as well as dissimilarities, expressed as the difference between within-dyad responses. The latter were subjected to a model-building procedure using GLM, with 13 sociodemographic and clinical characteristics as independent variables. Results Within dyads, patients and family caregivers scored similar in their perception of support and sense of security with care. There was also dissimilarity within dyad responses in their perception of stress and support that could be attributed to sociodemographic or clinical characteristics. When patients scored higher levels of stress than family caregivers, the family caregiver was more likely to be male. Also family caregiver attachment style (attachment anxiety), patient age and the relationship of the family caregiver to the patient explained dissimilarities within the dyads. Conclusions Patients and family caregivers within the dyads often, but not always, had similar scores. We suggest that it is important that the healthcare staff identify situations in which perceptions within the dyads regarding stress and perception of support differ, such that they can recognise patients’ and family caregivers’ unique needs in different situations, to be able to provide adequate support and facilitate dyadic coping.

scholarly journals Situation of Home Care and Its Effectiveness: Analysis of Instruction Given to Clients by Public Health Nurses During Home Visit.

1999 ◽  
Vol 49 (3) ◽  
pp. 165-175
Author(s):  
Fumiyo Fujino ◽  
Masae Yajima ◽  
Yoko Mori ◽  
Misako Koizumi ◽  
Ayako Ohno
Keyword(s):  
Public Health ◽  
Home Care ◽  
Home Visit ◽  
Public Health Nurses ◽  
Effectiveness Analysis

Public Health Nurses' Population Focused Practice

2004 ◽  
Author(s):  
Donna Meagher-Stewart ◽  
Megan Aston ◽  
Nancy Edwards ◽  
Donna Smith ◽  
Eileen Woodford ◽  
...  
Keyword(s):  
Public Health ◽  
Public Health Nurses

Public health players: Enablers and barriers for public health nurses

2005 ◽  
Author(s):  
Jane Underwood ◽  
Andrea Baumann ◽  
Anne Ehrlich ◽  
Jennifer Blythe
Keyword(s):  
Public Health ◽  
Public Health Nurses

Tinjauan sistematis: Efektifitas Palliative Home Care untuk Pasien dengan HIV/AIDS

1970 ◽  
Vol 5 (1) ◽  
Author(s):  
Linlin Lindayani ◽  
Nenden Nur Asriyani Maryam
Keyword(s):  
Palliative Care ◽  
Home Care ◽  
Palliative Medicine ◽  
Cochrane Library ◽  
Palliative Home Care ◽  
Hiv Aids

Asuhan palitif untuk pasien dengan HIV/AIDS merupakan elemen inti dari asuhan pasien dengan HIV/AIDS. Asuhan paliatif yang berbasis home care saat ini menjadi elemen penting yang digunakan di berbagainegara. Akan tetapi, tidak ada studi atau tinjauan sebelumnya yang menganalisis efektifitas dari asuhanpaliatif yang berbasis home care pada pasien dengan HIV/AIDS. Tujuan dari tinjauan sistematik ini adalahuntuk mengevaluasi efektivitas Palliative Home Care untuk pasien dengan HIV/AIDS terhadap nyeri,pengendalian gejala, meningkatkan kualitas hidup, meningkatkan kepuasan asuhan, dan efektivitas biaya.Pencarian awal terbatas dilakukan di MEDLINE dan CINAHL. Kedua database tersebut dipilih denganpertimbangan bahwa keduanya merupakan database terbesar di bidang kesehatan dan kedokteran. Kemudiastrategi pencarian lainnya dilakukan pada database lain meliputi: Cochrane Library, UpToDate, Ovid, AIDSCare, Journal of Palliative Care, dan Journal of Palliative Medicine. Studi yang diterbitkan dalam Bahasa Inggrisdan tahun 2000-2016 dipertimbangkan untuk dimasukkan dalam tinjauan ini. Data diekstrak oleh penulis dandiringkas menggunakan alat ekstraksi data dari JBI (Joanna Briggs Institute). Kami menemukan 4 studi yangmasuk kedalam kriteria tinjauan kami, satu studi randomizes control trial dan tiga studi prospectively control.Hasil dari tinjauan ini menunjukkan bahwa Palliative Home Care terbukti efektif dalam mengontol nyeridan gejala-gelaja lain, mempertahankan dan meningkatkan kualitas hidup pasien, tingginya kepuasan daripasien dan kelurga terhadap asuhan Palliative Home Care berkisar 93% - 96% dan lebih cost-effectivenessdibandingkan dengan Hospital-Based Palliative Care. Dengan demikian, penting untuk mengembangkanPalliative Home Care untuk pasien dengan HIV/AIDS terutama untuk negara dengan sumber daya yang terbatas.

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