scholarly journals The Impact of Psychosocial Needs of Adolescent and Young Adult Cancer Patients: An Analysis of Clinical Trial Participation and Adherence

2014 ◽  
Author(s):  
Katherine Jensen
Keyword(s):  
Clinical Trial ◽  
Young Adult ◽  
Cancer Patients ◽  
Adolescent And Young Adult ◽  
Trial Participation ◽  
Psychosocial Needs ◽  
Clinical Trial Participation ◽  
Young Adult Cancer ◽  
The Impact

scholarly journals Knowledge of Clinical Trial Availability and Reasons for Nonparticipation Among Adolescent and Young Adult Cancer Patients

2018 ◽  
Vol 41 (6) ◽  
pp. 581-587 ◽  
Author(s):  
Margarett Shnorhavorian ◽  
David R. Doody ◽  
Vivien W. Chen ◽  
Ann S. Hamilton ◽  
Ikuko Kato ◽  
...  
Keyword(s):  
Clinical Trial ◽  
Young Adult ◽  
Cancer Patients ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer

scholarly journals Increased clinical trial enrollment among adolescent and young adult cancer patients between 2006 and 2012-2013 in the United States

2018 ◽  
Vol 66 (1) ◽  
pp. e27426 ◽  
Author(s):  
Helen M. Parsons ◽  
Dolly C. Penn ◽  
Qian Li ◽  
Rosemary D. Cress ◽  
Brad H. Pollock ◽  
...  
Keyword(s):  
United States ◽  
Clinical Trial ◽  
Young Adult ◽  
Cancer Patients ◽  
The United States ◽  
Adolescent And Young Adult ◽  
Clinical Trial Enrollment ◽  
Young Adult Cancer

Exploring cancer clinical trial participation in the new normal of COVID-19: The patient perspective.

2021 ◽  
Vol 39 (3_suppl) ◽  
pp. 461-461
Author(s):  
Martha Ann Raymond ◽  
Margaret-Ann Simonetta
Keyword(s):  
Clinical Trial ◽  
Clinical Trials ◽  
Cancer Patients ◽  
Patient Perspective ◽  
Ethnically Diverse ◽  
Cancer Clinical Trial ◽  
Trial Participation ◽  
Clinical Trial Participation ◽  
Diverse Communities ◽  
The Impact

461 Background: The impact of coronavirus (COVID-19) has significantly affected cancer patients seeking to enroll in a clinical trial. The pandemic has led to an unprecedented disruption across the cancer research community pausing trial operations. Data from the National Institute of Health and the National Library of Medicine indicates 988 cancer clinical trials were suspended from March – September 1, 2020, with 60% of institutions enrolling patients at a lower rate. Our research underscores the patient perspective of clinical trial participation amid COVID-19. Methods: July – September 2020 Nationwide eight-week online survey and interviews. Research goals: gain a better understanding of barriers and cultural attitudes of ethnically diverse communities regarding trial participation; learn the enhanced safety measures needed for patients to feel comfortable returning to the clinic; better understand the importance of effective patient-clinician communication. Results: 511 patient participants reported the following insights: 86% reported their healthcare team had not discussed trial participation; 99% reported being comfortable with telehealth visits for pre-screening and monitoring; 82% receive care at community-based hospitals. Barriers to enrollment and additional safety considerations include gaps in outreach and education services for ethnically diverse communities; absence of cultural sensitivity and disregard of historical perspective; financial insecurity and travel; and the need for increased COVID-19 testing, enhanced safety protocols and a proven vaccine. Participants identified their ethnicity as 38% Caucasian; 24% Black/African American; 19% Hispanic/Latino; 16% Asian; 2% Native American/Pacific Islander. Conclusions: Clinical trials provide patients access to the newest treatments, and yet only 2%-3% of adult cancer patients enroll in a trial. Common barriers to trial participation have been widely researched, but now amongst the coronavirus pandemic, additional barriers are evident. Based on our research, our call to action is clear: work with key opinion leaders in ethnically diverse populations to help build trust and mutual respect when discussing research studies; and engage patients and clinicians to openly discuss clinical trial enrollment working toward patient-centered communication. The coronavirus pandemic is a devastating public health threat, and it will take a collective effort from the entire cancer community to minimize the effect of COVID-19 on cancer clinical trial participation.

scholarly journals The Australian Youth Cancer Service: Developing and Monitoring the Activity of Nationally Coordinated Adolescent and Young Adult Cancer Care

Cancers ◽  
2021 ◽  
Vol 13 (11) ◽  
pp. 2675
Author(s):  
Pandora Patterson ◽  
Kimberley R. Allison ◽  
Helen Bibby ◽  
Kate Thompson ◽  
Jeremy Lewin ◽  
...  
Keyword(s):  
Clinical Trial ◽  
Young Adults ◽  
Cancer Care ◽  
Young Patients ◽  
Adolescents And Young Adults ◽  
Adolescent And Young Adult ◽  
Trial Participation ◽  
Clinical Trial Participation ◽  
Activity Data ◽  
Cancer Services

Adolescents and young adults (aged 15–25 years) diagnosed with cancer have unique medical and psychosocial experiences and care needs, distinct from those of paediatric and older adult patients. Since 2011, the Australian Youth Cancer Services have provided developmentally appropriate, multidisciplinary and comprehensive care to these young patients, facilitated by national service coordination and activity data collection and monitoring. This paper reports on how the Youth Cancer Services have conceptualised and delivered quality youth cancer care in four priority areas: clinical trial participation, oncofertility, psychosocial care and survivorship. National activity data collected by the Youth Cancer Services between 2016–17 and 2019–20 are used to illustrate how service monitoring processes have facilitated improvements in coordination and accountability across multiple indicators of quality youth cancer care, including clinical trial participation, access to fertility information and preservation, psychosocial screening and care and the transition from active treatment to survivorship. Accounts of both service delivery and monitoring and evaluation processes within the Australian Youth Cancer Services provide an exemplar of how coordinated initiatives may be employed to deliver, monitor and improve quality cancer care for adolescents and young adults.

Health Literacy in Adolescent and Young Adult Cancer Patients and Its Association with Health Outcomes

2019 ◽  
Vol 8 (4) ◽  
pp. 451-457 ◽  
Author(s):  
Diana Richter ◽  
Anja Mehnert ◽  
Dirk Forstmeyer ◽  
Jochen Ernst ◽  
Kristina Geue
Keyword(s):  
Health Literacy ◽  
Young Adult ◽  
Health Outcomes ◽  
Cancer Patients ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer

scholarly journals High Intensity of End-of-Life Care Among Adolescent and Young Adult Cancer Patients in the New York State Medicaid Program

Medical Care ◽  
2015 ◽  
Vol 53 (12) ◽  
pp. 1018-1026 ◽  
Author(s):  
Jennifer W. Mack ◽  
Kun Chen ◽  
Francis P. Boscoe ◽  
Foster C. Gesten ◽  
Patrick J. Roohan ◽  
...  
Keyword(s):  
New York ◽  
Young Adult ◽  
Cancer Patients ◽  
End Of Life Care ◽  
New York State ◽  
Adolescent And Young Adult ◽  
Life Care ◽  
Medicaid Program ◽  
York State ◽  
Young Adult Cancer
Sign in / Sign up

Export Citation Format

Share Document