scholarly journals Az informális ellátás mérése és egészség-gazdaságtani értékelése

2017 ◽  
Vol 158 (35) ◽  
pp. 1363-1372
Author(s):  
Zsombor Zrubka
Keyword(s):  
Quality Of Life ◽  
Health Economic ◽  
Informal Care ◽  
Economic Assessment ◽  
Future Research ◽  
Health Related Quality ◽  
Practical Applications ◽  
Related Quality ◽  
Health Related

Abstract: Informal care is non-financed care outside the realm of formal healthcare, which represents an increasing challenge for aging societies. Informal care has frequently been neglected in health economic analyses, while in recent years its coverage has increased considerably in the international scientific literature. This review summarizes the methodology of the health-economic assessment of informal care, including the objective and subjective metrics of caregiver burden, its financial and non-financial valuation and practical applications, with special emphasis on the introduction of care-related quality of life instruments (e.g. Care Related Quality of Life – CarerQoL instrument). Care-related quality of life is a different entity from health-related quality of life, the two cannot be combined, so their joint evaluation requires multi-criteria decision analysis methods. Therefore, it is important to determine the societal preferences of care-related quality of life versus health-related quality of life, and map the relationship of care-related quality of life with time. The local validation of tools measuring care-related quality of life, its more widespread practical application and the analysis of its effect on decision making are also important part of the future research agenda. Orv Hetil. 2017; 158(35): 1363–1372.

scholarly journals Health-Related Quality of Life in Children with Developmental Disorders

2021 ◽  
Author(s):  
Marina M. Schoemaker ◽  
Suzanne Houwen
Keyword(s):  
Quality Of Life ◽  
Developmental Disorders ◽  
Developmental Coordination Disorder ◽  
Autism Spectrum ◽  
Future Research ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Lower Hrqol

Abstract Purpose of Review (1) To give an overview of what is currently known about health-related quality of life (HRQoL) in three common and co-occurring developmental disorders: attention deficit hyperactivity disorder (ADHD), autism spectrum disorders (ASD), and developmental coordination disorder (DCD), and (2) to provide directions for future research. Recent Findings HRQoL is compromised in all three developmental disorders, affecting various domains of HRQoL. However, some domains are more affected than others depending on the nature of the core deficits of the disorder. Overall, parents’ rate HRQoL of their children lower than the children themselves. Children with ASD and ADHD with co-occurring disorders have lower HRQoL compared to those with singular disorders. Future studies in DCD are needed to investigate the effect of co-occurring disorder in this population. Summary Children with developmental disorders have lower HRQoL than typically developing children. Future research should focus on the effects of co-occurring disorders on HRQoL and on protective factors that may increase HRQoL. HRQoL should be a part of clinical assessment, as it reveals the areas in life children are struggling with that could be targeted during intervention.

scholarly journals DIFFERENTIATION OF HEALTH-RELATED QUALITY OF LIFE OUTCOMES BETWEEN FIVE DISEASE AREAS: RESULTS FROM AN INTERNATIONAL SURVEY OF PATIENTS

2018 ◽  
Vol 34 (5) ◽  
pp. 498-506 ◽  
Author(s):  
Olina Efthymiadou ◽  
Jean Mossman ◽  
Panos Kanavos
Keyword(s):  
Quality Of Life ◽  
Policy Decision ◽  
Future Research ◽  
Common Disease ◽  
Health Related Quality ◽  
Health Policy Decision ◽  
Related Quality ◽  
Health Related ◽  
Anxiety Depression

Objectives:Health-related quality of life (HRQoL) data generated by generic, preference-based instruments (i.e., EQ-5D) are highly demanded in health policy decision making, because they allow for direct comparisons of HRQoL outcomes between disease areas. We aimed to quantify HRQoL outcomes in breast cancer (BC), rheumatoid arthritis (RA), multiple sclerosis (MS), rare cancers (RC), and rare disease (RD) patients and understand the patterns that differentiate HRQoL outcomes between these disease areas, and more specifically between rare and more common disease population groups.Methods:An international, Web survey of patients measured HRQoL (EQ-5D-5L), self-perceived health (EQ-5D-5L Visual Analogue Scale), and additional QoL dimensions, such as patient disability level.Results:We received 675 completed responses. Average utility loss was 53.5 percent, 32.5 percent, and 33.3 percent for RD, RA, and MS patients, respectively, in contrast to 18.6 percent for BC and RC patients. Statistically significant differences (p < .05) were observed between disease groups in all EQ-5D-5L domain outcomes, apart from that of “Anxiety/Depression.” Severe and/or extreme problems were reported in performing usual activities for RD and RC (34 percent and 13 percent of overall problems reported respectively), mobility for MS (18 percent), pain/discomfort for RA (13 percent), and anxiety/depression for BC (7 percent) patients.Conclusions:We demonstrated significant differences in the dimensions that drive HRQoL outcomes between rare and more common diseases and showcased that the same EQ-5D utility may reflect very different severities depending on the patient population under investigation. Future research should examine whether outcomes in other, critical HRQoL domains not included in generic measures also highlight significant differences across disease areas.

scholarly journals Costs and Health-Related Quality of Life in Relation to Caries

2019 ◽  
Author(s):  
Lisa Kastenbom ◽  
Alexandra Falsen ◽  
Pernilla Larsson ◽  
Karin Sunnegårdh-Grönberg ◽  
Thomas Davidson
Keyword(s):  
Quality Of Life ◽  
Health Economic ◽  
Treatment Costs ◽  
Active Group ◽  
Economic Evaluations ◽  
Age Group ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Abstract Background Dental caries remains a common and expensive disease for both society and affected individuals. Furthermore, caries often affect individuals’ health-related quality of life (HRQoL). Health economic evaluations are needed to understand how to efficiently distribute dental care resources. This study aims to evaluate treatment costs and QALY weights for caries active and inactive adult individuals, and to test whether the generic instrument EQ-5D-5L can distinguish differences in this population. Methods A total of 1200 randomly selected individuals from dental clinics in Västerbotten County, Sweden, were invited to participate. Of these, 79 caries active and 179 caries inactive patients agreed to participate (response rate of 21.7%). Inclusion criteria were participants between 20-65 years old and same caries risk group categorization in two consecutive check-ups between 2014 and 2017. Results Treatment costs showed to be twice as high in the caries active group compared to the caries inactive group and were three times higher in the caries active age group 20-29 compared to the caries inactive age group 20-29. Differences between the groups was found for number of intact teeth according to age groups. In the EQ-5D-5L instrument, more problems relating to the dimension anxiety/depression was seen in the caries active group. QALY weights showed tendencies (non-significant) to be lower in the caries active group. Conclusions These findings highlight the need for efficient treatments and prevention strategies as well as adequate money allocation within dentistry. However, further research is needed to assess appropriate instruments for health economic evaluations.

scholarly journals Research trends and hotspots of Health-Related Quality of Life: A Bibliometric Analysis from 2000 to 2019

2020 ◽  
Author(s):  
Si Zheng ◽  
Anqi He ◽  
Yu Yan ◽  
Lingling Jiang ◽  
Peigang Wang
Keyword(s):  
Quality Of Life ◽  
Bibliometric Analysis ◽  
Well Being ◽  
Research Trends ◽  
Annual Number ◽  
Future Research ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Abstract Purpose To analyze the global scientific output of health-related quality of life (HRQoL) research and figure out general trends and hotspots in HRQoL. Methods HRQoL research articles were collected from the Web of Science (WOS) database between 2000 and 2019. A bibliometric analysis was performed based on the number of articles, citations, published journals, authors' address and keywords. Descriptive analysis, visualization of geographic distribution and keyword clustering analysis were applied to the collected data. Results The annual number of articles showed a growth over the past twenty years, but the annual TA (Total Citations) and annual CPA (Citations Per Article) were both in decreasing trends. Articles about HRQoL were more likely to be published in journals of multi-subject categories, The HRQoL research was mainly distributed across North America and Europe throughout the twenty years and ushered in a vigorous development worldwide after 2015. Research institutions with high productivity in HRQoL research were more inclined to collaborate, but the cooperation strength between domestic institutions was much greater than that between international institutions. There were a large number of author keywords were only used once or twice during 2000 to 2019. SF-36, EQ-5D, depression, obesity, disability, oncology, fatigue were identified as hot research areas. Also, dementia, HIV, chronic disease, OHRQoL, PRO, stress, well-being, the elderly, women and children may become new hotspots in future research. Conclusion This study provided an overall perspective on global research trends and hotspots in HRQoL research, as well as a potential guide for future research. Researchers need to strengthen international cooperation, as well as pay more attention to the standardization and unity of keywords in future study.

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