Photovoice as a Community-Based Participatory Research Method among Women Living with HIV/AIDS: Ethical Opportunities and Challenges

2012 ◽  
Vol 7 (4) ◽  
pp. 34-43 ◽  
Author(s):  
Michelle Teti ◽  
Cynthia Murray ◽  
LaShaune Johnson ◽  
Diane Binson
Keyword(s):  
Participatory Research ◽  
Research Method ◽  
Community Based Participatory Research ◽  
Community Based ◽  
Women Living With Hiv ◽  
Living With Hiv ◽  
Hiv Aids

6. DYADIC PERSPECTIVES ON SUPPORT FOR WOMEN LIVING WITH HIV/AIDS IN AUSTRALIA: AN EXPLORATORY STUDY

Sexual Health ◽  
2007 ◽  
Vol 4 (4) ◽  
pp. 286
Author(s):  
J. Russell
Keyword(s):  
Social Isolation ◽  
Support Needs ◽  
Community Based ◽  
Research Attention ◽  
Women Living With Hiv ◽  
Unique Nature ◽  
Heterogenous Population ◽  
Future Direction ◽  
Living With Hiv ◽  
Hiv Aids

There are more women than ever living with HIV/AIDS in Australia and this relatively small heterogenous population has received scant research attention. Women living with HIV/AIDS, face many complex and compelling challenges in managing this stigmatised illness in their everyday lives. This study sought to gain an understanding of these women's support needs. Semi-structured, in-depth interviews were conducted with two groups: women living with HIV/AIDS (Sydney and Melbourne, involved and not in advocacy); and HIV specialists (Sydney and Melbourne) treating women living with HIV/AIDS. There was a consensus view among both specialists and women that women: have limited knowledge of HIV/AIDS; have no collective or historical understanding of HIV/AIDS; are more likely to present late with HIV; experience diagnosis as extremely distressing; are not aware of the resources available including medical treatments; and are more likely to experience social isolation. Both groups recognised the need for psychological and social support. HIV specialists questioned the effectiveness of community based peer support, while women identified this as one of the most important forms of support. HIV specialists differed in their knowledge and views of CBOs, and this influenced their decisions on recommending these to their female patients. The unique nature of this stigmatised illness calls for the recognition of the contributions of all parties in efforts to address these support needs; the women living with HIV/AIDS, HIV specialists and community based organisations. Particularly in light of the potential for social isolation, inquiries into social structures that provide the opportunity to access social resources are arguably a future direction to advance knowledge in this area.

scholarly journals Critical Reflections on Individual Collages as a Research Method With Young Women Living With HIV in Zambia

2020 ◽  
pp. 216769682091663 ◽  
Author(s):  
Constance R. S. Mackworth-Young ◽  
Alison Wringe ◽  
Sue Clay ◽  
Mutale Chonta ◽  
Chipo Chiiya ◽  
...  
Keyword(s):  
Young People ◽  
Qualitative Methods ◽  
Participatory Research ◽  
Young Women ◽  
Research Method ◽  
Data Generation ◽  
Developmental Transitions ◽  
Women Living With Hiv ◽  
Art Based Research ◽  
Living With Hiv

Art-based research methods can enable young people to generate data that provide insights into their lives. We assessed the feasibility, value, and limitations of collages as a participatory research method to understand the experiences of young women living with HIV. Individual collages were created in participatory workshops, firstly in 2015 and secondly in 2017, by a cohort of young women living with HIV in Lusaka, Zambia. Collages were analyzed visually and thematically and compared to other qualitative methods. Participants engaged readily with making collages and expressed how the collages represented themselves. The collages conveyed aspirations, resilience, optimism, and identities beyond HIV. Other data generation methods focused more on challenges associated with HIV. The second collages demonstrated more complex portrayals of participants’ life and developmental transitions. Collages provided a feasible, effective, and therapeutic method of empowering young women living with HIV to tell their own stories and express their full selves.

Community-based participatory research to prevent substance abuse and HIV/AIDS in African-American adolescents

2004 ◽  
Vol 18 (4) ◽  
pp. 347-359 ◽  
Author(s):  
Marianne Marcus ◽  
Thomas Walker ◽  
J Michael Swint ◽  
Brenda Page Smith ◽  
Cleon Brown ◽  
...  
Keyword(s):  
Substance Abuse ◽  
African American ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
African American Adolescents ◽  
Community Based ◽  
Hiv Aids

scholarly journals Randomized controlled trial of a community-based intervention on HIV and nutritional outcomes at 6 months among women living with HIV/AIDS in rural India

AIDS ◽  
2018 ◽  
Vol 32 (18) ◽  
pp. 2727-2737 ◽  
Author(s):  
Adeline M. Nyamathi ◽  
Catherine L. Carpenter ◽  
Maria L. Ekstrand ◽  
Kartik Yadav ◽  
Dana Rose Garfin ◽  
...  
Keyword(s):  
Randomized Controlled Trial ◽  
Controlled Trial ◽  
Rural India ◽  
Community Based ◽  
Randomized Controlled ◽  
Women Living With Hiv ◽  
Living With Hiv ◽  
Nutritional Outcomes ◽  
Hiv Aids

Social support and postpartum adherence to HIV treatment: a community-based participatory research study in Russia

2020 ◽  
Author(s):  
Elizabeth J King ◽  
Anna Yakovleva ◽  
Shelbi R Lisecki ◽  
Elena Shastina ◽  
Natalia Sukhova ◽  
...  
Keyword(s):  
Social Support ◽  
Participatory Research ◽  
Research Study ◽  
Multivariable Analysis ◽  
Community Based Participatory Research ◽  
Hiv Treatment ◽  
Hiv Care ◽  
People Living With Hiv ◽  
Community Based ◽  
Living With Hiv

Abstract Background There are over 1 million people living with HIV in Russia, and less than half of them are on antiretroviral treatment (ART). Earlier in the epidemic, Russia was successful in implementing prevention of mother-to-child transmission programmes; however, there is a gap in knowledge about postpartum adherence to ART among women living with HIV (WLHIV). The objective of our research study was to identify which factors are associated with postpartum engagement in HIV care and treatment in Russia. Methods We conducted a community-based participatory research study in five Russian cities. We surveyed 200 WLHIV who had given birth within the previous 24 months about their use of ART. We used multivariable logistic regression to determine which types of social support are associated with adherence to ART in the postpartum period. Results Less than half (40%) of mothers reported being adherent to ART. Multivariable analysis showed that having a supportive family environment [aOR = 2.64, 95% CI (1.91–5.83)], and active engagement with other HIV-positive mothers [aOR = 2.20, 95% CI (1.04–4.66)] were positively associated with postpartum adherence to ART. WLHIV who had more than one child were less likely to be adherent then WLHIV with just one child [aOR = 0.44, 95% CI (0.22–0.91)]. Conclusion The support that new mothers have or do not have can play an important role in WLHIV adherence to ART. The findings from our study provide ideas for improving the likelihood that women will continue to engage in HIV treatment and care after pregnancy.

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